Testosterone Recovery After Lupron | Answering YouTube Comments #60 | Mark Scholz, MD | PCRI

[@ThePCRI]

If you have questions about prostate cancer and need help from our Helpline team, you can email us here: [e-mail]

[@briangriffith2394]

Thank you so much for being there for the people my testosterone is -3 for almost 3 years now will it ever come back

[@robwells230]

I'll bet you were never warned that there is a twenty percent chance that you would remain castrated for life???

[@chanwtv]

@@robwells230 Doom and Gloom munger.

[@leonardola9161]

What is ur age ? Can you get a testrone shot ?

[@robertshort9121]

Three and a half years ago I went through radiation treatment for prostate cancer. One month before the radiation I was given a six month injection of Lupron. After my 54 raditation treatments the low T levels made me feel like crap--the hot flashes were the worst--very low energy, gained almost twenty pounds and couldn't wait for this stuff to wear off. After eight monhs I was still having the worst hot flashes and then they just seemed to stop. Six months later I had my testosterone checked--170 -still very low from almost 400 level before the Lupron. Three months later another T test--levels had fell to 119--whats going on? Still low energy, weight kept packing on but no hot flashes. Another test six months later and my T had risen to 240--better but not good--still dragging ass and can't sem to lose the weight--When I told my doc about this he pretty much said I'll need to live with it because he isn't prescribing TRT because it will stimulate the cancer again. After doing my own research I can't believe some doctors (or many) are behind the times when it comes to TRT treatment after prostate cancer and I'm now contacting some TRT clincs on my own to see about TRT treatment and getting my T back up to a reasonable level--by the way I'm 75 years old.

[@rthappens]

Were you able to get TRT? thank you

[@robertshort1153]

@@rthappens yes I was able to start my TRT treatment this past March from a local clinic. I had contacted several online clinics who refused me because of the cancer unless I provided a letter from my doctor saying it was ok - that wasn't happening. Local clinic tested my test at 52 - no wonder I was feeling like crap - last office visit my test was up to 975 and feeling much better but still in the adjusting stage

[@rthappens]

@robertshort1153 thank you, tho how where you able to get it? I can't go thru life with no testosterone

[@robertshort1153]

@@rthappens my friend, there are plenty of online clinic I'm sure would supply you with testosterone. I first tried Royal Medical Clinic (?) , and they would not treat me without the letter from my doctor. I'm pretty sure they have changed their stance as they have a big article on testosterone and prostate cancer on their website. You might give them a try. They aren't cheap - $195 a month I believe - it would be much cheaper if your private doctor would give you a prescription. I pay $179 a month but had to pay a whole year up front to get that price. I use Rocky Mountain Mens Clinic in Colorado and I visit their office for my labs. If I can answer any questions that you have I'll give it my best shot

[@leonardola9161]

Im 63 and when my luoron wears off im going to get a testrone shot

[@robertdavis9246]

You,two,dear people should be very proud of yourselves. Truly and dearly giving wonderful advice that aids in the comfort of patients. Thank you.

[@clarkelliott5389]

As usual, you guys hit the nail on the head every time. Thanks for the great information!

[@steinshaw2490]

Both times I have stopped ADT the last shot did double time. The first time was with Eligard and it was a six month dose. ( By the way, I will never do a 6 mo dose of Eligard that hurt and stung and would occasionally drip blood for a few days) It was in September and lasted to the following September. The second time was a 3 month dose of Lurpron, also in September, which took until March before my T started to raise. The interesting thing about the Eligard is I could fell the nodule in the fat of my Belly. The now ex wife (an RN) thought I was feeling scare tissue or something. No it was the Eligard suspension and when I couldn't feel it any more my T started to raise. I'm not certain the oncologist believed me either as he asked to feel it. That was the only thing I liked about the Eligard because of the pain and I think it impacted my mood more as well. Some people are the other way but Lupron was much less painful for me. I hope that helps someone. I just wanted to share my limited experience.

[@leonardola9161]

Thanks for the info. I took the 6 month lupron cant wait for it to wear off.

[@jm-bv1wh]

Completed 15 months on Lupron in March, 2021 - skipped final shot due in June as I'd had enough. Dec 1 now, and no signs of testosterone recovery whatsoever. Can not lose any of the 20 pounds that I gained. No libido. Loss of muscle and strength. Very depressing.

[@NablusRain]

Same here brother I have been taking Firmagon shots for the last 38 months and I suffer the same problems you have

[@wolfganghorak]

When you change to plant based nutrition combined with interval fasting you will quickly lose weight. At the same time I recommend sports as riding a bike or jogging and, even more important, dumbbell training to recover muscles and strength. Works fine, just start slow and be patient.

[@leonardola9161]

How old are you ?

[@leonardola9161]

I took the 6 month lupron- loss of strength.fatigue

[@johnnydee6659]

I have two more months left of taking Orgovyx. Most days my energy levels are good up until the mid afternoon. From my friends who were given Lupon, I have more energy than they did while on it I'm looking forward to returning to normal again.

[@albertpeckham8708]

I went through two rounds of Orgovyx and the depression and tiredness was quite pronounced. No medications for this were prescribed. I lost 15 pounds which I attribute to muscle loss and hot flashes. My libido returned about 3 months after the last round ended. At 82 y/o I'm somewhat surprised that any interest in sex returned at all! Thank you for the honest information.

[@leonardola9161]

Thanks for the info sir

[@popopps1]

When I found out that Orgovyx is more than $2,000.00 per month, I opted for Firmagon.

[@johnfreeman1164]

I started Firmagon in June and switched to Orgovyx in August. Orgovyx was a little easier to deal with and a lot better because it was a pill and not a shot. I just stopped the Orgovyx and I'm waiting to see how things go.

[@chedesgrieux2365]

John Freeman - Did your insurance pay for Orgovyx? If not, how much did you pay for it monthly? How has your testosterone recovery been?

[@johnfreeman1164]

@@chedesgrieux2365 luckily, my insurance did pay for the Orgoxyx. I calculated that it cost $79 per pill. I grew VERY weary of having no testosterone and the horrible side effects. Once I stopped the Orgovyx, I felt back to normal in about a month. In the last six month since I have been off of it my PSA has been below 0.03, so all is good with me, so far.

[@jeffreysteinberger2568]

what number did your testosterone end up with? @@johnfreeman1164

[@brendonlepage5576]

Your videos are my go-to place for clear and trustworthy information. There are so many quack videos (This one weird trick can REDUCE the size of your prostate 🙄) yours are logical, scientific and up-to-date. Thanks so much for your time and effort.

[@johndefenderfer5946]

Just started on ADT meds back in February with a 30-day dose of Firmagon and can tell you that stuff seems to start working from the moment of the injections. I mean from the instant I stood up from getting stuck it seemed like I had lack of focus and the typical injection site issues. I did find out that Firmagon, because it has a shorter life than some other ADT meds, has to start working immediately, and you will lose up to 88 percent of your testosterone production in the first 24 hours. I am now on a 6-month Lupron dose and Zytiga but I am seriously considering opting out of meds well earlier than I am supposed to because of the side-effects.

[@leonardola9161]

Thanks for ur info What is ur gleason score ?

[@BKKKevin]

Would love to see a video on the option of opting out of ADT after a standard radiation treatment for a Teal (3-4 or 4-3)… What would be the change in probability of reoccurrence in 5 & 10 years?… Is the additional reoccurrence risk 10% or 50% vs the increase in other longterm probkems of weight gain and heartissues?… Couldn’t any additional risk be mitigated by PSA monitoring and PSMA Pet scans at any sign of reoccurrence?…

[@stevekline5608]

I am with you. I had the same Gleason score. I was going to have 42 sessions and no ADT. I didn't like the side affects. But my radiation Doc said that would be a mistake. I was 65 and wanted it gone. I did 3 monthly shots , not painful at all. Then did a 3 month shot and it burned like hell for about 10 minutes.I had worked out and lifted weights for years and was able to continue it all the same while under treatment. I didn't have the energy but was able to stay with it and gained no weight. But my sex life ended and I blame the ADT for it.

[@robwells230]

​@@stevekline5608 ADT ELIGARD CASTRATION has horrific side effects for many men. Not just hot flashes Severe mood swings Bad brain fog Severe fatigue Muscle loss Permanent penile atrophy Complete loss of libido Bone loss and fracture risk Cardiovascular disease Diabetes Dementia AND PERMANENT CASTRATION in up to twenty percent of older men Only the patient can decide if this cruel and barbaric treatment is worth taking, but only after clear and honest disclosure of both benefit to overall survival and quality of life destroying and life threatening effects. Unfortunately, you never get full disclosure from doctors, only big pharma sales propaganda. Do your research and make the best decision for your situation and values Best wishes for a cure of remission

[@donaldpiper9763]

@@stevekline5608- This is true but I wonder with out it ,if it would’ve come back and spread to lymph nodes ,bone ,brain ect. There’s no easy answer but the one sure answer REMISSION .

[@leonardola9161]

Go to pcr.org they have videos on that

[@leonardola9161]

If you had a prostate biopsy get a polaris genetics test it should tell you how many years before the cancer could come back. Pcr.org

[@torgeirmolaug196]

3:35 "These medicines put the testicles to sleep, and the testicles don't always wake up consistently."

[@robwells230]

You are so right, but doctors and drug companies don't want you to know that you may end up castrated for life after ADT, without your free and informed consent. It is criminal

[@jamespmullin21753]

Yell at them, set a loud alarm clock, or splash them with cold water!!!

[@chanwtv]

@@robwells230 Doom and Gloom, Mr Negative

[@robwells230]

​​@@chanwtv If I am factually incorrect, please state your sources, Or are you just another Big Pharma bots pushing their propaganda???? ...I don't give a rats ass if you choose as much ADT CASTRATION TOXIN as you want for as long as you want. ....I just get pissed off when men are coerced, deceived, extorted, and intimidated into this cruel and barbaric treatment with FREE AND FULLY INFORMED CONSENT.

[@fjones63]

I was given 3 years of treatment and no libido.

[@masikluisasf]

17 years for me, 3 times in psych ward, no one believes me. Nerve pain, electrical pain, Fibromyalgia, Hypothyroidism, hyperparathyroidism. Galldbladder surgery, thyroid surgery. Pth surgery. Hysterectomy. The problems never end. I am in constant pain, can't work. Please if anyone has any info on lawyers I would appreciate. I have been existing not living for 17 years

[@tywatts7834]

I was same Had a spinal stenosis Waited 8 years had surgery I'm good

[@gemmabobis2323]

What kind of hormone therapy were you on and how long? Those side effects are horrible. Sorry you had to go through that.

[@brianogden1789]

Had 44 radiations for early stage 3. Followed by 3 years of Lupron Depot. My understanding is for a 6 months dose which I had, it take 24 months for all of it to be out of your body.

[@skinfiddler]

I'm 71 and for the past two years have been taking testosterone cypionate injections and have never felt better. Recently I was diagnosed with prostate cancer 3+ 4 and 4+3 gleason. Iincluded in the radiologist recommendations is six months of ADT and radiation therapy. I experienced anxiety before starting the testosterone and after test levels of 900 to 1200, I frankly don't think I'll make it.

[@jeffreysteinberger2568]

don't understand your statement

[@donaldpiper9763]

⁠@@jeffreysteinberger2568- I think he was trying to say that he was taking supplementary testosterone shots. Then he found out that he’s got prostate cancer and they recommended radiation treatment and hormone therapy and he’d rather die from cancer than go through the treatments. I myself chose too live as long as possible, everyone has too make that choice. He’s made his I assume.

[@Goomer]

Hunter has Grown!

[@jamespmullin21753]

I had my 39 radiation visits, 1 Firmagon shot and 3 Lupron 3 month shots. Am I cured? They test to see if you have cancer, but they do not test if the cancer is gone.

[@robwells230]

They should monitor your PSA every six months or so. Your PSA might have a flare after treatment, but it should level off and remain relatively consistent. It PSA rises more than 2.0 above its lowest point, the nadir, it is an indication of biochemical recurrence, and that there are cancer cells multiplying in the prostate or metastases. You won't really know much until your testosterone level recovers and then see what your PSA is. But, PC is usually slow growing and you have years to treat any recurrence. Best wishes for a complete cure

[@jaideepsekhon5227]

Can you have moderate alcohol when under Lupron..

[@jsguitargeek1432]

Does anyone ever just feel like rolling the dice - doing Radiation treatment and skipping the Lupron altogether?

[@BigZWD]

I almost did but thought about my grandson. I just finished radiation therapy I had a adt shot in December, things are coming back, starting to feel like a man again but I have one more shot next week , my last one. Only needed two my ururologist said. So I figured around July my testosterone levels will begin to raise. I hope so

[@markimiller27]

I had a PSA of 38, Gleason 7, with a PET scan that showed the cancer to be organ confined. My urologist was talking 2-3 years of ADT. After researching my options I chose to proceed with LDR brachytherapy to address the organ-confined tumors, and 25 sessions of external beam radiation to the prostate, seminal vesicles and pelvic lymph nodes. The external beam radiation should have also addressed any micro metastases that might have escaped the prostate. No ADT. My choice. ADT seemed like a lot of nasty side effects with little proven benefit for my particular situation. Thank goodness for the PET scan or I would be on ADT right now and probably pissed off about it.

[@robwells230]

I was Coerced and deceived into one six month Eligard shot two months prior to 25 fractions of IMRT for locally advanced Gleason 3+4, and PSA 42. THE side effects are so horrific and insufferable that I am rolling the dice and refusing any further toxic ELIGARD. My PSA dropped to 0.006 and my T remains well below castrate level even 6 months after the first, and only shot was supposed expire. I have lost all trust and respect in the CROSS CANCER INSTITUTE, named after the fascist castrating bastard responsible for the Alberta Eugenics program. It is CRIMINAL ASSAULT CAUSING GRIEVOUS BODILY HARM the way they forced CASTRATION without FREE AND FULLY INFORMED CONSENT.

[@robwells230]

I was coerced into one six month shot of Eligard ADT CASTRATION given two months before starting 25 fractions of 68 Grey IMRT. PSA was 42 at diagnosis, but has dropped TO ZERO a year after RT. THE RT was no problem except the expected dry ejection and temporary loss of pubes. HOWEVER, the side effects that I was never informed about were so INSUFFERABLE that I refused further ADT and I am rolling the dice. Had locally advanced Gleason 3 plus 4 with 3 percent 4, no lymph nodes or seminal vesicles involved, no bone mets. STILL, one year after that first shot of Eligard toxin expired, my testosterone level remains castrate level with little hope of ever recovering. Looks like the bastards deceived me into permanent CASTRATION without my informed consent. So, now, I plan to self inject testosterone cypionate twice weekly to regain some semblance of quality of life. A big 4Q to this corrupted NARCO MEDICO CARTEL that perpetrated this criminal assault. Testosterone is cheap and over the counter here in Mexico, without any Doctors prescription. Now, I understand how doctors like Mengele thought they could treat humans like lab rats

[@rjvagv1]

Do you have a video for men on Lupron with help to sleep?

[@ThePCRI]

I do not think we have anything on that specific issue unless the sleeping problems come from hot flashes specifically. I can add it to our list of questions for future videos. The patient advocate on our free helpline may be able to provide some information for you: pcri.org/helpline.

[@rjvagv1]

@@ThePCRI Ok thank you. It's all over the media of real men it's not just from hot flashes is the cause.

[@leonardola9161]

Check for video pcr.org

[@leonardola9161]

Pcri.org

[@leonardola9161]

Pcri.org

[@stanknowlton7043]

I went through puberty as a girl and a second puberty as a male with boobs.

[@robwells230]

Why don't doctors warn patients that the ADT CHEMICAL CASTRATION can be permanent in up to twenty percent of older men?? Without full disclosure, there can be no FREE AND FULLY INFORMED CONSENT

[@aslammalik2317]

I got Aligard for two years, like 22.5 mg followed by 4x 44mg with radiation therapy. for 4 weeks..The treatment started on August 22, 2014.. Gleason score was 3+3 . After completing radiotherapy on March 2014 PSA was 0.04, 0.02 .On July 2021 it was 0.15. On July 2022 it was 0.22. At present say December 15 it has risen to 0.42. A significant jump compared to previous years values. Can you suggest the reason? Regards. present my p s a is