Sudden Death in Epilepsy -- Quick Overview

[@nolanabramson5555]

This is how my sister passed away at 21 years old on June 16, 2023. I knew death from seizure was possible, but didn't think it was this common. My grandfather also struggles with seizures and is in rehab recovering from one right now.

[@gaylesbeautycorner1996]

This is how my best friend passed in May 2014 at 22 years old, I'm still in shock that it happened cos i had no idea this could happen 😢😢

[@elomelinio2968]

Why?

[@gaylesbeautycorner1996]

@@elomelinio2968 I wasn't aware that it could kill someone

[@elomelinio2968]

@@gaylesbeautycorner1996 can I have a second time?

[@gaylesbeautycorner1996]

@@elomelinio2968 what?

[@redalert2834]

Surely it's difficult/impossible to breathe during a tonic clonic seizure. If that continues for several minutes, would it not account for many of these sudden deaths? And if that is the mechanism, would you not expect cases of brain damage due to prolonged oxygen deprivation to be fairly common - when sufferers narrowly evade sudden death?

[@nicolemitchell446]

This is so sad and something I hadn’t really heard about. A 19 year old boy in my town died from this about 5 years ago. I thought it was just a very rare and unfortunate occurrence. Sadly a 17 year old girl passed away 2 days ago from the same thing. I live in a VERY small town. For this to have happened twice, to young people, so close to home, it’s heartbreaking. My condolences to those in the comments who have lost loved ones this way. So sudden and so tragic…

[@lastcall170]

My sister died this way.

[@Marco-nx5tj]

That sucks

[@addikittymeow6729]

my friend died last night to this.

[@maozselah3767]

My condolences on your sister's passing, I too recently lost a sister from the same spiritual attack

[@parikshit475]

And my sister had it today😥😥

[@joncapstones7650]

I’m so sorry to hear that. I know it may not seem like much but I will pray for you my friend.

[@Marco-nx5tj]

Thank you for the new video

[@Gladyslopez50714]

My mom died this way

[@mariahart5577]

My dad got epilepsy at 56 he’s now 64 and this is worrying me as his seizures are not getting better

[@MrMJmusicLover]

I take Dilatin for my epilepsy and as long as keep the medicine 💊💊💊 in my system, I'm seizure free for years. But it has to be the expensive brand, not the generic brand, that one is the most common brand doctors are recommending. DON'T GET GENERIC, GET THE REAL DEAL! IT DOESN'T MATTER HOW EXPENSIVE IT IS, SAVING ON COST IS NOT WORTH YOUR LIFE!

[@willowithywindle]

Thank you.

[@astrofrk]

I have status epilepticus, would this make me a candidate for SUDEP? Yes, I think I have the right to know as it's my life.

[@AndrewReevesNeurology]

I'm guessing you meant "had" status epilepticus. SUDEP is clearly more linked to those with convulsions, especially when the convulsions aren't under control.

[@astrofrk]

@@AndrewReevesNeurology No, I meant what I said as it happens to me every few months. And yes, the convulsions aren't under control when they occur. It happened five times last year and twice so far this year. The seizures continue until Emergency Services are shoving needles into my arms, I am usually unconscious by that time. I thought that if it happened in my sleep, that might be considered SUDEP.

[@AndrewReevesNeurology]

Yes, frequent status epilepticus, or even just frequent convulsions, does increase the risk of death--both from status epilepticus and death from SUDEP. They aren't the same thing, of course, but both are increased in those with uncontrolled epilepsy.

[@Sunlight-zx2ur]

Yes

[@GoldenRetrievers4President]

John Sparks Yes it does increase chances. I have had a very long status epilepticus situation and i5 definitely increases the chances of SUDEP. Any well trained neurologist or epileptologist can confirm this for you. It’s unfortunate.

[@garrettrose9444]

Is it known if the length of time of Generalized Tonic-Clonic/Grand-Mal Seizures bears any relation to the possibility of SUDEP?

[@elomelinio2968]

I had an epilepsy attack a year ago - it was probably alcohol-related - could it happen again?

[@Vibbe_rant]

During sleep ?

[@BY-ux9pi]

@@Vibbe_rantI had mine in the mornings just before I wake up

[@maozselah3767]

Hi I Lost A Sister In the Same Manner, I Have Come to Understand from My Research That It's A Spiritual Attack

[@tomstocks8380]

If I don't take my meds I get them, my belief if strong

[@anonymous-wc3ee]

@@tomstocks8380 myself. If I don't take my meds - it's a definite seizure. If I do then there is non. I am spiritual but God created doctors too and they are here to help us. I don't believe in neglecting medicine altogether if we're spiritual.

[@BY-ux9pi]

Really a spiritual attack ?

[@marielsandoval2991]

Does Sudep apply to absence seizures? My 9 year old son absence seizures are currently not under control.🥺

[@AndrewReevesNeurology]

SUDEP is generally not felt to be associated with absence seizures. It's more seen in those who have convulsions.

[@marielsandoval2991]

@@AndrewReevesNeurology Thank-you!

[@MrMJmusicLover]

As a child, I used to have frequent seizures despite being on medication. Once my mother switched to Dilatin ( the expensive brand, not generic) my seizures became under control and I went from frequent seizures to no seizures for years as long as I keep the medicine in my system.

[@christopherstrachen6562]

I'm a candidate for this people don't realise only my mum and dad do and did

[@TruDis01]

lol Doctors still haven't a damn _clue_ about epilepsy

[@godsdaughter3738]

So I'm gonna die

[@Vibbe_rant]

Hope you’re doing good ❤