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Daniel's New Wheelchair was delivered on Friday June 12th. It is much more comfortable than his old chair. He's healing fairly well but is still having problems with his incision.
Sarah decided to tint the ends of her hair pink and it came out so pretty.
About my channel.......
My middle son, Daniel John Hasselberger was born on November 22, 1997, with a rare brain deformity called Polymicrogyria. The deformity happened due to a virus called CMV, or cytomegalovirus. He has seizures, respiratory problems, can only eat by g tube, is in a wheelchair, can not speak, and has had countless surgeries and hospitalizations over his 17 years. We are a family of 5 from Sandy Hook, CT and this is our journey.
Every day is full of new things that we don’t expect. I am Julie, Daniel’s Mom. I left my full time career as an HR Director 11 years ago because Daniel needed me. The struggle, the sacrifices, the sibling love, and miracle after miracle.
Why did I create this channel? For support, to help other families dealing with the same diagnosis, to help me cope with depression and isolation, etc.
Julie Hasselberger
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/ @jhasselberger
My blog site about life with Daniel
www.raisingdanielhasselberger....
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WE LOVE MAIL!!!!
Julie Hasselberger
PO Box 3611
Newtown, CT 06470
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Please watch: "HANGING BEACHBALL"
• HANGING BEACHBALL
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