So sick patients are paying their butts out "in order to prevent other people from getting the condition"? Interesting. I just read the update for the Kiel project dating back to Feb 2022 (you read correctly) : 3 full years have passed. They were supposed to be "well on their way". Same semantics in Jan 2025 update. We'll eventually be able to "inform hypothesis for future projects". In other words we not going anywhere before decades. Melcangi at least is publishing 3 articles a year on PFS and is concrete. ..

I will pass out soon..I cant take this anymore

I'm on finesteride and none of these things have happened to me. I think it's been great!

I will pass out soon Mitch..just enjoying some times before death... living like this is not worth

I've said this before but it bares repeating. DHT causes our hairloss, which sucks. But it's been part of biology for hundreds of thousands of years. It's there for a reason. To abruptly get rid of it is going to cause major or even catastrophic changes . Please be wary- I would imagine most of these dudes would rather be bald than to go through this nightmare.

There's just something strange about altering your hormones with a synthetic drug that's only a couple decades old. It sucks going bald, but DHT is there for a reason, and it's been a part of our being for hundreds of thousands of years, so to just abruptly get rid of it is weird...

Hi

Is this channel just to make us feel worse? Or also propose solutions and give hope? Awareness is good but the people watching these videos are obviously people who’ve already taken the drug and realised it’s too late.

Thank you so much for sharing your story. This drug is a nightmare. I was prescribed this drug, but when I looked up the side effects I saw it can cause optic nerve damage which I already have so I did not take it. I was wondering if any of you had tried PEA (Palmitoylethanolamide). I read it is a promising new treatment for PFS. According to Alan Jacobs MD Neurology and Endocrinology website. Researchers have found low levels of neurosteroids, including allopregnanolone, in the cerebrospinal fluid of post-syndrome patients. PEA is naturally produced in very high concentrations in our brains and is also naturally occurring in egg yolk and peanuts and is anti-inflamatory and neuroprotective. Finasteride blocks the synthesis of allopregnanolone. I hope you and others will find relief soon.

Sorry for your loss and thanks for sharing and for this channel. Wanted to go for prescription for finasteride. glad that somehow this channel arrived me before🙏

I know exactly how Daniel felt. I have been fighting not to kill myself day after day because of this cursed disease.

Alright, I've taken this shit topically for about 2 months. Noticed blood sugar levels jumped to around 120 at morning. Also tinnitus, slowed digestion, dry skin. Stopped therapy immediately. Other stuff doesn't seem to be affected at any level if you know what I mean. Did anyone get similar symptoms and and experienced reverse?

What do the studies say from other countries whose primary language is not English?

Like Dr. Alfonso was saying, the over expression of androgens in the receptors can cause problems all over the body, considering these androgens are all over the body, and the length of time the drugs was taken, as well as the dose, maybe the body got used to the drug being there and maybe once it was gone it helped clear up some symptoms but then sent the androgen cells all over the body into a haywire of problems? This may be an explanation to the crash? I dont know, im just making an educated guess

I think this would be a great study if conducted properly

If you sequence the DNA and the drug altered the DNA how do you know what the original gene was before the introduction of the drug?

Does finasteride bind to the alpha reductase enzyme or the androgen receptor itself on the cell? Its a competitive inhibitor, how does one detach the bonds from the AR/cell?

My heart goes out to you buddy

Can I call you guys to get checked at auto-immune level? I think there are biomarkers for this but it's a combat to get anything done properly... Like auto-immune Small Fiber Neutopathy, gotta do a skin biopsy and actually a bit of research around it.. Don't expect your lame-ass GP to understand anything. This disease is emerging, means there's nothing established about it. Doesn't mean you can't get anything diagnozed. There's a recent paper bt Healy about this. Auto-immunity and small fiber neuropathy. Ain't all of you be able to navigate this at medical level, unfortunately.

I took one pill and felt a complete shutdown of my reproductive system. I am slowly healing, I really hope I heal. Please pray for me guys. Erik, my heart goes out to you. You are a strong person and a fighter with extreme courage to come out on this platform and tell your story. You are helping millions of people bring awareness to this, I hope you recover. They need to put a stop to this drug. I was able to get it prescribed way too easily

Thank you for sharing the story

I'm glad I didn't take this and I'm glad I informed myself and thank you man the post your videos from your experience and inform the public about this actual thing called post finasteride syndrome even in the hair transplant doctor said that you'll experience side effects but will help you reduce them or something I'm not playing with my brain or my hormones forget about it spit shine done

I want to testify

Anyway women are also affected by the exact same condition from the use of SSRIs, so it makes one wonder if the AR is as relevant there too. In any case these charities should be fund-raising even more heavily, we won't get anywhere with 100.000 dollars a year. Nowhere.

All the genetic investigations she mentioned are absolutely necessary to be conducted as soon as possible so it all starts to compound positively in terms of research and acceptance. If you guys don't give each between 300 and 1000 euros a year, well, no problem, we'll be talking about the same fucking shit in 10 years.

may god bless you with peace.

It's time to work on cure

Everyone in the comment section is delusional, pfs isn't real, it's not a recognized condition, and it's never happened in clinical trials. You all are hypochondriacs with nocebo effects.

I can't even sleep a day without having a wet dream I've taken this poison for 6 years and had a strong crash in june

Any women experiencing these side effects?

Don't castrate yourself unless you want to deal with the consequences. I lamented the loss of my boyhood and not only took finasteride but was later castrated and took low dose estrogen. I'm happy because I reversed my puberty and will defend gender affirming care with my life. I was mildly anorexia for years beforehand and did it so I wouldn't grow.

I just use the shampoo easy as that I don't take anything orally I do not mess with hormones it's simple as that

What about with women who take it? Any stories of them experiencing similar effects?

The answer is going on testosterone replacement therapy to retsore libido

Has anyone thought have going on testosterone replacement therapy to solve low libido

i didn't get the sharper end of the range of PFS symptoms (only sexual) but this is something which needs urgent attention. France had the right idea, other countries must follow suit.

a great interview. A light on the horizon 😍

I was waiting for one scientific explanation for this claim. Other than claims and data

i suspect the 1-2% figure for sexual side- effects is *very* conservative. My partner of the time took fin and suffered sexual side effects (not sure about PFS as we're no longer in touch.) for the period we weren't in the same country. Against my better judgement i also went on fin for a month and ended up with persistent side effects (harder to maintain erection, lower libido etc) albeit not on the scale which lovely Carlos experienced. i'm older which may have something to do with it. in a nutshell : this is a drug which should be banned at the nearest opportunity for hair loss. DON'T TAKE IT.

thanks for your bravery in coming forward.

I did try topical finasteride fortified with minoxidil I bought different variants from minixodilmax website And from a pharmacy in Canada called beyond pharmacy I used to order it from their websites and keep in mind I’m from Middle East. I did use them for around 2 years Had zero sides. Nothing. But also zero results. I don’t want to make it long story but the point is: in terms of topical treatments, they do not work. Don’t waste ur time or money. Fortunately I didn’t get sides. I never tried oral fin or duta but I did try vitamin shit like biotin and saw palmetto. Also they don’t work and zero sides So 6 months ago I decided to say fk it and keep my hair short. I don’t bother much with hair anymore. And instead I look at what god and life has given in my besides hair. Hair is not everything. Yes sometimes I still wish I had the I had the same hair when I was 24 and 25 but who cares. Girls don’t care much about hair. They care about much other areas in a man, just like how us men care more about face, boobs and ass and don’t really care about how thick her eyelashes are which some girls are insecure about even though us men don’t even think about that when it comes to attraction lol. Hope my point was clear. So take it from a 31 year old dude who tried tons of shit… it is not worth it. And yes I still have girls attracted to me… and hopefully with the soon CFA after my name, bitches gon come crawling to me hahahaha 😂

Wait a minute Ur doing cfa and still have that hair??? Bro after I did level 2 my entire crown area hair has been thrown in the ocean lol. That pension fund chapt from fra killed me lol.. and the covid delay made me go mad crazy And to make it worse I’m still doing L3! Hopefully I pass feb 2026 Sorry I know it is not hair loss related but those Kaplan books caught my attention lol

sorry for this wish you getting better and thank you for sharing your experience

This is an extremely underrated interview. People need to realize that "the crash" that patients can experience can result in such profound physical, neurological and sexual symptoms, that many are unable to continue their lives in a meaningful way. This is not just sexual dysfunction; this is a complete biological shift on multiple levels that can leave people practically crippled. The cold, harsh reality is that despite the narrative that many patients improve over time, there are also many others that unfortunately don't, and in some cases, they even get worse (especially physically). As Mike also mentioned here, PFS patients are extremely vulnerable/sensitive to other substances after they crash, so you're essentially walking on eggs shells with everything you consume. One small slip up can result in a potential permanent worsening of symptoms. This is why research and public testimonies are so necessary. People have lost everything to this drug, and they deserve answers and a treatment. Well done, Mike. I'm so sorry you're experiencing this, but you're not alone. There are many others. I truly hope you've at least seen some improvements since this interview. I implore everyone to donate to the PFS Network and support this revolutionary research so we can get answers.

This is wild. When I found out about this last night, it hit me that the various weird health problems I've been having could be because of this drug. I've had many of these exact symptoms and it's caused me to fear for my job. Relieved to finally have a potential lead. (EDIT: "This drug can make you feel like a 90-yr-old man" - Omg, that's exactly how I described my symptoms a few months ago. Also, my chronic eczema that comes and goes briefly came back for an ENTIRE YEAR. And yes! My hair got curlier too!! Pretty mad that I have to be my own doctor, because none of the docs I consulted mentioned it to me.)

why you never trust the medicine of a whiute man

Accutane did the same to me, ghosted like you men, told it was always anxiety,

wtf is this bs xd.... scammers

why the fuck you took finasteride in the first place? you got a full head of hair. these stories are total nonsense, you convinced yourself you got ill from a pill and now you are blaming it. this is totally made up and fake

this is all lies , i have been on 5arinhibitors for years and it all have been perfect ....if you are losing your hair (male or female) go at least on finasteride ... dont listen to this people .. dont lose time and money on bs