The Ménière's Disease treatment your doctor may not have told you about

  Рет қаралды 50,051

Jim in the Gym

2 жыл бұрын

Recently had a pretty devastating bout with Ménière's Disease.
In my case, I was able to find something that basically eliminated all the symptoms. Putting this out there for others who may be facing this.
Here are links to some of the things mentioned in the video:
Article by physician who treats meniere's with anitvirals:
www.mm3admin.co.za/documents/docmanager/6e64f7e1-715e-4fd6-8315-424683839664/00056616.pdf
Some peer-reviewed articles that mention using antivirals to treat Ménière's Disease.
www.sciencedirect.com/science/article/pii/S1568997212000092
www.sciencedirect.com/science/article/pii/S0196070914000726
core.ac.uk/download/pdf/228807214.pdf
JOH vitamin therapy:
www.zoominternet.net/~kcshop/JOH.PDF
JOH Facebook Page:
johnofohioregimen

Пікірлер: 581
@esmeraldacasanova7665
@esmeraldacasanova7665 Жыл бұрын
They’d lose money if they found a solution to an ailment. Thanks for sharing your journey and finding.
@peterandkodiak9762
@peterandkodiak9762 Жыл бұрын
exactly. The healthcare system is similar to that of the judicial system in that doctors are not educated to "cure", but educated to "maintain" the disorder in-order to continue the revolving door effect of patients coming/going to hospitals. The system is in it for the $$$.
@Clickonbio
@Clickonbio Жыл бұрын
@@peterandkodiak9762 Sad but true :/ I really believe there is already a cure for Cancer out there and HIV/Aids, but its only given to those that are super wealthy. Example: Magic Johnson
@krystalpriceworkman2482
@krystalpriceworkman2482 Жыл бұрын
I have Meniere's for the past 4 years or so. I had steroid shots in my ear drum that didn't really help. What I have done to control it is eliminated all sugar, grains & processed foods from my diet. I eat only animal protein, some low carb veggies and very little low sugar fruit. I did take an antiviral medication during the height of C0VID, but not taking now. My disease seems to be in remission with the best results coming from a change in my diet. I don't limit salt & do drink electrolytes daily. Of course, good sleep & daily exercise all add to the mix of feeling better once you have the symptoms under control. Again, thanks for sharing. 👍😊💜
@montilane3368
@montilane3368 Жыл бұрын
What have you been eating
@teresapowell7824
@teresapowell7824 Жыл бұрын
I was diagnosed with Menieres Disease 8 years ago. The first few weeks was horrible. I told the doctor I thought I had a brain tumor. My family doctor sent me to an ENT. He started me on steroids, low dosage of Valium, allergy tests. I've been on allergy shots now for 7 years, low sodium diet. I can feel it coming on. My head is a barometer. There are several things I do to try to keep myself going. It's a terrible disease.
@Lful101
@Lful101 Жыл бұрын
It is a horrible disease. I was just recently diagnose. Diuretics are offering little relief if any. My entire personality had changed because i can't here people talk normally and many sounds and voices are so irritating to listen to. The depression this has caused is overwhelming. I feel hopeless.
@gretchenhughes9652
@gretchenhughes9652 7 ай бұрын
I have it. It is horrible. I get bad attacks during any weather changes. Low sodium & low dose benzodiazepines at night. It helps. I get very ear fullness, anxious, sweat profusely, depressed, pain, hear weird sounds, even noxious smells, drop spells, nausea, nystagmus, brain fog, & vertigo. I have 2-3 a month.
@patdrouillard4660
@patdrouillard4660 5 ай бұрын
Hi Jim, I was diagnosed a few months ago. My first episode, I thought I was dying. It lasted 30 ish hours. After I was diagnosed I started to research it. My findings led me to Epstien Barr Virus family. Also belonging was shingles n cold sore viruses. I started to triple my daily amount of L lysine 1000 mg. This keeps it in check for me.
@chrisl3337
@chrisl3337 3 ай бұрын
Try doing an hour in the gym every second day. It worked for me until I stopped..hard exercise gives your body something else to worry about ..
@PERIKLISTSINTZAS
@PERIKLISTSINTZAS 3 ай бұрын
@@gretchenhughes9652 i feel diziness during any weather changes too but maby it is due to neck musles press on arteries and the blood which reach the brain is less and cause the problem as i discussed with my doctors ,keep that in mind too
@MrJkillahoe415
@MrJkillahoe415 2 жыл бұрын
Jim, happy to see you are doing better. The health care system in our country can be a difficult and sad thing to go theough. From my experience half the time the Primary Care Physician will not listen or take your worries seriously and then when they do it takes months to see a specialist. In the meantime you are just left suffering and fending for yourself. There seems to be no sense of urgency. I wonder if these doctors would be so slow to get things done if it was them in the hot seat. Just rambling here, going through some medical issues here and frustrated with our health care system. Anyways glad to see you are doing better.
@garydunnjr8176
@garydunnjr8176 2 жыл бұрын
Good to see you again! Prayers for you! Stay strong Jim!
@JS-lr8nj
@JS-lr8nj 2 жыл бұрын
Thanks man!
@shifateptheundying2830
@shifateptheundying2830 11 ай бұрын
Jim I followed your channel when you first got your titan rack. Ive checked a couple times over the years to see if you returned. I saw this new video and was very excited. I was real sorry to see what you have gone through. Keep us updated how everything goes.
@JS-lr8nj
@JS-lr8nj 11 ай бұрын
will do. thanks for checking in.
@Yi_Family
@Yi_Family 2 жыл бұрын
Good to see you back! Seems to be a common issue with our healthcare system. Thanks for sharing your story!
@JimintheGym
@JimintheGym 2 жыл бұрын
Thanks David!
@nargeesnazeer6296
@nargeesnazeer6296 2 жыл бұрын
Hello sir I have meniere's disease affected both year continue tinnitus unbalanced body headache vertigo I don't know what I do please suggest me what I do
@oyenike5540
@oyenike5540 Жыл бұрын
@@JimintheGym ..Can you pls share the antivirals treatment and vitamins
@JS-lr8nj
@JS-lr8nj Жыл бұрын
@@oyenike5540 It's in the description. LInks there.
@hectorcaseygarcia4848
@hectorcaseygarcia4848 2 жыл бұрын
Jim, Thank you for sharing your journey. My husband has all the symptoms and he started JOH protocol today. We are so grateful for the information you shared. God Bless You, The Garcias
@JS-lr8nj
@JS-lr8nj 2 жыл бұрын
I hope it works. Also, don't forget to talk to a doctor about either an Acyclovir or Valacyclovir prescription if you can get it. That's going to work a lot faster.
@jeffwolfe4058
@jeffwolfe4058 2 жыл бұрын
Any improvement from JOH?
@hrvojebozanovic
@hrvojebozanovic 2 жыл бұрын
Hows he feeling?
@Thundercats-HOOOOO
@Thundercats-HOOOOO Жыл бұрын
Did this help at all?
@michaelpietrzak2067
@michaelpietrzak2067 2 жыл бұрын
Get well soon! Love the channel! God bless.
@JimintheGym
@JimintheGym 2 жыл бұрын
Wow, thanks Michael!
@surefire1333
@surefire1333 Жыл бұрын
Thank you Jim, for sharing your story! I have been to 2 Brain docs, 3 ENT specialist, I go to PT 2ce a week for the vertigo excersises, that really does not help. and only recently A doc at UT SouthWestern here in Dallas said he thinks I may have Menieres Disease. I go for more Testing tomorrow 3 different test. I have had this severe vertigo with throwing up and it can last up to 4-6 hours for about 9 months. It Really Sucks! As you said, they come out of nowhere. Scary! Hearing your story sounds like exactly what I am suffering from. The J.O.H supplaments along with the antivirals sounds like a good try for me . Thank you again for sharring your story and providing the links. I gave you a thumbs up and also will Subscribe. Blessings for us all that suffer from this for a much better 2023. mark
@JS-lr8nj
@JS-lr8nj Жыл бұрын
Thanks for sharing your experience. I hope you find relief soon!!!
@surefire1333
@surefire1333 Жыл бұрын
Just an update after taking the antivirals for one week, I’m starting to feel so much better and relief. Thank you so much for your helpful information. I am going to physical therapy now once a week opposed to twice a week for vertigo I’ve been doing certain test. Much better. I did have more extreme test done at the hospital with a with goggles they put on you and then put you in a small vertical tube while you sit in a chair in total darkness. For those of you, that are a little claustrophobic, no need to worry because it’s like sitting in the dark with your eyes closed you don’t feel much. They do rotate the chair very slowly both ways to see if you have minor symptoms of vertigo, but nothing to be alarmed about. A little lightheadedness but no vertigo. Then there were other various tests they did with goggles and monitoring. Very light symptoms if any. The one thing that did cause vertigo was when they did the cool air in your ears. My right ear had a little bit of vert but it only last a few seconds. A little more extreme in my left ear and lasted a bit longer , maybe 10 seconds. The warm air in the ear was much more intense in my right ear and way intense in my left ear that lasted for about five minutes then it finally went away. Making progress. For those of you, that may have to go through this test, just know you are in a safe facility that people are experiencing and trained to deal with your vertigo and if it happens, they can help you right away. I was dealing with extreme vertigo drops and throwing up. Thank you so much for taking the time to share your video Jim to help others like me and you dealing with this. May you be very blessed because you are certainly blessing others with your helpful information. Thank you.👍😊 Mark
@mamag9673
@mamag9673 3 ай бұрын
Thank you for sharing your story. This really helps me try to understand this disease 🙏🏾👍
@kvoong777
@kvoong777 2 жыл бұрын
Thank you for sharing your experience and treatment!
@JS-lr8nj
@JS-lr8nj 2 жыл бұрын
Glad to do it. Hope all is well.
@user-hi8bs1so4p
@user-hi8bs1so4p 8 ай бұрын
Ah! You finally had a full-blown Menieres attack. Much like you, I struggled with mild symptoms until I actually had covid. That's when I started having the full blown episodes for 5 or so hours. It's scary! That is what took me to my ENT. Prednisone & dietary changes helped immensely and I did regain some hearing. Finding the regimine from John of Ohio has made a big difference and I regained most of my hearing. Unfortunately, my symptoms are weather related and the barometric changes that happen in the Fall have me fighting symptoms again. But we keep going! The most important thing is not to give in and decide that you are now a home-bound shut-in destined to live in misery. JOH is definitely a big help, but mindset and the help of a good ENT when symptoms flair is important. Good luck on your journey! Thank you for sharing your story and spreading the knowledge of JOH!
@paul_devos
@paul_devos 6 ай бұрын
hi @user-hi8bs1so4p -- for the prednizone, are you taking that regularly -- or is that just when you have an episode?
@user-hi8bs1so4p
@user-hi8bs1so4p 6 ай бұрын
@paul_devos the prednisone was only a short-term treatment when my symptoms were severe and the attacks were happening more often and fairly horrible. It helped immensely.
@melissaosborne3437
@melissaosborne3437 6 күн бұрын
My ENT is in the top 3 in the country. I was very Blessed to have him ..I was doing studies for 4 years and they were finding it in truck drivers. They really dont know how you get this ..
@peterandkodiak9762
@peterandkodiak9762 Жыл бұрын
Thank you for your sincere suggestions. I appreciate listening to your sharing of the Meniere's Disease dilemma you are suffering through. You are also telling my story. A+
@JS-lr8nj
@JS-lr8nj Жыл бұрын
Best of luck to you. Antivirals worked for me. I hope you find something that works for you.
@peterandkodiak9762
@peterandkodiak9762 Жыл бұрын
@@JS-lr8nj Thank you. Your video is very heartfelt. Upon your suggestion, I will try antivirals like acyclovir.
@michaels999
@michaels999 Жыл бұрын
@@peterandkodiak9762 you could also try lysine and follow John of Ohio protocol
@peterandkodiak9762
@peterandkodiak9762 Жыл бұрын
@@michaels999 Thank you. Very much appreciate your response. Best Regards to you.
@andrewharchar891
@andrewharchar891 Жыл бұрын
I am a 20 yr sufferer and this story is spot on! I went to 8 Ents and I have learned more from the internet.I had the injections into my inter ear, They claim that it will burn out in 5 to 8 years. From support groups and you tube your brain adjusts to the good ear, A hearing aid is immense help, even with balance, make sure that your crystals are where they belong too.
@ciaracastisimo5594
@ciaracastisimo5594 Жыл бұрын
How's your hearing ability? What about your balance when walking?
@sunshinesal6204
@sunshinesal6204 Жыл бұрын
What kind of injections you took is it gentamecin?
@SamuraiSunshine00
@SamuraiSunshine00 5 ай бұрын
Finally a solution to the problem
@elfiefaithsereno5169
@elfiefaithsereno5169 Жыл бұрын
Thanks for sharing this I have also Meniers diagnosis one month ago.
@southernfixingspralines9600
@southernfixingspralines9600 Жыл бұрын
wow thanks for sharing Jim this info was amazing.
@JS-lr8nj
@JS-lr8nj Жыл бұрын
Thanks! Hope this helps.
@christymceldoon8417
@christymceldoon8417 2 жыл бұрын
I think is worthy of a try. Thank you Jim! I also saw some chiropractors that can make it feel better too..
@JS-lr8nj
@JS-lr8nj 2 жыл бұрын
I think chiropractors are about as likely to help you as astrology and for the same reason.
@laurenlyons5702
@laurenlyons5702 Жыл бұрын
Hi Jim! I hope you are well. Thank you for this very informative video. I have a question did you take prednisone and anti virals at the same time or the anti vitals on its own? Also did you have any side effects from the anti virals? My ent had prescribed valacyclovir but it says can cause possible dizziness. I was just curious if you had experienced any side effects. Thanks again so much for you video.
@JS-lr8nj
@JS-lr8nj Жыл бұрын
No side effects. I haven't needed prednisone since starting antivirals. Cheers!
@58BowNut
@58BowNut 10 ай бұрын
I’ve had menieres for over 6 years. I’ve seen every ear nose and throat doctor in the Pittsburgh area. MRI’s, hearing tests, crystals tested you name it I’ve done it. Had one doctor ask me if I felt depressed. I wanted to literally beat him to death. “You won’t die from it, but you wouldn’t mind if you did!” Is the truest statement ever. I’m so happy I found your video! At least it’s something I can try, cause the doctors sure aren’t helping! My nausea is so violent at times I gave myself a hernia.
@JS-lr8nj
@JS-lr8nj 10 ай бұрын
So sorry to hear it. Hope you find some relief, soon.
@chrissomerville2625
@chrissomerville2625 9 ай бұрын
Hi. I also suffered terribly for a couple of years and after trying absolutely everything, my ENT finally resorted to Gentamicin drops in my right ear. Even though it totally killed my hearing in the affected ear……it completely stopped the almost daily attacks. It changed my life. I hope you find a solution to this utterly horrendous disease.
@Mmd792
@Mmd792 2 жыл бұрын
Thanks Jim just realized there was a reply for the same question.
@JS-lr8nj
@JS-lr8nj 2 жыл бұрын
No worries. don't hesitate to reach out.
@bettydamnboop3030
@bettydamnboop3030 Жыл бұрын
Jim I have meniers and I take a water pill and only when needed but I promise you it changed my life. 30 years of this and 6 months ago I was diagnosed. Remove salt and caffeine and it’s amazing. I had so much pain with fluid and mass pressure in one ear with hearing loss. Good luck my friend.
@ciaracastisimo5594
@ciaracastisimo5594 Жыл бұрын
Hello, how many months or years you are suffering in menieres? How's your hearing ability? Can you tell me pleasee
@JS-lr8nj
@JS-lr8nj Жыл бұрын
I've tried the low sodium, no caffeine and it did absolutely nothing for me. I went so low sodium my fingers cramped. for whatever reason, this didn't work for me.
@ziggyustar3137
@ziggyustar3137 Жыл бұрын
Good to know/. I think I saved myself from going to a walk in clinic and a 3 hour wait around other sick people/ thanks water pills/ do they make you pee more? I'd do anything to kill the headaches and ear pain/ dam coffee huh? well at least there is still wine🍷/ I don't even use salt thankfully
@TarnishedtheGOAT
@TarnishedtheGOAT Жыл бұрын
I’ve had Meniers disease since I was 17….. at first the doc didn’t want to believe I had Meniers because he thought I was too young. Its so crippling and life altering. I get severe attacks where I turn completely pale like a ghost, I get super hot and sweat buckets. The room spins and I vomit profusely. The only thing I can do is sleep. When I wake up I feel like shit, I have attacks all the time. It’s gotten so bad where it’s caused me to have anxiety attacks. I don’t even like to go anywhere anymore because I’m always thinking I’m gonna have an attack. I would do anything to get rid of it.
@ziggyustar3137
@ziggyustar3137 Жыл бұрын
@@TarnishedtheGOAT I bought a rowing machine(from Amazon cheap as dirt) I row with my eyes closed because I need enough exercise then I don't suffer as bad if I give into lethagic tendenacies // sucks I know but rowing in the dark or eyes closed has given me some joy too. If you can get your hands on Dristan sinus tabs take 1/2 of one for a full day of relief/no longer available in Canada as Americans are afraid they won't get enough meds for themselves.... since Covid we have half empty shelves drugs trickle into Canada now we know what it's like to be third world
@edwardlove4300
@edwardlove4300 2 ай бұрын
I was pretty sure that I had meneres because of my dizziness and lose of hearing in my left ear. I talked to an ENT at Toyonaka city hospital in Osaka Japan He ran tests and informed me it wasn't meneres. He said that due to my age it's possible to have dizzy spells. He gave me a list of exercises and wished me well. I think he missed diagnosed me. I see my family doctor next week and will ask him for the antivirals and see if my constant dizziness goes away. I want to thank you so much for your help and teaching. Kind wishes, Edward in Osaka Japan BTW I've never had vomiting attaches.
@JS-lr8nj
@JS-lr8nj 2 ай бұрын
For what it's worth, I agree with you that it was a lazy diagnosis. I have had terrible luck with ENTs.
@relaxingobserver69
@relaxingobserver69 Жыл бұрын
Thank you for sharing. I had exactly the same experience after the C shot. Woke up without balance, migraines lasting for months, brain fog and ear pressure. I have been like this for the last 3 months making my life miserable. God bless you for sharing this information, I will try the vitamins and minerals mentioned in the pdf file ❤
@JS-lr8nj
@JS-lr8nj Жыл бұрын
If you can, get a doc to prescribe 1g valcyclovir or 800mg acyclovir (valcyclovir if your insurance covers it), 3x a day and then taper off of it. I'm on a maintenance dose. that's what basically cured me in 2 days.
@SF-nu1ge
@SF-nu1ge Жыл бұрын
Yes. My tinnitus started after the Covid vaccine.
@christophergarcia8545
@christophergarcia8545 11 ай бұрын
Same here..
@adamarnold317
@adamarnold317 2 жыл бұрын
Thanks for the video. I have been diagnosed with meniere’s since 2014. I was having severe attacks weekly that would last 18 to 24 hours at a time. The day after I felt like I had a hangover. My primary care sent me to a ent doctor and he first prescribed me diuretics and and that didn’t seem to help a lot. So my ent did a surgery and put a shunt in my ear to drain it. That surgery greatly reduced the frequency of attacks and duration. I still take lasix to try to keep the fluid off that ear. But my doctor has to keep a close eye on my potassium because of the long term diuretic, low potassium can be a life threat. I have had a couple of er trips for that. Initially my ent wanted me to do a low sodium diet,so I tried it for a few months and it made me feel terrible and I couldn’t tell it helped my menieres at all. I read a study since then that said some menieres is affected by sodium and some are not. I think stress is my number one trigger. When I say stress I mean mental and physical (like being really tired,sick,allergies ). For the last few years I have only had a couple of attacks a year, but recently I have had a little more trouble with it. I just want to say thanks again for the video I hadn’t heard of antivirals being used for treatment. I am going to run that by my doctor
@JS-lr8nj
@JS-lr8nj 2 жыл бұрын
Good luck! It's sometimes hard to find a doctor willing to treat it. I go in loaded for bear. I hope you continue to do well. Thanks for the info on the shunt. Antivirals have worked for me for a year, now, but who knows what the future holds. The description has some links to various things related to using antivirals. Cheers!
@oyenike5540
@oyenike5540 Жыл бұрын
Pls what is the name of antiviral and vitamins
@rebecapalmer8445
@rebecapalmer8445 Жыл бұрын
@@oyenike5540 see notes at beginning - Acyclovir or Valtrex
@w.m.f.y.l.8086
@w.m.f.y.l.8086 Жыл бұрын
@JimintheGym , Is the JOH vitamin contains antivirals? Or the JOH vitamin therapy is only a webpage where you readed about antiviral treatment for meniere? Should i try this JOH vitamin or only antivirals for meniere disease? And what type of antivirals?
@BasementBrandon
@BasementBrandon 2 жыл бұрын
Hope you’re doing well brother
@JimintheGym
@JimintheGym 2 жыл бұрын
Doing much better. It's under control, now. So, fingers crossed. Thanks man!
@awesomeamanda5267
@awesomeamanda5267 2 жыл бұрын
Thank you... gonna give this a shot
@ajchallender
@ajchallender Жыл бұрын
Hi thanks for the info. I live in Charlotte so super close. I will keep this in mind at my next Doctor's appt
@pattiissa9035
@pattiissa9035 Жыл бұрын
The symptoms are isolating, friends don’t understand or care to UNDERSTAND, either. I have constant ringing in my ear/ears, dizziness, off-balance, and weakness quite often, toooooo. ALLLLL THESE SYMPTOMS CAUSE DEPRESSION AND YOU DON’T want to be involved in ANYTHING, either.🤪😜😝😫😩🥺😦😯😧😮😲🙄🥴
@rheaa1400
@rheaa1400 2 ай бұрын
It’s very isolating. 😢
@natgoaway3101
@natgoaway3101 Жыл бұрын
If I hadn’t watched your video I would have never known to ask my doctor for antiviral medication. It’s day 2 and I can hear for the first time after suffering for just 3 months (not years like you) post Covid/cold infections all winter. I have permanently lost some hearing in one ear after seeing the audiologist/ENT. Prednisone did nothing but make me sick, my balance/vertigo was bad to but betahistine did help. Thank you thank you thank you for your video. I hope you are continuing to have good results after a year now. I believe you saved my hearing from getting worse and I hope more doctors try this approach sooner for people.
@JS-lr8nj
@JS-lr8nj Жыл бұрын
So glad to hear it! I suspect that this won't help everyone, but if it can help a few of us, it's well worth putting out the word. So happy to hear this helped you!
@tomflax8655
@tomflax8655 Жыл бұрын
Thank you for sharing this Jim. Many of things that you said really resonated with me. I will bring the concept of antivirals up with my doctors. I'm currently scheduled for an Endolymphatic Sac Decompression surgery but they can't do it until November so I have to find a way to live with it for 3 months as the last 2 weeks for me have been hell as I've had more bouts of vertigo/dizziness than the previous 18 years of being diagnosed with meniere's disease. I'm hoping it helps stabilize my hearing loss that has occured over the last 2 years also.
@JS-lr8nj
@JS-lr8nj Жыл бұрын
best of luck!!!
@texuztweety
@texuztweety Жыл бұрын
Meclizine and Advil help me immensely and also, I have to carefully avoid Gluten
@taimurbashir5971
@taimurbashir5971 Жыл бұрын
What is the cost of endolymphatic sac decompression.
@michaels999
@michaels999 Жыл бұрын
@@texuztweety ibuprofen usually causes ringing in the ear and vertigo
@nunchk9542
@nunchk9542 Жыл бұрын
Hello Tom. Did you have your surgery? Did it relieve your problems?
@earlcusay3664
@earlcusay3664 2 жыл бұрын
Thanks for sharing your story. I have a meniere's disease too almost 12yrs now. My life is terrible 😪😪😪
@JS-lr8nj
@JS-lr8nj 2 жыл бұрын
I'm so sorry to hear this. I hope you're able to find a treatment that works for you.
@susanneschauf7417
@susanneschauf7417 Жыл бұрын
The good thing is it disappears when you get older 40/45/50 hold on! In the meantime change your nutrition. Go Carnivore. Dr. Ken Berry here in YT
@AmandaMG6
@AmandaMG6 Жыл бұрын
@@susanneschauf7417 how so? I'm 46 and just got my first TERRIBLE vertigo episode. Is there still hope?
@surefire1333
@surefire1333 Жыл бұрын
@@susanneschauf7417 , Not in my case of age. My first bad episode was when i was 60 . I stay pretty active. Now doing testing for Menieres. Same exact systems as Jims.
@susanneschauf7417
@susanneschauf7417 Жыл бұрын
I am very sorry for you guys, because I know very well how it is. Recently a doctor mentioned that it could be a simple vitamin deficiency. Vit. B12 if I remember correctly (occurs only in meatvor). Daily 10,000 I.u. Vit. D3 in combination with 400 mcg Vit. K2-MK7 and magnesium I also recommend. Try it, it can't hurt. Don't believe the official intake limits. They are so low that they cannot heal. But in any case I recommend you to change to a species-appropriate human diet. This has already cured many chronic diseases. And that is mainly meat, eggs, liver, bacon. Only whole foods with one ingredient, no label. Rock salt as much as you want. Eat only 2x a day, no snacks. No industrially produced food. No seed oils (highly pro-inflammatory). Instead: Animal fat/lard, lots of butter, very good virgin olive oil, coconut oil. Few or no plants: Leafy lettuces, cruciferous vegetables, very few nuts, mushrooms. No nightshade crops, no corn, no seeds! What can you drink? Real coffee, real tea (no instant), water. Nothing else. Highly recommended here in YT: 1. Dr. Ken Berry, 2. Dr. Chaffee. 2023 will be your healing year! Good luck and success! 🤗❤
@texuztweety
@texuztweety 2 жыл бұрын
Thank you!! Triggers for me: Gluten, MSG, Sodium, Dairy, Peanuts, Soy, Caffeine, Alcohol can all be factors, Gluten and MSG, and Gluten the most. I take an over the counter motion sickness pill (Meclizine HCI 25 mg). The Anti Viral you mention is intriguing and I will try it out. I mostly do ok if I avoid Gluten. Thank you for this video!
@JS-lr8nj
@JS-lr8nj 2 жыл бұрын
I'm curious about diet changes as well, but the antiviral really has this under control, with no other changes necessary. I will probably try some diet changes, anyway.
@oyenike5540
@oyenike5540 Жыл бұрын
What is the name of antiviral pls
@rezajahanbakhsh983
@rezajahanbakhsh983 Жыл бұрын
@@oyenike5540 valacyclovir 1mg 3times a day or acyclovir 800 mg 3×d
@zenabellera403
@zenabellera403 2 жыл бұрын
Thank you sir Jim...
@JS-lr8nj
@JS-lr8nj 2 жыл бұрын
You are certainly welcome. I hope it helps.
@JamesBrown-hd1mb
@JamesBrown-hd1mb Жыл бұрын
I’ve dealt with Meniere’s for over 6 years now. During that time I have gone as long as 3 and a half years without an attack, and last fall they happened ever two to three days. I have been told of two different treatments. One is an injection of gentamicin in the ear which is supposed to be 90-95% effective at stopping the vertigo, but does have a significant chance of increased hearing loss. The other is an outpatient surgical procedure called Endolymphatic sac reduction. It is supposed to be 70-75% effective. I am scheduled for the procedure in April.
@preston1058
@preston1058 Жыл бұрын
How did the surgery go?
@vee9133
@vee9133 7 ай бұрын
How’d the surgery go?
@KphexTwin00
@KphexTwin00 Жыл бұрын
Thanks for making this. Going to try this joh regimen.
@JS-lr8nj
@JS-lr8nj Жыл бұрын
best of luck. And try the antivirals if you can find a doctor to prescribe them.
@KphexTwin00
@KphexTwin00 Жыл бұрын
@@JS-lr8nj thanks. Yeah I read a study online that done 800g of aciclovir 3 times a day for 3 weeks then cut it two times then one. Trying that.
@contempl8ive
@contempl8ive 6 ай бұрын
Interesting, thanks for sharing your experience. I’ve had a similar experience but attacks every few months. That’s hard enough. I’m seeing this 2 years after you posted it, and I’m curious how you are doing now.
@JS-lr8nj
@JS-lr8nj 6 ай бұрын
No attacks since going on antivirals
@healthiswealth3081
@healthiswealth3081 2 жыл бұрын
Im not sure if i have Meniers but......I get similar issues with any type of energy drink, caffeine pill or pre workout. Funny thing is coffee help reverse the problem ( its a diuretic ) Also anti viral foods like garlic, onion, oregano, cayenne will help drain the sinus and ear areas. Eating tons of fruits, and veggies, and removing all processed junk will help detox the body and heal. Hope this helps somebody
@jacquelineclare2373
@jacquelineclare2373 Жыл бұрын
Thank you.. anything fresh and natural !
@nrevathy91
@nrevathy91 2 ай бұрын
But they are saying not to drink coffee ..please tell me..I am having this .I can't let go of my coffee
@healthiswealth3081
@healthiswealth3081 2 ай бұрын
@@nrevathy91 I think coffee helps the issues, but other forms of caffeine are bad. Everyone is different so try different things and see what helps. For example, i don't eat or drink dairy products because they create excess mucous in the sinus / throat area. That could clog things up and cause allergies or other issues since the sinus is connected to the ears. Black coffee seems to be a great natural anti histamine and clears out the junk in the head/ sinus area for me, just don't add dairy or sugar. Also using a netti pot to flush things out will speed up the process may help. Do you consume dairy or milk?
@wallysmith6344
@wallysmith6344 2 жыл бұрын
Glad to hear you feeling better.I get itchy eyes and burning eyes on valtrex.I get cold sores inside nostril and around the eye.💜✌️
@pinkpalmsmusic
@pinkpalmsmusic Жыл бұрын
Not a doctor, but I think I read that can be a flare up and a sign it is working
@michaels999
@michaels999 Жыл бұрын
Take lysine
@Mmd792
@Mmd792 2 жыл бұрын
Thank you Jim. I’m pretty desperate at this point. I was curious as to your prescription and dosage/ frequency. I do or should say used to get cold sores so I’m no stranger to valeted. I have a constant roar in my ear, have damaged vestibular system on my right, hearing loss and had at least 11 attacks last year and just had a severe one 2 weeks ago. I am on a diuretic and watch my salt intake. Tried lots of things. I am going for extensive allergy testing and a very comprehensive work up very soon and will be trying a new therapy involving a different med.
@JS-lr8nj
@JS-lr8nj 2 жыл бұрын
Hi Michelle. Typical Dosage is 3x per day of either Acyclovir 800mg, or Valacyclovir 1g. Usually for 3 weeks. I needed it a lot longer. Well into 4 months later, I was on 3x per day, but then cut down. After that, 2 per day. Then, maintenance dosage of 1 per day indefinitely. HOWEVER, I notice in my case, 1 per day is not enough. I probably need 2. Working that out now. Best of luck! I understand the desperation. Hang in there. Don't be afraid to reach out.
@hrvojebozanovic
@hrvojebozanovic 2 жыл бұрын
Hello Michelle Im asking honestly how are you living with this? I cant comprehend how can people live with this constant roaring 24 7 and plus the attacks...Im scared if that happens to me I might take my own life
@kathrynblaine8493
@kathrynblaine8493 Жыл бұрын
Antihistamines work best. Was in hospital 2 days, soooo bad IV has SALT so made me worse.
@michaels999
@michaels999 Жыл бұрын
@@hrvojebozanovic follow John of Ohio protocol especially lemon bioflavonoids
@Thundercats-HOOOOO
@Thundercats-HOOOOO Жыл бұрын
​@@michaels999how I get the JOH vitamins? Thanks in advance.
@tinafallani1234
@tinafallani1234 Жыл бұрын
Is the pressure in your ear better? Is your hearing better? Thank you!
@abadgerardo
@abadgerardo 7 ай бұрын
Thanks for sharing Your story is similar to mine I have not tried the antivirals but I do the vitamins. Does not help how easily doctors just tell us to live with the disease 😞 I am older and have been with this disease for more than 16 years. To avoid the nasty vertigo episodes , what really helped me through the years , is to identify my triggers . There are two of them that are critical for me, Caffeine and MSG (monosodium glutamate used to enhance foods flavors ). However I can tolerate low levels of regular salt in food. But something that really works for me is to excersise to a point of breaking a heavy and intense sweat. If I don't do that at least once every other week , my ear fullness returns. The way I explain this is because intense perspiration helps my body to get rid of sodium fast. My disclaimer , speak with your doctors before attempting intense excersise to sweat. Thanks again.
@JS-lr8nj
@JS-lr8nj 7 ай бұрын
makes sense!
@TheBartizan
@TheBartizan 2 жыл бұрын
Thankyou so much!!!!
@martakrajewska2630
@martakrajewska2630 Жыл бұрын
Thank you!
@samuelnunezmoron5326
@samuelnunezmoron5326 6 ай бұрын
Thank you! I had never read about antivirals. I will start learning about the subject because lately I have been losing hearing and having severe tinnitus, but without dizziness or vertigo, fortunately. Most doctors here in Spain only recommend taking corticosteroids, antihistamines, and betahistine. It seems that we have to learn for ourselves. Thank you very much again!
@divanshivohra9341
@divanshivohra9341 Ай бұрын
You antivirals drugs or not ? Now hearing loss recovery or not please tell us in detail brother .
@elithepitbulldog2209
@elithepitbulldog2209 Жыл бұрын
Mine started with a severe allergic reaction to mold. I sneeze so violently that I grenaded my inner ear, which cause meniere’s symptoms but with 100% hearing loss but constant tinnitus and slight imbalance problems. Low sodium and diuretics only made it worse. Staying fully hydrated helps more than anything I’ve tried. Don’t think antivirals will help with destroyed inner ear. Pilots and deep divers have also suffered from mechanically destruction of the inner ear. Too many doctors may miss this as a cause
@harikalla3918
@harikalla3918 Жыл бұрын
Thank you for the information.
@JS-lr8nj
@JS-lr8nj Жыл бұрын
Best of luck!
@lozzieburger
@lozzieburger Жыл бұрын
Thanks for this video! I am on the same merry-go-round. I did get onto the steroids early, because I did lots of research and pushed the doctor to prescribe them. I’ve been on and off the steroids for nearly nine months now. My hearing comes back, I go off the steroids then I get dizziness. There are tablets for meniere’s here in Australia (Betahistine?) but my ENT says I don’t have meniere’s, maybe just cochlear hydrops so he didn’t prescribe anything but steroids. I had an MRI which supposedly ruled out an acoustic neuroma (tumour). Since you’ve mentioned anti-virals, I thought I’d mention that Vitamin C is actually a NATURAL anti-viral, and can be taken in high doses. Think I’ll give that a try today as I’m lying on the bed after another horrible attack of dizziness.
@_Becx
@_Becx Жыл бұрын
Hi I'm in Australia too and taking betahistine. I've recently come across DTR therapy in the US and hoping for something like that here! There's an entire playlist on KZbin with patients with ménière's, having this treatment done.
@janeforrest6838
@janeforrest6838 Жыл бұрын
Bless you it is a horrible disease,I was diagnosed in 2011.Changedmy life profoundly but I try to watch my diet,low salt only drink redbush tea and I definitely notice lack of sleep and stress makes it worse.Ginger in any form is extremely helpful.Good luck
@Legitshooter
@Legitshooter Жыл бұрын
What did the steroids helps you with?I just got the prescription and I forgot to ask dr
@peternorton2445
@peternorton2445 6 ай бұрын
I have had Meniere's for about 10 years and after the first 3 years which were really bad. I had regular periods of Vertigo, throwing up violently, no balance and hearing loss - gradually. Then it slowly went away for about 5 years with just the tinnitus and the gradually getting worse hearing loss in one ear. About 18 months ago it came back with a vengeance. Vertigo, lack of balance, nausea and total hearing loss in my left ear. I went for head adjustments in case it was not Meniere's this time and balance therapy, which helped a little, but I started back on the Methazolamide tablets that my doctor gave me 10 years ago when this first started which is a diuretic and it has calmed right down again except for feeling a little off balance now and then. I also obtained some Betahistine which is not available in the US, but used in Europe and other areas of the world to treat Meniere's. If it gets bad again I will switch to this from the Methazolamide, which I take daily. The one thing that I do know is that once you get this disease it will abate, it will change in intensity and types of events, but it will never seem to end.
@DaimonosUlv
@DaimonosUlv Жыл бұрын
Anyone has the list of vitamins? Seems the PDF link is not working anymore.
@TaroTrista
@TaroTrista 7 ай бұрын
Thank you for sharing.
@pidduz82
@pidduz82 2 жыл бұрын
Hello Jim , thanks for this video! Did you ever try the JOH regimen then? Or did you go straight to antivirals? I usually have bad reactions with any kind of drug (especially when taking them for long periods) and was considering to try the JOH regimen first. Thanks!
@JS-lr8nj
@JS-lr8nj 2 жыл бұрын
I am doing JOH but not Lysine. The antivirals do the same thing, but better. I discovered quite a few positive health benefits to the vitamins. I'm not a person who even believed that vitamins were worthwhile prior to this. I always figured they just give you expensive pee. But they seem to be doing a lot to improve my circulation, etc. Lysine works, but seems like it takes 6 months or longer. Best of luck no matter what you decide.
@pidduz82
@pidduz82 2 жыл бұрын
@@JS-lr8nj Thanks Jim for the info! Good luck to you!
@GolfBert
@GolfBert Жыл бұрын
Hi what was your dosage etc...? Im going to DR and want to ask for this
@memissjan
@memissjan 11 күн бұрын
I was diagnosed having Ménière’s at least 8 yrs ago horrible pressure, balance is off.. I’ve seen every specialist all my tests results come back normal. I don’t know what normal is anymore but whoever said if drs figure out what cures anything, they’d be bankrupt. I think drs are just practicing physicians. Aren’t we all? Just practicing and looking for any solutions to actually help? Our healthcare system makes me scream! We need The good doctor! Remember that tv show? He actually cared about others dealing with symptoms and dire help. My 2¢
@GuyNoirxyz
@GuyNoirxyz 8 ай бұрын
Jim, i think the link that you provided for the JOH vitamin therapy is broken.
@coleorum
@coleorum Жыл бұрын
My first attack was sudden and without warning when the room suddenly span round and I found myself on the floor with sudden acute nausea and cold sweating. Like you I called for an ambulance because I had no idea what was happening to me. At the hospital the nausea abated and I began to return to normal. The whole episode lasted about 2 hours. When I asked what they thought was wrong they said it could be a variety of things and suggested it might be de-hydration. I started to increase my fluid intake and thought it was the answer until I had an identical attack 3 months later and a further attack after another 2 weeks. By now I was looking for a solution on the internet when I came across Meniere's which described my symptoms perfectly. I mentioned it to my doctor who agreed it sounded the most likely cause. I was prescribed Betahistine which i now take daily. It has now been 3 years since I had my last attack. I haven't had any problem taking the medication. Thankyou for your video.
@Erika99109
@Erika99109 Жыл бұрын
Thank you, I'll talk to my doctor and mention that medication. These attacks are so debilitating and it's really difficult to deal with. 😢
@WeAreAFamily4
@WeAreAFamily4 Жыл бұрын
How about being drowsy after taking betahistine ? doctor has prescribed me anyihistamine but i m just scared and not sure about takinh it i dont wan to atay drwiay whole day i have hot two little kids .
@afqt80
@afqt80 Жыл бұрын
​@@WeAreAFamily4Betahistine also works for me. Don't be afraid to try it. It is best taken with meals.
@user-ji3jr1rw3n
@user-ji3jr1rw3n Жыл бұрын
How many mg of Betahistine do you per day? Did you experience any hearing loss/weakness? Were u able to restore it?
@afqt80
@afqt80 Жыл бұрын
@@user-ji3jr1rw3n in my case, my doctor prescribed 16mg every 12 hours. I don't feel any side effects.
@suktumbuktum9419
@suktumbuktum9419 2 жыл бұрын
Thank you
@user-zh8cd3ib5x
@user-zh8cd3ib5x Жыл бұрын
What are the names of the antivirals you have used? And where made?
@chrisborn1984
@chrisborn1984 11 ай бұрын
I joined a group for menieres on Facebook. People are very helpful on sharing their personal experiences. A decent amount recommended psychical therapy for vertigo. My ENT was being a pain in the ass saying he doesnt think that will work but he will give the referral. I denied a medication called nortriptyline after reading the side effects. I should be starting the PT for vertigo next week 🤞
@TruthHighway
@TruthHighway 10 ай бұрын
How's that going?
@reholla8859
@reholla8859 2 жыл бұрын
Hey Jim by any chance do you feel crackling in your inner ear when you swalllow or even open your mouth really wide? My ENT recently diagnosed me with some sort of menieres disease as well. Trying to figure this out
@JS-lr8nj
@JS-lr8nj 2 жыл бұрын
Kinda. I always had the ability to open my ears (for instance to relieve pressure from airplanes or scuba diving.) So, I have always been able to hear things working in there. Hope you find some relief!
@marcschoenbach2397
@marcschoenbach2397 2 жыл бұрын
Sounds like your C1/C2 neck are out of alignment. It’s the tiny bone behind your jaw which can press against the brain stem and cause fluid build up, aka Ménière’s syndrome
@1Love772
@1Love772 Жыл бұрын
@@marcschoenbach2397 hi there! How are you aware of that being a problem and solving the symptoms?
@marcschoenbach2397
@marcschoenbach2397 Жыл бұрын
@@1Love772 I had stumbled upon some research in my findings as to what causes Ménière’s. I was lucky enough to get an appointment with an upper cervical specialist who determined that was the cause. You can actually KZbin a video of me receiving my treatment here on KZbin. Search doctor Suh, Ménière’s disease. I’m the guy with the tattoos and mustache.
@vger9084
@vger9084 Жыл бұрын
Sometimes it feels like I have a piece of cellophane against my eardrum.
@kryshanair1609
@kryshanair1609 8 ай бұрын
Hi Jim - thank you for sharing. Any update on how you are doing and if this is still working? I’m suffering from the same so curious if I should try this too.
@JS-lr8nj
@JS-lr8nj 8 ай бұрын
still symptom-free
@triggersights
@triggersights 3 ай бұрын
Do you take the med all the time or just when having symptoms.
@bhupeshaboopi662
@bhupeshaboopi662 Жыл бұрын
Jim, still you are free from vertigo symptoms?
@pamelabaker3029
@pamelabaker3029 Жыл бұрын
I got rid of mine for 6 years doing oregano oil in nose and orally, as well as parasmart parasite cleanse and four day fast. I was just like you horrible. Started mild couple times year 20 years ago to everyday.
@Cosmogirl014
@Cosmogirl014 Жыл бұрын
Wow that sounds like possible Lyme disease or coinfections from it, did they test for it? I had it early 2000's took years to get better it's back again. I have chronic Lyme disease, it comes with parasitic infections they use oregano oil to treat along with many other things to get rid of parasites. This is good to know! Horrible disease yes.
@Thundercats-HOOOOO
@Thundercats-HOOOOO Жыл бұрын
How long did you take the antivirals?
@BRathjens51
@BRathjens51 2 жыл бұрын
Hey Jim, I feel your misery. I too have Vertigo, but I really think it's Meniere's as my Great-Aunt had it and it is genetic supposedly. I've seen a Neurologist and she prescribed Meclizine. All I think it does is lessen the chance of vomiting (sometimes). This disease is life altering for sure. I have had hearing loss in my right ear for decades and I'm quite deaf in the right ear now with tinnitus. My left ear is declining now. I'm 70 years old. I've been sick with this since last fall Sept/Oct 2021. I saw my ENT and he sent me to another one of his offices to have an ENG test. I show up for the test and they said I was not in the computer as having an appointment. Two ENT offices were merging practices apparently and I got deleted. I was relieved because I was terrified of the test making me nauseous. I fired that place. I haven't yet moved on finding another ENT. Last night I was watching a KZbinr "For Beautiful Smiles" who is a dentist and he located in Oregon. The patient (a man) made the trip from Houston and his story is very good. This dentist has patients who were cured of Meniere's (maybe not permanently) by treating them with the therapy he uses for people with TMJ. It's called a DTR test. The patients felt a significant change after the first treatment. Subsequent visits continued to help this man. The Dentist's name is Ben Sutter. I left a message for him in the comments if he knew of a dentist he could recommend in my area (Long Island). When I see my daughter-in-law I'm going to ask her about this because she's a dental hygienist. I wish you all the luck in the world. I'm really hoping that President Trump and Military will release the miracle working Med Beds to the public. There are different ones for different problems. This is technology that has been kept secret from we the people and only used for the Elite of this world. It cures practically everything. They even can regrow limbs.
@JS-lr8nj
@JS-lr8nj 2 жыл бұрын
if this ever stops working, I'll look into that tmj treatment. The other thing I'm curious about is that Dana White from the UFC flew to Germany and got some sort of stem cells injected into his ear (i may have gotten that wrong, but that's what I think it was.) He claims that after 2 treatments, he was cured. The problem is, of course, that means 2 flights to Germany, but that's another thing I will try if this ever stops working. I hope you find relief. Stay in touch!
@ASDonohoe
@ASDonohoe Жыл бұрын
@@JS-lr8nj hi did you find out which place he went to for the treatment?
@ev8560
@ev8560 Жыл бұрын
@@JS-lr8nj i just saw Danas video about biengranada cured with some type of blood injection. Sounds expensive though ☹️. I suffered from this for a long time. Now i feel like I’m getting anxiety panic attacks from this🥺
@ev8560
@ev8560 Жыл бұрын
@@ASDonohoe i just saw his video and he won’t say the name, but he said you have to get referred by someone( and he meant famous people ☹️) to get in the place. I wish we could get this kind of treatment 🙏
@ASDonohoe
@ASDonohoe Жыл бұрын
@@ev8560 its called Orthokine and about €6000 a pop. Apparently its not permanent and wanes after 1 to 2 years
@eagyinjection
@eagyinjection 11 ай бұрын
thank you for this video-any information helps
@MinkasTNR
@MinkasTNR 10 ай бұрын
I can not even get the diagnosis so I am trying everything. thank you.
@TruthHighway
@TruthHighway 10 ай бұрын
FYI - Just the other day I saw a video mentioning how there is a history of using niacin and thiamin for Menier's. The niacin probably has to be the "flush" kind, not the "no flush" kind.
@JS-lr8nj
@JS-lr8nj 10 ай бұрын
interesting. I have some flush niacin and have taken it in the past. It felt like it lit my body on fire. haha!
@williamolenchenko5772
@williamolenchenko5772 2 ай бұрын
Which anti-viral did you use? Dosage?
@SweetThing
@SweetThing 8 ай бұрын
Jim - are you taking the antivirals on a regular basis, or do you just take it when you have an episode of Meniere's? Thanks.
@JS-lr8nj
@JS-lr8nj 8 ай бұрын
daily
@michellejf777
@michellejf777 Жыл бұрын
What’s the name of the anti viral medication you take please?
@1313sp
@1313sp Ай бұрын
How long do you take the antiviral for? And is it still working for you?
@dogie8c
@dogie8c 8 ай бұрын
Hi Jim, Which Antiviral’s are you taking? I’m almost at the 10 year mark. I need to do something quick. Somehow I’m still able to tolerate high sodium foods. I feel worse when I eat low sodium foods. My started with an air pressure from an ear plug follow by ear infection 2014 (I Know, it’s weird how my hell hole of disease started.) My doctor is not much help on the matter. I’m running out of time. How are you holding up, Champ?
@JS-lr8nj
@JS-lr8nj 8 ай бұрын
check the JOH information. best of luck finding a doctor. It's a bitch. I'm doing fine now that I'm on antivirals.
@darknesslight3593
@darknesslight3593 14 күн бұрын
Jim, this is so treasure info I have up to today and may I ask how often you take such anti-virus and how much of it each time to keep you without the symptoms?
@JS-lr8nj
@JS-lr8nj 11 күн бұрын
1000mg valacyclovir daily. Cheers!
@darknesslight3593
@darknesslight3593 10 күн бұрын
@@JS-lr8nj thank you so much for you information, that's a good reference.
@acefromspace4376
@acefromspace4376 8 ай бұрын
what you mean exaly about pressure and ear being full? do you actually feel like some hard pressure
@leoaquino1418
@leoaquino1418 11 ай бұрын
Hi Jim, I just recently got diagnosed with menieres after a year of symptoms. Currently seeing a specialist that has me on betahistine but have had lots of ups and downs. I’m interested in antivirals. How’s it going for you? Getting desperate.
@JS-lr8nj
@JS-lr8nj 11 ай бұрын
3 years now. Have not had another attack. 1g valcyclovir or 800 mg acyclovir 1-3 times/day. Be prepared to fight for this and find a doctor who will prescribe it.
@peplajso
@peplajso Жыл бұрын
I've been diagnosed with Menier's disease for a few years now, I am 34. I feel nascious, get vertigo attacks, have been visiting two doctors and both treat Menier's with Betahistin, Hydrochlorothiazid and Cinarizin (pills, pills and pills to reduce the amount of water in my body and decrease heartbeat, even though I am not a cardiac). My MRI was negative, clean spine, no tumors, nothing, thank God. Have not been drinking, smoking, eating salt for months now. I still have the same sympthoms - feeling like standing on a boat or right-side-spinning while having pulsitile tinnitus and it is getting progressively worse which sucks. Tinnitus changes based on changing my body or head position. When I bend over, tinnitus gets more intense. And occassionaly there is sound sensitivity. I visited a physiotherapist, have been working out in the gym, getting 8-10 hours of sleep, and yet I still feel tired in the afternoon. From my blood work I have a higher level of lipids. (6'9, 290lbs.) I can see, when opening my jaw, it goes left side first then the right side, it is like half-an-inch late. My ORL doctors told me many times I need to just get used to having Menier's disease. What the hell can I do that I have not tried, yet ? PLEASE, SOMEBODY HELP ME
@thijmendeboer9524
@thijmendeboer9524 Жыл бұрын
Ow that sounds really bad man, I hope you will find some remedy that will help... Have you looked upon intercranial hypertension? That can cause the hydrops and is also associated with pulsatile tinnitus and the things you have mentioned. Do you also experience that the symptoms kind of fade during the day and then come back at night?
@mattmorgan7768
@mattmorgan7768 10 ай бұрын
Think about migraines as a trigger. Migraines come in many forms. Visit a neurologist and see if you perhaps should try a migraine prevention prescription.
@alwaysthinkin100
@alwaysthinkin100 Жыл бұрын
Yes I have the exact same thing, the antivirals stopped the attacks for 4 months. When I went off them the started coming back after a couple months. Low sodium was not reliable but low-histamine diets really made a huge difference for me and you can eat more normally. Also taking anti-histamines helps. Now I am taking motion sickness meds like dramamine and they really help as well I am of the antiviral and just doing those and have it under control for about a month so we will see. Thanks for posting this. Good Luck!
@JS-lr8nj
@JS-lr8nj 11 ай бұрын
sorry to hear you're going through it. I hope you're able to keep it under control.
@dollyhewett2553
@dollyhewett2553 Жыл бұрын
THANK YOU
@dundeeecroc
@dundeeecroc Жыл бұрын
I have the same problem, comes and goes, sometimes light and sometimes comes on strong, would have to be bedridden. muffled hearing and dizziness suck!
@charleyarchuleta4932
@charleyarchuleta4932 2 жыл бұрын
Thank you, I will talk to my dr. About trying it.
@shakebusmani
@shakebusmani 2 жыл бұрын
Thank you so much for sharing this..God bless you Brother.
@JS-lr8nj
@JS-lr8nj 2 жыл бұрын
back at you. Best of luck with this. The link for JOH is in the description. But mostly, find a doctor who will try antivirals.
@shakebusmani
@shakebusmani 2 жыл бұрын
@@JS-lr8nj I did ask the doctor to give me antivirals but he only gave me for 1 week ..
@nargeesnazeer6296
@nargeesnazeer6296 2 жыл бұрын
Now where I have to go ent or neurology I have meniere's disease please suggest me
@nargeesnazeer6296
@nargeesnazeer6296 2 жыл бұрын
Iam from India
@shakebusmani
@shakebusmani 2 жыл бұрын
@@nargeesnazeer6296 how old are you ... and what is your condition at the moment ,, you have to avoid sodium plus check upper cervical disk on your ne need to be aligned
@mbrock29609
@mbrock29609 Жыл бұрын
Any update? Meniere's still kept at bay?
@dllee5930
@dllee5930 4 ай бұрын
how often do you take the antiviral medication, and have you experienced and side effects? My ENT mentioned them but said they don't really do anything but after listening to you I think they are work trying. Also, how much are they if you don't mind sharing.
@JS-lr8nj
@JS-lr8nj 4 ай бұрын
Insurance covers mine. I take daily as needed. 1g valacyclovir. It’s ridiculous that this is controversial. I don’t think it works for everybody but it’s cheap and easy to try. Your ent is ignorant and wrong but you’ll never get them to see that
@user-rg4md1zw6p
@user-rg4md1zw6p 4 ай бұрын
I been going through this for a year it's so hard I'm on medication that doesn't seem to work I eat so healthy I can barely make it to work some days I can't get our of bed I have attack every day almost I been so depressed just listening to your story gives me a lil hope but it's hard
@JS-lr8nj
@JS-lr8nj 4 ай бұрын
So sorry to hear what you are going through. It may be hard to find a doc to prescribe antivirals but i think it’s worth a try.
@vee9133
@vee9133 3 ай бұрын
I’ll pray for you ❤
@chrisl3337
@chrisl3337 3 ай бұрын
Try doing an hour in the gym every second day. It worked for me until I stopped..hard exercise gives your body something else to worry about ..
@johnt7696
@johnt7696 2 жыл бұрын
Started taking the anti virals yesterday and they seem to be helping the blocked ear cleared and the tinnitis stopped roaring and is a lot quieter, feeling a lot better. Hope I keep improving
@JS-lr8nj
@JS-lr8nj 2 жыл бұрын
that's awesome!!!! Give it a few days. But you will probably continue to notice a difference this first week! Keep us posted!
@JS-lr8nj
@JS-lr8nj 2 жыл бұрын
Hey bud, how you feeling? still making a difference?
@paul32596
@paul32596 2 жыл бұрын
Can u buy anti Virals online
@johnt7696
@johnt7696 2 жыл бұрын
@@paul32596 Not sure I was in Thailand when I started to take them so i could buy at pharmacy
@JorgeSilva-kv3hk
@JorgeSilva-kv3hk 2 жыл бұрын
Anyways? How are you? Did it improve?
@thijmendeboer9524
@thijmendeboer9524 Жыл бұрын
Hey thank you man. I am 20 years old and the beginning of the story is exactly the same as mine. I have experienced a muffled right ear for a few weeks but suddenly it's getting worse and the peep is pretty harsh. Do you think medicine will help if i would take it right now?
@JS-lr8nj
@JS-lr8nj Жыл бұрын
Yes, I think getting meds would help. Obviously talk this over with a doctor, but right now, steroids would help. Both oral and if possible an injection into your ear. See a doctor immediately for this if you can. I was on oral prednisone and it helped for a while. Also, had injections (but don't know of what) and they also helped. they work especially well within 3 days of the onset, but I did get some small relief even after a month. After that, look for a long-term treatment such as antivirals.
@thijmendeboer9524
@thijmendeboer9524 Жыл бұрын
@@JS-lr8nj Thank you for the comment! My hearing completely restored luckily after having prednisone for a week, and thank you very much for the long term suggestion about antivirals. The symptoms are starting to come back already so I'm going to suggest it to the docter. How is your hearing now?
@MohMoh-lj6ni
@MohMoh-lj6ni Жыл бұрын
Thank you dear .. What about hearing and tinnitus, are they improved with antiviral ?
@JS-lr8nj
@JS-lr8nj Жыл бұрын
Unfortunately, no.
@tonylaurin8769
@tonylaurin8769 Жыл бұрын
I e been suffering bi-lateral Menieres since 2006. I tried the vitamin regimen with no luck. I suffer so much sometimes I wish.... My hearing is almost completely destroyed. I can't hear my wife, can't hear my children, and can't hear my grand children. Im doing research for hearing aids now, but can't afford them. If I'm being honest, I hate my life most days.
@JS-lr8nj
@JS-lr8nj Жыл бұрын
I'm so sorry to hear that. There's an experimental treatment n Germany that Dana White from UFC did, but I bet it's outrageously expensive. i'm so sorry. I hope something improves for you.
@tonylaurin8769
@tonylaurin8769 Жыл бұрын
@@JS-lr8nj SP1005 is a new drug they are starting a study with that may offer help. I pray the study is effective and FDA approved.
@tonylaurin8769
@tonylaurin8769 Жыл бұрын
@@JS-lr8nj well, had an appt yesterday to try the anti virals. My right ear has severe hearing loss and very poor word recognition. My left ear is still aidable. Woke up with vertigo today and puked for a few hours before falling asleep. I pray these antivirals work.
@AmandaMG6
@AmandaMG6 Жыл бұрын
I'm sending you the most positive energy for a cure. ❤
@kaylajohnson6305
@kaylajohnson6305 Жыл бұрын
Not sure if mine is the same illness but seems so. How long do they make u take the antivirals and one a day?
@JS-lr8nj
@JS-lr8nj Жыл бұрын
You'll have to work that out with your doctor, but yes, probably something you take every day so long as the condition is causing symptoms.
@baumeiter
@baumeiter 10 ай бұрын
Hey Jim how about your tinnitus and ear fullness after the antivirals?
@JS-lr8nj
@JS-lr8nj 10 ай бұрын
very seldom feel any fullness. Still have some ringing.
@peterdouglasmurphy9083
@peterdouglasmurphy9083 11 ай бұрын
Can you provide links to the articles you mentioned?
@JS-lr8nj
@JS-lr8nj 11 ай бұрын
in the description
@torymblue2000
@torymblue2000 9 ай бұрын
pretty similar story. But my ENT (heads of the department at Stanford), came up with the same info. I actually had shingles (localized on my hip, so not on my face/head), prior to my attacks. They felt that maybe I did have an antifungal infection in my inner ear, or in the area where it's a closed system. I was only on that medication for 45 days or something, plus my shingles vaccinations. Hearing loss is prevalent, in fact I lost 67% hearing in my right ear, in a 6 month time frame. I'm not on any antibiotics or antifungal now, so not sure if you are continuing to take them, but that would be interesting to know. I'm also not minears positive, but it very well could be A typical meniere's, I can tell you that my attacks moved from right to left horizontal, to vertical attacks, where the floor seemed to drop from from under me after the antifungal treatments. currently attacks seem to be seasonal now, Nov-Mar, but they are lessening... Recent discussions from a German doctor seems to be that they are having success treating your blood to help with meniere's (cell treatments), hopefully I can get some more information from them, but since I'm not a celebrity or a billionaire, I may not have any luck.
@JS-lr8nj
@JS-lr8nj 9 ай бұрын
Yeah, I heard about stem cell treatment. Like you, I'm not rich. I probably won't get it.
@aboahmadnour
@aboahmadnour Жыл бұрын
What antiviral you are taking?
@WeAreAFamily4
@WeAreAFamily4 Жыл бұрын
Jim can you please tell whihc antiviral did u use ??? and which vitamins dis u take exactly ? did u take anyiviral and vitamins both together ??
@JS-lr8nj
@JS-lr8nj Жыл бұрын
Please look in the coments or google JOH for the vitamins. I don't really take them, now. The antiviral is either acyclovir 800 mg or valyclovir 1g.
@martakrajewska2630
@martakrajewska2630 Жыл бұрын
What is the dose and for how long do you take antivirals Jim? xx
@JS-lr8nj
@JS-lr8nj Жыл бұрын
1g per day if you use valcyclovir and 800mg with acyclovir. as much as 3x the dosage at first. You take the antivirals until you no longer have symptoms. So, perhaps indefinitely.
@CaesarSebastian
@CaesarSebastian Жыл бұрын
Perhaps I missed it but what is the anti viral you’re taking? Thank you
@JS-lr8nj
@JS-lr8nj Жыл бұрын
Talk to your doctor about it. Acyclovir or valcyclovir.
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