The Halfords' Story | In Pursuit of a Cure 2024

Shannon and Mike Halford and their daughter Raina, who lives with FOP, share their FOP journey and how they went from not knowing a disease this terrible could exist to being hopeful about FOP research so Raina can imagine more choices in her future.
"People need hope and to see a bright future. It's more important than ever to fund the people who are working every day to give Raina a brighter future than we could have ever imagined."
Please give to create a more hopeful tomorrow for those living with FOP:
ifopa.salsalab...
💚 FOP (Fibrodysplasia Ossificans Progressiva) is an ultra-rare disease that turns muscle into bone, obstructing movement and hindering lives: ifopa.org/what...
🌎 The International FOP Association (IFOPA) is here to help find a cure through funding research, raising awareness, and supporting the community: ifopa.org/abou...
👋🏽 CONNECT:
IFOPA
/ cure_fop
/ ifopa
/ international-fop-asso...
📬 Sign up for the newsletter and stay on top of the community and the path towards a cure: ifopa.org/connect
👨‍👩‍👧‍👦 Register for the next Family Gathering: ifopa.org/fami.... Relive sessions from past Gatherings: ifopa.org/fami...
🛠️ Check out the Ability Toolbox Guidebook featuring tools and home adaptations for independent living: guidebook.ifop...
📆 Get involved with our family services, fundraising and awareness events: ifopa.org/cale...
📗 Learn the scientific terminology surrounding FOP in the IFOPA Glossary: ifopa.org/glos...
❤️ DONATE and join us to fight FOP and support families in their journey: ifopa.org/donate
🙋🏽 FOP Frequently Asked Questions: ifopa.org/fop_faq
#cureFOP #RareDisease #disability #RAREParenting #caregiver