The many lives irreversibly destroyed by the hair loss drug Finasteride

  Рет қаралды 11,778

PFS Network

PFS Network

Күн бұрын

Learn more: pfsnetwork.org
Finasteride is a popular drug marketed to young men for male pattern baldness. In our latest podcast series, patients, their loved ones and clinicians speak about the devastating impact Post-Finasteride Syndrome has had on their lives.
Post-Finasteride Syndrome is the current term for a rare syndrome of devastating physical, neurological, and sexual side effects which continue even after stopping finasteride. The condition occurs primarily in younger men who have taken the drug to treat hair loss. There is currently no effective treatment.
PFS Network is the largest patient-led organisation and a registered charity. We aim to increase awareness of Post-Finasteride Syndrome and advance scientific understanding of what is a poorly understood and highly stigmatised disease.
More research into Post-Finasteride Syndrome is desperately needed. Learn more about and support important new scientific research here: pfsnetwork.org...
Please subscribe to our channel for patient stories and content regarding PFS.
Stay connected with us:
Twitter: / pfsnetwork

Пікірлер: 119
@mitchsabine4248
@mitchsabine4248 2 жыл бұрын
Enormously proud of everyone who shared their stories. You are all heroes.
@northernstar6526
@northernstar6526 2 жыл бұрын
A big thank you to all the brave men who spoke out. And also thank you for putting all this together, Mitch! We have been in the shadows for too long. If all these stories had been out there in the past, I would have never taken Finasteride. All of you are heroes and saving lives, if we can tell people the true cost they risk when taking Finasteride.
@MrCaradras
@MrCaradras 2 жыл бұрын
I'm very glad you're doing this for us Mitch!
@David-so6kv
@David-so6kv Жыл бұрын
Thank you so much so sharing your stories guys. You are saving lives!!
@tired_of_everything0
@tired_of_everything0 Жыл бұрын
​@@northernstar6526do you have these issues too?
@SelleysGapFiller
@SelleysGapFiller Ай бұрын
Finasteride ruined my life. I have a chronic itchy butthole even years after stopping the drug. And no one understands my pain.
@kathleent1085
@kathleent1085 2 жыл бұрын
Thank you to everyone speaking up about this.
@ashleysilver5594
@ashleysilver5594 2 жыл бұрын
Good finally a new PFS video. Keep the awareness going till they remove this toxin. The brain fog just doesnt go away and also the emotional numbing.
@tired_of_everything0
@tired_of_everything0 Жыл бұрын
how are you now? I have same issues
@christylac8280
@christylac8280 2 жыл бұрын
Thank you for sharing this information and these personal stories so that others may see the seriousness of PFS. Love you Rita, never doubt that your strength in sharing Danny's story will make a difference.
@imeleventeen
@imeleventeen 2 жыл бұрын
These videos stopped me from starting finasteride even after ordering. Thank you guys for this.
@GigaChad-em9qw
@GigaChad-em9qw 2 жыл бұрын
What are you gonna do about your hair
@imeleventeen
@imeleventeen 2 жыл бұрын
@@GigaChad-em9qw well my hair aint really bad yet so im just gonna use minoxidil and derma roll
@imeleventeen
@imeleventeen Жыл бұрын
@Duncan MacLeod Yeah I know about Minox, but I was able to slowly go on and find out it’s fine and have used it for a couple years at that point for facial hair only. But man, all of these stories are no go’s for me. If for some reason it reacts with me like that I wouldn’t last 6 months. Not worth it to me. I’d rather pay for a hair transplant down the road when I need one.
@imeleventeen
@imeleventeen Жыл бұрын
@@Thehappymasksalesman alright i’ll atleast do that
@victorlopezgonzalez8516
@victorlopezgonzalez8516 Жыл бұрын
​@@GigaChad-em9qw lose the hair or lose the life?? You tell me what's more important?? Tell him what's more important but in the meantime keep quiet
@marielux7372
@marielux7372 2 жыл бұрын
Big Pharm needs to be held accountable
@SelleysGapFiller
@SelleysGapFiller Ай бұрын
For fixing my hair fr
@MC-pc2hf
@MC-pc2hf 2 жыл бұрын
Thanks to everyone who is speaking up about this. As someone living with PFS for over ten years now, I can relate to many of the people in this video. The soul-destroying anhedonia and cognitive problems are the worst symptoms for me. And there's no help to get from doctors.
@marlon323
@marlon323 2 жыл бұрын
Antidepresivos?
@benking869
@benking869 2 жыл бұрын
@@marlon323 what do you mean by that?
@marlon323
@marlon323 2 жыл бұрын
@GABA weight training 💪helped me.
@SaiSai-zm5oz
@SaiSai-zm5oz Жыл бұрын
@GABA well said
@carlospalma_
@carlospalma_ Жыл бұрын
Man, I was about to start taking it today. I have never tried that before. You have had side effects FOR 10 YEARS?! What happened?
@AO-ss2eo
@AO-ss2eo Жыл бұрын
I took it for two weeks bc my hair was falling out, I got a prescription from the “hims” application. I started it five months ago…..I literally feel like I died inside. If I could choose be bald in my twenties over these adverse effects I have experienced, I would choose being bald
@jboesky8
@jboesky8 2 жыл бұрын
Thank you for posting this video. I deeply appreciate the awareness that your bringing to this horrifying condition.
@AC-ns4gu
@AC-ns4gu 2 жыл бұрын
Thank you to everyone at PFS Network and the patients for sharing their stories. Takes tremendous courage to go on camera with this condition.
@richard9124
@richard9124 2 жыл бұрын
I’m another long-term sufferer from this drug. I quit over 11 years ago. My symptoms include chronic, debilitating fatigue, practically non-existent libido, severe muscle wastage, digestive issues (bloating, GERD, very slow transit), brain fog, very low body temperature (almost hypothermic at times), and probably 30+ other more “obnoxious” symptoms. This drug can definitely change your life and make you a shell (or worse) of your former self.
@shawnpeters2196
@shawnpeters2196 2 жыл бұрын
How long did you take it?
@antoneckhart4010
@antoneckhart4010 2 жыл бұрын
I have a protocol for brain fog. Its a bit dangerous though. Felt like my brain had been rinsed with fresh mountain spring water.
@RichCwm
@RichCwm Жыл бұрын
lol. You're just a hypochondriac. This drug isn't to blame.
@carlospalma_
@carlospalma_ Жыл бұрын
Do you point your symptoms back the Finasteride? Aren’t you sure it wasn’t a Placebo?
@antoneckhart4010
@antoneckhart4010 10 ай бұрын
who is the question too?@@carlospalma_
@jaapjan858
@jaapjan858 2 жыл бұрын
Brave People.. thanks for sharing yr stories
@mansoorahmad8980
@mansoorahmad8980 2 жыл бұрын
My friend you are doing God's work. Thank and stay blessed
@MT-nu3vl
@MT-nu3vl 2 жыл бұрын
As a fellow sufferer I greatly appreciate all the work that has gone into this to help raise awareness for this horrific condition.
@jamie0008
@jamie0008 2 жыл бұрын
Thanks for that video, really informative
@jeysmith7445
@jeysmith7445 2 жыл бұрын
you are so brave on showing publicly your cases
@CiproIsPoison
@CiproIsPoison 2 жыл бұрын
Horrible. Some good the FDA is, huh!?
@mexicancookie7622
@mexicancookie7622 8 күн бұрын
I took finasteride and three months later I herniated a lumbar disc. That means finasteride causes back problems right? Lmao
@georgecrespo370
@georgecrespo370 Жыл бұрын
Jesus. I bought this maybe 1.5 years ago. For some reason or another I never touched it. I've had mental health issues since 18 on and off. I couldn't not imagine what this would have done to me. Just threw this away Just now. Thank God I never touched this stuff.
@Josh-fp2qn
@Josh-fp2qn Жыл бұрын
And I have even heard stories that guys were fine until 10 years after using the drug. Then the side effects occurred.
@basedbaldwin
@basedbaldwin 2 ай бұрын
Thanks to this video I changed my plan, I'm never touching finasteride ever. I would rather be bald or wear a hair system than taking this drug. I hope all of you get well soon.
@Lucaaaazz
@Lucaaaazz Ай бұрын
I took it for 4 months, barely no side effects. Then I mixed it with isotretinoin because of acne. For a short time I had an ed, but a few Days later the side effect were cone. So I dont know if i should start again when im off on isotretinoin.
@ryanclark5193
@ryanclark5193 2 жыл бұрын
Let's hope this raises awareness the world needs to know what this drug can do and sufferers need help before more lives are destroyed or even lost
@SeanOCallaghan0106
@SeanOCallaghan0106 Жыл бұрын
You prevented me from taking it. I'm gonna try natural remedies and if they dont work im just gonna shave
@tired_of_everything0
@tired_of_everything0 Жыл бұрын
you just saved your life
@tired_of_everything0
@tired_of_everything0 11 ай бұрын
@@milenavidmar2733 Weird way to come out as gay man. I understand you're obsessed with how others look. Just come out already
@descubriendoconisaac
@descubriendoconisaac 2 жыл бұрын
I am one of them .. but life is only one
@Slidehhy
@Slidehhy Жыл бұрын
You ok now
@descubriendoconisaac
@descubriendoconisaac Жыл бұрын
@@Slidehhy no
@tired_of_everything0
@tired_of_everything0 Жыл бұрын
Man it's been 1 month it's brutal. What are your symptoms? please I can't live like this
@Slidehhy
@Slidehhy Жыл бұрын
@@tired_of_everything0 you will survive
@descubriendoconisaac
@descubriendoconisaac Жыл бұрын
@@tired_of_everything0 no sex drive .. And ED
@malikallen9675
@malikallen9675 2 жыл бұрын
Can I tell my story
@PFSNetwork
@PFSNetwork 2 жыл бұрын
Hi Malik, we would be happy to have you on the next series. Please reach out via our website - pfsnetwork.org. Thanks.
@malikallen9675
@malikallen9675 2 жыл бұрын
@@PFSNetwork also have you heard about hyperbaric oxygen therapy chambers. And do you think that would be beneficial to maybe help or heal are condition.
@atvbass10
@atvbass10 Жыл бұрын
If you think for one instance that suppressing a male sex hormone won’t have consequences, you are sadly mistaking.
@Josh-fp2qn
@Josh-fp2qn Жыл бұрын
This drug is basically change a man into a woman.
@TheDash35
@TheDash35 2 жыл бұрын
I have taken 1mg everyday since 2018 and I only had 1 side effect. My hair improved.
@grv91vr23
@grv91vr23 2 жыл бұрын
Till you stop the drug and then experience a crash
@FCS81
@FCS81 Жыл бұрын
Your comment is worthless
@zuu1701
@zuu1701 4 ай бұрын
Good for you
@Josh-fp2qn
@Josh-fp2qn Жыл бұрын
Wow. Forget fin. Getting a hair system instead.
@tired_of_everything0
@tired_of_everything0 Жыл бұрын
you just saved your life
@tired_of_everything0
@tired_of_everything0 Жыл бұрын
@@Josh-fp2qn probably. this dude is a psycho. Almost all the people I talked to said they had side effects
@ignassiaulys9160
@ignassiaulys9160 18 күн бұрын
whats a hair system?
@fredbloggs6080
@fredbloggs6080 2 жыл бұрын
I just posted a somewhat detailed account, with a question, twice, but it disappeared. I don't know if it's been deleted by the channel owner, or more likely by KZbin bots. If it were held for review by the channel owner I could still see it when signed in. Let me just pose a question, which I haven't found a good answer for: Does PFS happen to those on TRT trying to lower DHT, especially if one had similar symptoms to PFS decades earlier, years before TRT, after taking saw palmetto extract for one month, which took about two years to mostly recover from?
@NpcAvoider
@NpcAvoider Жыл бұрын
I’ve noticed that the men interviewed on this channel almost instantly experience adverse effects (within 1-4 uses). Which leads me to believe there are men with genetic predisposition to the drug’s sides and should NOT take it. Has there been any research into this, and if not, why? There are many men who have no issues - but clearly, there are some men who should never ever touch this stuff. And how/why that’s not tested for beforehand is unfathomable.
@RichCwm
@RichCwm Жыл бұрын
I guarantee the majority of these guys are just placebo and are depressed for other reasons and attributing it to this drug. I mean look how ridiculous the first guy was, he thinks taking ONE pill of finasteride 2 1/2 years ago has irreversably fucked him up. That's plain retarded.
@RichCwm
@RichCwm Жыл бұрын
@@tired_of_everything0 lmao!! you can't be that silly surely. It's all in your head man
@tired_of_everything0
@tired_of_everything0 Жыл бұрын
@@RichCwm I can't smell or taste anything
@RichCwm
@RichCwm Жыл бұрын
@@tired_of_everything0 haha. good one man
@tired_of_everything0
@tired_of_everything0 Жыл бұрын
@@RichCwm no one's stopping you to take it. don't do clownery here
@maltiveru
@maltiveru Ай бұрын
What about fin topical solution at low dose 0.25mg?? Does it do the same. I have been on minilox for 11 years, but still cannot keep my hair. Can someone share info pls.
@joaotome2248
@joaotome2248 2 жыл бұрын
Do you think it is possible to get this from a natural product like "pumpkin seed oil"? I took 1000mg 2 times a day for a month and ive been suffering a lot. I wish i would know. PSO is a 5ar inhibitor like saw palmetto or finasteride. Im scared this wont improve
@carlospalma_
@carlospalma_ Жыл бұрын
Any updates?
@zuu1701
@zuu1701 4 ай бұрын
Absolutely you can get this from Saw Palmetto
@DaniboyBR2
@DaniboyBR2 3 ай бұрын
You can get it from saw palmetto but I do'nt think pumpkin seed oil is strong enough to make you feel these more hardcore effects.
@randall5306
@randall5306 3 ай бұрын
Finastetide rhymes with suicide for some crazy reason. Who woulda thunk it 😢
@josephquezada6138
@josephquezada6138 Ай бұрын
the crazy part is, you either get pfs or youre stuck taking the pills the rest of your life
@satyamthapa7
@satyamthapa7 2 ай бұрын
any one who successfully cure pfs ????
@saulsevilla-v1f
@saulsevilla-v1f 13 күн бұрын
Terrible ruined my life
@GuiltySpark347
@GuiltySpark347 2 ай бұрын
Ruined my semen volume and libido significantly.
@mexicancookie7622
@mexicancookie7622 8 күн бұрын
Did the opposite for me. It’s a great medicine.
@jayrollo1352
@jayrollo1352 Жыл бұрын
So guess it looks like my only option is to be bald and single. Ugh.
@Josh-fp2qn
@Josh-fp2qn Жыл бұрын
Hair system
@tired_of_everything0
@tired_of_everything0 Жыл бұрын
being bald is better than this shit. I don't know how to live
@GuiltySpark347
@GuiltySpark347 2 ай бұрын
Hair transplant
Misdiagnosed for 10+ years... until now.
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