T6 Paraplegic Bowel & Bladder Management

[@michaelroute146]

I have had a suprapubic catheter for 2 years, and it's been life-changing. Not one UTI since I got the SPC.

[@kristincampbell_]

I actually just got an SPC in November and it’s helped ALOT.

[@JDMvids1105]

I am a male t6. While I don't have the UTI's I do suffer severe spasticity which can make transfers almost impossible. Hang in there! I believe there will be some way for us to gain some functional recovery soon!

[@codyscott8397]

Kristin I did subscribe to you I am truly sorry that you have to go through what you are going through

[@beebotalbot5702]

This would be difficult as a young woman! This is good information for anyone,but I bet a young lady would feel so much better knowing,there are ways,don't give up,researching and trying things others have...and time, everything takes longer than you want it too,but so worth it. Xoxo

[@victoriareynolds8645]

There are catheters that are totally sanitary including the lubricant. So it limits the germs that can come into contact with it prior to insertion. With that many UTI’s you definitely qualify foot the most advanced catheters on the market.

[@kristincampbell_]

Luckily mine do come that way already, but I haven’t checked out to see if there’s any that specialize in preventing UTIs. Definitely something I need to get on top of, thank you!

[@victoriareynolds8645]

@@kristincampbell_ ya somehow at some point there are microscopic particles getting inside. Your urologist should be able to help. 😊

[@kristincampbell_]

@@victoriareynolds8645 they’re sneaky aren’t they ?! 😂

[@TecumsehChris49286]

Just saw this today. Good video, really like Fatima as well. I used to get a lot of UTIs as well. Not sure if this will help or if you still need it or not (most is obvious and I’m sure you already do). Cleanliness, obviously, wash hands before and use hand sanitizer before breaking into the catheter, wipe urethra area off really good before and after and keep clean down there in general. I take D Mannose a couple times a day as well as a cranberry supplement (make sure it’s a high quality one). Another thing I started doing is to “overdose” on vitamin C (I take about 4000 mg daily), your body will pee out what it doesn’t need and I read that bad bacteria and E. coli latch on to the vitamin C and get carried out with it. I guess it also raises the acidity of your urine and that kills a lot of the bacteria. Also LOTS of water, I drink more than a gallon a day. Not necessarily medically proven (although my urologist recommended the D Mannose) just stuff I read when I researched stuff on my own and it actually helps me. Might be worth a try. Anyway, good luck with everything.

[@luckystar6871]

it's actually completely normal to have accidents at first because your body isn't used to the schedule of your bowel program. once your body adjusts to the schedule, you typically can train it to only go when you want it to for the most part. also, it's intermittent catheterization, not intermediate!

[@robertbarringer-lk9pg]

I started taking minocycline 50 mg daily , no more UTIs and drink this tea Alvita , Ava Ursi

[@jamesoncross5946]

So I intermittent cath and I've learned that iodine is key to preventing it they told me to use alchool and I was in a consistant uti for almost a year. Iodine is key.

[@cguzz5763]

Extremely Courageous. Such an inspiration.

[@traciemarsh1611]

because of my situation i have these problems ive leaned to live with things now but for along time i would stay home

[@hello-people-of-goodwill]

Wonderful information

[@michaelcorbett9031]

Would you be able to provide a link to this Fatima? Would love more information on helping my bowel program…

[@kristincampbell_]

She’s @ paralysis nutrition on Instagram and Tik Tok!

[@roxannepeacock3902]

Hey hun, there's no link for the lady you were talking about. And if you are still having utis have you considered having surgery to have them make an illeal conduit? Probably spelled wrong. Ask your urologist about it. I had utis all the time too and this has saved me. My doctor gave it a nickname of a Indiana pouch.

[@tom_2ndlife]

The link is not below? Fatima channel link ?

[@kristincampbell_]

She doesn’t have a KZbin unfortunately but she has Instagram and a Website they’re in the description, here’s a link to her IG instagram.com/paralysis.nutrition?igshid=YmMyMTA2M2Y=

[@GaryCottew]

How do you get over having accidents are who helps you clean up if you're alone like me

[@agiusproductions5092]

C7 incomplete injury I don’t have accidents but my always constipated for 3 to 4 days what would u recommend me do

[@kristincampbell_]

@@agiusproductions5092 follow a gut healthy diet, drink lots of water, and take a probiotic is the best advice I could give you. Eat foods with high fiber

[@agiusproductions5092]

@@kristincampbell_ ok thanks appreciate it I’ll try do that cheers

[@markrhodes3983]

I am a male, had an accident at work last year. I have a Suprapubic catheter now it's finally settling down I'm mortified 😢. I'm also having opening laxatives and suppositories to go the toilet. I'm waiting for the NHS for tests the bowels are just about starting. I have no feeling's regarding the toilet are you the same. Sorry for asking personal questions. Not getting answers from the doctors. I have other issues as well. But I'm reserved in some things. Sorry to ask 😢 thanks 👍.

[@markrhodes3983]

Thanks really grateful for your response. You take care.

[@GaryCottew]

People want to help but they don't know how to help they think talking will help does talking help you

[@pwk22]

One piece of constructive feedback: lose the word "obviously". Wishing all the best for you.

[@leonmason9141]

😍 *promo sm*

[@RR-it2rt]

You might look into a neuro-urologist.

[@jamespriddy8275]

Nope, don’t need this. Too many people making personal videos. Just…WHY????

[@anxious_and_avoidant]

James really clicked on this video and then left this message 😂

[@TDIPower123]

Have you used diapers ?

[@jhors7777]

Love and best wishes to you. Thanks for posting fyi “empowered para” channel has good tips on UTI’s.