The Silvers Story Living with EB | Venture into Cures

  Рет қаралды 2,862

EB Research Partnership

EB Research Partnership

3 жыл бұрын

Our Co-founders Jamie and Alex Silver talk about what it was like to learn their son, Jackson, was born with Epidermolysis Bullosa (EB).
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Venture into Cures was a live virtual event that aired on November 18th at 8PM EST all to benefit EB Research Partnership’s mission to cure Epidermolysis Bullosa (EB). Donations to #HealEB can be made at ventureintocures.org/donate or by texting HEALEB to 41411.
Led by EBRP Co-Founders Jill and Eddie Vedder, Venture Into Cures featured uplifting stories of individuals with EB and their families along with appearances and performances by celebrity friends. The show included memorable and moving moments, including the premiere of new songs by Eddie Vedder inspired by EB families: the debut of “Matter of Time” and a new version of “Say Hi”.
Venture Into Cures featured:
JUDD APATOW | JON BATISTE | ALESSIA CARA | BRADLEY COOPER | ANDRA DAY | LAURA DERN | BILLIE EILISH | GLEN HANSARD | CHRIS HEMSWORTH | JIMMY KIMMEL | DAVID LETTERMAN | ADAM LEVINE | GATEN MATARAZZO | KEB' MO' | LUKAS NELSON & POTR WITH MICAH AND WILLIE NELSON | LUIS "KING KONG" ORTIZ | ADAM SANDLER | RENÉE ZELLWEGER

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Great vdieo good advice will help many people achieve their goals
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