Great question! He’s Not paralyzed but extremely stiff! His syndrome affects all aspects of his life- growth/ physical characteristics, mental development and range of motion in his joints. His body is very stiff mostly related to low muscle tone and directly related to his syndrome. Therapy helps a ton with mobility in the body but he will always have to work hard and stretch to have good mobility in his joints!
@beth62882 ай бұрын
He is going to do great things this young man❤ he is a great fighter actually a warrior ,with all hes already been through most adults couldnt even be as 💪as he has become 🎉ill always be one of his cheerleader and you tube follower❤❤❤
@alexishubbard8410Ай бұрын
Alexishubbard
@alexishubbard8410Ай бұрын
😂😂😂😂😂🎉🎉🎉🎉🎉😂😂❤❤❤😂🎉🎉😢😢😢😮😮😮😅😊😊😊😊😅😅
@alexishubbard8410Ай бұрын
@@beth6288 6:41 6:42
@karenmacomber56923 ай бұрын
He is so talkative in the morning, he's so adorable
@mariontreisch77313 ай бұрын
Talkative? Does he answer? Or is he just vedgie ?
@nancyclavin25613 ай бұрын
Sebastian has come so far this past year!!!!! Many prayers for continued health and growth for your beautiful boy!!!
@decemberkat3 ай бұрын
He really has made amazing progress! I love his little personality blooming 🌻
@darak41873 ай бұрын
Sebastian is such a happy little boy. He is sitting up so well! Look how much he has grown. Thanks for sharing his progress with us!
@SueRosati3 ай бұрын
Sebastian's progress is astounding! He's not just gaining weight, he's gaining strength!!! Look how he holds his head up and those neck muscles!
@cathiestuart37903 ай бұрын
Hadn't thought of that until you mentioned, yes you are correct, he is holding his head upright more. I noticed in his last vid that he's gained weight, his legs are no longer thin, much more thick now.
@somersetflower3 ай бұрын
That chair has made all the difference xx
@maggietaylor94753 ай бұрын
Hi Stephanie. Your house is beautiful and immaculate! You did exactly the right thing by getting your chores done before you went out so you wouldn’t be anxious when you got home. Sebastian is so chatty in the morning, bless him xx
@amandavm3 ай бұрын
What a little chatterbox ... one day I'm sure there will be words. Sebastians progress since his heart op has been astounding. He tries different foods, he sips drinks, he chatters, he plays with his drum toy, he boogies, he rolls and wriggles. He's just beautiful and so smart ❤
@kellysnyder14053 ай бұрын
Sebs is small, perfectly fine in the rock chair! He's soothed and cradled and comfortable in it!❤
@tonidicapua58353 ай бұрын
He talked all day in this video!! Such a ham! To see him more active and talkative is so wonderful. You are both doing a great job at taking care and raising this guy. Keep up the good work.
@tamimaher60923 ай бұрын
Sebastian is such a character 😂. What a love❤
@LorieSmith-v9l3 ай бұрын
Sebastians advancing so much. He's smart. Bless his heart. He's so cute.
@jeanjacote58913 ай бұрын
Well here I go again! I say the same thing every time -How can this boy keep getting cuter every single time we see him?? He is such a funny, smart, cute, living doll. The dancing sends me over the edge. Love that long-legged boy! And you guys are the best parents ❤ Thanks for sharing with us.
@jeanniefox33503 ай бұрын
Those early morning snuggles are so precious! Sebastian has found his voice and he says “Hear me Roar” weather it’s vocal or hand tapping!🤣😂🫶🙏
@orangetabby32293 ай бұрын
Love it when Sebastian speaks his mind! This boy has a lot to say today 😊 His smile just makes me smile 😊
@christinerichardson69003 ай бұрын
Sebastian is so much stronger and verbal now. Love you and your family!❤
@Schmitty04043 ай бұрын
It sounds like Sebastian had quite a dream!! His smile and laugh are so contagious. Thank you for sharing. 💕
@thomascollins75393 ай бұрын
Sebastian is such a happy boy :-)
@sherriderossett80113 ай бұрын
Oh my goodness, he's precious in the morning. 😊❤
@musicmomma393 ай бұрын
He woke up in a good mood . So sweet
@kirstylfc283 ай бұрын
Is it just me or is it since Mexico Sebastian is just flourishing! Gaining weight, talking more and just seems all of a sudden to of progressed??
@Nan73063 ай бұрын
I loved this vlog! It’s nice to just see an ordinary day in your life with your family! I totally understand that routine is what keeps your anxiety under control. I am the same way I get stressed out and anxiety if I don’t stick to my routine.
@judyashton30303 ай бұрын
So sweet. Sebastián is really just amazing. He is talking so much more and using both of his arms a lot more. God could not have given this little miracle child any better parents and family. What a blessing and light you all are in this world and to this world. Sending love from Texas ❤
@LilyannRiley-qz7cz3 ай бұрын
I love this❤️ it love Sebastian he's so cute I have baby fever and it's a big case Sebastian's progress is remarkable
@maryanderson-r5l3 ай бұрын
Thanks so much for putting up more family vids. It is interesting to see how he interacts differently with each of you. He is growing so fast. I can't say enough how I admire the two of you and your parenting style. Stephanie, I also suffer anxiety big time, what you do to lower your level of panic is great!! Just love Sebastian and your whole family!!
@canadianbrit3 ай бұрын
Awwww Stephanie he’s just thriving !! Keep it up Mama ❤ your slaying it
@colleenford53983 ай бұрын
What a chatty guy in the mornin!!!! Watching him engage with his toy...hims dancin! LOVE IT! So sweet of the server at the sushi restaurant. Bringing him a lil pillow, etc.....love people like that! Not waiting to be asked, just doing! Was good seeing the 3 of y'all together! Love you! ❤❤❤❤❤❤
@karenknight95653 ай бұрын
Just found your channel. Beautiful little family! Morning chats are the best!🥰💙
@mlawson10133 ай бұрын
Sebastian is so amazing. Looking at older videos and now, the progress he has made is phenomenal. You guys see so much more than we do of course but these past videos have certainly shown he has grown up so much. He is very active and talkative now which is just a blessing to see and hear. School will be a big change for both you and him, but he is going to be the teacher(s) favorite for sure. Take it slowly and one day at a time. Soon he will get use to going and you will appreciate the break you will receive. Its going to be amazing and i can't wait to see a get ready for school video (if you choose to post one of course and if you have time) . ❤❤❤
@Inclusive1Always3 ай бұрын
Hey Steph! When it comes out, you should watch Inside Out 2 with Sebastian. It does a beautiful job of showing how anxiety (the new emotion introduced) is really trying to help us and protect us. I’m also an anxious person when it comes to my routines and loved watching how they framed anxiety in positive way in the movie, and how it can be helpful. ❤ Thought I would share from one anxious sister to another! 😊
@denisecarpenter29813 ай бұрын
I loved that movie. It is so good at the emotions. Cute
@pendlecurl3 ай бұрын
Hearing Sebastian's voice and seeing him smile makes our rainy day feel sunnier ❤️ 🇬🇧☔🌞🌻 xxx
@judylongoria58863 ай бұрын
lol he’s telling you good morning mommy I love you
@donnagargon12993 ай бұрын
Sebastian did so great today with his toy. I’ve seen so much progress he’s made since I first started following you. His personality is changed too. They will love him in school. Really enjoy your videos both with Cindy and just yours. 🌷💕
@bobbiecrawford32453 ай бұрын
He is a cutie cute. He looks like Dad. I love that you’re so patient and sweet with him.
@marilynfarmer61763 ай бұрын
He had a lot to say. He is so sweet. ❤ I love him so much.
@karenligus82243 ай бұрын
I love how much Sebastian is talking now. And all his smiles...he was happy to go for sushi. He's such a sweetheart! ❤
@MikkiGray3 ай бұрын
What a happy talkative little boy! So much to say, I love it! Also Steph, you look amazing. I'm jealous!
@stacypogue31833 ай бұрын
Hearing Sebastian talk is the best
@patk36013 ай бұрын
I'm not sure Sebastian is a morning person. He seemed a little cross at being woken up 😉. He knows where his food is. That's why he's rolling towards the wood. He's headed for the kitchen! Look at him sitting! Even though it was a hard decision, Stefanie, Geo and you made the right call in sending him to school. It is enriching his life and he's getting stronger. Even the way his feet he places his feet has improved. He's making progress with movement overall. He's doing great and it's because of Geo and you. It's cool seeing him doing a little head bopping. Some people need structure and routine. I'm glad you're recognizing that changes in routine aren't the end of the world and are doing things to cope. That is awesome! Congratulations - that shows wisdom. Now you can enjoy your time with Geo as your reward!
@kellysnyder14053 ай бұрын
❤❤❤
@sallynorton97763 ай бұрын
My day is always brighter with you guys!! Goood morning!!! ❤❤❤
@sandraruperti3873 ай бұрын
Mine too! Can't wait for the next video from my boo!
@hannahday5863 ай бұрын
Love seeing how happy Sebastian is he is so funny. Love you guys
@somersetflower3 ай бұрын
When I see you like this in the morning Sebastian I just want a BIG cuddle 😔 I'm not feeling too well, and YOU cheered me up. Thank you darling xxx😊 Janice 🇬🇧 xxx
@elliegoldie61402 ай бұрын
I remember you saying he won’t play with toys and now look at clever boy.Hes came on leaps and bounds since therapy and loves his drums.xx❤
@maritzachavez40953 ай бұрын
Hello, Sebastian progress is incredible, he seems like he is understanding more what it is happening around him, it makes me so happy and I congratulate all of you, specially you Stephanie, God bless you all
@arthurride56103 ай бұрын
So good to see chewing..and the adorable dimple,rock on sebastian.
@tamarasfavorites21162 ай бұрын
Such awesome dancing!! He's just so cute!!
@joblackstone59992 ай бұрын
Absolutely loved every thing about this video from good morning to goodnight 💙💖💙 loved watching him Boogie too his drum !!! Love him so much ♥️💙🙏🏽🥰
@florencekirsch3 ай бұрын
He has such a happy life
@angelalynch92863 ай бұрын
One if my favourite videos, Sebastian made me smile and laugh the whole way through especially playing his drums. Xxx
@amberbailey30723 ай бұрын
He done so well with sitting up in this video it was wonderful to see 😊😊💕
@lwu99473 ай бұрын
i was wondering this whole time why you didn't just get him a baby swing. I as so happy to see you put him in it. I kno people talk shit but he fits . He's small , he might want that swing for the rest of his life. i cant stand the haters on ur page. i luv yous guys.
@laylasingh89073 ай бұрын
he is growing so big ! I just love him ! He makes my day everyday ! ❤
@judylongoria58863 ай бұрын
lol he’s telling you good morning mommy I love you I think Sebastian is going to be in a rock band.
@johocutt3 ай бұрын
Such joy today from Sebastian and he wants to tell you all about it! Kept me smiling all the way through!
@candicesailsbury13553 ай бұрын
He’s so talkative 🥰 And rocking out to his drums ❤ Such a good eater 😊 Love y’all bunches 💙🩷💙🐶🦜
@nadiabruzac3 ай бұрын
Qu’il est attachant ce petit !! Il est vraiment adorable,on ne peut que l’aimer.
@SmilingBeaver-ou7nc3 ай бұрын
Such a lovely Family. You brightened my Evening Sebastian ❤💙💙🧸
@lisastokes94753 ай бұрын
Sebastian has rhythm 🎵 🎵, he’s very smart and he’s very handsome. Great 👍 job Stephanie. Enjoy your sushi dinner ❤❤🥰
@melissapetschinsky6913 ай бұрын
I have to say that you look fantastic Steph!
@heleenzuidhof87803 ай бұрын
He is getting so much more vocal, i love to hear it 💗💗
@gwenbrashier18843 ай бұрын
Mom....it took me ages to move across the gloor to over there and you moved me back. Lol. I love Sebastian on the baby cradle, he finds it so relaxing. You are such a happy boy talking to mom and dad first thing. Its adorable how the staff at the restaurant look after and care for Sebastian, and how he had a smile for them at the end. You are such a darling young boy, oh, and I love your funky dance moves too. ❤❤❤
@jonimosteller89463 ай бұрын
God bless him , he wants to talk so much❤️🩷💙💜and dads hair is very popular right now 👍He’s adorable feeling the beat🩷❤️look at you sweet heart , your a peanut looking so trim🦋🦋🦋
@philbyron77143 ай бұрын
He’s grown so much how well he’s doing it’s great to see ❤❤❤❤
@SandraBurgess-g4qАй бұрын
That Boy was puttin on a show at the first! I had to go back and watch again. Sebastian has definitely stolen my heart!!! It’s amazing how much he’s improved since the first of the year. Him dancing and Steph saying get it,he loves it!!!! I hope you two realize how much JOY he brings to me and others. Thank You for sharing him!!!!🩵💙🩵💙🩵💙😇 I don’t know why this just showed up in my feed (filmed a month ago) But I’m glad it did ❤❤
@jenbarclay46793 ай бұрын
Oh my gosh he’s doing so well! Which means you two are exceptional parents🩵 I feel like he might say “yes” soon…?
@cindykoehn76803 ай бұрын
Oh my goodness! Sebastian sure was chatting with you! I think he was telling you he wants you and Gio to take him the water park! He has grown so much! There’s nothing cuter than Sebastian’s smile, it lights the world 💙🩵 what a handsome, happy boy! 👦🏻🩵💙💜🩷💚
@AnaIsabelSanMiguelCamarero3 ай бұрын
Que imaginación
@Debs-d9r3 ай бұрын
I am just watching your vlog ,wow Sebastian is growing up so fast .he has come on so much ,I just wanted to say I love watching you all your a wonderful family ,thank you for sharing Sebastians progess he is doing wonderful xx
@hollyfeekings34513 ай бұрын
Remember when Sebastian couldn’t use his musical toy! He is making progress. Slow but sure wins the race!
@Fabviv3 ай бұрын
The dance is the BEST!!! ❤❤❤
@carolandrade68513 ай бұрын
Que bueno es escuchar a Sebastian tan animoso al despertar ❤❤❤❤
@barbarafrancis5333 ай бұрын
I remember when he couldn't hit the round spots. He has come so far.
@MaryMartinez-ob2mk3 ай бұрын
👋😇Stephanie George and lovely family, Its awesome to see 👀Sebastian talking he's such a cutie pie.Yous all are wonderful people.🌠Thank you so much for sharing your family with all of us.✨🕊God bless your entire family.✨🕊🙋How'd and love from Texas.💞 💙✌🏻💙
@kerrybarnes9893 ай бұрын
Can we just appreciate how Tall & how well Sebastian is looking!?. I love his morning chatter! He truly is flourishing & you two are amazing with him
@jeanmorgan54103 ай бұрын
I love the baby swing it’s ok he’s in it I had a baby swing for my three year old LP daughter to help her I enjoy your videos
@phyllisableidinger13613 ай бұрын
I'm amazed at Sebastian's growth he's such a sweetheart since your trip to Mexico seems he's just grown so much taller wt. gain he's doing so much more seems my daughter who' also has handicap does so much than Drs. ever said she would do she's now a adult goes to a work program of basically fun. She to is so adorable wouldn't have believed id ever see her so special and Sebastian will be the same thank God for special treatment.
@DonnaMellick-uu5gt3 ай бұрын
You 2are such good parents Sebastian is lucky to have you
@Saramdavis3 ай бұрын
What sweet little man he’s so funny ❤ he always makes me smile 😃
@kellysnyder14053 ай бұрын
Happy day!!!! Sebastián and family, nothing better!❤🎉
@donnathomson40483 ай бұрын
Sébastien is holding his head up so we'll. And those dance moves awesome. How is right arm/hand doing sweet boy.
@karolrust23003 ай бұрын
Talking up a storm, dancing up a storm, eating in the restaurant like a big boy ❤ Sebastian is making such amazing progress!!😊 He is very aware of his surroundings. Great vlog!!🎉
@biddiemutter34813 ай бұрын
28:33 When you're up so late you almost feel naughty but you are too tired to enjoy it😂
@denisecarpenter29813 ай бұрын
He is too cute dancing and playing music. ❤❤
@kimberlyfernandez37593 ай бұрын
That boy is growing up so fast! He is so smart and handsome. A typical boy likes to hit on something and be loud! So sweet.
@suziee63873 ай бұрын
Omg he really likes those drums!!🤣🤣 he was dancing too!! Too funny & cute!!!!
@SandraBurgess-g4qАй бұрын
I haven’t seen anything with Geo’s parents lately. I hope they are doing well. Love this little man!!💙🩵😇💙🩵😊🥰😘😉
@Meemagolding3 ай бұрын
Wow Sabastian has grown so much 💙‼️ He is AMAZING 🙌🏼💙‼️
@Meemagolding3 ай бұрын
I’m watching this for the 3rd time, Sabastian rocking out💙💙💙‼️
@ahitchcock65573 ай бұрын
Oh he's such a doll baby! Enjoyed the outing and seeing all the foods, and sebastian trying things. Love you all!
@tnblueeyes7773 ай бұрын
Sebastián is the cutest!!! His smile is priceless! If he likes the swing, let the handsome guy enjoy it! ❤❤❤
@nancyICUnurse3 ай бұрын
Sebastian is a total rock star! He’s playing the drums, singing, dancing-the perfect front man! Now we need a perfect name for the band! How about Sebastian and the Sillies! Has a ring to it, imo!! U both do a great job and r always so patient. I love love how u r constantly talking to him, asking him questions, getting him used to conversing! In my ICU patients who are sedated, paralyzed, medicated, I always come in to the room and speak to my patients just as if they were having a conversation with me. I tell them what time it is,the weather outside, even reading the funnies and horoscopes! I truly believe it helps encourage verbalization and really stimulates them! I’m a new subscriber but I’m really inspired by your family’s love and dedication to Sebastian!!! ❤🤘🏻🎸🥁
@tj-ts5mo3 ай бұрын
You have such a lovely family
@kimmcbride61183 ай бұрын
Oh God Bless this sweet young man He is changing so much ❤❤
@ceciliamasters59723 ай бұрын
Sebastian, you make me smile Lil Buddy!! Love you doll face!!💙💙
@ericaLivin3 ай бұрын
I steal my kiddos Squishmellows at time because they make such cozy pillows! 😂 Whatever makes you/him comfy and happy! 😊 I love his smile 😊Thats so wonderful he is learning to sign and knows "eat" HOW AMAZING 👏 Will they teach him to sign in school as well? He is grown and come so far!! You and Gio must be so proud of him!!! 😊
@juliebarron213 ай бұрын
I love that swing ting. I'm happy you've got it. When your wee Sebastian was in that yoga trapeze, he really liked it.
@luvtoyscollector33733 ай бұрын
Love his Jammie’s & his drum set. So cute 🫶
@robertbaker93773 ай бұрын
I love that little boy❤️
@yesseniasalazar2973 ай бұрын
Waw Sebastian ya tiene bastante fuerza, hasta golpea fuerte la mesa y el juguete 😮❤❤❤❤❤
@melissaharding81023 ай бұрын
He talking a lot now. I think he has the cutest smile and I love them dimples .. 🙏❤️👍
@iscrubone3 ай бұрын
Sebastian is Communicating more and more! He’s doing so well! Did I see a head nodding “yes”? Love your little family! ❤️❤️❤️❤️❤️
@dawngreene61453 ай бұрын
Hes telling all your business!!🤣🤣 Since the last surgery Sebastian has made so much progress. He's just growing so much. And he is so involved in things more. ( Jammin out too ) Lord I love me some Sebastian 💕💕💕💕 blessings to you all 1💕💕