The RYR 1 Foundation Documentary

[@marmeko]

Thank you! I'm not alone

[@busraa.1538]

Sizde mi ryr1 gen hastasısınız ?

[@tr1707]

Amazing information ℹ️ Thanks for posting!

[@PaulaMaeBarshaw]

We are just learning about this and our grandson's genetics.

[@Slowmotion-qd9qb]

My daughter she got it she is 2 and half years old it's really tough situations God bless us all

[@mayrarcn]

Am just here poring tears in every single second of the video !

[@nobody__cares]

I’m 14 and watch kids my age run and jump in gym class and know I’ll never be able to do it. My knees dislocate because the surrounding muscles are so weak, and I can’t run or jump without hurting myself. I just wish I could be fast like the other kids.

[@lucieniapacite966]

Tradução ou legenda em português!!!!

[@raymondybarra672]

Now my wife and I know what my daughter has, at first we thought it was limb griddle, my daughter called me about an hour ago and told me what her doctor found out she is 26 years old now and we just found out what is really wrong with her, and it breaks my heart I guess I will find out more later when I get home.

[@yaninalamas7951]

hola podrias pone los subtitulos en español por favor..!

[@taraksherkhane1234]

My affected RyR1 CCD can share treatment

[@aliciafiligrana8898]

Hi! Could you include captions in Spanish so we can share this video with our families please?

[@marionym5969]

If you are a carrier what is recommended? Not have children? Go for ivf? I am confused.

[@theryr-1foundation458]

@marionym5969 Please contact Lindsay Goldberg, Executive Director & Patient Liaison, at [e-mail]

[@leslietojes5620]

Por favor en espanol

[@kellystrijdhoven1668]

My baby is 5 months old has this and we to nu husband and me