Many thanks for this highly detailed explanation of TOS. I have had pins and needles in my ring and pinky fingers and occasionally my other three fingers. I have it both sides but worse on my left. It keeps me awake almost every night. I had a nerve test and the doctor diagnosed carpal tunnel and I was offered surgery. This does not make sense to me since my main symptoms in my ring and pinky fingers relate to the ulnar nerve. After studying TOS for a week of so I now strongly suspect TOS is my problem. I have been following exercises relating to TOS and have seen much improvement over the past week or so. I am so grateful for videos such as this and many others for helping us look after ourselves and make the right choices.
@tosmri11 ай бұрын
Thank you for the nice comments. It certainly sounds like you may be right to suspect TOS. Some patients who are originally diagnosed with CTS do, in fact, have TOS. Contact us and we can help you figure out how to pursue the right diagnosis. www.tosmri.com/contact-us/
@MoonSoar2 жыл бұрын
Thank you for the detail. I'm learning and figuring out how I want to navigate bilateral TOS.
@janekim39462 жыл бұрын
Dr Werden! Thank you so much for what you are doing! Your passion and dedication help lots of patients with TOS including me. I learned so much from your channel.
@tosmri Жыл бұрын
Sorry for the late response. Really appreciate your support!
@msCindyZ Жыл бұрын
@@tosmri I 😢am at my wits end This is at a point of intolerance this chronic pain. Can I be seen?
@homeiswherewepitchit49944 ай бұрын
This was by far the best info I have seen! Thank you! Maybe I missed it, but is there a specific MRI that will show the compression of the Brachial plexus? During shoulder surgery, if a thickened coracoacromial ligament is released can this cause the shoulder to roll forward and end up becoming TOS? Is the pectoralis muscle ever involved with TOS?
@tosmri4 ай бұрын
Thank you for your compliments and question. Yes, the NeoVista® study does show compression of the brachial plexus on dynamic arm positioning. As to your second question, there is no literature I am aware of showing imaging of the thoracic outlet prior to and following release of the coracoacromial ligament. I suspect there would not be a significant change, however, since that ligament does not contribute to the static position of the clavicle or scapula.
@megancolasono110810 ай бұрын
I wrote a longer description of my TOS and experiences with it. Sharing our stories always seem to help others get a proper diagnosis! Dr. Werden, I have noticed that when my one of my trapezius muscles get swollen and hard, the knots and pain extend up the neck and into the head causing migraines. Rarely I can use my massage gun to release the muscle and get relief. But 99% of the time I have to take a migraine medication, Imatrex. Why would a migration medication work to relieve this flair up of tightness and mostly pain? Post op I was at a point where at home migraine injections stopped working.
@tosmri10 ай бұрын
Hi again, Megan. We don't answer specific medical questions here for obvious reasons. As a radiologist, I do not prescribe medications, so this question is better to ask of your primary care doc or a pain management doc. I hope that is helpful.
@doctorshutup9817 Жыл бұрын
Great info here doc and I really liked the Q and A format. Out of curiosity, are you familiar with MSK neurology here on youtube (he also has his own site) and I've gleaned a lot of helpful info from him. For instance, one issue brought up by a lot of your viewers was difficulties with diaphragm breathing. I experienced this as well and one aspect that I think may be being overlooked is an adaption of swayback posture in TOS patients causing a gripping effect in the lower abs and inhibiting the diaphragm. I corrected this issue via physical therapy exercises and just wanted to share it with you and your audience. Anyway just wanted to say thanks and ask you about what you think about MSK neurology and his methods. He has a great article about it on his website in my opinion. Thank you.
@tosmri Жыл бұрын
Yes, I am familiar and have read posts. Thank you for sharing the info about breathing and core musculature. We appreciate patients who 'pay it forward' to help others!
@doctorshutup9817 Жыл бұрын
My pleasure. If I may, do you have any recommendations as far as TOS specialists in the chicago area?
@tosmri Жыл бұрын
@@doctorshutup9817 Although I have not worked directly with him, you could look up Dr. Jason Ko in Chicago.
@NomiaCoffee Жыл бұрын
Thank you for the walk through.. I am curious to understand the dynamic In N-TOS…what would be the nerve compression resulting in the Tinnitus?. For me while the arm numbness was mildly annoying it was the 24/7 Tinnitus for a year that almost drove me mad.. thanks
@tosmri Жыл бұрын
Thank you for the excellent question. There is no direct nerve involvement causing tinnitus. Many authorities believe that there is a disturbance in venous blood flow in the head and neck that can cause headache, brain fog, and tinnitus, among other symptoms.
@1ashlybruc1 Жыл бұрын
I had a c7 fracture with a whiplash injury and also eventually developed tinnitus. I would love to get resolution of mine as well.
@yasqueen9092 Жыл бұрын
Thank you, I watched this because I have bilateral paresthesia symptoms and that emulate cubital tunnel syndrome and medial nerve entrapment as well. My nerves flare up mostly while typing on the computer and when I lay on my back or push my back to the back of a chair, it's so weird. Mostly it translates as shocks in my fingers, I hate them so much I've grown to be stressed and afraid to do many things. Seems like everything is coming from the braquial plexus and I don't know what to do :( it's been six months and I've gotten better but seems like I've hit a wall. No typing for me yet so I can't work. Oh, also, smoking Marihuana is like taking 3 steps back in progress for me, I stopped because of this, gave it a try today again after not smoking for about 2 months and my symptoms are back like they were a month ago. Crazy! I'm curious to know what that is about as well.
@NomiaCoffee Жыл бұрын
My unproven theory re: your cannabis comment is that it is not actually causing the symptoms to be worse.. but it’s that the cannabis is opening up expanded awareness and consciousness of what’s happening in your body… (basically we become more tuned in and sensitive to whats happening physically and mentally with our bodies) and that results in us perceiving an elevation in X,Y,Z going on in our bodies.. although cannabis can act as a muscle relaxant my understanding is that will only go so far and when there is a mechanical impingement involved.. that will not be solved by muscle relaxants alone.. good luck 🤞
@tosmri Жыл бұрын
Sorry to hear you are struggling with this. Have you seen a true TOS specialist? We can help you find one: www.tosmri.com/thoracic-outlet-syndrome-education/contact-us/
@viewernum72 Жыл бұрын
your comment is helpful to me
@alfredsamkutty4191 Жыл бұрын
Hi doctor Werden, in this talk you mentioned a musician who wore a vest for his TOS symptoms. Is there anywhere I could find out more about this vest? Thanks.
@tosmri Жыл бұрын
Yes, its through Dr. Tracy Newkirk. Please contact us and we will connect you with Dr. Newkirk www.tosmri.com/thoracic-outlet-syndrome-education/contact-us/
@JDMintegraVTEC Жыл бұрын
I would be very interested to hear input on scoliosis and these types of syndromes. I have a 40 degree thoracic S curve that really goes up high into the cervical spine.
@JDMintegraVTEC Жыл бұрын
I've also broken my left clavicle 4 times, and had an ac joint surgery
@tosmri Жыл бұрын
@@JDMintegraVTEC Hi, Liam. This is not a great place for personal medical advice. Here are some general thoughts. Scoliosis can certainly affect the positions of the shoulders, which can lead to narrowing of the spaces of the thoracic outlet. Advanced imaging such as CT and MRI can help with this. Clavicle fractures may heal with a large bony callus. Depending on the size and location of this callus, there could well be narrowing and compression on the brachial plexus. Please reach out to us at www.tosmri.com/thoracic-outlet-syndrome-education/contact-us/
@msCindyZ Жыл бұрын
I’m a TOS Survivor so far I am having and always had had a problem with my hyoid bone. I have had my first rib removed, left side, diagnosed bilateral, and have been a TOS person for 22 years now I recently had my disk replacement C4 C5, with six eyes still am in chronic pain and I’m watching your interior scalene thoracic outlet and I live in California I had seen a neurologist here in California named Dr. Agnew and he retired in my health has gone down since then I have also, do you have driven to Northern California to see Dr. Ellis for injections I’m currently in physical therapy it’s not much help. I have Medicare so I have a limited PT
@tosmri Жыл бұрын
Hi, @mscindynicholson We are glad to help. This isn't a good forum for that purpose. Please contact us at www.tosmri.com.
@cathyleblanc4347 Жыл бұрын
Do you know if squeezing of the muscle in the neck causing Thunderclap headaches..thank you so much
@tosmri Жыл бұрын
In general, there is no association between TOS and thunderclap headaches. However, TOS patients frequently note headaches in general as part of their symptomatology.
@cathyleblanc4347 Жыл бұрын
Thank you..I have been diagnosed with Ntos.. Getting results of MRA tomorrow.For 5+ years I have been trying to figure this out..But with knowledge there's hope..Thank you so much.
@AlondraCarranza-kf6pc9 ай бұрын
👌💘🤙
@megancolasono110810 ай бұрын
I have Bi-lateral TOS. I have always thought my case would be a good one to add to a study. My surgeon is considered one of the top 5 in the U.S that specialize in this surgery, Dr. Gregory Pearl. I had my left side surgery first and then 8 months later my right side. In the thousands of cases he has done, I had two things he had never seen before. Both of my Anterior Scalene muscles were literally ROCK HARD! Dr. Pearl noted that he had never seen one let alone both anterior scalene muscles as hard as a rock. The second thing he had not seen until my case. Was the large fibrous bands that filled my pectoral or chest area. He removed all of the banded tissue. He as well removed both first ribs along with the connected anterior scalene muscles. My TOS is three fold in that it is genetic, as my Mom has right sided TOS. She had a rib resection done in the early 90s.This is when they only removed a small section of the first rib. Her chronic pain was only alleviated by a smaller percentage than is possible today, with full rib removal. Second I suffered from 4 or 5 events of severe whiplash. 3 were car accidents and 2 other more severe neck injury. Third I was a hairstylist for 17 years, until my TOS caused me to be disabled as it went undiagnosed for so long. I also have the unfortunate, rolled forward shoulders, forward set head, and that posture. What I find odd is that genetically my Mom has diagnosed right sides TOS. But my Father has the very obvious rolled forward shoulders and forward set head. Massage therapists were always shocked and confused when my shoulders would be so high up, “around my ears,” they would describe. And then they would both drop a few inches after the massage. I have not been able to meet and receive care from a Primary Care Doctor in the Houston TX area. I have had to retain my Primary Doctor in Seattle while I live in Texas due to each doctor denying to take me on as a patient. They each said they had never met anyone with TOS, had only read about it in text books, or had never heard of it before. Even the pharmacists here don’t believe in this “rare” disorder causing the kind of level 10 chronic pain that we suffer.
@tosmri10 ай бұрын
Thank you for sharing your story. You have definitely had a lot of injuries that could contribute to or cause TOS. There are a couple of papers in the literature that describe the microscopic changes of the scalene muscles after trauma. These show a lot of fibrous tissue replaces muscle cells, and that the type of muscle cells changes. Glad to hear you are doing better after all these challenges!
@1ashlybruc1 Жыл бұрын
After many years of thoracic outlet symptoms, I have gradually also developed some lymphatic issues and venous hypertension/ varicose veins. How closely related is restriction of the lymphatic duct at the collarbone to TOS and can restriction of the venous system here cause backup elsewhere in the body?
@tosmri Жыл бұрын
The lymphatic system is very low-pressure, and most of the lymphatic system empties into the thoracic duct in the left supraclavicular fossa. This can be compressed, leading to edema. But elevated venous pressure in the left subclavian vein may also limit lymphatic drainage.