The Tenacity of Hope - A Documentary Film

The Tenacity of Hope is a documentary film by Cure CMD, in partnership with Living in the Light, to showcase members of the congenital muscular dystrophy community and their diverse journeys and perspectives.
Originally created for our 2022 Patient-Focused Drug Development meeting with the FDA, we encourage you to share this film with family, friends, and colleagues, so that they may gain a better understanding of what it means to live with congenital muscular dystrophy. curecmd.org/15 #TheTenacityOfHope #TenacityOfHope #CureCMD

[@richc984]

Very well done, thanks for pulling this together.

[@CureCMD]

Thanks for watching, so glad you enjoyed it!

[@stephaniechicas6359]

I loved hearing the stories the patients themselves and families. I too have SELENON, as well as my little brother. I appreciated seeing the perspectives from the adults affected. I am filled with hope and comfort after watching this. Thank you all for sharing your stories and showing us what living your best life is.

[@CureCMD]

Appreciate you watching, so happy you feel connected with those featured. Thanks for your continued support!

[@loeffling]

What an amazing video and an amazing group of people! So impressed with the Cure CMD Community and Rachel Alvarez’s leadership. Way to go!

[@CureCMD]

Thanks so much for watching & for your kind words! Appreciate your support!

[@prslatinag8891]

This was great! So well written and documented. You mentioned 5 subtypes why wasn’t LMNA followed and talked about? My daughter who is 2 has LMNA, it’s a little disheartening that her subtype was not mentioned or followed 😢but every other was talked about.

[@CureCMD]

We did our best to include families from all five subtypes, but were unable to identify an available family within our short time frame and two recording regions. As this film was initially created for our Externally-Led Patient Focused Drug Development Meeting with the FDA in July 2022, we also included a separate film specifically about a family living with LMNA-CMD, which you can view here: kzbin.info/www/bejne/pX3ckoVtn5arg6c