TEMPORARY PARALYZED / MRI VLOG / MULTIPLE SCLEROSIS /EDSS 1.5 - 6 / LIVING WITH AGGRESSIVE RRMS

[@charlenekeillor1373]

So glad you are safe from your car experience. Praying for your health. 🌸

[@LiiBorossy]

Thank you so much dear! 🙏🏼❤️ It was scary with the car incident but we were safe and everything worked out in the end.

[@ioannazampara6948]

My dear Lii, I also think it was Fampyra that caused the episode, I tried it a while ago but I could not handle the headaches and the nausea so I stopped. Headaches and migraines are my worst type of pain. I can handle it all, even the arthritis paini, but not this. Since it helps you, kudos to you for sticking to it! There is a new drug about to be tested on humans. It's supposed to halt ms and even reverse paralysis. I think the researchers name is Petrakos, he is Greek Australian or Greek American, I think. I will send you the link once I find it again. Have a lovely day!

[@LiiBorossy]

Good morning is it Ioanna or Anna? I want to get your name right.🥰 I was really shocked when the pharmacist told me that. I’ve been told about potential side effects but I thought that had to be in the beginning of taking this treatment. But I must have been wrong. Yes, the headaches and migraines also the stomach pain the first week were not a joke. But at this point I have so much pain on a day to day basis it felt like a “normal” day to me. Maybe that’s why I stuck to it but now a couple of months on Fampyra I think going off it would be really bad news for me. I got my walking back! (Not fully but I can take normal steps 😭🙏🏼❤️). And what I did not expect was that my brain fog got sooo much better too! 🙏🏼 So part from this episode that I had I am very happy with Fampyra. Please do share the link you were talking about if you find it. How are you doing? Are you enjoying the festive season? 😌❤️ Much love

[@ioannazampara6948]

It's Ioanna 😊😊 I am so happy it is working for you, I even thought I might give it another try after your video! I will send you the link as soon as I find it. This offers so much hope, much needed hope! As for the festivities, everything is beautifully lit up and it is refreshing to be in wintertime. The summer and the drought were painful in many ways.. You will hear from me soon with the info. Much love from rainy Greece 😊

[@LiiBorossy]

@ Greece 😍 I have never been there but always wanted to go. I agree it’s very nice change of season for us with a heat intolerance. 😅🤭 It is lovely to be able to be outside more. 😌

[@ioannazampara6948]

Tell you what, once we are well again (I am positive we will gain our health back) you will cone over with your family and I will show you around!!!❤ it will be a pleasure! Have a great Sunday!

[@susanjoseph2486]

Thanks

[@LiiBorossy]

Thank you Susan! You are so kind. Sending you so much love❤️❤️

[@coressaclark6354]

❤❤❤❤

[@LiiBorossy]

❤️❤️❤️❤️❤️

[@medinajaden1080]

🙏🏾

[@LiiBorossy]

🙏🏼🥰

[@HmemTrok]

مرحبا سيدتي لقد رايت بعض فيدوهاتك عن مرض التصلب المتعدد واردت ان اسالك انا اعاني من صعوبه بالمشي منذ ثلاثه اشهر اعرج وقد قمت باجراء الرنين المغناطيسي وضهر لدي نقاط بيضاء علا الدماغ ولكن دكاتره الاعصاب يقولون انه ليس تصلب متعدد ولكن اجريت البزل القطني للتاكد وضهرت نتيجه البزل انه لايوجد تصلب متعدد ولكن بعد البزل ساء المشي لدي اكثر من السابق فهل البزل القطني يؤثر علا المشي انا قلقله جدآ اليوم السادس بعد البزل لي وانا اعاني من ميلان في جسدي عند المشي

[@LiiBorossy]

Hi dear, first of all I’m sorry to hear that you are struggling. I wish I had an answer for you. I don’t know if the lumbar puncture could have had an effect on your walking. But it sounds to me like you maybe should try and get a second opinion from a different neurologist. It seems like the fact that you have multiple dots on your brain scans means that something is not right. They need to find the cause for the spots I think. I wish you all the best and please stay strong and advocate for yourself. I know it’s hard.

[@HmemTrok]

شكرآ لك جدآ ​@@LiiBorossy

[@aliciakillen1940]

Hope it’s not th medicine, since it’s helping you

[@LiiBorossy]

I know. Most likely it is but I’m not ready come off it. I will continue until January and then evaluate. 🤞🏼 Much love to you and your family 😊

[@susanjoseph2486]

Thanks

[@LiiBorossy]

Thank you sweet friend! 🙏🏼❤️