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@aliciakillen1940
@aliciakillen1940 23 сағат бұрын
I was wondering if there is anything a service dog might be useful or helpful for you?? Just a thought? Getting things or maybe detecting changes in your body and alerting ?
@LiiBorossy
@LiiBorossy 23 сағат бұрын
That would have been a great idea if it wasn’t for my son who is extremely allergic to dogs. 💔😔 To detect changes and that could alert would have been very helpful. Thank you for sharing this, maybe could be a good idea for someone else watching. 🙏🏼❤️
@LiiBorossy
@LiiBorossy Күн бұрын
If this video served you please share it so it can help more people who are dealing with chronic illness. ♡
@sandra.diaz.7139
@sandra.diaz.7139 Күн бұрын
@sukijohnson5398
@sukijohnson5398 Күн бұрын
That numb feeling, started at your toes, is called stocking parathesis, and can be caused by MS. I've had it twice, mine went from toes to just under my belly button...very scary, and mine took a few weeks to go away. I have MS too.
@LiiBorossy
@LiiBorossy Күн бұрын
@@sukijohnson5398 thank you for sharing. I did not know thats what it was called. Mine too, it started in my toe and spread up to my hips. Unfortunately the feeling did not return fully for me. My toe is still completely numb as well the bottom of my feet and backside of my legs. I’m so glad you got your feeling back! 🙏🏼❤️ I don’t think mine ever will… it’s been about 3 years now.
@sukijohnson5398
@sukijohnson5398 Күн бұрын
@LiiBorossy My legs are actually both numb from the knees down permanently (not from ms), and I felt it on top of that. There's also something called stocking-hand parathesis, but I've never had it in my hands or arms. My neurosurgeon said it can take weeks, months, or years to go away- it's different in every person. I hope yours goes away!
@LiiBorossy
@LiiBorossy Күн бұрын
@@sukijohnson5398 thank you. We can hope 🙏🏼
@angelbabycards3595
@angelbabycards3595 5 күн бұрын
Today, is December 31, 2024, 5:28PM. My continued research as promised, Pam. Here you go. Seems to be working, sans the damage done to the Balance system with most MS patients, thus the problems, Mark :) " -------- Although I do not know the specifics of the stem cell procedure, when I ask the question about the existing health of one's red blood cells when donating blood, I often see and read about the way red blood cells are treated in order to preclude and prevent infections, which can be easily transferred from one person to another. For this reason, it does make sense, that if Biologics or Viral Agents were and are [somehow responsible] for the onset of Infection, then it does make sense to see how and why a stem cell therapy / procedure, just might accomplish the reset the body needs for as long as it can last, so as to have a person appear to be making a recovery. But: Most folks just cannot afford the high cost of that type of treatment. Don't ask Me how I know. So instead, I researched the problem from the other side the equation, that if the Virals and Biologics could be mitigated to eradicated, that one could improve substantially from the effects of MS. See Below my research and efforts from diagnosis in 2016 to what I am doing in 2024: FYI/FYR: Status Update: December 27, 2024: Findings: Experiencing [Substantial Improvement] as of December 15, 2024. Effort to Outcomes: 'This week, 'So much regained function in lower extremities, I feel as my Feet are Literally [Glued To the Floor, as Full Contact Clearly has Been Regained, Pam]. Further: Experiencing signs of [Substantial Balance Improvement, as Steadiness reaction to balance changes can can be coped with in real-time. ' Yes, I the combination of what appears to be regrowth and cessation of biologics, which appear to cause decompensation are leading me to believe, that this method and approach is [Substantial]. Here you go. Status Update: It's December 26, 2024 months post my own guinea pig study, for I do not have the time to sit and wait for yet another group of individuals who will do whatever, only to have more and more people suffer in silence, as they decompensate from the effects of MS. Nay.., I felt it necessary to do some research on my own, and test my outcomes in real time, saving perhaps years of guessing games, for at the end of the day, the only thing that will likely happen, is that people like Terri Garr will be diagnosed and pass from the disease without an effective treatment or possibly a cure. 'I developed my own augmented tincture solution, and I am finding it be [quite beneficial]. Opinion: Knowledge should not be held back and folks forced to pay substantial monies, just to regain function. No.., so sorry, but I took action after seven years of my own research. It does appear my Tincture is helpful. This is what I am doing in 2024, and when I just stood up, my footing was So Solid, [.. I feel as if I am glued to the floor -""the signal via the increasingly obvious restoration of the Meyelin in my lower extremities, et. al.., - "is so robust once again"]. ------------------------------------ Here you go, Dear Pam. I am feeling fine once again. Having a 160 IQ does make the impossible just time consuming. Here you are. Went again to Walmart last night. Spoke to the clerk. She began asking me is the Tincture resolves MS Symptoms permanently. Said to Her: ... 'I don't know but there's no real reason it wouldn't continue working; -..it's a daily therapy as far as I'm concerned..' ...Later, I think, 'when I went back, she seemed a bit upset, as she uses a cane herself, and appears impaired, while I now, am now beginning to walk around again the way I did before the 2016 MS diagnosis. Go with God: As promised, and Merry Christmas, Mark ❤ @melissacreighton7653 Honestly, I realize I am at a point, where, from Guinea Pig experience, what is actually working and effective, but if and where I provide the precise formula, experience tells Me my augmented Tincture will be Buried into Silence. But, I'll try anyway: Augmented Tincture I am.using 3 times per day and now can see, walk, and manage the balance issue, hoping for a complete recovery: Tincture Formula: 2 Oz. Black Walnut 1 Oz. Wormwood 1 Oz. Clove Oil 1.5 Oz. Liquid Stevia 1 Oz. Berberine (24) 10 mg. Zrtec, liquid 1.8 Oz. Chinona Bark, finely ground, Fill grinds, just over grounds with regular Southern Comfort, Cover grounds and sit in refrigerator for 72 hours. Then: Remove from frig, filter til only 1.3-1.5 oz. from the rendered chinona grounds remains. Then: Pour extracted Chinona Bark liquid into 4-6 ounce glass, add black Walnut, Wormwood, Liquid Cloves, Liquid Stevia, Liquid Berberine, liquid from 24 Zyrtec liquid pills, then Stir and Fill (3) 2 Ounce Bottles. Then: ( Eyedroppers worth 3 Times per day for 26 Weeks.). And there you are.
@angelbabycards3595
@angelbabycards3595 5 күн бұрын
FYI/FYR: Status Update: December 27, 2024: Findings: Experiencing [Substantial Improvement] as of December 15, 2024. Effort to Outcomes: 'This week, 'So much regained function in lower extremities, I feel as my Feet are Literally [Glued To the Floor, as Full Contact Clearly has Been Regained, Pam]. Further: Experiencing signs of [Substantial Balance Improvement, as Steadiness reaction to balance changes can can be coped with in real-time. ' Yes, I the combination of what appears to be regrowth and cessation of biologics, which appear to cause decompensation are leading me to believe, that this method and approach is [Substantial]. Here you go. Status Update: It's December 26, 2024 months post my own guinea pig study, for I do not have the time to sit and wait for yet another group of individuals who will do whatever, only to have more and more people suffer in silence, as they decompensate from the effects of MS. Nay.., I felt it necessary to do some research on my own, and test my outcomes in real time, saving perhaps years of guessing games, for at the end of the day, the only thing that will likely happen, is that people like Terri Garr will be diagnosed and pass from the disease without an effective treatment or possibly a cure. 'I developed my own augmented tincture solution, and I am finding it be [quite beneficial]. Opinion: Knowledge should not be held back and folks forced to pay substantial monies, just to regain function. No.., so sorry, but I took action after seven years of my own research. It does appear my Tincture is helpful. This is what I am doing in 2024, and when I just stood up, my footing was So Solid, [.. I feel as if I am glued to the floor -""the signal via the increasingly obvious restoration of the Meyelin in my lower extremities, et. al.., - "is so robust once again"].
@angelbabycards3595
@angelbabycards3595 5 күн бұрын
GE, Friends. I decided to work to solve a critical problem that unfortunately ended my older Friend and Mentor's Life in 2017. Worse: I too was diagnosed in Early Spring, 2016. Thing Is: Nobody gave Me [any medicine], as I was completing the self-imposed study on Poverty, so I understand what many people have gone thru. So: I was well motivated to solve the problem, and I think I figured out the cause, and how to treat it. Below are my notes and what I am working on to help Everybody. ' Happily, Because I have developed an Augmented Tincture Solution, Combined with a simple medication anybody can buy, turns out' The Damm Stuff Actually Works. -Fact. 'The Closest Thing to a Miracle Cure as I have seen in Decades.' *As of "this weekend, I'm beginning to feel and function almost normally once again." *I will keep you posted on my research efforts to outcomes. My Best, MDM, JD Candidate \\//
@Shane7787-b7w
@Shane7787-b7w 5 күн бұрын
Im just waiting for results on my mri scan how long did u wait for mri results on brain ? Do u get a burning sensation? My hands and feet buzz and throb
@LiiBorossy
@LiiBorossy 2 күн бұрын
Hi 😊 I’m sorry for what you are going through. It’s a scary time not knowing what will happen and what the results will be. I send you my strength and love. I can’t tell you how fast I got the MRI results because I never went to the neurologist after. (Completely in denial and did not want to see one). I share what happened in my video. Yes I do experience a burning sensation as well as a feeling of ice cold. It can happen on its own or simultaneously in the hands, feet, legs, arms and as well as the top of my head in my case.
@angelbabycards3595
@angelbabycards3595 8 күн бұрын
Today, is December 31, 2024, 5:28PM. My continued research as promised, Pam. Here you go. Seems to be working, sans the damage done to the Balance system with most MS patients, thus the problems, Mark :) " -------- Although I do not know the specifics of the stem cell procedure, when I ask the question about the existing health of one's red blood cells when donating blood, I often see and read about the way red blood cells are treated in order to preclude and prevent infections, which can be easily transferred from one person to another. For this reason, it does make sense, that if Biologics or Viral Agents were and are [somehow responsible] for the onset of Infection, then it does make sense to see how and why a stem cell therapy / procedure, just might accomplish the reset the body needs for as long as it can last, so as to have a person appear to be making a recovery. But: Most folks just cannot afford the high cost of that type of treatment. Don't ask Me how I know. So instead, I researched the problem from the other side the equation, that if the Virals and Biologics could be mitigated to eradicated, that one could improve substantially from the effects of MS. See Below my research and efforts from diagnosis in 2016 to what I am doing in 2024: FYI/FYR: Status Update: December 27, 2024: Findings: Experiencing [Substantial Improvement] as of December 15, 2024. Effort to Outcomes: 'This week, 'So much regained function in lower extremities, I feel as my Feet are Literally [Glued To the Floor, as Full Contact Clearly has Been Regained, Pam]. Further: Experiencing signs of [Substantial Balance Improvement, as Steadiness reaction to balance changes can can be coped with in real-time. ' Yes, I the combination of what appears to be regrowth and cessation of biologics, which appear to cause decompensation are leading me to believe, that this method and approach is [Substantial]. Here you go. Status Update: It's December 26, 2024 months post my own guinea pig study, for I do not have the time to sit and wait for yet another group of individuals who will do whatever, only to have more and more people suffer in silence, as they decompensate from the effects of MS. Nay.., I felt it necessary to do some research on my own, and test my outcomes in real time, saving perhaps years of guessing games, for at the end of the day, the only thing that will likely happen, is that people like Terri Garr will be diagnosed and pass from the disease without an effective treatment or possibly a cure. 'I developed my own augmented tincture solution, and I am finding it be [quite beneficial]. Opinion: Knowledge should not be held back and folks forced to pay substantial monies, just to regain function. No.., so sorry, but I took action after seven years of my own research. It does appear my Tincture is helpful. This is what I am doing in 2024, and when I just stood up, my footing was So Solid, [.. I feel as if I am glued to the floor -""the signal via the increasingly obvious restoration of the Meyelin in my lower extremities, et. al.., - "is so robust once again"]. ------------------------------------ Here you go, Dear Pam. I am feeling fine once again. Having a 160 IQ does make the impossible just time consuming. Here you are. Went again to Walmart last night. Spoke to the clerk. She began asking me is the Tincture resolves MS Symptoms permanently. Said to Her: ... 'I don't know but there's no real reason it wouldn't continue working; -..it's a daily therapy as far as I'm concerned..' ...Later, I think, 'when I went back, she seemed a bit upset, as she uses a cane herself, and appears impaired, while I now, am now beginning to walk around again the way I did before the 2016 MS diagnosis. Go with God: As promised, and Merry Christmas, Mark ❤ @melissacreighton7653 Honestly, I realize I am at a point, where, from Guinea Pig experience, what is actually working and effective, but if and where I provide the precise formula, experience tells Me my augmented Tincture will be Buried into Silence. But, I'll try anyway: Augmented Tincture I am.using 3 times per day and now can see, walk, and manage the balance issue, hoping for a complete recovery: Tincture Formula: 2 Oz. Black Walnut 1 Oz. Wormwood 1 Oz. Clove Oil 1.5 Oz. Liquid Stevia 1 Oz. Berberine (24) 10 mg. Zrtec, liquid 1.8 Oz. Chinona Bark, finely ground, Fill grinds, just over grounds with regular Southern Comfort, Cover grounds and sit in refrigerator for 72 hours. Then: Remove from frig, filter til only 1.3-1.5 oz. from the rendered chinona grounds remains. Then: Pour extracted Chinona Bark liquid into 4-6 ounce glass, add black Walnut, Wormwood, Liquid Cloves, Liquid Stevia, Liquid Berberine, liquid from 24 Zyrtec liquid pills, then Stir and Fill (3) 2 Ounce Bottles. Then: ( Eyedroppers worth 3 Times per day for 26 Weeks.). And there you are. --------------------------------------------- FYI/FYR: Status Update: December 27, 2024: Findings: Experiencing [Substantial Improvement] as of December 15, 2024. Effort to Outcomes: 'This week, 'So much regained function in lower extremities, I feel as my Feet are Literally [Glued To the Floor, as Full Contact Clearly has Been Regained, Pam]. Further: Experiencing signs of [Substantial Balance Improvement, as Steadiness reaction to balance changes can can be coped with in real-time. ' Yes, I the combination of what appears to be regrowth and cessation of biologics, which appear to cause decompensation are leading me to believe, that this method and approach is [Substantial]. Here you go. Status Update: It's December 26, 2024 months post my own guinea pig study, for I do not have the time to sit and wait for yet another group of individuals who will do whatever, only to have more and more people suffer in silence, as they decompensate from the effects of MS. Nay.., I felt it necessary to do some research on my own, and test my outcomes in real time, saving perhaps years of guessing games, for at the end of the day, the only thing that will likely happen, is that people like Terri Garr will be diagnosed and pass from the disease without an effective treatment or possibly a cure. 'I developed my own augmented tincture solution, and I am finding it be [quite beneficial]. Opinion: Knowledge should not be held back and folks forced to pay substantial monies, just to regain function. No.., so sorry, but I took action after seven years of my own research. It does appear my Tincture is helpful. This is what I am doing in 2024, and when I just stood up, my footing was So Solid, [.. I feel as if I am glued to the floor -""the signal via the increasingly obvious restoration of the Meyelin in my lower extremities, et. al.., - "is so robust once again"].
@charlenekeillor1373
@charlenekeillor1373 9 күн бұрын
Wishing you and your family a wonderful 2025 🌸
@LiiBorossy
@LiiBorossy 8 күн бұрын
The same to you lovely!! Thank you so very much. ❤️
@eniaidago
@eniaidago 9 күн бұрын
Dear Lii! Loved to see your little ones and Caesar. Wishing you a Happy and Blessed New Year❤ Your experience at the children's school made me really sad. Sad because it reminds me how awful people could act even with people like us (how the heck could we tell them how struggling it is even when everybody looks helpful?!)
@LiiBorossy
@LiiBorossy 9 күн бұрын
Thank you dear! And I wish you the same for you and your family.🙏🏼❤️ It saddens me that people have become so occupied with themselves that they stopped seeing each other. I think we need to remind ourselves that caring for others is ultimately what makes us happy too. Just be kind to one another. ❤️ Sending you all the love and best wishes. 🫶🏼
@eniaidago
@eniaidago 9 күн бұрын
At least there are people who recognize this and have a natural willing to change😊Take care❤
@ioannazampara6948
@ioannazampara6948 9 күн бұрын
My dearest Lii, happy new year's eve and a great year! I am certain you will have a beautiful time because you are surrounded by a wonderful family! I have had many heartaches due to similar behaviors. I was even told once J should stay at home, and that was by a friend of 35 years. So imagine how considerate and sensitive your children are and will be (even more) towards special needs people, through your experience . A lot of people around me have been educated to consider the health and the human rights of someone like me. I guess it is a win all things considered. Have a great holiday!!!!
@LiiBorossy
@LiiBorossy 9 күн бұрын
You have some great insight. To think our children will be able to see others with special needs and treat them with respect and compassion. I see in my children that they care and they will help others always. My son will not let a friend be upset or cry without coming to console them. And my daughter will see a lonely child and ask them to come and play. Things like this fills me with joy and appreciation. I wish you and your family a happy new year! 🎊🎆 and the very best for 2025!
@medinajaden1080
@medinajaden1080 9 күн бұрын
🙏🏾
@LiiBorossy
@LiiBorossy 9 күн бұрын
❤️🙏🏼
@tulasarizal971
@tulasarizal971 9 күн бұрын
Much love from australia
@LiiBorossy
@LiiBorossy 9 күн бұрын
Much love to you my friend! ❤️
@aliciakillen1940
@aliciakillen1940 9 күн бұрын
Oh my goodness! What a horrible experience at the kids school. I can’t believe parents would act like that!! Absolutely ridiculous and unacceptable. So sorry that happened to you😢
@LiiBorossy
@LiiBorossy 9 күн бұрын
It was not what I expected. 🥺 I hope you have had a wonderful Christmas! Happy new year! 🎊
@aliciakillen1940
@aliciakillen1940 9 күн бұрын
Holidays were not good. Sick during thanksgiving and got worse. Ended up in hospital for 5 days with double pneumonia!!!
@LiiBorossy
@LiiBorossy 9 күн бұрын
Oh no!!!!! Don’t tell me that! I’m so sorry Alicia. I pray for healing ❤️‍🩹 and that your New Year will begin better than 2024 ended. 🙏🏼 Much love to you and your family ❤️
@jodiemorgan8063
@jodiemorgan8063 9 күн бұрын
Merry Christmas and a Happy New Year to you and your family. ❤
@LiiBorossy
@LiiBorossy 9 күн бұрын
Merry Christmas and a Happy New Year my friend! 🎊❤️
@jazstackhouse985
@jazstackhouse985 9 күн бұрын
You have such a beautiful family! I loved seeing how excited the kids were when they opened their gifts. Merry Christmas and happy new year! ❤️
@LiiBorossy
@LiiBorossy 9 күн бұрын
Aww 🥰 thank you so much.❤️ They were so happy and excited. Merry Christmas and a happy New Year to you too! Much love
@__Wanderer
@__Wanderer 10 күн бұрын
Wishing you and your family all the best in the new year :) <3
@LiiBorossy
@LiiBorossy 10 күн бұрын
Thank you my friend! We wish you the same! Happy new year.🎊🎆
@WasenshiDo
@WasenshiDo 14 күн бұрын
I didn't watch the video but just in case, look at fat soluble vitamin B1 Benfotiamine and TTFD - lectures by Elliot Overton!
@HmemTrok
@HmemTrok 20 күн бұрын
مرحبا سيدتي لقد رايت بعض فيدوهاتك عن مرض التصلب المتعدد واردت ان اسالك انا اعاني من صعوبه بالمشي منذ ثلاثه اشهر اعرج وقد قمت باجراء الرنين المغناطيسي وضهر لدي نقاط بيضاء علا الدماغ ولكن دكاتره الاعصاب يقولون انه ليس تصلب متعدد ولكن اجريت البزل القطني للتاكد وضهرت نتيجه البزل انه لايوجد تصلب متعدد ولكن بعد البزل ساء المشي لدي اكثر من السابق فهل البزل القطني يؤثر علا المشي انا قلقله جدآ اليوم السادس بعد البزل لي وانا اعاني من ميلان في جسدي عند المشي
@LiiBorossy
@LiiBorossy 19 күн бұрын
Hi dear, first of all I’m sorry to hear that you are struggling. I wish I had an answer for you. I don’t know if the lumbar puncture could have had an effect on your walking. But it sounds to me like you maybe should try and get a second opinion from a different neurologist. It seems like the fact that you have multiple dots on your brain scans means that something is not right. They need to find the cause for the spots I think. I wish you all the best and please stay strong and advocate for yourself. I know it’s hard.
@HmemTrok
@HmemTrok 19 күн бұрын
شكرآ لك جدآ ​@@LiiBorossy
@memesissydollar3080
@memesissydollar3080 20 күн бұрын
Hello , How are you doing ? I hope better and better . I wanted to ask if you have Ehlers Danloes Syndrome as well as the M.S? I have not got the chance yet to listen to more of your videos . I am blind with so many dxs it’s almost unbelievable . I don’t recall when I joined your channel but I am happy I got to listen to some so far . Thank you for caring and sharing important info . HAPPY HOLIDAYS TO YOU AND YOUR FAMILY . ❤Sissy US
@LiiBorossy
@LiiBorossy 19 күн бұрын
Hi! Thank you so much for your comment! It means a lot to me. I’m glad if my videos bring value. It makes this entire experience feel less overwhelming and negative. To answer your question, I’m pretty sure I have Ehlers Danlos Syndrome but I haven’t had an official diagnosis yet. It’s hard to find a specialist on this condition. At least where I live. I wish you and your family happy holidays too!❤️
@VinodSharma-r9q9m
@VinodSharma-r9q9m 8 күн бұрын
Is there any treatment or cure for ppms? If yes please share
@LiiBorossy
@LiiBorossy 7 күн бұрын
@@VinodSharma-r9q9m unfortunately there doesn’t exist any cure for MS.
@susanjoseph2486
@susanjoseph2486 20 күн бұрын
Thanks
@LiiBorossy
@LiiBorossy 19 күн бұрын
Thank you sweet friend! 🙏🏼❤️
@susanjoseph2486
@susanjoseph2486 20 күн бұрын
Thanks
@LiiBorossy
@LiiBorossy 20 күн бұрын
Thank you Susan! You are so kind. Sending you so much love❤️❤️
@charlenekeillor1373
@charlenekeillor1373 23 күн бұрын
So glad you are safe from your car experience. Praying for your health. 🌸
@LiiBorossy
@LiiBorossy 22 күн бұрын
Thank you so much dear! 🙏🏼❤️ It was scary with the car incident but we were safe and everything worked out in the end.
@medinajaden1080
@medinajaden1080 23 күн бұрын
🙏🏾
@LiiBorossy
@LiiBorossy 22 күн бұрын
🙏🏼🥰
@coressaclark6354
@coressaclark6354 23 күн бұрын
❤❤❤❤
@LiiBorossy
@LiiBorossy 22 күн бұрын
❤️❤️❤️❤️❤️
@aliciakillen1940
@aliciakillen1940 23 күн бұрын
Hope it’s not th medicine, since it’s helping you
@LiiBorossy
@LiiBorossy 22 күн бұрын
I know. Most likely it is but I’m not ready come off it. I will continue until January and then evaluate. 🤞🏼 Much love to you and your family 😊
@eniaidago
@eniaidago 25 күн бұрын
Just joined, Lii❤
@LiiBorossy
@LiiBorossy 24 күн бұрын
Hi! I’m so glad that you want to join 🙏🏼🥰 I think something went wrong though because there should appear a little star next to your name. 🥹❤️ If you press the link under this video that I posted in the description it will take you to the page where you can join. Thank you for your support and I look forward to seeing you in the little group of Spoonie friends.😍
@eniaidago
@eniaidago 24 күн бұрын
​@@LiiBorossythanks a lot, Dear for letting me know. Now it is solved i think😊❤
@LiiBorossy
@LiiBorossy 24 күн бұрын
Yes!! 🙌🏼😍❤️
@doreenkaran9963
@doreenkaran9963 26 күн бұрын
Am trying to join the members and ma facing some challenges. I can't find the Members tab. Is there a way you can share a link or anything for me to join?
@LiiBorossy
@LiiBorossy 26 күн бұрын
You have the link in my description under this video. ❤
@ioannazampara6948
@ioannazampara6948 26 күн бұрын
My dear Lii, I also think it was Fampyra that caused the episode, I tried it a while ago but I could not handle the headaches and the nausea so I stopped. Headaches and migraines are my worst type of pain. I can handle it all, even the arthritis paini, but not this. Since it helps you, kudos to you for sticking to it! There is a new drug about to be tested on humans. It's supposed to halt ms and even reverse paralysis. I think the researchers name is Petrakos, he is Greek Australian or Greek American, I think. I will send you the link once I find it again. Have a lovely day!
@LiiBorossy
@LiiBorossy 26 күн бұрын
Good morning is it Ioanna or Anna? I want to get your name right.🥰 I was really shocked when the pharmacist told me that. I’ve been told about potential side effects but I thought that had to be in the beginning of taking this treatment. But I must have been wrong. Yes, the headaches and migraines also the stomach pain the first week were not a joke. But at this point I have so much pain on a day to day basis it felt like a “normal” day to me. Maybe that’s why I stuck to it but now a couple of months on Fampyra I think going off it would be really bad news for me. I got my walking back! (Not fully but I can take normal steps 😭🙏🏼❤️). And what I did not expect was that my brain fog got sooo much better too! 🙏🏼 So part from this episode that I had I am very happy with Fampyra. Please do share the link you were talking about if you find it. How are you doing? Are you enjoying the festive season? 😌❤️ Much love
@ioannazampara6948
@ioannazampara6948 26 күн бұрын
It's Ioanna 😊😊 I am so happy it is working for you, I even thought I might give it another try after your video! I will send you the link as soon as I find it. This offers so much hope, much needed hope! As for the festivities, everything is beautifully lit up and it is refreshing to be in wintertime. The summer and the drought were painful in many ways.. You will hear from me soon with the info. Much love from rainy Greece 😊
@LiiBorossy
@LiiBorossy 26 күн бұрын
@ Greece 😍 I have never been there but always wanted to go. I agree it’s very nice change of season for us with a heat intolerance. 😅🤭 It is lovely to be able to be outside more. 😌
@ioannazampara6948
@ioannazampara6948 25 күн бұрын
Tell you what, once we are well again (I am positive we will gain our health back) you will cone over with your family and I will show you around!!!❤ it will be a pleasure! Have a great Sunday!
@poonamsall8181
@poonamsall8181 28 күн бұрын
Joined membership! 😊❤
@LiiBorossy
@LiiBorossy 28 күн бұрын
Yay!! I'm so happy 😍 Thank you so much! I will be posting a fun welcome note for you and the others hat joined under the community tab shortly. Much love
@aliciakillen1940
@aliciakillen1940 28 күн бұрын
Best of luck
@LiiBorossy
@LiiBorossy 28 күн бұрын
Thank you Alicia! Sending you a big hug.😃 How is everything with you?
@medinajaden1080
@medinajaden1080 28 күн бұрын
@LiiBorossy
@LiiBorossy 28 күн бұрын
❤️❤️
@cindyjohnson9078
@cindyjohnson9078 28 күн бұрын
Just joined. Good luck and excited that you did this.
@LiiBorossy
@LiiBorossy 28 күн бұрын
Thank you Cindy! 🙏🏼✨ I’m so grateful. Keep your eyes out for more updates on the community tab as well! 🙌🏼 I’m excited too that I actually took the step. 😅
@ioannazampara6948
@ioannazampara6948 29 күн бұрын
See you in the members' corner!!
@LiiBorossy
@LiiBorossy 29 күн бұрын
Aaaaaaa!!! ✨😍🙌🏼🙌🏼🙌🏼
@LiiBorossy
@LiiBorossy 29 күн бұрын
After my last video you were so incredibly encouraging and I decided to unlock the members feature on my channel! 🤩❤️🙏🏼 But know that if you are unable to join you will still get my normal content and uploads just like before. Nothing will change in terms of that. 🙏🏼😘 Much love
@samanthabond9607
@samanthabond9607 Ай бұрын
❤❤
@LiiBorossy
@LiiBorossy Ай бұрын
Thank you Samantha ❤️
@poonamsall8181
@poonamsall8181 Ай бұрын
I love the membership idea I'd definitely join 😊
@LiiBorossy
@LiiBorossy Ай бұрын
That makes me so happy to hear! 🥰 I’ll let you know in a video when I have it set up! 🙏🏼❤️
Ай бұрын
@LiiBorossy
@LiiBorossy Ай бұрын
❤️😘
Ай бұрын
@LiiBorossy
@LiiBorossy Ай бұрын
❤️😘
@doreenkaran9963
@doreenkaran9963 Ай бұрын
I would love to be a member too i have been your followers since you were pregnant of your little boy and i loved your energy ❤
@LiiBorossy
@LiiBorossy Ай бұрын
Has it been that long? I remember your username when I look at it but I wasn’t sure from what videos exactly. 😌🙏🏼❤️ Thanks you for still being here Doreen.
@eniaidago
@eniaidago Ай бұрын
@LiiBorossy
@LiiBorossy Ай бұрын
❤️🙏🏼
@purplepixie00
@purplepixie00 Ай бұрын
❤ Sending all the hugs to you! I've had an anxiety disorder since I was 5, and chronic depression since my early teens, so I'm very familiar with how you are feeling. I've learned that sometimes I just need to isolate away the fast pace of the outside world. This way I can recover, grieve, and adjust to what is happening at my own pace. I know things have moved into something worse when I become scared to leave my house or can't function normally when I'm not home. That's when I need therapy and lot of self-love and patience. Each of us is different, but I wanted to share this with you. Maybe you just need to slow down for a bit, give yourself time and things will work themselves out. If therapy or medication is what you need instead, go for it. It has changed my life! I think every single human needs therapy, to be honest. Whatever you do, try not to beat yourself up about this. Being a human is hard, we can't forget that. I hope that things get easier for you soon, and that your finances will get better as well. I've commented before about my medical journey. I mentioned I might have MS as well. I've had two neurologists now and no diagnosis, but my new doctor does feel that something is happening, so more tests in my future. So far, I have been diagnosed with HEDS as well as Vestibular Migraines, so some of my symptoms have been explained. I'm having to relearn how to take care of my body because of my HEDS, which is hard since there isn't a whole lot of information out there. I don't drive anymore because I'm afraid of being hit with vertigo from the migraines. This year I've become more homebound than ever. It's been both frustrating and a relief to stay home so much. I get to do things at my pace, not what the world expects of me. But I'm missing out on things because I just can't keep up. Either because I have no energy from the chronic fatigue, or I'm in too much pain and can't walk very far. That is the worst part for me, not being able to keep up with everyone. I keep telling myself that this is just a phase, this will pass and I'll get back out there once I am able. Things may not look like they used to, but that's ok, it is what it is. I have to adjust to my new normal, whatever that may look like. Don't misunderstand, I'm emotional about this, I'm frustrated and sad. I'm angry that I can't be 'normal' anymore. But I know that if I look for the positive, I'll eventually feel better and handle the situation better. The only thing I can control is how I respond to my situation. Even when it's hard and all I want to do is cry, I remind myself of this. Thanks for listening. And thank you, Lii, for sharing your story with us. As hard as it is to share, I appreciate it. I may not be in the same position as you are, but hearing how you handle your situation helps me handle mine. It's not easy explaining medical issues to those without them, they don't really 'hear' us. You make me feel heard, thank you for that.
@LiiBorossy
@LiiBorossy Ай бұрын
I’ve been reading your comment a few times this past couple of days and reflecting on your words. I thank you for taking the time to write this to me. I appreciate it because you are not only taking the time to do it but you share words of wisdom and I agree with you on many things. I wish you did not have to feel this way and I’m glad my videos make you feel less alone 🙏🏼 same as your comments make me feel less alone. We are a community and we are here for each other. On a different note, my sister has EDS. So I understand what you mean about the doctors not having much information for you. You are what they call a “zebra”. A rare medical case that not many doctors can diagnose. Take care for now and we speak soon! Much love ❤️
@s.c8061
@s.c8061 Ай бұрын
❤️❤️
@LiiBorossy
@LiiBorossy Ай бұрын
☺️❤️❤️❤️❤️
@grifter_alert
@grifter_alert Ай бұрын
Thanks, you’re not alone as this disease has robbed me of everything and I’m only left with these painful memories of everything I’ve lost 💔 anyway, 🤲🏽 praying ur well n take care 🫶🏽
@LiiBorossy
@LiiBorossy Ай бұрын
First of all, my heart goes out to you. ❤️And it pains me that you are struggling too. I wish there was something I could do to help you. I like to think that by sharing my journey and my thoughts with you, we can all find value from it. For as long as I am able I will be here. Sharing with you. Putting into words what we are all feeling and experiencing. If there is something on your heart please feel free to share it with me. And if there is a topic you wish for me to highlight in a future video let me know. 🙏🏼 Thank you so much for your support and kind words. You have made a difference in my life. I’m grateful to you. Much love my friend. And I’m praying for you as well. 🙏🏼
@grifter_alert
@grifter_alert Ай бұрын
@@LiiBorossy appreciate ur prayers ​​​⁠and If there anything I can think off, I’ll definitely shout out. Anyway you’re most welcome and try to chill a-bit ✌️. Take care!!