The Role of AVISE CTD in Lupus Diagnosis

[@manwithlupus]

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[@jasanders5877]

Hi Ryan. Not sure if you remember me. I hope you are DOING ok. It's been well over a year now 🤔😱 AND I'm still waiting to even see anyone 😢. Thid is interesting, for me anyway. I tested positive for CTD😮. PLUS LUPUS 😞🥺. I have consistent high CRP, since 2015🧐😩😏. And ESR, when my GP, can be bothered to do the latter..... My symptoms are much WORSE. So tired😴🥱 Have recently been told i have SH, I did some checking and there is a connect Wonder if anyone else has this Thanks for this. Keep on fighting. Stay strong.🙏

[@manwithlupus]

Good to hear from you again! Sucks that you’re you’re struggling still. I’m not feeling much better either. It’s like they keep telling me that my labs look good and then just push me off to the next appt. But the only things keeping me going are pain medication and that’s a horrible way to have to live. I just wish someone would give me something that helped. I’m so exhausted and so drained of resources. I just was at a geneticist trying to figure out my bone and bone marrow issue but no real luck there either. My disability claim was denied and we are now appealing. I’m so tired of feeling like I worked my whole life, employed hundreds of people, provided health insurance and retirement for all my employees. I served so many people and now when I’m down and sick nobody can or will help. I’ve have one old friend who has stood by me and helped and offered me some work that I can actually handle. But everyone else has mostly just moved on from me and that’s hard also. My whole life is affected, my marriage is struggling from all of this. My finances are drained. I can’t work more than a few hours a day max and even at that it’s hard and I get sick often. I feel very stuck and it is hard.

[@jasanders5877]

Ryan, WOW 😲 I don't know what to SAY 😮. Except I'm so very sorry for your situation. I'll check out your email you gave me. I am disgusted, that you were turned down for Beep Beep, ( what you're entitled to). Especially as you have clearly worked so hard. YES, it's sucks when you get TOLD your lab's are good/pretty good 😱🥵🤬..... Makes you feel, like you are back to square one 😮... I thought you might not be doing good. AS know post's for awhile. Sorry I didn't message to see how you were doing. I'm totally ALONE 😢 now 🤔 too. So I can relate. Sad 😭 😭 the whole world, seems to have become so dam selfish. I will send you a test email. It's 3.30a.m. her Wednesday 5th June. You take care, I actually mean IT 🙏 💯 J

[@jasanders5877]

@@manwithlupus sorry Ryan. I can't find your email address. I thought FROM memory, it was ryanmanwithlupus, not sure who you are with I'm with Gmail. Anyway, would love to be able to email you. If your still ok with that. I went back to some of your old posts, couldn't find the one I got... . I saw something about food etc. I haven't been able to eat for nearly a year now,😞😮😧. Was mainly all vege and fruit bit of chicken eggs. Now I have a banana and piece of bread Again waiting for the hospital, for this, with aortic dysphagia and server oral phas dysphagia . Hope you slept well. J

[@manwithlupus]

[e-mail] but I don’t check that one daily. So I’ll get it when I’m there next.