Neurologist explains why your seizures will never stop

[@DrOmarDanoun]

✅Get evaluated by Dr. Omar Danoun directly appointment.dromardanoun.com you can book your appointment today for age 16 years and older. In USA please call the clinic

[@southerncatlady6680]

Where is your clinic in the USA? And what is the phone number?

[@Swatisuvashree]

Hi I am swati I take vinleep 300 My seizure in control under 6 year My age 27

[@Swatisuvashree]

Can I increase dose

[@puntts2]

@@Swatisuvashree what is your age dear and which type of sezoure u have

[@puntts2]

@@Swatisuvashree ap ko ye problem k. Hua or kis wajha say hua kindly guide me

[@husseinbazzi340]

Dr. Danoun, your videos are truly a lifeline for so many of us. The clarity and depth you bring to each topic make a world of difference, especially for those of us trying to fully understand these challenging concepts. You go above and beyond to help people, and it really shows. Thank you for sharing your expertise and making such a positive impact on the community.

[@DrOmarDanoun]

Thank you so much! Glad to hear from you

[@chrisneptune847]

Thank you kindly, Dr. Omar Danoun! Your kind education helps more than some Dr. that I have seen personally!..

[@DrOmarDanoun]

You are very welcome

[@kyliejacobs6817]

You’re fantastic xx thank you for your time. From Australia 🇦🇺

[@DrOmarDanoun]

You are so welcome

[@kyliejacobs6817]

You are Fantastic ❤

[@Sami8903-f2c]

Shukren Dr. Danoun. I'm glad for your generous information. As an epilepsy patient I saw that how missing one day morning tablets put me in a mess for more than a week. Since then I'm putting 3 alarms in 10 minutes difference.

[@DrOmarDanoun]

Thank you. Glad you are on top of it

[@DanielGarcia-oy3ci]

God bless you. Ty!

[@southerncatlady6680]

Hello I suffered seizures for the very first time in my life in August 2023. It took about 7 days to finally get my seizures under control. They started out tonic/clonic when the ambulance picked me up and then they were focal awake seizures. I take 1500 mg Keppra twice a day as well as 100 mg Dilantin twice a day. My liver enzymes continue to be quite high out of the normal range. My neurologist says its fine but my primary is still very concerned. My primary ordered a full body nuclear medicine test 6 months ago and now he has ordered a liver ultrasound which I'm getting on the 30th of Oct. I really do not want my liver to get damaged from seizure medication. I still to this day have no idea what caused the seizures as they cannot tell me. But I find it very odd to suddenly suffer from seizures for the first time in my life at age 64. Luckily, my seizures are being controlled with medication at this point, but I still wonder what caused them. I've been told I have to take seizure meds the rest of my life which I've accepted but it still is very puzzling. Should I get a second opinion? I really don't want to have more seizures and risk my ability to drive a car again for 6 months (six months seizure free is the law here), but at the same time my liver enzymes remain high and that concerns me. I did get the first 2 Covid Vaccines and I also wonder if there could be a connection cause wise to the vaccines. I also wonder about maybe I suffered from a mini-stroke or a mini-blood clot. MRI was normal, CT was normal, but EEG showed seizure activity in August 2023. Thank you.

[@DrOmarDanoun]

Thank you for sharing your experience. Luckily we have much safer medications on the liver than Dilantin. Please discuss with your neurologist or get a second opinion from an epilepsy specialist

[@g-noraturab3052]

Hello Dr. Danoun thanks for all videos you post it. As patient I could understand the point. Regular patient but get it 🙂. Regards Dr.

[@DrOmarDanoun]

So glad to hear that

[@elainebarnard6823]

I see an epilepsy specialist. He is fantastic

[@Sydopath]

Did he cure you?

[@dkadwoa4114]

Where are they located, please and thank you very much...??

[@SeizetheAuraRosaliesRareHe-p1d]

Who’s the best Neuro for focal seizures in AZ? I’ve already had EMU study for seven nights @ Barrow

[@ChristinaLin73]

You are amazing!

[@DrOmarDanoun]

You too!! Thank you

[@tannermcgee3959]

The only concern with increasing the dose is side effects increase to becoming severe. I understand the meds are important for seizures but neurologists need to consider the severity of the side effects. We give our son a lower dose of Vimpat and Zonisamide and bridge a very low dose of Ativan when needed. Also he gets medical marijuana CBD/RSO and is on the keto diet. This is the dam we built for him to try to reduce the seizures. Our neurologist agrees. High dosing of medication can be mostly counter productive as opposed to productive. Try a lower dose with other added factors like mmj and the ketogenic diet. Unfortunately some of the side effects from seizure meds can be horrific and this is where most neurologists miss the mark.

[@CountDownRecords210]

I agree ! these “Doctors” “ recommend” Higher doses cause they get paid Higher amounts. They honestly could care less about patients. Seizure meds have literally ruined my life. They just prescribe meds without even seeing you. No EEG! No nothing . They just write scripts. It’s very disappointing what they have amounted to. All that school just to use the hand and wrist to write prescriptions. SMH horrible !

[@DrOmarDanoun]

Thank you for sharing your experience. That is why choosing the right medicine is important to be able to go up without side effects

[@sherilynangel6498]

Hi Dr. Danoun...Thankyou for your amazing, quick tip vodeos that have given me more insight in a few minutes than any Neurologists in 4 decades 🙏🏻 I have tried every medication for Generalised Tonic Clonics and have many side effects, sometimes paradoxical, to ALL of them. Some of us are too sensitive to take high doses ~ I have only ever been able to take 1/4 the dose of any meds, even panadol. Options? 💕

[@tannermcgee3959]

@@sherilynangel6498 our son has a paradoxical effect with most seizure meds as well. Try Organic Ketogenic Diet and CBD/RSO mmj with low dose meds.

[@soccerchick1]

100% medication side effects ruined my life.

[@chadmartin5212]

Drug Resistant Epilepsy is where I am. RNS-320 because: 1. Temporal Lobes 96% L / 4% R that no medication was able to stop... and 2. my memories, both short and long term are disappearing at an exponential rate. So, in my hope of retaining as much of my ability to remember as possible, for as long as possible, I decided to use the Neuropace option. ( Cause of my Epilepsy was a TBI in 1996. Permanently Disabled )

[@Dr.fawaz_alshemeri]

حيا الله دكتور عمر

[@t.m.hajasahib-6255]

Thanks

[@DrOmarDanoun]

You are Welcome!.. Thank you

[@suzanneporter7907]

My seizures reduced after brain surgery and then I found out I was having seasonal seizures which means I would have more seizures in the fall and winter compared to the spring and summer and this is all do to the lack of serotonin in the fall and winter. I started cold water therapy where I have to put a cold washcloth on my face and the back of my neck 3 times a day and anytime I start to feel a absence or complex partial seizure start and when I do the cold water stops the seizures. I am drug resistant and my case is so different that both my neurosurgeon and Epileptologist asked my permission to share it with other Drs. at medical meetings and I said yes.

[@n.n9035]

Did they tell you it would stop after surgery though?

[@suzanneporter7907]

@@n.n9035 I was told that the surgery would only reduce my seizures 50-60% and it was well worth it.

[@LifeIsWonderful675]

They are the type of seizures I started with which come around the same time every 1 - 2 months & have approx 24yr. They have become Drop seizures & started at 2 a year & are now 24yr after taking medication.

[@suzanneporter7907]

@@n.n9035 No, I was told that the surgery would only reduce my seizures and it was worth it I went from 300 seizures a yr. to at the most 120 seizures a yr. but they are less severe and don't last as long.

[@suzanneporter7907]

@@LifeIsWonderful675 I started out with just the absence sz. but as time went by the complex partial started up also because I had so many absence sz. it caused more brain damage. Try the cold water therapy as I mentioned and see if that helps you. Also ask your Dr. to do a DNA test on you by doing that it will show what is the best seizure med for you or it will show if you are drug resistant like me.

[@heatherstratta3266]

Goto a monitor unit

[@firdouskhan2442]

Sir can I know how to get an online consultation

[@michellemackimm9912]

Hello, My daughter has been having seizures for approximately 3 years, and she has an abnormal EEG. She has very restless and disturbied nights and finds she struggles to go to sleep at night. When she sleeps she has strange movements that seem repetitive in behaviour and these often either wake her up or disturb her and makes her move position. Her EEG suggested that there was 20 minutes of epileptiform activity. Whilst we know that she suffers from Non epileptic attacks and the EEG acknowledged this in the findings, it was also reported that a moderate to large amount of interictal epileptiform activity was seen which was suggested as generalised or bilateral with variable preponderance in different regions predominantly in the sleep state without any apparent clinical accompaniments (just to note:- this was an ambulatory EEG which was not accompanied by video footage). The EEG stated that these findings are supportive of epileptic seizures, probably generalised. My daughter still suffers and the doctors are still struggling to make links to a diagnosis. Whilst she was in hospital last year, she had a non epileptic seizure that was observed by medical staff, however, during the night, it was recorded on her EEG that she suffered 20 mins of epileptic activity, and the following day my daughter could not walk, on left leg for 21 hours and 14 hours on the right. The reflexes were weak mainly on the left foot. And they did not link any after affects. In fact she has been left without treatment. She has only had anxiety therapy, family therapy and just recently has had a decline in mental health and is now awaiting Dialectical behaviour therapy. Her condition has not improved and when she experiences a seizure during the night it affects her the day after. She feels tired, disoriented and cannot walk. And nothing has been diagnosed. Please can you help provide some advice as this has started to impact my daughters mental health now. 🙏

[@DrOmarDanoun]

Thank you for sharing your experience. Unfortunately I can't provide medical advice without evaluating the patient but I do recommend you to follow up with an Epilepsy center for full evaluation

[@anamariafernandezpabon822]

Thanks, excellent info! You said that there is a class of Epilepsy that can not be treated with meds and Drs use other methods like: operation, Keto diet, etc... ↪I want to know if Generalize Epilepsy (in adults) can be treated ONLY with a Keto Diet and NO MEDS??? Thanks!!!

[@DrOmarDanoun]

That type is drug resistant epilepsy and we ADD surgical treatments not replace the medicine. Full details for you in the video on generalized epilepsy and drug resistant epilepsy

[@anamariafernandezpabon822]

@@DrOmarDanoun Thanks!!! But it is possible for an adult with Generalize Epilepsy be treated only with Keto Diet???? (My question is because I heard that children can be treated only with Keto Diet) Thanks!

[@phil4818]

@@anamariafernandezpabon822 why dont you simply try it?

[@kyliejacobs6817]

I would love to hear more about Catamenial Type Epilepsy , I have been doing ketogenic and exercising daily , this big change in lifestyle has helped keep my seizures under control , however I’m worried about menopause coming on , when I was pregnant breast feeding and on contraception I would be aura free and seizure free. But coming off the contraception if I didn’t get the next injection on time I would have a convulsion . Do I need to balance my hormones and if so how do I do this ? From Australia 🇦🇺

[@DrOmarDanoun]

Yes I made a whole video on Catamenial epilepsy and included all the treatments

[@LifeIsWonderful675]

Im in Australia too & my seizures come around the time my hormones once changed. I am now 63 & have had seizures for 20yrs after a DV head injury. The meds took the seizures from 2yr - 3-6 monthly which went from Absence Seizures to Drop seizures

[@playback_iltaf]

Brother can you give me details about where day went in india cause i am from india aswell and need info about good epilepsy centre

[@Miss.Prabhu]

Hy in Karnataka' Hubli their is a doctor called Dr. Datta Nadgir You can visit him. He is really good.. But do take appoinment before going as he is busy always. Get well soon

[@sarathk1706]

🇮🇳 Dr. 5:15 , I’ve had epilepsy since 2012, with three episodes in total, and none in the past three years. Currently, I’m on a high dosage of medications: Zonegran, Oxetol, Lacoset, and Levigress. (Other doctors mentioned this dosage may impact organ health. Go for surgery) my doctor tells surgery is not advisable as I'm not getting complete epilepsy... I sometimes experience brief déjà vu or seizure-like symptoms (smiling, hand movements, gazing), often triggered by extreme anger, loud sounds, exhaustion, or emotional stress or Lack of sleep. My doctor said these episodes are likely medication side effects rather than epilepsy itself. Could you advise on managing these symptoms and my medication levels?

[@sarathk1706]

(2005-2012 - went to Govt hospital, no proper data) (2012-present - getting treatment) (2n opinion - other 2 doctors told must decrease Medicine level & go for surgery ASAP) 👇 My family doctor told No need for surgery. What's ur opinion sir...? Based on the MRI reports, this is the summary of the findings: 1. Mesial Temporal Sclerosis - Scarring in the temporal lobe, commonly associated with epilepsy. 2. Atrophy - Mild shrinking of certain brain regions, which might be related to long-term epilepsy. 3. Gliosis - Presence of scar tissue in the brain, often due to past injury or seizure activity. 4. Increased Signal in Hippocampus - Indicates abnormal activity or potential damage in the hippocampus, which is linked to memory and emotional regulation. These findings are commonly observed in patients with epilepsy and are likely related to your past episodes.

[@gehanosama88]

I miss my doses because I feel scared of the side effects of the medications or long term effects. How do I overcome this resistance ??

[@sumsum5719]

Plz expalin focal seizures disordermy babygirl is 2 yrs old

[@HiraNuru]

Pls dr am from ethiopia how can i find you ? my brother is a victem of tonic chronic seizure we could not control anything pls dr help me

[@DeirdreLennon-vk5hc]

Dr Danoun I have had seizures ever since I was 17 years old. I think it's been catamenial seizures. Because they started when my menstrual period started. I have tried every thing every type of seizures meds. Dilation, Tegretal, vimpact, Lamictal, vns nothing has helped. I just started taking xcpristart and it's helped me feel alot better. Do you think that will help for catamenial seizures?

[@Ashley-cw3yi]

Dr. Omar, may I ask for your opinion on Bilateral Polymicrogyria (the condition I have). Would there be any advice you'd give to someone with this?

[@DrOmarDanoun]

Yes..most cases can be drug resistant and some cases might benefit from surgical treatments like neurostimulation..explanation is in the drug resistant epilepsy video

[@Ashley-cw3yi]

@DrOmarDanoun Thank you. Your response is much appreciated!

[@FarzTurk]

My son is now 11. He has been epileptic since he was 3. On Keppra twicea day. Now it has changed to PNES seizures non epileptic seizures same symptoms , nosebleeds everyday with headaches front of his head, now lasting 2 hours. How can I help him?

[@lesleydonnelly1463]

I'm on the 11th medication in the last 7 years... Surgical treatment is not possible here and we continue to struggle finding a compatible medication.

[@DrOmarDanoun]

I am so sorry to hear that

[@lesleydonnelly1463]

@@DrOmarDanoun Currently on Fycompa for the last month with Phenytoin and just hope things improve. Thank you for your great videos.

[@itz-haruki1405]

My daughter has been having seizures for months and the doctor keeps saying she's not having seizures but I have video evidence and her sister and Aunt both have epilepsy so I know what seizures look like and she was just hospitalized and put in ICU because they don't know what's wrong with her this is the third time she's been in ICU in two months she has seizures almost every day she might go two nights a week without having seizures she even has them in her sleep

[@DrOmarDanoun]

I am so sorry to hear that. The way to be sure is to do long term video eeg and record the seizures

[@stellaancimer8505]

With fnd, seizures can happend after every small Activity, lamicta can make rushes😊l

[@Robz-z3u]

I have been with seizures since 2019, i came to prove that they r seizures in 2023, i was taken to the hospital & did E.EG results were normal, i started levetiracetam, no change seizures continued. July i have taken to the hospital and did E.EG again& still the results are normal, the doctor added me tegretol 400mg, i take levetiracetam and tegretol 400mg altogether but since july, e seizures r worsening no change and yet am on medication. So when i watched this video, i have thought that may b my body is drug resistant, so am here thinking many things but for sure seizures have put my life at a risk.

[@DrOmarDanoun]

Yes best way to approach when the seizures do not respond is to visit an Epilepsy center and do epilepsy monitoring unit video EEG evaluation

[@LifeIsWonderful675]

Seizure meds made my seizures worse

[@kf8575]

4. Low doses of meds? 50mg Lamotrigine twice daily is one of the meds that im on. Alongside (2x daily) 1500mg Keppra, 200mg Lacosamide. Have recently added one dose of 200mg Cenobamate every evening for around 4 months now. Was working, having no seizures great. Then last week, 3 seizures Thursday evening, 1 on Friday then 2 on Saturday. Am having tests atm at National Hospital Neurology and Neurosurgery in London UK. Lots of tests including 7day telemetry, PET scan, FMRI, SPECT scan. Am waiting to go into hospital for an invasive EEG too. The Neurologists there have narrowed down that my epilepsy 110% is left TLE. Wanting to carry out either "Anterior Temporal Lobe Resection" or "Amygdala-Hippocampectomy" dependant on the results of the next EEG as final confirmation that the anterior temp lobe is the offending part. Personally?? Am petrified. Even as a 38yr old man.

[@StormyCoop]

My daughter has severe cerebral palsy. She’s was recently diagnosed by a neurologist with Lennox Gastaunt Syndrome . She is 35 and on 3 seizure medication. They told me she is maxed out on the medication there is nothing more they can do for her. This will probably lead to her demise. When she was 4 1/2 months old she had a brain scan they said she had brain calcifications/scars all over her brain. Supposedly they think I was exposed to CMV virus when I was pregnant with her. CMV being the probable cause of her cerebral palsy. Do you have any thoughts on this?

[@StormyCoop]

The good thing is I believe in God. I know one day when my daughter is in heaven she will get her new body. She will have no more pain no more sorrow.

[@zipporahwangechi]

Hey doc my son since he was 3year he has been having simple fable seizure I took him to the doctor was told to go for EEG which turn to be normal he was given phenobarbital after like 3years of taking them I was told to withdraw since he didn't had an attack for a year. Now what is worrying me he has been having them whenever he has an infection he is know turning 8 years kindly help the way forward please and something he get them at sleep. And In my family there is no history of epilepsy.

[@luzrodriguez52]

Dr. Omar how do I schedule appt

[@DrOmarDanoun]

Details are under the video and first comment. Basically if you are outside the USA then book your online appointment right away on the link appointment.dromardanoun.com If you are inside the USA then call the clinic and get your appointment

[@DShop-s7i]

Sir my son don't hold his neck at 4 month age , also very less eye contact , very flexible body, 37 cm head circumference at 3 mnth, now is 7 kg but at birth time 2.8 kg , is this brain aptropy

[@t.m.hajasahib-6255]

Sir, My daughter is having seizures from age three, now eighteen. Seizure focus on left and with seizure activity on right also. Video eeg reported seizure activity mainly from left. Is it advisable to have surgery or to be managed with medicines and neurostimulation? Thanks.

[@DrOmarDanoun]

Surgery decision is highly individualized after doing all the required testing and evaluation of the epilepsy then if seizures were coming from one spot and is safe to take out then surgery might be done. Full details in the video on drug resistant epilepsy and Epilepsy surgery

[@anneakhigbe6543]

Good evening dr may God bless you for all you do for us please my daughter was not born with seizures it started 2 year ago she still on medication but last week missed one dose of her drugs for one today it's has not been easy for her and us i think she having aura not shaking the aura will last for 1 seconds her doctor increased her levitiracetam to 750 in the morning and tegretol to 400 in morning why 750 in the night and tegretol 600 in the evening the problem now is that she will wake up in the middle of the night screaming that she's hearing voices in her head please help me i don't know what to do again

[@DrOmarDanoun]

I recommend to follow up with your neurologist so you get the optimal treatment.. You can review the videos on the epilepsy trr for full information and discuss with your neurologist

[@TruDis01]

God _did_ this

[@SriramulaPrashanth]

Sir i am from india hyderabad my mother have ,,tonic clonic epilepsy , doctor give gabapentain 300 mg ,and clobazom 10 mg medicines, we using from last 1 month ,present epilepsy is under control so we go with 2 medicines for long time or 1 medicine is ok please reply sir

[@abshashax7244]

Is dejavu a seizure or sign of a seizure plis

[@DrOmarDanoun]

Can be.. Please review the video on types of Seizures

[@kizomm6170]

Ive been having seizures for over a year now which ive been told are non epileptoc. I did have a breif eeg but nothing further when seizures worsened to convulsive. I take 600mg gabapetin a day and seizures have reduced but not compeltely stopped. Cant help but feel like once my neurolgist knew i had ptsd and anxiety it was all immediately dismissed as psychogenic. No idea how to push for actual solid answers instead of a vague theory.

[@DrOmarDanoun]

I recommend you to review the PNES series it has all the information

[@angiepanagiotou]

My son forgot to take his seizure medication today he was 4 hours late to take it today will that effect him

[@DrOmarDanoun]

Hopefully nothing happens but keep on it as we recommend in the video

[@apanilpanda]

Hello sir I am from India I am one epilepsy patient I had a seizure in 2012 last time bz of brain classification now I am taking sodium valproate 500mg twice a day sometimes I feeling negative thoughts how can cure for this Brain Classified granuloma is dangerous?

[@anneakhigbe6543]

My seizures comes once she wants to see her monthly flow what can i do before the day

[@DrOmarDanoun]

Depending on the case.. Please discuss with your neurologist

[@puntts2]

Dr my son 13 yearz old he has 1 partial sezoure in march emd amd then in 21September a light jerky movements in her armz but 23 October he has jerky movements and then a fit start what is dis kindly dr tel me i am very upset 😢😢😢

[@DrOmarDanoun]

I am sorry I cannot tell without evaluating the patient

[@rajanpillai2651]

Dear doctor i have nightmare during sleep time. From 15 years old. But not recognized till 40 years. After met doctor prescribed levipil 250 two times. But not effected me. Now i am 64 years old. I am using same tab till now. But not effective. What i have to do?

[@DrOmarDanoun]

I am sorry I cannot provide medical advice without evaluating the patient. Please discuss with your sleep doctor

[@anaspirant5979]

Sir I am from India...my daughter 19 months old recently she has been diagnosed with Generalized Epileptic form seizures...and here we don't have much qualified doctor about epilepsy....my daughter may have absence seizure as far I have seen her ...sir my doc gave levipil sir will it help to get seizure free and treat epilepsy completely.... Sir plz do reply Will be grateful forever ♾️ Thank you From India ❤🇮🇳

[@DrOmarDanoun]

Glad to hear that the seizures stopped... Yes possible. But I can't tell without evaluating the patient and knowing the case completely

[@anaspirant5979]

@@DrOmarDanoun no sir seizure didn't stopped ....it's been 2 days she is having this medicine but after that also she had absence seizure she is very small sir...sir how much time it will take the medicine to work in the system ???

[@soccerchick1]

Can cigarettes/smoking regularly trigger seizures?

[@DrOmarDanoun]

Yes

[@soccerchick1]

@@DrOmarDanoun even if you’re on medication and don’t miss any doses?

[@jasonreece9123]

Having a sleeping problem

[@DrOmarDanoun]

Yes can be

[@southerncatlady6680]

I suffer seizures and one of my medications I was taking initially 3 times a day kept me awake.

[@MUTUNGIPAUL-xh7fm]

Thx very much doctor but does anti seizure drugs affect man's sexual intercourse potential enlight more on that especially carbamazepine

[@DrOmarDanoun]

Yes it can

[@khy7672]

Any lifestyle ideas for Photosensitivity epilepsy outside of lights and color patterns not medical advice just lifestyle changes?😂

[@DrOmarDanoun]

Some glasses can block the blue light which might trigger seizures. Otherwise just avoid the flashing lights

[@khy7672]

@ FL-41 vs Zeiss Z1 blue lenses both seem to be a choice do you personally like one over the other just your opinion not advice thanks for all you do for our community 🕌💜