Surgery, Covid Testing, and a Broken Feeding Tube | A Whirlwind Week | Vlog 8

[@JackieMeadow]

I cannot tell you what a huge impact you have had on my life perspective. You are confronted with so much pain and hardship, but you respond with bravery and beauty. You are making such a profound impact in the world and you make me want to do more with my life. Thank you so much for sharing, your magic is far reaching and has helped me so much. Blessed be. ❤️🌿

[@Annabel.Margaret]

Thank you, I really appreciate you saying all that - it really means so much

[@caseystjohn8157]

Jacqueline Hide... Much Love, you're a beautiful soul too, keep shining bright :)

[@bigbufobufo]

Thank you for sharing this. You have such a great attitude about everything that you go through. Your strength is such an inspiration to us all.

[@mompuff6857]

Oh my goodness!! 😔😔 When I saw your rings I knew what you were going to say 😔😔!! I’m so terrible sorry 🦋!! My beautiful precious son got his first symptom at 17. He had the vascular kind. He was 21 😢😢 Dec 25th, 2016 when he lost his fight to (EDE) Ehlers Danlos Syndrome 😔😢. I will keep you in my prayers 🙌🏻🦋💜🙏🏻 Much love from Kentucky 🦋💜 Whoever reads this comment please keep me & my husband in your prayers we miss our beautiful son everyday & sometimes it feels unbearable!! God Bless you 🙌🏻🦋💜

[@SewSewDrew]

I’m in KY as well & will definitely be keeping you and your husband in my prayers

[@tenderheart7530]

💟🛐☮️

[@tammieparrishmiller3669]

I never had children and cannot begin to imagine your pain. I will say a prayer for you and your husband to find comfort and peace and somehow find joy again. I would like to say that there is but a thin veil between you and your son, and if you can find a peaceful state of mind (possibly a guided meditation) you can speak to your son and you will know he is right there. You will feel him by a sort of goosebump feeling on your neck. It's energy and you won't mistake what you're feeling. He's always been there with you whenever you have called his name or are even thinking of him. Be blessed.

[@marejensen8294]

@@SewSewDrew i am in kentucky too and have EDS....sadly the healthcare here in this state is horrible.....they have almost killed me many times and they are very neglectful.....and criminal in my opinion.....

[@Godhelpus62]

I’m so sorry for your loss. 💔. Both my children have had multiple health problems. Almost losing my baby girl practically killed me, so I can only begin to imagine your pain. She made it and is now in college. My son carries on with chronic health issues. God gets us through each day. I’ll be keeping you and your husband in my prayers - for God to comfort and strengthen you in the days ahead. 💗🙏🏻👼🏻✝️😇🇺🇸😷

[@FlyingWonderGirl]

I have a chronic illness (along with other health issues) that leaves me mostly stuck in bed. Today is a rough day for me. This made me feel less alone.

[@DaisyDebs]

Hugs x

[@christienebotha6363]

My daughter is also living with a chronic illness on a daily basis and when things get tough, just focus on BREATHING through your day and getting through to the next minute 🙌🙏 tomorrow you deal with the days challenges. Just focus on the moment, moment-by moment. 😇💐 Sending hugs and prayers.

[@SarahDavisSings]

Another spoonie here - it can feel lonely, but we're with you. You aren't alone.

[@tracypearson6639]

Your definitely not alone..... hugs xox

[@sheiladyck5863]

Same here - several autoimmune issues and Rheumatoid Arthritis. This video is very inspirational!

[@lisablake4237]

I will never complain about my petty ailments again. Bless your heart Darling.

[@happinesss2]

me right now...

[@queentatoune]

Yes it's very humbling

[@nancybryant4325]

Exactly what I was thinking.

[@HospitalForSouls.X]

Nobody said it yet so I'll say something...don't be ashamed if you're caught up on small problems! Everybody has their own struggles and each struggle means something to them, personally. I used to feel ashamed of being affected by C-PTSD and depression, when I knew there were people my age who hadn't eaten in months and couldn't even find clean water or clothes. It made me feel like a horrible person. But I eventually realized that my problems were just as potent to me as theirs were to them. And we shouldn't compare our levels of illness or trauma!

[@MagdaleneRose]

so true...me too

[@gifuentes344]

you tought me that everyone has a story to tell. I never imagined the things you went through when I watched your videos.. you are an otherwordly creature. You are in the middle of the storm and yet you are so peaceful, descent and beautiful in every sense. Love from Argentina

[@kaitlyngentilin5541]

As an ER nurse, stories like yours are the reason I stay in healthcare. We have so much to learn from your tenacity, wisdom, and perspective. When you said you went to surgery without sedation I thought, man what a bad ass! I love the idea of someone participating in what is happening to YOUR body. Participatory surgery. :) I am always so amazed how persons with chronic conditions have the capacity to have a uplifting perspective. Thank you for sharing, you are an inspiration to us all, a reminder that we have choice in our perspective, no matter what our circumstance.

[@maryburchnell7741]

kaitlyn gentilin d

[@beewills9492]

Awesome comment

[@debbieduffy5121]

Love this! God bless nurses everywhere. 💕

[@elizabethculpepper4050]

I myself deal with a chronic condition and your comment made me cry. Thank you so much. I needed this today. Thank you.

[@katiemoyer8679]

It can be very difficult to convince providers to not give anesthesia when it is standard. I’ve had three root canal with out shots, I’d say it was difficult to persuade the Endondontist doc to do this, and maybe the procedure was harder on doc than me.

[@fae64]

As someone with tourette’s, this is wonderful to see that someone that also struggles with an health issue still appreciates each moment. Thank you.

[@josephnewadventure6758]

I also have tourettes it's very painful and stressful and my vocal and motor tics are bad. I have a feeding tube. And I use a wheelchair to get around. And most of the time I have to be strapped down to my wheelchair what is spasms. And for my motor tics . And I love volunteering in the world it keeps me busy. I love volunteering and giving back to our world. Happy greetings and best wishes to you and all the best.

[@jessicacanfield5408]

@@josephnewadventure6758 my daughter has tourette's also. She is not as bad that she can not walk and I pray she won't. I thank you for sharing this It brings to me that my daughter is not alone. May you be blessed

[@AC-qz3uj]

I am a western doctor currently training to become a Chinese doctor as well. I thoroughly adore your slow paced videos that are just beautiful to watch. When you said you were a troublemaker for the doctors, that hit me. Never ever think you are the problem. Just the way you phrased it so compassionately shows how it cannot be you :-) sending all the energies you need from across the pond!

[@cutesybunny3360]

RUN from Western medicine!!!! I took my entire family OUT of western MEDICINE. Why, you ask???? Your western cancer Dr Surgeon IMPLANTED ME DURING A SURGERY TO REMOVE MY DEAD CHILD FROM MY UTERUS. YES, THIS IS SO. THIS I FOUND IS BEING DONE WORLD WIDE. I WAS TOLD A WORLD WIDE STUDY. IT IS A CRIME AND AN ASSULT. PERIOD. THIS CANCER DR FINALLY ADMITTED IT, ONLY AFTER I FORCED MY FILMS ON HIM AND SHOWED HIM THE PROOF. ONLY THEN DID HE ADMIT THAT HE IMPLANTED ME WITH A RADIO FREQUENCY DIODE. HIS WORDS. HE CLAIMS HE CAN NOT REMOVE IT BECAUSE HE WRAPPED IT AROUND MY MAIN ARTERY. HIS WORDS, AGAIN. I YELLED AT HIM TELLING HIM THIS IS EMMITING MICROWAVE RADIATION 24/7!!!!!!!! IN MY BODY!!!!! IT IS A WIFI DEVICE!!!!!!!! HOW THE HELL CAN A CANCER DR IMPLANT A PATIENT WITH A CANCER CAUSING DEVICE!!!!???????? I DEMANDED HE REMOVE IT AND THIS IS WHEN HE SAID THAT EVEN IF HE WANTED TO REMOVE, HE COULD NOT BECAUSE HE WRAPPED IT AROUND MY MAIN ARTERY. I LIVE IN PENNSYLVANIA AND THE CANCER CENTER IS ORTENZIO CANCER CENTER. DR PAJAWASKI. SP. IS OFF. ITS HARD TO SPELL IT BUT THIS HIS HOW U PRONOUNCE IT. THIS HAPPENED TO ME IN 2014. PLEASE PRAY FOR MY SONS AND I. MY HUSBAND LEFT YRS AGO. WHILE I WAS RECOVERING FROM THIS SURGERY. HE WAS HAVING AND AFFAIR WITH A MANLY WOMEN AT HIGHMARK BLUE CROSS. SO WE NEED MUCH PRAYERS. THIS WILL SHORTEN MY LIFE BY MANY YRS I READ. AVERAGE TIME IS 10 YRS THEN THE PATIENT GETS FULL BLOWN CANCER. THIS IS THE DOC. I FOUND IN MY RESEARCH OF THIS DEVICE. So yes, the WESTERN MEDICINE is evil PERIOD.

[@jennym4127]

Dear sweet child, I know nothing about you, but your “and that’s fine,” is very heart rending, and also brave and necessary. I’m glad your life contains much beauty. Blessings and healing wishes for you, it seems your spirit IS your healing. 💐💐❤️❤️🌈🌈

[@kristianchan5843]

Totally agree.

[@SenshiFX]

Adversity is the mirror, revealing the true self. Such calm and grace in dealing with all that you have to. What a kind and wonderful spirit. Thank you........You are a blessing to this world.

[@christopherkhaddockphd9511]

I'm not sure if saying "you are inspirational" is helpful, but you are. You being on the planet is a blessing for the rest of us.

[@abbyswaringam3386]

You seem so much more comfortable, open, and relaxed in this vid. Surprising since the topic is so personal and vulnerable. You're strong!

[@bigbiemacaw]

And beautiful. ..stunning and not just looks your heart is pure ..I can see her heart its on her sleeve. ..just found her channel and am here to stay..love from Ireland

[@alwaysovercomingbear4809]

Thank you, for proving to all of us who struggle with chronic illness, that perspective really is EVERYTHING! Thank you. ❤️

[@alwaysovercomingbear4809]

I am very thankful to have just found your channel….

[@Merlins.Daughter]

So humbling for me, a mainly healthy person, that you are willing to share a bit of your authentic self behind the scenes as well. It provides even more depth and beauty to everything that you share on this channel. Thank you. Many blessings.

[@lourdesrebelodeserpa1935]

Daughter of Old I just watched you and my heart breaks for you,I will keep you in my daily prayers.

[@FreeRangeDiva]

I was so moved by your story that I donated to the Ehlers-Danlos Society for research. I hope in some way it helps bring us closer to even more effective treatment and ultimately a cure.

[@allisgrace1313]

As a fellow sufferer of hEDS who also has a ten yr old daughter that we suspect has it as well, I can't thank you enough for your donation! It seems so few ppl other than us sufferers even know about this disease, and the greatest number of us are in no position to make much in the way of a contribution, due to medical expenses. Truly, thank you.

[@kel5710]

I didn’t know about this disease. I will donate at some point too. Recommended foundations?

[@mycrazylifewfawnlisette3582]

I haven't heard of this disease before but Ms. Free Range Diva, you are awesome for making a donation!

[@dal8963]

@@allisgrace1313 yes my cousin had a horrible ordeal with this looking like child abuse from broken bones she had to fight but by tge grace of God she found the doctor to prove these children where sick not abused and she was able to help another family dealing with the same thing they went on katie Kurick show to spread awareness. Its amazing what God can do with something that seems awful to us but can demonstrate his glory to so many in tge long run.

[@yourenotmygod5718]

I watch your other channel all the time, just found this one. I just wanted to say that you are an AMAZING human being. Your soul is so beautiful.

[@theartofnaturegermany]

For me you are not the chronically ill person. You are the extraordinarily creative and talented KZbinr with amazing filming and editing skills, who brings so much joy into the life of so many people 💚 You are a herbalist with great knowlege, an amazing cook and baker!! You are an incredibly strong, kind and beautiful women with great passions ✨ When I think of you I always smile bacause I remember the beautiful nature around your house and your cosy, witchy, vintage style of interior design. And you have a cronic illness, but that's the last thing that comes to my mind when I think of you. But thank you for sharing this part of your life today 💚 I wish you all the best

[@stever2583]

You are the most remarkably generous and sharing person I've ever encountered. What a beautiful soul!

[@andyhart4534]

You are a beautiful brave being of light all my love

[@victoriab1370]

Absolutely! Nurses make all the difference! I have a child with a chronic illness and I hope and pray that he has your strength and grace when he gets older. You are simply lovely!

[@krystalharned-holmes8276]

Vlogs like this help those of us who also suffer with several chronic illnesses feel less alone. Thank you

[@joansmith3492]

I admire your courage and strength to “hold on”. Glad you like nurses! Radiologists are not known to be very people friendly but in their defense - when they are doing a more difficult procedure they need to focus and think about your tissues, not you. Nice video!

[@ninajohnson6578]

You my dear are the beauty of this channel. You yourself.

[@gracesimplified3860]

There are so many different conditions that can impact ones health. We often do not realize the struggles others are going through. It’s a great reminder to be compassionate to everyone. Thank you for sharing. You seem to handle your challenges with so much grace. 🌸💕🙏

[@helenlilga2759]

I have EDS and did wonder if you might have the same when I saw your ring splints. I find your videos a haven of peace and escape when I'm in the midst of a flare. I just wanted to say thank you for telling us your story 😊

[@purplepixie274]

I don't wear ring splints but as soon as I saw them I thought fellow zebra xx

[@helenlilga2759]

@@purplepixie274 no me neither but I wouldn't mind some. They're really difficult to find in the UK! And hi! It's always lovely to meet a fellow zebra 😊❤

[@carpesomnium9964]

I thought the same, as a zebra myself. I couldn't help but admire her splints as she crafts

[@Itsmaia683]

I have EDS , I used to wear splints but since I started knitting everyday my fingers have become much stronger and no longer need them

[@allisgrace1313]

Much love... from a fellow zebra!

[@jennifersaville4332]

I feel you, I also have gastricparesis and been just trying to deal with it and my diabetes I've had since very young. Sending you much love and light.

[@brischmick]

Jennifer, I wonder if I can ask about your gastroparesis... how did it first manifest? My best friend growing up has had type 1 since 18months old. She has horrible vomiting episodes that she thought were gluten related but she’s having more and more. Like one day of vomiting per week. Her gastric emptying studies came back fine so they said it wasn’t gastroparesis. She usually eats light and has vomiting issues after a larger meal. Any thoughts? Wishing you all the best, as I know you have a full plate navigating your condition on a daily basis. 💛

[@tamijackson1080]

You are the epitome of the saying When life gives you lemons make lemonade

[@IcamanSogge]

My son has has feeding tube for 3 yrs now he's 12 now. You've given me strength too keep going. It's hard not having him at home. He's in a good place for kids with medical needs. Will continue too pray for you. Your an inspiration and God Bless you for sharing your story. Amen

[@jodymorgan2805]

I truly appreciate the power you have to remain positive through that.

[@gerrigates4437]

Wow you’re so beautiful & healthy looking. This is why we must always be kind because you never know what people are going through❤️❤️❤️❤️

[@marciadichiara5688]

My sister has gastroparesis and crohns. You are correct. Never know what others endure in silence 🙏🏻

[@smileyhappyradio]

Yeah, people can't see illnesses. I have one that makes me tired, and people will say, you look fine. Oh I'm sure I do, but looks mean nothing about whats going on inside.

[@thethecat100]

That's right!! You will never know.

[@leena954]

So true ❤️

[@1Thedairy]

My goodness it’s hard to believe that such a beautiful and incredibly brave young woman can go through such incredibly challenging health issues and behave with such grace and fortitude.

[@sherribugd3799]

This nurse thinks you must be the most amazing patient! Your lovely personality would make you a joy to care for.

[@wildearthchild2832]

Annie you are truly an inspiration to all of us who have chronic illness. You battle with grace and gratefulness. Love and light to you.

[@auroraf7337]

I've been dealing with chronic pain for almost all of the year now, doctors are trying hard to figure things out but with covid appointments are hard to come by. Seeing another witch who isn't exactly the normal idea of healthy is so refreshing. After a while I stopped watching KZbin videos because I was so broken with seeing people start their day off with yoga and other physical activities that I just wasn't in the physical and mindspace to do. You're helping sooo many people, I've never felt less alone in my battle until I watched this today

[@relaxationandworship]

My sweetheart angel...I'm keeping you in my prayers! Please, dear God, bless this beautiful child with health, strength and happiness...

[@tulipmoon5230]

By speaking about this you are inadvertently raising awareness about this. You never know how many people this may help out there that are not diagnosed yet. Sending love and light your way ❤️

[@KelliBar]

Your strength and capacity for resilience is inspiring.

[@sefiraswanne3292]

I have fibro and a host of other chronic pain/illnesses, and it means the world to hear reassurance that it's okay to have weeks like this. I'm currently into my third week of a back pain flare up and yet I've found myself smiling more often because I watch your videos and started reading historical romances again as I'm bedridden. My goal is to find my own way to craft a life that I can be happy with even with the hard weeks and mundane moments. Thank you for sharing your life crafte. It means a lot. 🤲⚜️

[@katiewest7908]

Rough month for this fibromaniac...mysteries for me on bed rest. Annie's videos are sooo soothing.💙

[@Lseverett5]

Fellow fibro warrior here with a laundry list of ailments. You just have to find your happiness and smile.

[@GfyEmyLouLou]

Fellow Fibrowarrior/ chronic illness suffer here too.... Rough for me too! I've been on rest the last few days... Sending love to all the people in the world that have to be warriors every day!!! 🥰

[@alisonhorton7806]

Fellow fibro warrior.. I tell myself to find the joy in everyday, today I won the battle with the cling film (seran wrap I think you guy's in the US call it), I usually end up growling and screwing up whole yards of the stuff! 😂😂 Simple things to keep myself happy.. not always easy, but definitely worth it! Xx

[@RayzerChick]

It breaks my heart to hear that such a beautiful person like you has to face health problems. I really appreciate all you do to continue keeping your updates proceeding. You’re a real inspiration and I wish you all the best. I look forward to your future videos.

[@giuliacanta5465]

You're truly an inspiration Annie, just the way you live and accept and go through all things in life, especially those that are objectively bad... You truly don't deserve such sufferance, i wish you all the best your kind soul deserves ♥️

[@jocelyngleave946]

You are so gracious, peaceful and brave, you're such a beautiful person

[@julie-annedorval4755]

Gosh, wow, this one hit home. Thank you for sharing. I am always so happy to find people to look up to that have similar condition as I have. Thank you for reminding me that in the end there is only me that can stop me from being happy with what I have.

[@rachelschuller6647]

Thank you for being strong enough to share your story with EDS and gastroparesis! I'm a zebra too and it's very nice to always here other Zebras being so resilient. Thank you for sharing your story, your gentle nature is really relaxing during such crazy times.

[@visomething3207]

If more people were like you, the world wouldn’t be so chaotic

[@lisagarrison9475]

It just your normal. We all have our normals. Glad you are being joyful, thanks.

[@eleanorheron7552]

I also have EDS, and as much as your videos have been an escape for myself, it was so refreshing to hear someone explain EDS in the way that you did. It’s hard to not feel alone with such an illness. Thank you for this, as hard as it was I’m sure to talk about, this means so much to me and I’m sure other witchy zebras💞 lots of love xxx

[@ggalaxy9065]

You've taken on so much. You're a brave, beautiful Soul, & a great inspiration! Thank you!

[@OlwenMoon]

You are such a strong person! You are a huge inspiration 🌻🥰 Stay strong 😘🍃🦊

[@viviengiannacaple-chuley4408]

It’s true, if we don’t laugh we cry. And honestly if you never had “ normal” it’s hard for us to miss it. You’ve got the right spirit. Blessings.

[@MathildeHenriksen]

I am not a nurse, but when you talked so kindly about nurses, it brought me to tears. You are strong!

[@IngloriouslyRandom]

The way you talk about this... It adds to the beauty and brightness. You are such an inspiration

[@oliviacasey4849]

Dang, hanging in the OR, fully awake, chatting with the nurses and surgeon. I can only imagine how curious that is for the whole medical staff! Thank you for taking us along. That was such a journey and I love seeing how you navigate, what would be enormous hurdles for some, with - (was that a sense of irritation?) - grace. I really do appreciate seeing the range of your world, the beautiful moments and the frustrating ones. All the best!

[@miguelmarquez4192]

Often surgeons are irritated with mac cases (managed anesthesia care, the patient is awake and has a nerve block) because they cant speak without a filter, have to answer questions, the patient isnt still, have to be nice to staff, if they arent liking results or the tissue is unhealthy and hard to work with. Theyre usually more comfortable with the patient asleep.

[@kristinestaley6592]

Thank you for sharing your story. It is far easier to hide health issues than to lay them bare. You do have a beautiful life. You are a survivor. Please keep posting.

[@erinutt5059]

I can't function if I skip a single meal so I can't even imagine how poorly you probably felt through all of this. I'm glad you're doing ok now and everything resolved without major issue.

[@ZippoVarga]

Annabel, you are not alone in the daily struggles of a person with health issues and know, that which doesn't destroy us both physically and mentally, just makes us stronger. Thank you for sharing your story sweetie. I'm 54 and have been dealing with health issues that have warranted 35 surgical procedures over the course of 25 years. Stay Strong! I should add....I've begun requesting local anesthesia over general anesthesia and I'm the same way. Asking questions, chatting with the doctors etc. It keeps me engaged, aware and to me at least, it's enjoyable to be included. Cheers!! Zip~

[@mycolets]

Thank you for your vlogs, I came across them while being stuck at home after #32 surgery ( actually stuck inside because of all the fires around me here in southern Oregon...cough, c ough ) Your life story of chronic health problems resonates with me and whenever I get down I realize how beautiful moments of life really is whenever I get past my thoughts. You are an incredibly beautiful Soul !! Thank You again !! 💫🙏💫

[@UncaDave]

Thank you for sharing your story. I never heard of EDS and as my daughter is a cardiac care nurse, I will learn more about it from her. I admire your courage but also your fortitude to get through this and live with it. I am glad you have such creative skills in cooking, etc. too and have two loving doggies too. You are “The Little Flower” of YT. Glad the week is over and looking forward to seeing your cooking , etc. I wish you good days ahead!

[@kelseyica]

Thank you for sharing, it helps people that are also going through battles as well. I'm actually an Interventional Radiology nurse and we do that procedure so it was interesting hearing your experience with it, and i'm glad you had good nurses and a good experience

[@lisajohnston3453]

My dear. You are not broken, weird, or wacky. You are who you are and I think you are a beautiful person from the inside out. You bring a wonderful beautiful and very special prospective of the world. Thank you for being who you are and bring so much joy to me.

[@sarahtomatoe5353]

Sending you love and light ❤️ I’m nine months pregnant and couldn’t watch your video without crying, but not because I’m sad for you... because of your courage and strength with everything happening to you, and all that you've endured your entire life...it just made me emotional ❤️

[@TheMuseTree]

I’m watching this on day that started more frustrating and painful that I planned, also due to chronic illness and chronic pain. Watching this video tonight as I settle for the night has been incredibly comforting and grounding. Thank you so much for normalizing what is so hidden for so many 💚

[@barbierader677]

As someone with chronic health issues (though not as serious as yours, and didn't come about until my mid-30's) I admire your attitude! I've been trying to change my attitude as well, rather than just always lamenting my lack of health and longing for the days when I was thin and energetic and strong and limber. It's difficult. And your videos are lovely!

[@SarahDavisSings]

I don't know how long ago it was when your medical diagnosis happened, but, if it helps, mine was almost 18 years ago now. Take it a little each day. You'll have days when you want to just scream and see if you can get a trade-in body and other days you'll almost forget for a few hours. It seems cheezy but focus on what positives you can and I've found gratitude practices to be really helpful here. I've also gotten a weird sense of humor from it - I find myself joking about some of this stuff and sometimes startling non-spoonie folks....oops. Just remember that you aren't alone - there's so many more of us than folks realize.

[@sharonomarycasey6859]

I am so thankful you shared. I’m getting my first port on Monday. My veins have given out so I’m ready. I have 5 autoimmune diseases and POTS plus arrhythmia and other heart stuff. I have joint hyper mobility syndrome and my joints are starting to really slip and I’m wondering if I also have EDS. So far only part of one foot actually dislocated. The other is just feeling like my hip and knee are going to dislocate. Excruciating pain. God bless you and the journey you are on. The life we live is hard for others to understand but I love my life and I love living!! I love your attitude! Keep sharing and inspiring us!

[@markc1234golf]

wishing you continued recovery and health ***

[@andilynnmiller]

Thank you so much for sharing this with us! This reminded me that those of us with chronic illnesses can still find beauty in everyday life. ❤️

[@FearlessNimue]

Re-watching this 366 days later and I'm so thankful you have had a full year free of big complications! You are such an inspiration to myself and others with chronic illnesses and physical limitations! Thank you for sharing and showing us all how you don't let your situation dominate your lifestyle! Watching you live tye life you do gives me inspiration that I could as well! TY

[@GoFurtherBug]

What a strong inspiring beautiful being of light. Thank you for sharing.

[@danjenkins5704]

You have a great voice for narrating, the slight pause and clarity in your words is soothing. Enjoyed listening to you,love how positive you are excepting. All of us has something that is lacking as humans. The world would be more peaceful if we had your attitude in life

[@amberthistle2803]

When I had my button g-tube removed the tissue on the stomach side healed but the tissue on the skin side, did not. So I had to have a surgical procedure to just remove the tract of scar tissue and stitch the skin closed. At that point in my life I was so used to stuff like that, that I didn't have time for the OR and anesthesia. When I questioned the surgeon about doing it without IV sedation he was very taken back. After some in-depth discussion we settled on numbing the crap out of it and just doing it in the office, not the OR. I just laid back and almost fell asleep during it! He wasn't overly sure if insurance would believe that he did that procedure in office but they did pay for it in the end LOL

[@whistleyourlie]

As a fellow EDS-er and the wife of a witch, finding your channels and this video has been such a blessing. I will be cheering you on and hoping blessings continue to find your path.

[@susanthompson5142]

Annie, you are an amazing young woman. Thank you for sharing your story with us today. I have no doubt that you helped someone or even many people today , who suffer from chronic illnesses, some that are not " visible illnesses " like yours. Your Channel is a place of sharing beauty, beauty comes in many forms and believe me when I say Annie, sharing this part of your life was also beautiful, because it is a part of you. It sounds as though you created this Channel, partly to remind yourself of all the beautiful things in your life, to focus on them and concentrate on your creativity and your passions in life. You shifted your mindset from focusing on how your chronic illness limited you and instead focused on freeing your mind and spirit to share your amazing talents and creativity with the world. I'm a new Subscriber and feel so incredibly Blessed to have found you. Keep creating and growing and thriving my dear. You have so much beauty, creativity and serenity to offer the world right now. Humanity, is in desperate need of healing right now. Your Channel brings me so much peace, thank you ! Be well, safe and happy ❤🎆

[@renaijoy5205]

Absolutely agree, beautifully said! 💓

[@vitah.410]

Annie, just started my school+studies as a holistic practitioner a few months ago and today came across your beautiful blog with this amazing video, that gives even more strength and motivation to keep going, as there are so many perspectives to the human life experience and the beauty of it's diversity to appreciate and to learn from. Each of your videos showed me how much there is to be grateful for in each and every day! Thank you, Annie for the wonderful work you do and i look forward to your upcoming vlogs. Stay strong and keep well & safe❤️.

[@sheiladyck5863]

I have Rheumatoid Arthritis and I am 59. You are an inspiration to me and I will pray for you. Thank you for sharing your story. ❤🙏

[@LisaIsabelle]

As someone with a chronic illness (multiple sclerosis) I know just too well how all our weekly (and sometimes daily!) plans can go to waste as we aren't really the one to decide... But seeing you staying so positive and happy through your hardest days just show how resilient you are, which is part of the bright and beautiful space you're creating on this channel. You're a warrior, and that's not an "ugly" side of your life believe me. ♥ I wish you better weeks ahead!

[@nancymcdaniel9474]

Thank You for your truth, grace and vulnerability. Your videos have given me refuge in a storm.

[@goddessoftriplee]

Oh my goodness, I live in Silver Spring! I would have thought you’d be on the West Coast - it’s nice to see you’re right here in the Land of Mary! Also my girlfriend has EDS - I’m adjacent to all the struggles and I’m sending you so much love ❤️

[@einsteindarwin8756]

I lived in Silver spring too and now I Live in DC. I am a Producer and I would love to interview you soon.

[@dejapeterson255]

Thank you so much for this video, you have encouraged me to be brave and choose a life well lived despite being chronically ill.

[@emme3095]

Sending all the love and positive energy your way. I live in a family where chronic illnesses are normality and I know that sometimes it can be really hard. I think that people like you, with your approach to life, are the real magic in this world. Sorry for my English. Love from Italy 🌹💙

[@katiewest7908]

It's lovely.

[@theresedignard4267]

You have mastered managing your condition. I have a very mild form of this. You are amazing. Sending healing light and love your way. Huge virtual hug too. Thanks for sharing.

[@Rose21558]

You are a beautiful, strong, courageous soul! The beauty of your heart is inspiring!!

[@jazzmanvincent2334]

Young lady you are amazing! Most people Can not live a normal healthy life with such a wonderful attitude as you have. You are truly a role model that we should try to be. You have my respect and admiration.

[@Ohsage1111]

Your attitude of gratitude inspires me and warms my heart. Glad I found your channel :)

[@laurashipp447]

Bless you young lady. You are truly an inspiration to me, a 45 year old single mom of four. Thank you for being you, I pray for healing and comfort. You have a beautiful soul.

[@ewacollier4760]

I stumbled over this episode and can’t tell how grateful I am to have found you. You are one truly remarkable and very brave lady. Thank you for explaining your condition and how you not only manage it but your perspective on it, you are very inspirational. I look forward to seeing more of your videos.

[@spiralovelight1353]

I don’t even know what to say... But I know why I find your presence and composition to be so beautiful, sweet, and graceful. You’re voice as well. I actually turn on your videos and listen to them while I work because you’re so peaceful. You’re an angel who’s here to Bless us all... 😇. Thank you for all you do. By the way, you owe none of us an explanation... You live life as it comes to you and enjoy it, make videos when you can, and everyone else will just have to be ok, lol. You’re totally amazing and I “Thank you” ❤️....

[@alecstaton4035]

you are, without a doubt, one of the strongest individuals I have ever come across. thank you for being so courageous in sharing these intimate moments of your life with us and you continue to inspire me everyday. thanks to you, my quarantine turned from a place of darkness and loneliness to a place of spiritual growth and learning. you helped me get back into ma magical practices and i'm thankful for that. thank you for being you!

[@deBRANNETreu]

That’s so amazing! She warms my heart now reading these messages, so do people like you! This is real magic. Best wishes to you 💗🙏

[@Heather1031]

You have me in tears, I am so honored that you opened up in this video, what a humble and beautiful woman you are. I will constantly be praying for you and your health, I appreciate that you are so candid, makes you more real and makes me want to watch more so that I can be inspired by you. You are such an Inspiration, I hope that you know we all adore you so much and appreciate you.

[@moriahanderson]

I pray every day that my neice handles her life with the same grace as you. She has a different genetic issue, but deals with similar struggles. I myself have genetic issues, including EDS (more mild). Thank you for sharing your own struggle and reality. It's so easy to feel alone with this. I don't think you realize how much hope for a beautiful life, how much encouragement you handed so many people with this video.

[@TheSouthHoosier]

I see your kindness. You wear it so well. I hope your happiness continues through a long, productive life. Thank you for being so humble and nice. It gave me a rare smile.

[@kristensmagicalcreations]

There's a lesson in everything. I'm so glad I was led to this video today. You're extremely brave and motivated. Like I said, this is exactly what I needed today.

[@KiAirah87]

You are just so bright and alive. I am grateful to know you are in the world.

[@sherrymerland5080]

You are such an inspiration. Many blessings beautiful soul.

[@sharonstuebi8181]

I'm a new sub. Blessings from my little farm in Peru. Your videos are beautiful. I'm a Vietnam veteran with chronic health issues and wheelchair/ home bound. I'm blessed to have a family that surrounds me with love and fun and joy. It helps to have " family " I couldnt do it alone. My donkey and alpacas ,rabbits, Guinea pigs, turkeys and chickens are endless entertainment along with the gardens and grandkids from 16 to 3mos.i can still cook. Now have a handicapped kitchen my boys built me. Graditude is the key to joy.thank you for sharing.

[@yourbeamofsunshine]

Gratitude makes me appreciate all the beauty and small things around me. I really appreciate your videos and what you are showing. I too live with chronic disease. It's nice to see that not everyone is perfect. That it is Ok to live our lives to the fullest. That is what you are showing in your videos. xo

[@ash_and_lavender]

I watched this two years ago not knowing I had hEDS. This year I was diagnosed with it and coming back to watch this really made me feel less alone and gave me a sense of solidarity even though our experiences aren’t exactly the same 💛

[@katienenadich6807]

The way you say "it happens" I love i need to remember that when i get overwhelmed

[@lynnmazalewski2766]

You are a gem,u have carved out of ur life joy and gratefulness, what we all search for you have found,God bless u.

[@damiencale]

Wow! You are amazing! Truly inspiring. As a nurse, I appreciate what you said about nurses. Thanks for sharing your world with us. Blessings to you and your family 🖤

[@teresalowry6340]

I feel some of your pain. You look well adjusted and beautiful. I have diabetes, stage 2 gastroparesis and grade II diastolic disfunction among other chronic issues. I use a wheelchair due to back injuries. I thank God every day for letting me see another day and for my wonderful husband.

[@louisepianokeyz2860]

I'm so sorry to hear you've had a tough time lately with your chronic illness. It's really wonderful that you film all these lovely clips of the flowers and nature and take us on a journey that helps us, for a moment, to forget our troubles. I have Fibromyalgia (nerves,pain,exhaustion etc) and I love to get lost in my music which I compose and I love nature too. I have found my new favourite channels thanks to you! Thank you so much for creating this wonderful content. Love and light x

[@elizabethcain2614]

God bless you and keep you well and strong. You are not alone- your honesty enables and empowers other young people with chronic illness to share and feel less alone! Thank you!