The History & Innovation of C3G | Patient Summit Seminar with Dr. Corey Cavanaugh

[@sarahmansoor6173]

I was diagnosed in 2014 at the age of 9, and at that time, the doctor diagnosed it as MPGN type 1. But after the reclassification, It's known as C3GN. I have been dealing with these kidney complications for more than 10 years now. Have had 3 renal biopsy procedures, been on steriods, Immunosuppressive drugs, ACE inhibitors, and so much more. They never found the cause for my diagnosis so it was idiopathic. One thing that i experienced which I don't know if anyone else has experienced is that when I was diagnosed, I was given cyclosporin, which is commonly used in treatment of glomerular diseases, but I had a very huge reaction to cyclosporin medicine, became severely hypertensive, had PRES syndrome causing me to lose my memory and then I ended up in a coma. Just recently, after turning 19, have I started to take over complete responsibility for medication, appointments, tests, etc, instead of my parents taking care of everything for me. Just got a requisition to get blood test done, and I have my routine appointment coming up in December.