SUMMER SCHOOL DISASTER!

Thursday July 7, 2016 Daniel went to his second day of summer school, and unfortunately I discovered that there was nothing prepared for his learning accommodations. The nurse was basically sitting there while the other higher functioning special needs children were doing writing prompts and playing trivia games and no one was "teaching" Daniel. Our nurses are not teaching aides. They are there with him, because of his medical care, continuous g tube feeds, etc. When I arrived to pick him up, I also learned that the head teacher of the summer school had not engaged with Daniel at all. I introduced myself to him, but he quickly went back to working with the other children and their aides etc. Daniel did have OT present, and she was trying to see what she could put together (which should have been done PRIOR to summer school starting)... and it really isn't her job. It isn't the nurses job. And the school system wont give Daniel a teaching assistant, or Para as they are called. So John and I decided to pull him out of summer school, where he clearly would be BORED watching everyone work and learn. We are addressing it with the school system, but he is not going back there. I was really really upset.
Welcome to our journey with Polymicrogyria (a rare brain deformity that our son Daniel was born with) , please subscribe to join our family and walk through life with us. Every day is a new step in the journey, find joy in the journey! Daniel has extensive medical problems and disabilities, but we have created a loving support structure for him, and the 5 of us, and our pets, find lots of joy and love. A very unique family dynamic for sure! ...... Julie Hasselberger
Channel Trailer and introduction • Welcome to Our Channel
Daniels Story Part One
• Daniels story Part One
Daniels Story part 2 the later years
• Daniels story Part 2 t...
DANIEL by ELTON JOHN cover by bjay1956 a special collaboration created and recorded for Daniel. Please go to John's channel and check it out. Thank you John.... This is a really special song for us...
• Elton John - DANIEL - ...
twitter @jhasselberger
Instagram jhasselberger
paypal,me link
paypal.me/JHasselberger
WE LOVE MAIL!!!!
Julie Hasselberger
PO Box 3611
Newtown, CT 06470
How you can help Daniel... we have a GoFund Me account... here is the link:
www.gofundme.com/caringfordaniel
~-~~-~~~-~~-~
Please watch: "HANGING BEACHBALL"
• HANGING BEACHBALL
~-~~-~~~-~~-~
#caregiver #specialneeds #familyvlogs #disabled #juliehasselberger #inspire #disabledchild

[@familyiseverything5799]

I love your hair. Love the waves. Hopefully the summer school gets figured out😕 peace to you💕

[@Trintneyw]

As a college student studying to be a teacher and someone who herself has Cerebral Palsy this hits close to home and is also unacceptable for Daniel to be treated this way. I remember being younger and my mom going neck and neck to get my teachers to teach me on grade level and realize I could survive and thrive in the regular classroom and after a very long time and advocates I was finally given that chance. Don't give up, Momma! As a future teacher, this is unacceptable. You are absolutely correct that Daniel deserves schooling and education just like anyone else. As teachers we are held responsible that all of our students reach certain learning standards and if that involves finding ways to modify and meet other needs of the child to learn then it has to be done. Children with special needs are just as capable of learning as others and they deserve the same treatment and opportunity as everyone else.

[@keepingitreal71]

I know that feeling hon... Sometimes things like this make those who are disabled feel unwanted... I went to Summer School to work on my math... I was in a class with all able bodied students.. When my mom went to leave me.. I cried... The teacher did nothing but the class stepped up and helped me feel better... It is so sad that kids with needs are often made to feel like outsiders.... Thank goodness for those kids that helped me through my time at summer school...

[@MeghansMoments]

Sounds like your nurse is AMAZING! Thank you for sharing the difference between Daniel's understanding of "celebrity" and "lunch". It's so important to share the differences in understanding for our children with special needs. That's horrible that the head teacher hasn't interacted with Daniel. :( My daughter's teacher last school year in a mainstream class. was a bit awkward with parents but great with kids, and that's all that matters for her. My heart feels for you that you feel like your son is being treated as an after thought. Hugs to you mama! xo

[@MeghansMoments]

Poor Daniel. Hopefully you can get everything set up for the fall. My little man's teacher has been moved to a new school for the fall. Thankfully, one of his EAs is staying (he's in an Autism-specific class) so he'll have one piece of continuity. I'll storm the school in late August for Sept start date.

[@barbaramaxwell1171]

As a special educator and also a guardian for a young woman living with autism and intellectual disabilities , I am so glad that you and your husband are strong advocates for Daniel. You , of course, know that Daniel is protected by federal laws and the school district is legally responsible for modifying and accomodating for Daniel and absolutely all of his work should be whatever the general ed curriculum is with the modifications and accomodations necessary to make it relevant to Daniel.

[@sandycan1]

Julie Daniel is a boy who deserves like any other boy or girl to have summer school activities set up for him!!!! I understand how you can feel upset because he is a piece of your heart and you love him so much and want him to have everything that he deserves !!! He s worthy ! You will voice that so Daniel can have what he should have! No you should not have to struggle to have all this for him and it's just not right but we live in a world that's not right I believe but please stay strong and know that there is love that surrounds you , family and friends , sending you hugs Julie 💞🙏🏼❤️

[@TheSchoenLife]

Thank goodness you have Judy to tell you what was going on. You and your family are in my prayers. The teacher should have reached out to Daniel to make him feel a part of the class. I have cried more than once how my kids were treated in special Ed by teachers and aides.

[@Julia-fh2ke]

I hope you're doing better today. I'm thinking about you and Daniel. I feel so bad you have to go through this, but you'll get through it! Keep thinking of the positive. ❤️

[@piebird042]

Thank you for sharing all of this with us and the world. I have worked in the field and not everyone has people to stand up for the kid like you and your nurses have. I wonder if the teacher was told that he didn't have to "deal" with Daniel because he comes with the nurse? I totally get it when you say "everything is a fight". That's how our life goes too.

[@jessicas2379]

I read what happened Julie. And that is such a loss for Daniel and you!!!! Such a waste of time as well. I have a disability as well and I hate it when they "say" that we will do this and that and nothing you say is true. Poor Daniel that he was bored during that time. You walk in to these situations thinking it'll be fine and everything will be fine and dandy but you run into problems. And Judy can't go to the bathroom that's freaking stupid and not right!!!! Keep talking to all your great fiends that will help you. Anyway this summer school sounds horrible and a waste of time. Ps love you vlogs I look forward to your videos everyday. And you husband is so funny I love when he is silly in the videos he makes me laugh

[@Belushi87]

its challenging and stressful to find proper care and schooling for special needs children/adults. it seems that they take certain areas of a program more seriously then others.

[@dellaiddon7171]

Wiv as I have been sent to do it Did my mom did the miv Still. Ytobi lkg ieie

[@elizabethgoff9041]

So sorry to hear about your summer school fiasco, hope school goes better for Daniel in the fall!

[@Anzuri]

I'm so sorry about what's been happening to Daniel at summer school no one should be treated that way and I believe they should have made special activities for him such as simple crafts were he would be assisted by a teacher. Daniel is very smart and enjoys activities just like everyone else. This video made me very sad and I really think you should try to get someone to check out this school situation. If they just leave him there with only a nurse and no social contact for hours that's considered abuse in my opinion. I will be praying for the best for your family.

[@Kiddly3000]

hugs when I was in special ed in school I seen kids like your son treated the same way I always wondered why they did not help them sometimes they leave a kid in charge of watch another special need school

[@millisagable9332]

Yeah so have I. It makes me wanna slap the teachers...

[@jessicahornbeck6332]

OK

[@mattphillips4260]

i would love to meet you and daniel when you do the videos with him in them it really cheers me up

[@valleygirlgg]

I'm so sorry you had that experience! Its a good thing he had a nurse with him. I would want an answer from the teacher. There is no excuse for him not talking with or engaging with Daniel like that. I don't blame you for being upset and defensive. That's your child and we all get defensive over our kids. I hope you guys have a great summer and Daniel will enjoy being at home with you and you wont have to worry about that now. God Bless. Hi Henry!

[@valleygirlgg]

Well you were nervous about it and we have those Mom instincts that kick in when something isn't right and yours were right on. I'm sorry it upset you so badly but I completely understand. You are such a good Mom and shouldn't have to go through that and neither should Daniel. Bless you and here's to better days :o)

[@craftcornerwithestherc2506]

Hang in there Julie. You are the best judge of Daniel's needs. No one will fight for him like his Mom will

[@cpchick81]

Just found your videos by the way, very good and real and natural. I am 34 years old and still fighting to get appropriate housing and services after years. I am from the UK and there they are great with old people, kids and just kind of leave you alone after age 18.

[@AuntBecsCreations]

Take a DEEP breathe! This too will pass and a new and better solution will present its self.

[@AuntBecsCreations]

Sounds like a good plan to me

[@morrismcnair9827]

what are some of the things that are on the i.e.p beside OT and Pt that the teacher could set up for Daniel to do?

[@JennaRocks1234]

win i was in school i was in special ed i can remember my mom comeing to school and fighting with the school and my mom pull me out of summer school cus i was bored and no one did not want to help me its sad that your nurse cant go to the bath room

[@aplam94]

Remember when I was in special ed class sometimes the kids in wheelchairs alone in the Corner and not involved them

[@amymacs5463]

So sorry to hear this ..... I feel as tho I'm heading down the same road here soon . Please cross your fingers for me . I hope Your boy gets the attention he deserves! P.s. I hate the fight too :(

[@LetsGetFitt]

So sorry the school didn't work out but Daniel will be happier at home and not bored. Sorry you had to cry but it's better for your health to just release those feelings rather then keeping them bottled up inside. Hang in there Julie~~~Sandy

[@danielonn2002]

Rewatching this Julie makes my heart ache. I wish educators would understand working with individuals with severe disabilities and invited them.

[@nicoles7628]

You are amazing, keep it up.

[@danielonn2002]

Oh I am sorry there were issues. I wish you could have worked this out before Daniel attended but apparently they do not know how to run a camp that meets Daniel's needs. My heart aches for both of you as I know how much Daniel loves going to school.

[@mememania1]

Sad so sad..............I will pray for you, Daniel, and your family.

[@gourmet2276]

I'm so sorry that you and Daniel are having this time.

[@gourmet2276]

I know you will. Be strong your both in my prayers.

[@loriscurlock8890]

Can you use an eye gazer or any type of speech board?

[@SuperBlackCat1313]

Julie may I suggest calling the ADA they are big on rights of the disabled and the parents.When I was wee lil and going to kindergarden they told my mom I could not attend cause it would effect other kids Normal kids.My mom called the ada and guess what she enrolled me in school the next day lol wow was the school mad.And I was mainstreamed.

[@pjmcgovern2277]

that is horrible your blood pressure is up look at your chest. Easy Mama, we need you healthy please , I am so sorry for him how could you even think of ignoring him. Your a good mom, chin up it will get better not all people are so cruel

[@sharinewman524]

poor Julie and Daniel....Daniel does a lot with his nurse/friends and family. Its ok to cry otherwise it builds up and you get sick

[@pjmcgovern2277]

Im so glad

[@lottiebastille3162]

That is so bad, how would they like to be left out? In the UK it is SO much different! Stay strong! 💪💖

[@lottiebastille3162]

***** I am physically disabled, and now I am 16 most of my care at school will be cut. I hope Daniel gets the help he needs and deserves!

[@AZChapman]

Daniel defiantly needs a TEACHER to work with him. Para's or nurses do not have the degree to work with kids that is why the teacher goes to college to learn how to teach students with disabilities. Daniel's IEP needs to have a transition plan for what is next after school.

[@SashasSpecialChannel]

Geez did the summer program get at all what type of child Daniel was coming into the program? Sasha's summer program there are all levels of kids verbal and non verbal autsic disabled they set up the program for all them and never exclude. That would have made me so mad like Daniel just needs to sit in the corner and watch I would have been so mad!

[@faithclark6019]

How many nurses do you have all together

[@flj7]

I'm incredibly frustrated for you. Special education was designed to provide a fair and equal education for ALL students. Daniel deserves an education that is appropriate for his needs and abilities! I hope you are able to find a good alternative for him this summer.

[@kariharrington3875]

I thought that school was bad news for Danel and I'm glad he's not going back. I'm sorry that you have another fight on your hands though.

[@kelleycoleman3056]

Hugs to you my mom has been in tough times with me at my school love Kelley

[@kelleycoleman3056]

Julie Hasselberger it's better I guess I graduated school in 1994. I live on my own and I have CP. I can walk I can talk with mobile problems,

[@brittanygooch6641]

hi julie so sorry this is happing to Daniel school but that is good you are not bring him back he can stay at home and great video

[@kjr1147]

so then everyone got quite and he did again but not when amanda was in the room

[@BethFlower7889]

How old is Daniel?

[@danielonn2002]

Julie could you sit down with the Director of the Camp with a copy of Daniel's IEP and tell him/her about the IEP Goals and that Daniel needs an appropriate placement with trained staff. Have you thought of looking at an Easter Seals Camp. Here in California we have a camp where people of all abilities of individuals with special-needs go and they swim, do activities based on their level for a few days. I can't believe they cannot make any accommodation and do fun things with Daniel. My heart aches to know that they can't work with you. Again if you need the Superintendent, Director of Special Educaiton go with you to the Extended School Year program to work on the IEP for the summer perhaps that is the way to go. Daniel is entitled to respite hours am I right? Let me know if I can help you with this. I am crying too knowing you are frustrated.

[@heatherterry5815]

Hi Shawn And Jack see you guys in the summer for summer school

[@shawnafsworld7431]

when I was in Special ed classes I had different types of needs. I had to have specialist come all the way to where I lived at in southern California the specialist would drive from San burnadino, which was over 1 hour way they and they'd come to my house and they'd work with me doing excersize that would help to strengthen my muscles and joints and it was through play because I was born with Hypotonia which is Weakness of my muscles and joints through out my whole body. It made me Floppy and limp and my mom was in the house with me and the specialist they'd show her things that would help me strengthen my muscles and joints. it was very good. I'm sorry that the school did that to Daniel. you need to keep fighting for Daniels rights. my mom has had to go to my local School District and talk to the head of the Special needs and climb the Corporate ladder if you have to. it's OK to get upset. Julie my mom has been there fighting for our her kids and all of our unique special needs and mental health places. Maybe the teacher doesn't know and understand Daniels needs. Believe me special needs teacher's and Dr's and even therapists some time's even need to be educated on a Child's / adult's different Types of conditions they may need it explained to them we've had to do that. with My Type of disability. you think people who work with people who have special needs would know more about disabilities. I have a Permanent Brain Damage due to my Natural mom drinking alcohol when she was pregnant with me. and because of that I now have "Fetal Alcohol Syndrome". I still help educate everyday people who work with people like me. on What Is F.A.S. ? because they don't know. was adopted just after i turned 2 years old. I tell you it drives my mom and i crazy. that these types of people who should know. don't know. We constantly think and wonder "Why dont you know what it is. ?" You know what i mean Julie. I understand exactly what that's like. I'm sorry your going through it. it's frustrating. and I'm sorry. my Fetal Alcohol Syndrome. / F.A.S. for Short. is the only type of disability that's 100% preventable

[@kennybrown1579]

It’s sad teachers are supposed to teach and but to comment some teachers are there for a paycheck

[@jhasselberger]

the schools were not great for Daniel, I am glad that we are beyond that.

[@lisatrail1544]

YOU DANIEL STAY HOME ALL SUMMER LOVE,LISA

[@abbyrundle5574]

You can be the best mom 👵 in your life but you’re the worst mother 😂if you’re not a mom 👵 you can’t have your child 👦 with your own kids you can have your kids and you can be your mom 👩 and ❤❤❤❤

[@abbyrundle5574]

This it’s a good 👍 🎉well deserved and congratulations to winners in this category as they have all worked together so much well deserved success on all walks including in our community this morning thank for suey 🥰 and the team and community and euros to all of the entries have given them some great insights with every single day and thanks 🤩 uwu😅 we

[@kirstinbenson5606]

I love you like friends and family

[@heatherterry5815]

Hi Fabian see you guys next summer

[@heatherfischer181]

You do more with him then the school dies so don't even send him to school it doesn't make any sense because there's not anything they're going to do for her because they don't care

[@heatherfischer181]

Why can't you just take him out of school it doesn't make any sense if they're not doing anything with him

[@mattphillips4260]

can you not get daniel home schooled where you can be more on top of things this is just hedious

[@jessicas2379]

Good call on keeping him at home!!!! He shouldn't go there again. You didn't have to pay for that program did you??? Don't apologize for rambleing about it. I know it's a fight with school argggh I hate it. My parents had to fight for EA support in kindergarten cause my sister and I would not get EA support and that would be bad if we didn't we would fall behind and who knows what grade level I would be if I didn't have great parents to fight and a great principle that helped my parents.

[@kjr1147]

he can say candy but it sounds like he said kealy but when I do I do spread the word so for example kea-ly so I just do small word and if he doesn't answer in English I look up the word on my phone then amanda would say do u want to dink juice or she would ask him are u done and if he still don't answer us then I will go ip to him and do sign language asl with him and he does answer me most of thetime. and when he crys a little he just wanted to get out of his chair and when he crys a lo5 frist he wil take for a walk with amanda and me and if he doesn't want to go for a walk he said his wet. now we allnow and when he coame back he was so happy he kicked off his shoes

[@angelomarzullo6107]

Love you Julieanne

[@kjr1147]

and eveyone called me gils little helper like when irs ssr that means student silent reading but not me becase I was reading to gil and say I had a robot book and batman he would get to choose and if he licks for both I ask him again and wash his body so I read him the batman book to him and he will get ready ecited when I read to him and talk to him

[@danielonn2002]

What an irresponsible Director who is ignoring Daniel . He could be reported as part of his job is to work with all abilities. If I were the Director of this program I would have integrated Daniel with Music Therapy, Movies, work on the skills per his IEP etc. I would send home a daily log and you could write in the log your concerns and I would collaborate with the nurses etc. I am afraid you need to go to this young man's superior with regards to your concerns. Probably the kids at this program have High Functioning Autism,ADD/ADHD. Daniel is very smart and if I were living close to you I would do anything to help you with advice as I understand multiple facets of how to navigate the Special Education System. If you need anything please feel free to reach out to me(:. I am sure Daniel can feel when he is left out or ignored.

[@mirandaharness5564]

I prayed

[@millisagable9332]

Julie I would throw a fit! thats BS!!!

[@graceterry6354]

Hi Daniel

[@kjr1147]

I wish I could help becase my best friend gil he is just like Daniel he doesn't write but he click with his tongue 1 click means yes and 2 click means no and I am trying to get him to say Kealy and when he was in 7th grade with me we were on the computer and I ask if he wanted to do abcya and he said no with his head and when his aide amanda left I ask him if he wated to play cool math with me and je said yes in Spanish

[@Classof201475]

😢😢😢😥😥😥😥😥😢

[@paulaylward5565]

I would love to help Daniel and get together with him and have a great time with him I have a disability called spinel bifida and use a wheelchair so I could work with Daniel

[@faithclark6019]

Okay

[@tillydog]

Julie, I dont know if this link is any good to you. Have a look at Camp Hemlocks. www.ct.gov/kids/cwp/view.asp?a=4072&q=478302 That's lousy that the school has let Daniel (and you guys too) down

[@angelomarzullo6107]

I am to here that julie

[@josiahhorner6705]

This highly pisses me off

[@jhasselberger]

I'm glad he is no longer in school. Public school was not a good option for Daniel, but we stuck it out for the last couple of years.

[@josiahhorner6705]

@@jhasselberger may I message you on Facebook?

[@shawnafsworld7431]

when I was in Special ed classes I had different types of needs. I had to have specialist come all the way to where I lived at in southern California the specialist would drive from San burnadino, which was over 1 hour way they and they'd come to my house and they'd work with me doing excersize that would help to strengthen my muscles and joints and it was through play because I was born with Hypotonia which is Weakness of my muscles and joints through out my whole body. It made me Floppy and limp and my mom was in the house with me and the specialist they'd show her things that would help me strengthen my muscles and joints. it was very good. I'm sorry that the school did that to Daniel. you need to keep fighting for Daniels rights. my mom has had to go to my local School District and talk to the head of the Special needs and climb the Corporate ladder if you have to. it's OK to get upset. Julie my mom has been there fighting for our her kids and all of our unique special needs and mental health places. Maybe the teacher doesn't know and understand Daniels needs. Believe me special needs teacher's and Dr's and even therapists some time's even need to be educated on a Child's / adult's different Types of conditions they may need it explained to them we've had to do that. with My Type of disability. you think people who work with people who have special needs would know more about disabilities. I have a Permanent Brain Damage due to my Natural mom drinking alcohol when she was pregnant with me. and because of that I now have "Fetal Alcohol Syndrome". I still help educate everyday people who work with people like me. on What Is F.A.S. ? because they don't know. was adopted just after i turned 2 years old. I tell you it drives my mom and i crazy. that these types of people who should know. don't know. We constantly think and wonder "Why dont you know what it is. ?" You know what i mean Julie. I understand exactly what that's like. I'm sorry your going through it. it's frustrating. and I'm sorry. my Fetal Alcohol Syndrome. / F.A.S. for Short. is the only type of disability that's 100% preventable

[@heatherterry5815]

Hi Daniel