The NEW Epilepsy Diagnosis Explained: 17 Most Frequently Asked Questions

[@DrOmarDanoun]

✅ Get evaluated by Dr. Omar Danoun directly, book your online appointment now (for age 16 years and older) appointment.dromardanoun.com/ In USA, please call the clinic

[@LiniSue]

Thank you so very much for your informative videos. I was recently diagnosed with Focal Seizure in the ER by a young Neurologist on duty - the ER Doctor had me ready to admit as Level One Minor Stroke - previously had been admitted twice to the hospital as TIAs. I knew the 37 yr old neurologist made complete sense to me with his diagnosis. I'm 84 and realize I'm fortunate, perhaps, to have it known now and be on medication. My larger concern is possibly the stages of dementia I 'might' go through in the future and that is only for my family. It is called life. I just hope the diaries of sorts that I have kept through a very large portion of my life, with timelines and knowing my father's timeline/ medical history can help in some small way my own family and possibly others. Thank you for your life work for the greater good.

[@julieoelker1865]

I am now 62. I had my first tonic-clonic seizure 13 months ago. They found a large, 2cm meningioma in my olfactory groove and concluded that was the cause. I had two more seizures before having the tumor removed. I am still considered epileptic, and will be on large doses of anti-seizure drugs for the next 5-10 years.

[@christianwatson2032]

Lost my brother last year due to drinking alcohol and having seizures..😢 we both were diagnosed at the same time...im having trouble keeping a job bc of being an electrician...really dont know what to do at this point. The meds work but sometimes they dont

[@juliemcdonnell2232]

Where were you when I was diagnosed 😢 I had so little resources. Thank you so much for this; it will help so many people.

[@sjnelson51]

Appreciate you taking time, Dr Danoun, to make this video for us lay people. So appreciate your compassion in sharing this latest info for patients everywhere. Very helpful and informative, and a great comfort.

[@DrOmarDanoun]

Thank you. Glad it was helpful

[@GIPI_explorer]

Dr. Danoun, thank you for making all this information; I have been learning a lot from them.

[@philipmilner9638]

Every time my epilepsy medications are changed, it makes my seizures worse (once I was over dosed on Carbamazipe) by a neurologist. I ended up with 'nystamus' in both eyes. I now take Phenobarbital 'Phenobarbitone' (which I've been on since 1964/1965, Carbamazepine and Lamotrigine. A neurologist put me on a fourth medication 'Levetiracetam', but I got too many side effects, so I came off it. after a month or so. I have not seen a Nurologist or Epilepsy nurse for 5-6 years due to lock-down, I only have short phone calls with them, which I find useless.

[@patriciadicharry6064]

my coworker's sister was finally able to carry a baby full term after taking omega III, =which stopped her seizures naturally.

[@Jpb9548]

Thank you so much for all your information. My son just received “diagnosis” after 1 seizure 2 years ago (took a friend’s Vyvanse prescription to study) 🤨 we thought that was the reason, then this year in October and November he had a seizure. We received all tests and started Keppra but now we cannot have follow up until March? Kinda feel like we are floating out here. It’s scary to just have to wait. And he is away in college. Keppra seems to be kinda agreeing so far. Your videos and information are invaluable. Neurologist did a quick briefing but by no means did I leave feeling I knew anything my 21 year old was diagnosed with. I can’t recall the word Epilepsy even being used. Thank you, I feel like I’m getting a better grasp on his condition.

[@mariereneagonzalez]

I take Vyvanse for ADHD and Keppra for chronic migraines but I developed Seizures

[@Nanukie]

I have NSCLC, metastatic lung with 2 brain tumors that i had undergone cyberknife for & currently an untreated brain tumor, awaiting cyberknife therapy. I believe i have seizures. I fall asleep just about anywhere, including bathroom. For some i am partially aware & others that i have no memory of. . No identifiable reason precipitates them. I also fall out of bed & had to put a guard up. These usually happen at night. I have lost entire days with no memory if i am awake or asleep. What seems to be a good educated guess as to what may be happening. Before cancer, i did have 1 similar experience. I was thought to have sleep walked as a child. I believe it was seizures all along. I was thinking complex nocturnal seizures from my limited research & just a guess. If it is the cancer, i cannot receive immunotherapy.. i had a life threatening response to immune therapy for cancer. By the way, i just remembered that the first 2 tumors were bilateral parietal lobe small tumors. Now another is coming back on left parietal lobe. Please advise me as to a type of seizures these are. Thank you very much Doctor.

[@ellster127]

So interesting and informative thanks Omar!

[@DrOmarDanoun]

My pleasure!

[@muhammadalshammari7680]

Peace be upon you. You underwent an operation, thank God, and everything was fine, but Lamictal was not taken. I did not feel losing it. I used Trileptal and Keppra. Only the question is, will the new medicine Sinobamate stop seizures? Thank you.

[@DrOmarDanoun]

Please review the video on Cenobamate for full information on the medication and discuss with your neurologist

[@21kirsty21]

I started getting a funny taste by my mouth and tingling finger tips when I was diagnosed, no family history I do have nf1 with a family history

[@cincin1194]

I have a question about seizure medications and migraines. I increased my seizure medication (Lamictal) from 75mg to 100 mg and I started getting bad headaches. What causes this?

[@susanjenison1216]

Thank you Dr. Danoun. I thank you for your time and dedication. These videos are very helpful to me and my child as we try to have the best life possible.

[@DrOmarDanoun]

Thank you for the nice words. I am glad to hear it is helpful

[@Fluffy56766]

My son has been diagnosed with “absent seizure”, he has been described euthoxsimide but he is having seziures (shakes ) every other week. Is this normal??

[@21kirsty21]

I have no family history of epilepsy But I do have nf1 my mums side of the family, I started experiencing strange tastes and tingling finger tips before I was diagnosed was first prescribed lamotrogine then keppra then tegretol and clobozam now I’ve been given cenobamate

[@DrOmarDanoun]

Thank you for sharing your experience and I hope you feel better soon

[@cerinjoy6904]

Thank you Doctor May God bless you

[@allencornett3357]

no one seems to know why i had a brain tumor operation in 2014 in 2018-2019 i started to cough uncontrollable and pass out. in the last several months 2023 november i started passing out and seizuires bitting my tongue. i was but on keppra i take 1500 in morning and 1000 at night some times i get light headed while coughing but have not passed out but they do not know why any suggestions or maybe other cases like mine thank you

[@angelinemaseko3514]

Have been on phenobabiton pills have not experienced seizures ever since

[@sapnamehrotra5007]

Thanks 🙏

[@DrOmarDanoun]

My pleasure.. Thank you

[@joydivision2079]

Can you please let me know why it is harder to treat for adults? It started as a child in my case, and I am still having them

[@DrOmarDanoun]

Probably it is related to the cause of the seizures rather than the age itself. Any age has a chance of 50 to 70% seizure freedom and there is always 25% hard to control

[@kas5564]

Thank you Doctor Hanging out in the EMU, I've watched most of your videos but am just waiting for an event. :) thanks for helping me understand what going on

[@DrOmarDanoun]

Best of luck. Say hi to my epilepsy colleague taking care of you 😊

[@kas5564]

@@DrOmarDanoun They certainly appreciate me coming in expecting things and being able to advocate for being removed from Keppra due to my psychiatric history. They want me to be less "The Hulk" Don't give up on finding care everyone, there are doctors who really care out there trying hard to help

[@EditaZakomac-hv4rs]

Salam Alaykum 😊! I have sleeping epilepsy in the front part of my brain! with the medication it stabilizes, without it I have attacks in the middle of the day! five each one after the other!

[@annapoma6909]

Thanks a lot.

[@davidhallowell3457]

I had a seizure and an abnormal EEG (generalized spikes, discharges) while still suffering inflammation effects from COVID. Does the COVID make diagnosis of epilepsy difficult?

[@DrOmarDanoun]

COVID can trigger seizures in people with epilepsy

[@davidhallowell3457]

@@DrOmarDanoun Thank you. I never had epilepsy, so I was hoping it to be a passing thing. I’m staying on a low dose of Keppra just in case, but feeling very fine and stable now.

[@DrOmarDanoun]

I hope this video gave you clarity on epilepsy. Let's start the treatment journey here by the best 10 tips for seizure control in this video👇 kzbin.info/www/bejne/gJi4gKGAqMSeqac

[@angeladisher6916]

I was told that I must had a stroke during my female surgery n right after I sleep from 8 that morning i my surgery was at 8 when I woke up it 6r 7 that night least then 1 hour my body was shaking n jerking n could bearly talk this happened in2020 as of this day I can't feed myself sometimes can't talk walk passing out staring arms n legs doing what it does sometimes Water eyes my kids sometimes say im crying They even had me go to a Mental health Office saying it was mental Turn off to be wrong went to a Neurologist They said nothing wrong was having a seizure at hospital doctor was laughing at me went got a nother doctor bought her over to me n said she is faking because when im having them I can't respond but I can hear what u saying but next thing I know ,2 Security guard at my room n paperwork ready to send me to Mental hospital if it wasn't for my daughter

[@marycarlson5174]

The other thing is the question on sleep what can someone on seizure medicine take for sleep because I can be up all night and I get afraid of having a seizure then

[@christianwatson2032]

I agree bc my sleep habits are way off idk if it's from my epilepsy or just me..

[@peterpanos7170]

Thank you 🙏🏼

[@GordonKay-ro1rs]

I've had grand mals epilepsy for more than 10 years and I have them awake or sleeping and it's been hard for me

[@Skycloud398]

Hello, my friend’s son had a few seizures 2 years ago. Doctor said it was focal tonic clonic. The seizure was well controlled for 1 year after that he started kicking his leg during the night although they increased the medication it didn’t help. Finally after 2 years once when they forgot the medication the boy had a mild tonic clonic seizure. The question is if someone stay in medication for 4 years is it possible that child outgrow from seizure? He is 10 years old now.

[@ThisIsForDrew]

Wean medicine very slowly ; same with my cousin unfortunately took a few tries to be able to be both seizures and med free! Life is sad 😢 - youre case is not alone!

[@duncankuyioni983]

Am from Kenya and been a victim for the last two years..how do I control

[@DrOmarDanoun]

The treatment options are mentioned here and in different videos. Please learn and discuss with your neurologist

[@DonaldTucholski]

Is it safe to consume carbonated beverages , Mineral Water, soda , beer, ECT?

[@veronicacoleman7987]

I have 2 episode of seizure within 2 months,am on medication, i have done 2 types of tests,everything came back normal, am 47 years old, am very worried

[@sam3kperv]

Can I use olcohol if I'm having seizures?

[@DrOmarDanoun]

There is a whole video on that subject

[@rafir3796]

salam dear sir, my son is 3 year old he has genrlized epilepsy and he used levetracetam drap 3ml - 3ml, epival syrop , 3ml - 3ml , zonas tablet 1/2 - 1/2 until 3 month now he use ... tablet deltacortril 2x2x2 , tablet topramate 1x1 , syrop epival 7ml x 7ml tow weak but this medication dosn't have positeve now he hase( 5 untile 8) time convalsion per day whats your advice ? note : all labratory test normal and EEG MRI also normal

[@DrOmarDanoun]

I am sorry I cannot provide medical advice online. Please discuss with your neurologist. All the videos on the channel are for your information and help

[@MetroMetro-zs8ks]

Tbh, idk wtf happened. Yes my mother was absolute SHIT at raising me with abuse and starvation. YES when she dies i was full of hatred and psychologically changed forever ...but now at age 27 i eat healthier and less stressed out nor disrespected and i STILL develop epilepsy. My mri looked normal and eeg came back mostly normal but music is a trigger light is a trigger rarely but why now? Before I was 24 i blasted music and lights in front of me with ZERO issues. I drank coffee like no other with zero issues, had the occasional drink (rare) ... went to therapy to address my child ptsd... and yet hear i am with focal seizures regardless if i take my recommended amount of medication or not. Like am i missing something? How does things that had zero affect on u Before now trigger seizures. And when i have seizures "fake memories" pop up 🤔 ... like sone type of alternate ego

[@callumsullyfitness]

My seizures began almost instantly when I tested positive for COVID it lasted every day that I had the virus then stopped for about 5-6 months before the seizures returned and have been happening for the last 6 months. The MRI has shown a small lesion in my right temporal lobe. And I'll be meeting the neurologist and neurosurgeon next week to likely get some answers, but it's the covid thing I can't get my head around what is it a coincidence? Did COVID cause it? Or was the lesion there before COVID and the virus simply activated something?

[@ThisIsForDrew]

Genetic predisposition; unlocked (and made worse) by covid ! Same here !!!

[@O.....x-l7i]

Caligula also had epilepsy. I thought it was cured by now?

[@gagoinewebabuseng6394]

My son hasn't observed or been aware of a seizure or observed by a friend or family member..diagnosis is based on results of an MRI ..

[@marycarlson5174]

So if a seizure is brought on by an infection, why would they need long-term medicine? Could that not just be treated with antibiotics or is that the new brain structure happening?

[@malcolmmitchell4145]

What about sneezing and having a seizure

[@DrOmarDanoun]

Please discuss with your neurologist for evaluation and treatment

[@heatherstratta3266]

Inner ear infection as a baby,, and someone else died from focal and grandmal, Scar on Left temple,

[@TammyCarter-p4t]

My mom has seizures and we live by ourselves what's 6 kids single mom and I'd really love to have them honoring thing so that it can help me monitor her seizures if she does go in effect and have one it would help us help help us monitor around the house because we do a lot her and it would help us I would appreciate if we become a lucky winner .

[@cccecider]

Why am i so violent when coming out of my seizure...And i'm very violent when they put the lines in me...Many thanks...

[@ThisIsForDrew]

Ictal psychosis - I have it as well. 🙏 shouldn’t have any long-term effect!

[@medicine7232]

يعطيك العافية انا شب بدرس الطب وفتحت قناة عاليوتيوب ورابطها عصفحة التيك توك ممكن تساعدني

[@DrOmarDanoun]

نعم يمكن أن اساعدك.. ارسلي رسالة على صفحة الفيسبوك

[@medicine7232]

@@DrOmarDanoun تم دكتور وبعتلك رسالة عالمسنجر اتمنى ترد عليي وتساعدني وما راح انسالك عالمعروف طول عمري

[@DrOmarDanoun]

If you would like to make a consult with Dr Omar Danoun, age 16 years and older, please call or email the International Patient Services at Henry Ford Hospital and get your appointment if you are outside the USA: Office Hours: Eastern time 8:00 am -5:30 pm Mon-Friday, excluding holidays Phone: [phone] Email: [e-mail] In USA call the clinic www.henryford.com/physician-directory/d/danoun-omar

[@Fluffy56766]

My child is 12 years old ….. could i book consultation? I just want to clarify things with you before i see my doctor

[@mdbabu5057]

Helo sir,how are you?i m helpless father of my son.because my son patient of an focal epilepsys.now my son taken levetiracetam 250mg twice daily age of 6years.when my son was 8month we are observed some problem that's fallen neck frequently left side.we thought solution this problem at future.after 2years we found hydrocephalous of brain by ct scan and focal epilepsy by EEG.And then we visit few professor of child neuro but not improved my son.now i so much disappointed about my son.what is the solution of problem sir.plesae give me solution

[@DrOmarDanoun]

Please review the videos on the channel for information and discuss with your neurologist

[@emmaloviseremmen3115]

❤

[@sherrelnewton]

The gum is over the teeth

[@54MzTee]

Only if you don't brush your teeth and gums well. Use a firmer toothbrush. Not the softest ones.

[@shukriesmael6032]

Asslam aleikum. Please can you give me your email so that l can explain to my son, who is not given the right medication.

[@DrOmarDanoun]

Yes. Consults are available. Details in the first comment