The Veldink Family Talks About Ataxia-Telangiectasia

(2006) David and Mary Veldink discuss their journey through A-T.

[@chriscross2001]

We just lost our daughter to a terrible hereditary ataxic disease. We really weren't prepared for her loss even though we knew that she was fighting this. God bless this family - all we can do is make the most of ever second.

[@coagulatedsalts4711]

i hope you and your family are doing well, i lost my brother to Lymphoma brought on by AT back in 2006 so i feel where you are coming from and i agree with you. i was 4 when my brother died but we have home videos of him that we keep to help us remember the good times.

[@chriscross2001]

Ahmed Warraich you just never get over the loss

[@darrenorchyk242]

I have A-T and am currently blessed to be 49 years old! Not an easy condition to cope with! Been through numerous treatments throughout the years, nothing has been remotely helpful, except to trust the Lord has a great plan in all of this!

[@mannyduran6107]

Hey idk if you’re still on KZbin but I had a few questions being that there’s not a lot resources to connect with people who are older and lived with AT. I hope to hear from you. God bless

[@darrenorchyk242]

@@mannyduran6107 hello there, a Manny! Happy to meet you! I hope this is soon enough for you to hear from me!

[@mannyduran6107]

@@darrenorchyk242 wow you never know if people from a video of 4 years ago are still around you know. I’m glad to hear from you. I’ve been trying to do research/ resources of people who have been living with AT into their later years because everyone you see or hear of are kids. My son just turned 4 today and has been diagnosed with AT when he was about 18months and I’ve been struggling and not knowing will life be a struggle for him or even us knowing the things he loves and can do now he’ll never be able again. I’m sorry I’m rambling.

[@darrenorchyk242]

No worries about the rambling, just ask me your questions and I’ll try to answer the best that I can. 😊

[@mannyduran6107]

@@darrenorchyk242 ok how was school? Let’s start with that. Our fear is school not being patient and being accessible for him to take advantage of his opportunities. He’s really smart but we understand there will be many challenges when it comes to writing and reading.

[@lucyflitney156]

God bless this beautiful family xxx

[@brendaseager7371]

God bless your family and the love you all share.

[@trixietrog]

Beautiful family 💘

[@urmilchoudhary9374]

My son is 6 years old, has AT and Autism!

[@fungusamongus4830]

The moms nystagmus esp around time 5:40 is something that I can't stop looking at