Symptoms of HIGH vs LOW Cranial Pressure // How I can FINALLY tell the difference

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Momming with Migraine

Momming with Migraine

Күн бұрын

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@angelagracee13
@angelagracee13 Жыл бұрын
You hit the nail on the head with this one!! I felt like a crazy person telling my doctor all of these symptoms that contradict each other 🙄 When I was getting prepped for my myelogram, I asked my radiologist why my symptoms/things that make me feel worse or better change all the time. She was telling me that leaks come and go, which is why they’re so difficult to see in imaging. Because they close for a bit, you swing into high pressure. Your body has been on overdrive producing csf to compensate for the leak, so when it’s closed, you now have high pressure. Then it opens again and you leak yourself back into low pressure. Never a dull moment for us leakers I guess 😅
@MommingwithMigraine
@MommingwithMigraine Жыл бұрын
YAAAS I'm over here cheering 😂 I definitely felt nervous posting this one because I was expecting "you've lost it now jen" haha I'm telling ya!
@angelagracee13
@angelagracee13 Жыл бұрын
Sadly, I wouldn’t be surprised if some of your hesitation was coming from past experiences with medical gaslighting 🙄 At least for me, that’s were a lot of second guessing comes from.
@MommingwithMigraine
@MommingwithMigraine Жыл бұрын
@@angelagracee13 mhmmmmmm..... the thought crossed my mind for sure.
@crystalkeara8868
@crystalkeara8868 Жыл бұрын
My high pressure is felt behind my ears and both sides of my neck. It’s like intense sinus pressure in the eyes, ears, neck (under my ears) and sinus area. It gives me a vertigo like feeling too. The worst was right after patching. My high pressure always triggered at 3 am, triggered by straining and driving through the mountains. The low pressure is triggered by straining though too and driving through mountains. Caffeine helps with low and if I drink to much it will literally feel like my head is filling with pressure. You explain this so well
@claudiafairbanks
@claudiafairbanks Жыл бұрын
I broke down in tears watching today's video. Something you said about tinnitus hit me hard. It made me realize I need to bring it up to my neurologist. I'm also realizing to is tome for my neurologist to send me to a new neurologist. I get treatment at the VA at have gone through every treatment they can offer me. They told me if the Ajovy didn't work they would likely need to send me to Barrows Neurological. I think it is time for a new team and you helped me to realize this! Thank you!
@MommingwithMigraine
@MommingwithMigraine Жыл бұрын
Absolutely bring it up, even if it doesn't seem like a big deal! I'm sorry to have made you cry but HECK YES GO GET IT DONE! You deserve to feel better. I'm cheering you on and I can't wait to hear an update about your new team at Barrows!!!
@sarahkwast1250
@sarahkwast1250 Жыл бұрын
My husband gets most of his care through the VA as well. Something you may not be aware of is that you don't have to stick with VA care alone. If you find a doctor outside of the VA you can let the VA know and they will cover your care there as well. My husband shares my PCP, who is not part of the VA, as a secondary. We go to her for immediate concerns since she is literally a few blocks from our house. They just bill the VA for his visits instead of his regular insurance. I am praying you find the right medical team, wherever they are, so you can get the treatment you need! ❤️ Edit: This is apparently only an option if you have insurance outside of the VA. With VA insurance alone I guess you have to stay within the VA for your care.
@claudiafairbanks
@claudiafairbanks Жыл бұрын
@@sarahkwast1250 I wish that was correct. I'm guessing your husband has additional insurance. My care is through the VA. They are my insurance. If they can't get me in within a month there is a chance I can be sent to an outside provider. However, if you are already being treated by a doctor within the VA for a specific thing they won't send you to an outside physician. The Veteran's Choice Program has very set requirements. They don't just allow anyone to go get treatment outside of the VA at any time.
@sarahkwast1250
@sarahkwast1250 Жыл бұрын
@@claudiafairbanks Oh, I was not aware of that. Yes, he has insurance through work. I guess that is why he was told he could see a different doctor if he wants. I wasn't aware that wasn't an option for everyone. Sorry for the misinformation. I am still praying you find the right doctors. 😊
@sarahkwast1250
@sarahkwast1250 Жыл бұрын
This video may not apply to me medically, but it definitely applies when it comes to finally understanding what the heck is happening. It is so clear that you have gained confidence since having doctors finally agree to treat your leak. I have always been in the camp of "Let the test show something is obviously off so I have a chance to fix it." There is nothing more frustrating and scary than knowing something is wrong, but having every test come back normal! I am SO glad you are finally getting the answers you need! I can see the change in your eyes. You just look, and even sound, more at peace with the situation. Even when treatment or tests are scary, knowing what we are fighting is a HUGE weight lifted! I know there is still a lot to be done but now you are walking towards a solution, not walking in circles looking for the problem. I am so happy to be part of your journey. ❤❤
@MommingwithMigraine
@MommingwithMigraine Жыл бұрын
Oh thank you so much! Agreed. It's such a relief and it's so empowering because I can finally have SOME control over when I feel junky. Can't wait to close this chapter haha
@lauren6485
@lauren6485 25 күн бұрын
Your “guesses” are 100% correct in my experience!! This is so validating, thank you. I have the same conditions. 💜
@chiefstandingkibull8145
@chiefstandingkibull8145 7 күн бұрын
Oh WOW! Jen. Thank you for this video. I’m a massage therapist so I will be looking into the facial counterstrain massage. Can help family members. 💚
@APHS-B
@APHS-B 10 ай бұрын
Very, very supportive for those who need to hear someone concerned with and/or suffering from high/low cranial pressure, and need to get a feel.
@CorinnePritchard
@CorinnePritchard Жыл бұрын
From my experience: HIGH pressure - Explosive headache from the center back of the skull radiating forward or around my right eye and radiating. Feeling of pressure behind the eyes, sometimes. - Pulsatile tinnitus (this is not the same as ordinary squeaky tinnitus, it is a low whooshing sound in time with your heartbeat) - feel actively worse if I lie down This is pretty rare for me. I don't get visual disturbances like some people do. I don't even get headaches that often. I lived with the pulsatile tinnitus for about a year, but it's been gone a decade now. Had one the other day and the only thing that gave it away was it feeling so much worse when I went to bed. Up until that point I'd thought it was low pressure, so for me the absolute ULTIMATE test for both is how I feel lying down and standing up. If you're diagnosed take your meds, otherwise I don't know of any simple way to solve it. LOW pressure - crawly rain-like feeling on the inside of my upper center back (no idea if this is neuropathy or feeling an actual leak!) - persistant headache, quite diffuse - absolute agony if I 'bear down' in any way. Bathroom, leaning down, tensing stomach muscles - feels significantly better if I lie down and comes back when I get up again I get no drip at all.
@MommingwithMigraine
@MommingwithMigraine Жыл бұрын
So many symptoms omg. I'm sorry. The crawly feeling DRIVES ME MAD it's right between my shoulder blades! This was reassuring, we are sooooo similar!
@CorinnePritchard
@CorinnePritchard Жыл бұрын
While it's such a creepy feeling, I'm very glad I'm not alone! It's so hard to explain to anyone else@@MommingwithMigraine
@dylansanchez7733
@dylansanchez7733 Жыл бұрын
I’m so confused with all my symptoms. I never got answers from doctors and went back and forth for years. Being a single father and having to work to support her the only thing I can do is push through even when it feels like I’m dying . I hope one day I can understand all of this better.
@pytucalopez
@pytucalopez 10 ай бұрын
Stay strong. I’m sorry you have to deal With this. It will get better.
@lokehinde2713
@lokehinde2713 Жыл бұрын
I'm happy I came across this channel. Today was a terrible one for me. I walked into the house, and instantly I felt weak like my legs were going to give out, and the left side of my face started twitching and eyes just got low for a few seconds like a stroke or seizure. I had to take a sec. I have been telling my doctors about this. No one ever referred me to a neurologist.
@keylockwood9487
@keylockwood9487 5 ай бұрын
Hug. Any luck?
@weathermage301clapp2
@weathermage301clapp2 Жыл бұрын
I would like to note that chronic low and acute low pressure headaches have different symptoms. I have been dealing with chronic low pressure due to my VP shunt tending to over drain or other issues. These tend to be like you outline. For me tend to be like a level 2-4 headache, more energy draining then painful, and go away almost instantly on laying down. While I have also had acute low pressure headaches due to LPs, so going from high pressure to normal/low instantly. These are the most painful headaches I have ever had always level 9 or 10 on my headache scale. For me high pressure headaches mimic headaches from severe sinus infections, or like having your head in a vice. The hardest part of high pressure headaches is there isn't really a way for quick relief. Low pressure pain goes away or greatly reduces on laying down. High pressure only reduces if you find the perfect like 45 degree angle and can stay there.
@carlosfonze727
@carlosfonze727 7 ай бұрын
I’ve started watching your videos, and remember somewhere you mentioned being misdiagnosed. What were you misdiagnosed with? You give great explanations. Thanks for the videos.
@elitepro2681
@elitepro2681 7 ай бұрын
Wow you hit the nail on the head. My low and high cranial pressure is quite similar to yours. However when I am in low pressure I am completely shut down and has low cognitive function. I am in no mood to talk just want to sleep. When I am in high pressure, I become irritable, annoyed easily,
@centaurora913
@centaurora913 Жыл бұрын
Everything you said about low pressure describes my symptoms even the really specific figurative ones! I’ve thought I had low cranial pressure for a while but these descriptions are awesome. Do you know how elevation changes could affect cranial pressure? My biggest low pressure episode came on really suddenly after a roadtrip up into the mountains
@tellem372
@tellem372 Жыл бұрын
I don’t have a dx for various reasons (even down to EDS/pots/chronic migraine)… but I’m soooo similar. I hate all the symptoms but the irritable, hypersensitive to over stimulation and then the big emotions… for me I can’t control my reactions and I tend to roar and cry but what I say is still rational but I am not distinctly me as I interact with most people. (This has led to me isolating as much as possible so I don’t get super angry with people.) Thanks for sharing!!!
@ToyaColeman-c5c
@ToyaColeman-c5c 4 ай бұрын
I’m so glad to find your channel. I believe I have a csf leak resulting from post gas to the head w:/ 38 special bullet still present in basal ganglia of my brain. I deal with horrible headaches daily. I try to explain how my headaches feel like no one understands. Especially the acid feeling headaches. I would really like to personally chat with you. Please reach out to me. Finally someone else experiences these headaches
@laurag1985
@laurag1985 Жыл бұрын
Amazing video. Thank you Jen! My husband tells me I sometimes act “childlike, confused, even emotional for no reason in my neuro episodes/migraines, whatever they are. I’ve asked my doctors about a possible csf leak since I get watery nose leaking mostly at night after I bend over to do laundry, or look down to brush my teeth. It only happens when I am changing positions.. looking down/bending over to do stuff. My doctors so far have not made it seem like a big deal. They’ve never been like, “Good idea, Laura! Let’s check for a csf leak!” Lol Some days, after so many years of doctors not knowing, I wonder if I should give up searching for answers and try to just live my life the best I can. Other days, I’m searching for hrs n hrs online for answers. Lol Anyway, thanks for your videos Jen! They encourage me. 🙂 You are so brave and smart and I think it’s awesome how you advocate for yourself. I’m praying 🙏 for you that you are close to getting help with your leak and migraine symptoms. You make us all feel less alone. Thanks for all the hard work you do preparing these videos even though I know you’re feeling badly. 🌼
@MommingwithMigraine
@MommingwithMigraine Жыл бұрын
Laura YOURE NOT CRAZY nornal noses don't just drip!! I went a very long time trying to get evaluated for this leak. it took many doctors and almost 2 years to start getting evaluated. don't give up! Have you seen my csf leak playlist? It's just gaslighting story after gaslighting story. It'll probably help you feel less alone.
@laurag1985
@laurag1985 Жыл бұрын
Thank you for the encouragement Jen! 🥹 Those gaslighting videos you made were awesome! Thank you!👍
@terrapinthreads-lifeontheroad
@terrapinthreads-lifeontheroad Жыл бұрын
This video is so helpful. I can't tell if I have high or low preasure sometimes, well alot of the time. When I first got diagnosed I definitely had high preasure. I had papilldemia, (that's when I found out I had IIH too,) the back if my neck and head head hurt. My Jaw was super tense and I had ringing in my ears. I had gotten a lumbar puncture and that's when it went down hill fast. I'm pretty sure I had a CFS leek but at the time I didn't know what was going on. I think it might of fixed itself, if thats even possible. I always thought that the reason the back of my head and neck hurt was because of high preasure. It makes sense that it can be low too. The weird thing with me is my ear canals hurt and my brain feels like it's itchy. I really don't know how to describe it. Do you have those symptoms? I think my ears hurt cuz of high preasure but not sure. Thanks for all your videos. This disease is so hard and confusing ❤
@ALaughaday1
@ALaughaday1 Жыл бұрын
This video should be mandatory viewing for neurologists and neurosurgeons. Let me validate your high pressure symptoms. I too, went through years (2 1/2-3 years) long journey after having a brain tumor removed. Never had head pain until after the tumor was removed. First I ended up with a post-surgical CSF leak. Symptoms were as you describe--dripping from one side of nose only, pain when upright that felt better when flat. CSF leak was confirmed via MRI and then I had a CSF repair surgery--translab approach behind the ear (included mastoidectomy and removal of all structure within the ear canal). After this surgery, the real pain began. Every single night sometime between 2:30-3:30am I would be woken up by extreme--and I mean extreme--skull pain/stabbing in the ear, eyeball feeling like it was being ripped out, back of neck pain, loud pulsatile tinnitus thumping over the usual high pitched constant humming tinnitus. Multiple MRI's showed nothing. It was horrific. I also kept detailed notes hoping they would provide clues to the neurosurgeon. Multiple things were tried--sumatriptan (did nothing because they weren't migraines), removed skull plate, cut occipital nerve, nerve blocks and botox, implanted a custom 3D plate to cover the place with the initial plate was previously removed, more scans, neuro-opthalmology exam (didn't show papilladema), multiple trips to the ED. Finally, after 2 years of trying to remain upright 24/7 to keep the pain at bay, something showed up (very slightly) in an MRI--partially empty sella (sign of high pressure pushing the pituitary glad back. Tried Diamox--caused a kidney stone and didn't really help me. Long story short, I have a shunt and when it works, it's great. Unfortunately, it's mechanical and I've needed multiple revisions due to the catheter tip moving and getting blocked. Your high pressure symptoms are spot on-----For me, it was all on one side only---middle of night pain, stabbing deep in ear canal, one side eye pain, skull pain as if you want to smash it to relieve the pain, extreme skull base pain and back of neck pain with such stiffness that it's difficult to turn left to right, left occipital pain, And, you're right--here's the kicker than even my neurosurgeon dismisses----when shunt is broken and high pressure is back----major tingling in arm/hand (left side only in my case) as well as tingling in the lower part of my face. Really, with all of the training and experience Neurosurgeons have--why does it take so long for them to connect the dots. I knew my problem was high pressure years before neurosurgery would finally diagnose it. They are so quick to gaslight and call everything migraines. Had I not strongly advocated, I would still be living with that extreme middle of the night pain. Even to this day, I have to argue with the neurosurgeon when I'm trying to explain my shunt malfunction symptoms even though every damn time I've been right (even though tests showed no problem with flow of shunt). Every single time I come in with the same exact symptoms of high pressure/possible shunt malfunction--he would tell me my symptoms had nothing to do with the shunt. Well, every single time I convinced him to explore the shunt surgically, it has been blocked or malfunctioning. You would think by now he would listen to me. But no, his ego gets in the way. ugh.
@Kahlan7256
@Kahlan7256 Жыл бұрын
Wow this has helped so much it all makes sense, I have both high and low symptoms. I do not have a cfs leak. I have empty cellar syndrome. I also have thin fluid tube that drain the fluid for my head that course my high pressure. You have help me over the past couple of years Thank you x
@MommingwithMigraine
@MommingwithMigraine Жыл бұрын
Oh good! So glad!! Did you get the tube installed, like a shunt? Or is it natural? I have had partially empty sella noted on my MRI reports 🤔
@Kahlan7256
@Kahlan7256 Жыл бұрын
We all have narural tubes that drain the fluid mine are much thiner than others, i am on tablets that reduce the amount of fluid make.
@rainbow20112011
@rainbow20112011 Жыл бұрын
I have 24/7 pressure headaches inside the very top of my head. When I "press down" on the top of my head, I can feel a decrease in the pressure feeling inside the top of my head.
@donna_irene
@donna_irene Жыл бұрын
I have hEDS, POTS, dysautonomia, and IIH. I’m so confused about the IIH portion based on what you’re saying! I wake up with horrible head pressure, buzzing, vascular compression type symptoms. As soon as I get up and move around that is relieved but I always have tonight’s and a slight “buzzing” feeling. I feel best when I’m moving around, exercising, walking because of the blood flow and my muscles don’t have to hold my body still when I’m active. I have my worst “headache” symptoms and neck pain when I have to sit for long periods. That causes me the most pain. I have the worst “pressure” symptoms when I’m lying down or bending over. I believe this is due to jugular vein compression causing high pressure. All of this from what I understand is attributed to having cervical instability because of my EDS. The instability is what compresses the vagus nerve and causes autonomic dysfunction. And also when you’re laying down, you’re more prone to compressing your jugular also because of CCI pressing on it in that position. I know you haven’t been diagnosed with EDS but have you ever considered seeing a geneticist to rule it out? The thing that disappointed me with Dr. Driscoll was that she lumped EDS into the category of being a “label” and hinted that it can be cured which is not true. Genetic disorders often are triggered by an injury, emotional trauma, or virus but or something that we are born with. Nervous system regulation can help us stay in a more regulated state to be less symptomatic but it does not change our faulty collagen production which is at the root!
@MommingwithMigraine
@MommingwithMigraine Жыл бұрын
Sorry to hear youre having so many symptoms. All makes sense, with the exception of what you shared about Dr Driscoll and EDS. Are you a patient of hers? Because what you're saying doesn't match what I learned from her about EDS. Interestingly, POTS Care Clinic just posted about EDS on their IG less than an hour ago, calling it a disorder of collagen production, saying it causes structural problems due to collagen defects & can eventually lead to POTS (ANS is also mentioned). That's much more than just a label.
@kaliebrooke
@kaliebrooke Жыл бұрын
I sound so similar to you! EDS and all… how did the diagnosis high it low pores sore in you?? My neurologist hasn’t been helpful..
@christinabell5876
@christinabell5876 Жыл бұрын
Which video do you talk about Diamox usage and why you stopped it?
@gibletjakester
@gibletjakester Жыл бұрын
So glad to see your video. I'm fairly certain I suffer from low pressure and have an appt this week with Mayo Clinic to look at interventional radiology options to see what may be causing it. Have you tried caffeine and increase in sodium to help with low pressure? I am trying 4-5 grams of sodium and believe it has helped somewhat. Thanks for putting out these videos!
@LookUpp-2024
@LookUpp-2024 10 ай бұрын
Excellent video. U r better than my neurologists. Did your dr spend time explaining all this or did you just self analyze. ? Best to u❤
@MommingwithMigraine
@MommingwithMigraine 10 ай бұрын
Thank you! Self analyzed for sure. And of course listing the published known symptoms. The Dr's don't have time to explain, & when it comes to tiny nuances like this they just can't have the experience and words that a patient has who has felt it for so many years has 💜 horrible grammar but you get it
@MakenzieMGomez
@MakenzieMGomez Жыл бұрын
Not me having every symptom you mention 😅
@MommingwithMigraine
@MommingwithMigraine Жыл бұрын
I found my people! It's you. You're my people.
@essentialmichele
@essentialmichele 10 ай бұрын
I had a csf leak behind my sinus had it repaired and sealed 3 years ago. I had the fluid leaking from my nose the neurologist ordered a beta transferrin test on the fluid to determine if it was spinal fluid. They think I had the leak at least 7 years because I had recurrent bacterial meningitis that long ago and a leak is one of the main ways that happens. I still have headaches almost daily and I'm trying to figure out why. Thank you for all this information. I'm scared I have high pressure because I don't know what to do about it. I took diamox after my leak repair for the rebound headache they knew I would have and it helped but it was an awful medicine.
@angelalambert3747
@angelalambert3747 Жыл бұрын
Hello! Thanks so much for these videos, and bringing together people with these issues. I have a bit of a favour to ask. This seems like as good a place as an to ask if folks with CFS leak or IIH have any of the weird symptoms Im experiencing. I’ve been diagnosed with status migrainosis for the last year. I only ever confirmed migraine before in my life. I’m trying to decide if I should push for more investigating or accept the diagnosis. They already “ruled it out” CFS leak or iih with a eye exam and MRI. So here are my weird symptoms that don’t line up with migraines: 1. Ear booming or wooshing - not in sync with my heartbeat, but does seem to link to worsening pain 2.all symptoms are on my right side same side I often have nasal congestion 3. Right pupil dialation -seems worse when my symptoms are worse 4.hissing or bubbling noise that comes from the back of my neck occasionally . Not related to movement just when I am sitting around not doing much. 5. Outside of the initial improvement with Botox injections, Migraine or pain meds don’t seem to make a big difference
@BuchsdrN
@BuchsdrN Жыл бұрын
I just got out of the hospital a couple weeks ago after spending 8 days in hospital getting my ICP checked after having really bad headaches and not being able to stand. Had the ICP monitor placed for a couple day. My pressures went up to 70. Turns out my shunt was malfunctioning. So that was replaced.
@MommingwithMigraine
@MommingwithMigraine Жыл бұрын
I hope you are recovering well from your stay. That must have been scary and so painful!
@BuchsdrN
@BuchsdrN Жыл бұрын
@@MommingwithMigraine thank you. I am doing so much better.
@TheWackler
@TheWackler Жыл бұрын
I know you get syncope, you should research and cover that vs seizure. Or how concussion effects a csf or vice versa
@Curious_Not_Judgemental
@Curious_Not_Judgemental Жыл бұрын
At 7:59 ish. I wonder when you go to sleep and lay down for an extended period of time, your leak seals up then you’re pressure builds. Then, after you get upright in the morning, your leak opens up and then your pressure drops
@theboss6033
@theboss6033 Жыл бұрын
For me(a post lp leak) low pressure caused a sucking feeling at the base of my skull. My high pressure drom IIH caused an explosive feeling in my whole head and I can always really feel the pressure behind my eyes. Like someone is trying to gouge my eyes
@MommingwithMigraine
@MommingwithMigraine Жыл бұрын
Sucking at the base, that's interesting (and sounds intense, I'm sorry you are fighting these things!)
@tasha9650
@tasha9650 Жыл бұрын
Exactly what I feel especially in my right eye! I can't even lay down most of the days I have to just tired myself out and fall asleep.
@keylockwood9487
@keylockwood9487 5 ай бұрын
26:37 low csf pressure voice? I am being tested for CSF leak. (I had a leak years ago and suspect I am still leaking) I do this wavering voice thing, especially late in the day. Like a wavering in vocal tone when I am talking? I have noticed something similar in your Flat Test video. I believe you did it in part of that video too? I have been doing this for years. I am wondering if it is one of the low pressure symptoms? Does anyone else do this? Like break in tone when talking?
@lourdesayala3959
@lourdesayala3959 Жыл бұрын
Thank you! This is me! Mind if I share with the fb groups for csf leaks and iih?
@MommingwithMigraine
@MommingwithMigraine Жыл бұрын
YW! Yes! PLEASE do, that would be so helpful! I'm not allowed to share in most groups because my channel is monetized, so it's considered "self promotion." My videos can only get shared if YOU GUYS do it. I know this info can help some people! Thank you! It's a huge compliment that you want to share!
@gracefender6188
@gracefender6188 Жыл бұрын
I have hydrocephalus. I have shunt and also have migraines. When my shunt malfunctions it hurts everywhere. I believe that’s high pressure.
@crystalkeara8868
@crystalkeara8868 Жыл бұрын
Do you get low heart rate drops with high pressure. This keeps happening to me. Not sure if it’s related to temporary high pressure. I’m wearing a 30 heart monitor to see if it’s my heart’s electrical or csf pressure
@5128mike
@5128mike Жыл бұрын
Jen I've watched several of videis. Suffering from Intercraneal
@desertboot9755
@desertboot9755 Жыл бұрын
I notice I have more pain when I'm laying down, usually.
@lourdesayala3959
@lourdesayala3959 Жыл бұрын
Can I ask, with low pressure, when you go to sleep or if you wake up in the middle of the night, do you see all kinds of lights and flashers with eyes closed? Similar to lighting strikes. I was told no pap. Got stented for stenosis 3 months ago and now I am worse. Damn dr literally said I can’t have csk leak, but doesn’t know what IS wrong…😢
@MommingwithMigraine
@MommingwithMigraine Жыл бұрын
I have had the crazy flashing lights when I closed my eyes, but I don't know what my pressure was at when that was happening. I'm so sorry this is happening to you. I've also been told by a couple Dr's that I can't be leaking, but others think I am. I'm so curious if we'll find something on my myelograms next month! I hope you and I both figure this out!
@hollyamici2460
@hollyamici2460 Жыл бұрын
It’s all so confusing! Why would it be easy?? 😂 I have a lot of your symptoms but my big mysterious symptom is tinnitus and pulsating tinnitus that can get very severe. It’s my main complaint. When it ramps up it tends to get better for me when I lay down flat. It usually starts off calm in the morning and ramps up during the day. It usually accompanies a headache/pressure but not always. They are both always there. Sometimes the pulsating is worse when I wake up and gets better after I’m up for awhile then it ramps up later. It’s all so frustrating!
@erictaylor5462
@erictaylor5462 Жыл бұрын
Perhaps some good news: I got my dad to subscribe to you.
@04ingoditrust04
@04ingoditrust04 10 ай бұрын
Ever have fluid leaks from ears?
@MommingwithMigraine
@MommingwithMigraine 10 ай бұрын
A couple times I've had a weird puddle on my pillow that I thought was from my ear. It's not regular and it wasn't a ton of fluid.
@izzykaii
@izzykaii Жыл бұрын
15:00 I died 😂😂😂
@Finding_Joy_83
@Finding_Joy_83 Жыл бұрын
Does your blood sugar levels change with your migraines?
@Finding_Joy_83
@Finding_Joy_83 Жыл бұрын
I have EDS and this sounds like a lot I've been dealing with in my migraines for years.
@MommingwithMigraine
@MommingwithMigraine Жыл бұрын
I don't know if blood sugar changes in migraines, but my migraines are affected by my blood sugar. If my blood sugar was changing during migraines I'd suspect & check on any dietary changes during attacks before suspecting the migraine itself (MJ has a different diet than not-MJ).
@loveKG26
@loveKG26 10 ай бұрын
My Dr doesnt care just chalks it up to epilepsy causes…. I’ve had hydrocephalus from suspected chiari leak into my ear…. My neck discomfort or ear fullness wasn’t of any interest to specialists after seizures started it’s been disappointing.
@suzio9317
@suzio9317 Жыл бұрын
Yesssss ACIDIC!!
@MommingwithMigraine
@MommingwithMigraine Жыл бұрын
Ain't no other way to describe it! It's acid!
@sarahbamford2633
@sarahbamford2633 Жыл бұрын
I switch between high and low, I have Chiari. Fun times.
@izzykaii
@izzykaii Жыл бұрын
I have my bf squeeze my head to relieve migraines too 😂 especially temple, back of neck, shoulders, bridge of my nose
@crystalkeara8868
@crystalkeara8868 Жыл бұрын
Lol I thought everyone always had ringing in their ears
@mv8908
@mv8908 Жыл бұрын
@@TONE11111that’s really sum bs😂
@DyreElsker78
@DyreElsker78 Жыл бұрын
Hello 💙 loving your videoes 💙 do you have a Amazon wish list and the adress? Can you please put it in the answer to me, the decribtion box and the about box so it is easy to find if you have? 💙 Maybe we can gift some stuff to you and the family? 💙🥳
@TheWackler
@TheWackler Жыл бұрын
Trigeminal gangsigns hahaha
@MommingwithMigraine
@MommingwithMigraine Жыл бұрын
HAHAHAH 😂😂😂
@TheWackler
@TheWackler Жыл бұрын
@@MommingwithMigraine actually whenever I explain it to someone I just tell them if Mike tysons tattoo had a branch along his jaw it would look like that
@amneris9433
@amneris9433 Жыл бұрын
Why should it be easy😅
@alisolkanu4763
@alisolkanu4763 5 ай бұрын
You have the most confusing symptoms.
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