Teens With Incurable Conditions: How We Manage Our Health | On The Red Dot - Chronic - Part 2/4

[@bkai7777]

Felt very sorry for the boy who had to inject himself several times but failed. Seeing his grandma crying made it even very depressing! God bless him!

[@kimjinjin2464]

Praying for his recovery so that he doesn’t need to be injected anymore

[@rzh3518]

It’s so hard to watch it I had to pause multiple times! He is a strong boy and I really do hope he will be blessed.

[@christinesung8884]

I got teary when I saw his grandma crying😢

[@mdpluv4427]

They can hire a nurse just to inject the iv line so they dont need to go to the hospital if they have all the materials at home.

[@vars1449]

@@kimjinjin2464 There is literally the word incurable in the video title thus he is unable to recover.

[@realzia2]

I really sympathise with Venetia… I could never imagine having parents that show little care about my health, let alone having a medical condition that serious. Really wish her well and to have a strong will to overcome the obstacles ahead of her to pursue her dream. Nursing is such a tough job, especially with the manpower crunch, long hours and strenuous work, hopefully she is able to be in full control of her health.

[@trozallasmith3173]

I was in the same boat growing up and still am now that I'm 23. It was the toughest thing imaginable. I have seen pediatric cancer patients going through treatment alone. It is so sad

[@ZamaGon]

We should hear her parents side of the story. It could be scary, I have it. But since it is not something serious I also went to hospitals and clinics and nothing showed. Of course after hearing from doctors that you are ok multiple times, then parents do not know what to think. I even though I was a little paranoic and crazy. But it is more related to physical and mental stability. Usually if you get scared or pay it too much attention you get worse. Walking everyday and doing enough regular activity symptoms reduce dramatically. In my case I did not have more money to return to the hospital many times and learnt what it was many years after. I got better just by doing regular physical activity and avoiding some eating bad habits.

[@yolo-ni5bl]

@@ZamaGon I have PoTS and it's a spectrum. Obviously there are those worse than mine, but through most exercise or 'just walking' I faint, which has caused numerous head injuries and scares. The exhaustion is so bad I lay most of the day, and at the time of my first symptom onset, I went from a 96 average to 75 average in school quick due to horrific brain fog and an inability to retain information due to constant oxygen deprivation. It's a range.

[@tea-and-biscuits]

Love Jue Ming's positivity and his love and respect for his parents. I hope the home infusions get easier for him!

[@Chocolate牛奶]

Knew him since p1 his sooo positive and joyful to be around

[@MKiurinuRigold]

The other kid who has POTS I feel so sorry for her Her parents … I don’t have words I don’t wish to say anything that will demean my humanity and dignity I hope the young girl will have concern and love from extended family members As well as care from others I don’t have any sisters so I find it in my heart to want to care for young girls

[@ZamaGon]

​@@MKiurinuRigold We should hear her parents side of the story. It could be scary, I have it. But since it is not something serious I also went to hospitals and clinics and nothing showed. Of course after hearing from doctors that you are ok multiple times, then parents do not know what to think. But it is more related to physical and mental stability. Usually if you get scared or pay it too much attention you get worse. Walking and doing enough regular activity symptoms reduce dramatically. If you sit at home all day you feel sick with every small activity.

[@Tantalizism]

Venetia, you are strong. You can get through this! Medical technology advancement is improving by leaps and bounds these days so don't give up! Shame on the parents for letting a young girl getting through this medical condition by herself.

[@huilin0708]

CNA thanks for this series! I feel so sad for Venetia, the poor girl having to go through all of this. I wish her all the very best in her journey. and love Jue Ming's positivity!

[@DALLEY_SANI]

To go to the doctor without parents is quite a daunting experience especially at Venetia age. Venetia is all alone and reaching out to her parents.

[@Missy_Ai]

Venetia be encouraged. I know someone with congential heart condition with no cure and working as a nurse for 20 odd years already. She also faced all ups and downs alone but she is still going strong. You can do it too! 💪🏻

[@Theonigir8]

Jue Ming is adorable! He doesn't limit himself just because of his disease. Venetia broke my heart, I really feel that her parents shouldn't dismiss her condition like that. But I can feel that she has a tenacity that will last her through tough times as well! Jiayou all the kiddos here!

[@miliamilia5453]

my brother also has hemophillia A and is very rare in Singapore, this series shows the reality of how the hidden conditions are also as important and not easy to go through everyday life but will try to make most of their life like a normal person. Is a condition for life. Thank you CNA for these series !

[@benjaminbergling]

Venetia is a strong woman ❤ love and hugs go out to her

[@vars1449]

What is your definition of strong?

[@ilynnng535]

😢 all the kids are so brave. Wishing them all the best in managing their illness. My child has Type 1 diabetes too. Totally can relate to what they and their families are going through. May the gal with POTS be able to successfully proceed to work as a nurse.

[@drhannah8525]

grandma crying broke my heart. If I may, insert the butterfly needle at a closer angle to the skin, I'd usually recommend 30 degrees ish. Near an open window when it's bright or with a powerful lamp will help so can see the veins better, hold the skin taut with the other hand before insertion. Perhaps there can be home care visits arranged for him so a nurse can assist, please ask the doctor if that's possible.

[@natenel]

Venetia is very unfortunate that she has a family that isn’t there to give her support.

[@arsenal_84]

Hope she can become a nurse if that's really something she js striving for. All the best ! Don't give up until you have try your best.

[@mingyuhuang8944]

The parents are so awful and should be ashamed

[@hummit]

Respect for these brave young warriors seeing how they deal with their medical conditions with calm courage! Thank you CNA for another excellent documentary series!

[@coffeetimewithchloe]

Jue Ming is so strong and brave! Really respect him for his attitude and positive mindset!! Watching his Grandma crying really broke my heart! Really respect all these brave young warriors. Thanks CNA for the excellent documentary series.

[@lizzybuzzyboo]

Jue Ming and his family seem so lovely to be around. I, too have chronic conditions but it's not easy to be so positive! Jiayou! I'm encouraged by you

[@d00mch1ld]

21:52, man.... feel sorry for the grandma seeing her son like that.

[@sysy2685]

Venetia 😢 oh man. Kiddos with chronic illnesses is just really heartbreaking to hear...

[@chengmunwai]

21:52 - It's great that Jue Ming can talk to his grandmother using Cantonese.

[@ninakoch1799]

Venetia❤ You are strong and you will get through this! We are all rooting for you!

[@WWK186]

The reward for managing the chronic medical condition well is a normal life. Do persevere and at the same time enjoy what life has to offer.

[@peterlim-uf8bh]

These kids have 1 thing in common. They have a very positive mindset which is very important if you are diagnosed with a lifelong chronic medical conditions.

[@vars1449]

Venetia literally said why me? this is the opposite of having a very positive mindset🤨

[@Missy_Ai]

@@vars1449Probably because she don’t have good emotional support throughout the journey

[@iwynlimweilyn9607]

Stay strong and healthy, Venetia.

[@Lala_lalacllll]

Ahhhh 😢 not just the children are so brave. So are their parents 😢😢❤❤❤

[@ColouredPixels]

wtf @ venetia’s parents.. girl had to grow up so quick.

[@ameliatan0309]

some parents dont deserve to be parents. i'd be so happy and treasure her as my daughter.

[@MKiurinuRigold]

@@ameliatan0309 Love ❤your message That is very true

[@tiffanytiffany6644]

I also have a chronic disease, which is so debilitating. Now I'm 23 years old, but growing up with something stressful and weakening is horrible. I hope those kids grow up mentally strong. I wish them all the best. Fighting kids!

[@MC-mu4ze]

The boy!!!! He is so strong :( god bless take all their pain.

[@WooWoo-co4jf]

I have POTS, people don't realise how awful it is, add in other common comorbidities and life is often pretty miserable. All my life I haven't been taken seriously, I was told that I should shut up about pain because everyone has pain. When I was seriously ill as a result of pots and severe dehydration from a gluten allergy that gave me good poisoning type symptoms for 2_4 days family said I'd feel better if I moved or went for a walk!

[@RoyLimisAw3s0me]

Venetia parents is the worst kind in the whole EARTH! who can show no concern (paying for test and not giving mental support is absolutely MENTAL); are they even her parents? no parents is as horrible as Venetia.. going through the medical journey without any mental support is typical from the older generation parenting method; paying for her medical insurance and medical bill is what parents should do as the parent but no mental support is sickening to any human being with emotions; imagine if Venetia is able to control her illness and neglect her parents cos there is bitter root in there which will manifest and the hurt the parents did will affect how she deals with her own parents

[@yolo-ni5bl]

I've had the same experience..

[@mandy_145]

What the heck !! Why Venetia’s parents are not concerned about their daughter ???

[@matreen427]

I have second thoughts on this. This is from her POV, Emotionally they may not be there, but from I see, minimally they supported her financially which medical bills in Singapore will bleed you dry. They could have just told her to find part time jobs to foot her own bill.

[@katie54377]

For real like wtf

[@goop847]

@@matreen427the lack of emotional support makes it much much much more difficult to cope and live with it

[@KatJade269]

@@matreen427Really? 🤔

[@xinminang291]

Can also engage speedoc etc (home care service) to help with the insertion of cannula instead of going to the A&E

[@monzziewg729]

Made me cry too when I see his grandma cried.... 😢

[@jchua210]

Thank you CNA for another meaningful program, keep up the good work!

[@stepsitt4843]

加油 to all the kids in this series. Sending ❤ from Malaysia.

[@marieked]

I was diagnosed with POTS in my second year of nursing school too. It’s not easy..

[@66toonie]

Jue Ming, you are so brave.

[@KUCINGCUKING_3768]

Should show alot of series like this

[@elliecohen3805]

Teen with pots here. I want to hug her😞

[@viralloger267]

So hurtful to see young people suffer like this

[@Itsmaytoclopramide]

I dont have POTS but do have something sybdrome like know as hyper mobility spectrum disorder (HSD). Recently sublux my knee and people does not get it why I fall easily due to joint laxity and instability. Alot of times the pain during no flares or injury is the worst so can relate. I am not diagnose with hEDS but have to jump to multiple specialist just to get them and understand, run special test which I requested to rule out things. Getting a diagnosis is still what I want as it saves time for me repeating to people.

[@dewinurfarahkoh1794]

The angle of the needle insertion is wrong

[@erickapoletti2053]

Feel worse for the girl who’s parents didn’t believe her. She’s going to have a harder road without support. In the US you can get a trained animal to help you recognize the symptoms for POTS before you feel them and can help her live on her own. I hope that comes to her country

[@nicholasgoh3526]

How come the girl still using the old method of pricking the finger instead of using a scan meter for checking blood glucose?

[@btswiththemess3886]

She might not like that method or she’s just used to the old method

[@chloescafe1077]

scan meter less accurate

[@huiyingtanyayap]

I should shut up when I want to complain . I hope they have an easier life moving forward .

[@belindalaw2957]

not to be a self diagnoser but im pretty sure i have pots,, like it comes and goes every few months and all my symptoms are exactly the same as venetia's but the only thing stopping me from getting an actual diagnosis is that im broke asf and my family 10/10 wouldnt support me at all LOL so idk what to do anymore

[@ashley8980]

How is Venetia managing her POTS symptoms whilst pursuing Nursing? She shared that her symptoms are triggered by positional changes such as bending down and standing up. Are there any accommodations made at work? Any memo from her main physician to advise what activities she should avoid at work? My assumption is that bedside nursing ie. in the wards may require tasks that involve positional changes, like transferring patients, emptying urine catheter bag hooked below the patient's bed, monitoring markings on chest drain, retrieving things etc. How is Venetia navigating these? Please don't get me wrong. I believe NUS ran medical checks for prospective students and reached the decision that she is a suitable candidate. Just curious how she's managing her nursing duties with her condition.

[@Missy_Ai]

Nurses are not found merely in wards. There are nurses doing counselling or research too.

[@ashley8980]

@@Missy_Ai She's still in uni (according to part 1). It is compulsory to undergo attachments in the wards as part of the nursing curriculum.

[@Missy_Ai]

@@ashley8980 Bedside nursing expected from student nurses are different from registered nurses. There are tasks they cannot do.

[@Rmen_l0ver]

Constance is. Very pretty and if anyone bullies her for her condition I will find their location😊

[@pixelgunboy7244]

Its a Fortune to be Normal, May Fate grant these kids an easier journey from here on......🙏

[@sandl3544]

God bless all of them.

[@kayleighweldon7855]

I relate to Venetia

[@Hanvvn]

God enjoying the show

[@hwytube]

Should get some professional training for his home infusion

[@janeloh2952]

加油 everyone of U!!!!!!!

[@martinbrock713]

SDP’s healthcare plan is a total affront to the current practise of commercialization of healthcare in Singapore.

[@martinbrock713]

“Healthcare is a need and not a commodity,” said Dr. Gomez, to drive home the point that for-profit healthcare systems have failed to support citizens in the fringes of our society.

[@jer2911.L]

Can Dr. Gomez really sponsor all the poor people, or is it just a CON.

[@yong9317]

jue ming is in wsc!?!

[@moonstarsun633]

Parents of Venetia, make sure you stay healthy else no one will take care of you when you are sick and old. So cold and heartless. Should not have became parents at all in the first place. Thinks you value face 面子 more 😠

[@DestructiveMage]

I wish all the best to venetia (on a side note: Maybe she should join the pharmacy profession instead. Pharmacy can tell you how a little pill or injection will save someone's life. They also do less heavy lifting...aside from cartons. :>)

[@anziar3038]

PAP is obviously the only responsible and caring party in s'pore.❤❤

[@MKiurinuRigold]

^^ Hi Venetia Hope to be able to meet you in real life in the future ❤ Hopefully we might bump into one another some day

[@martinbrock713]

Paul Tambyah proposal intends to provide financial coverage for “compulsory basic health, accident and pregnancy” for all Singaporeans and permanent residents residing in Singapore for more than six months annually.

[@jer2911.L]

Who is Paul Tambyah? Is he that RICH to provide financial coverage for Singaporeans. Please don't SCAM us.

[@hpjt]

All these kids are so brave. Sorry that you all need to go through these. But jia you!

[@ColouredPixels]

he so young why the white hair???

[@Chels-fl5hf]

Most likely from his blood condition. Lack of certain vitamins and minerals, such as vitamin B12, iron, and copper, can affect melanin production and contribute to premature graying.

[@ColouredPixels]

@@Chels-fl5hf interesting!

[@d00mch1ld]

Asian Parents: "T1DM? Why not Type 2????".

[@kimjinjin2464]

Type two is due to one’s diet. It’s something that is non-genetic

[@d00mch1ld]

@@kimjinjin2464 Type 2 DM is caused by both genetic and environmental exposures.

[@Missy_Ai]

Type 1 is pancreas not producing insulin at all. Type 2 is pancreas not producing enough insulin.

[@d00mch1ld]

@@Missy_Ai not entirely correct. Both conditions are where insulin is not having the desired effect (insensitivity to insulin). T2DM, to the contrary is insulin insensitivity, so there is plenty of insulin around. Just that it isn’t having the same effect as it use to, or you need more of it to have the desired effect.

[@Missy_Ai]

@@d00mch1ld Where you get that theory? Mine is from medical textbook though

[@coregunner55]

Lol Venetia parents. Shame on u!!!!!

[@geuxber3588]

what kind of maniacs eat rice with a fork

[@CKPSexperience]

Venetia gives weird vibes. liar kind of vibes.

[@yolo-ni5bl]

how? PoTS is a horrible illness and many are bedbound. She is working hard with a horrible illness.

[@Bettinasisrg]

For the catheter first there's a lot of great videos on how.to.do it successfully but stay low and straight. Practice on small rubber tubes under banana skin or clothes! I wish the girl with POTS success with her life, she will find support with friends who can be family.