I have all that and just got diagnosed for Alpha Gal 🎉 Had MCAS my entire life and now an allergist is challenging that diagnosis. As a patient I know I have all 3 and didn't notice the progression of Alpha because the symptoms are allergies and joint pain. I just thought I was progressing. It deserves honorable mention and doctors who can rule that out.
@bendybodiespodcastАй бұрын
Thank you for your comment and I will add alpha gal to the list of things to mention soon!
@b_uppyАй бұрын
What about latex-based food allergies?
@bendybodiespodcastАй бұрын
Yes, latex-fruit syndrome is serious and anyone with latex related food allergies should be under the care of a knowledgeable physician!
@b_uppyАй бұрын
@bendybodiespodcast Had mouth-bleeding from a food and the allergist's nurses who administered allergen shots had zero clue as to why. Should have brought it up with the allergist...
@bendybodiespodcastАй бұрын
Yikes! I am so sorry to hear this. Any concerns should definitely be brought up with your care team.
@b_uppyАй бұрын
@bendybodiespodcast Thank you. Took me a long while to figure it out. Here it's an uphill battle and living on and island compounds it.
@bendybodiespodcastАй бұрын
That would be challenging!
@felicityporter8375Ай бұрын
If most mcas food triggers/allergies are not ige mediated, does that mean they won't cause anaphylaxis or love threatening symptoms? That's what scares me about testing foods.
@bendybodiespodcastАй бұрын
Thank you for your question. Unfortunately, anaphylaxis CAN occur without IgE activation.
@felicityporter8375Ай бұрын
So how do we manage trialing foods and discovering our food triggers? Will all mcas patients experience anaphylaxis?
@bendybodiespodcastАй бұрын
Not all MCAS patients experience anaphylaxis. The question of trialing foods has come up a number of times so I will cover that in a future episode.
@felicityporter8375Ай бұрын
I'm already dying to listen to it!
@bendybodiespodcastАй бұрын
@@felicityporter8375 I hope you will find it helpful!