The Woman Who’s Allergic To Daylight | BORN DIFFERENT

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truly

truly

6 жыл бұрын

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A young woman’s skin blisters and burns if she is exposed to only a few minutes of daylight. Lizzie Tenney suffers from the rare, and extreme, skin disorder Xeroderma Pigmentosum. With there only being around 300 diagnosed cases in the United States - it makes Lizzie one in a million. Xeroderma Pigmentosum commonly known as XP, is a rare degenerative disease, causing the skin to be unable to repair its own DNA once exposed - and damaged by - the sunlight’s harmful ultraviolet (or UV) rays, even resulting in skin cancer, neurological problems and developmental delays. In Lizzie’s case she has had skin cancer surgery 43 times. The 22-year-old, from Highland, Utah, has to use a specially-designed metre that measures the level of UV rays and tells her when it is safe to go outside.
Video Credits:
Videographer / director: Sohrab Mirmont
Producer: Camile Rocha-Keys, Ruby Coote
Editor: Josh Halil
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Пікірлер: 1 200
@annettephillips9894
@annettephillips9894 6 жыл бұрын
This series has shown me how I literally take many simple things for granted in life. Sorry, you have had to endure this pain. Strong girl.....
@freakydeaky3743
@freakydeaky3743 5 жыл бұрын
Annette Johnson “bee kweeper” lol
@Jobe-13
@Jobe-13 5 жыл бұрын
Ikr
@sabrielz4584
@sabrielz4584 5 жыл бұрын
Why dose she where black
@billieeilish3637
@billieeilish3637 5 жыл бұрын
**woman**
@lawandaherminstyne9646
@lawandaherminstyne9646 5 жыл бұрын
Annette Johnson yes
@cookiecatcomments1478
@cookiecatcomments1478 6 жыл бұрын
How ironic - she's allergic to sunlight, and yet she has such a bright personality! You go gurl! Such an inspiration ❤️👍
@manana_buffins
@manana_buffins 4 жыл бұрын
@Mackenzie Bergam It's just sassy speech/what you say when you wanna look cool
@moon-xf1il
@moon-xf1il 3 жыл бұрын
she wear Sun screen lotion and cover herself from sunlight so she has bright skin, even my skin is allergic to sunlight I hate covering all time wen moving out of my house
@bertbrezel8605
@bertbrezel8605 3 жыл бұрын
Maybe the sun itself is so jeleaus of her brighntess
@kathrynneves6212
@kathrynneves6212 6 жыл бұрын
I had the pleasure of being in a play with Lizzie. She is honestly the kindest, most positive, funniest person in the world! She is so much fun to be around! Honestly she is an inspiration to me!
@iheartcryptoverse2857
@iheartcryptoverse2857 6 жыл бұрын
She seems really lovely. Thank you for your post.
@RMoocher
@RMoocher 5 жыл бұрын
We can tell she's nice. Thanks for info. Hope one day she finds a loving fella. Beautiful woman.
@pingaspingas2335
@pingaspingas2335 5 жыл бұрын
proof
@crystalcarter9297
@crystalcarter9297 5 жыл бұрын
Pingas Pingas stop it! Every One is not out to lie 😔😒
@brookemarie8109
@brookemarie8109 5 жыл бұрын
Got proof?
@lauraarcetobon909
@lauraarcetobon909 6 жыл бұрын
I’m also allergic to daylight, but my condition isn’t as bad or advanced as her!! I’m sun allergic, I have solar urticaria. God bless her, she’s an angel.
@sebg6865
@sebg6865 6 жыл бұрын
Jk
@sebg6865
@sebg6865 6 жыл бұрын
😉😉😏
@destinaro.
@destinaro. 6 жыл бұрын
I have the same condition! The sun makes me break out in horrible hives.
@jetziiophelia9757
@jetziiophelia9757 6 жыл бұрын
Laura Arce Tobón Then you must be an angel too.=) MuchLovee Beautiful. ♡
@gogo7904
@gogo7904 6 жыл бұрын
Laura Arce Tobón I have the opposite to u I have cold urticaria same symptoms however mine is to cold and rain weathers so it’s very unfortunate I live in the UK
@PinkDiam0nd
@PinkDiam0nd 6 жыл бұрын
I bet she’s sweating bullets in the summer. Poor girl!
@arianaflournoy1817
@arianaflournoy1817 6 жыл бұрын
Pink Diamond There is air condition
@darkladysoto2481
@darkladysoto2481 6 жыл бұрын
Pink diamond outside?
@alidaisincrediblytired1553
@alidaisincrediblytired1553 6 жыл бұрын
Yeah! Then again, it's either sweat or potentially die from the skin cancer :/
@CircaInfinity
@CircaInfinity 6 жыл бұрын
At the very least she lives in Utah where it’s bone dry and not hot soupy air
@dollsNcats
@dollsNcats 5 жыл бұрын
circa infinity it’s super hot here she’s like 25 min away from me and yes it’s dry but sooooo warm :-/
@bmcRN
@bmcRN 6 жыл бұрын
3:13 "It wasn't 'til Lizzie was 12 that a local doctor shed light on her condition" Heh. Shed light. Haha
@TheYoli182
@TheYoli182 6 жыл бұрын
bmc no pun intended lol!!!😂😂😂
@aprilsteele9489
@aprilsteele9489 6 жыл бұрын
I thought that too. It HAD to be on purpose
@bmcRN
@bmcRN 6 жыл бұрын
galactic jay its not irony at all, it's just a funny coincidence, or purposeful joke
@skinhead-ej8ff
@skinhead-ej8ff 6 жыл бұрын
bmc was about to do that.
@sabmeister001
@sabmeister001 6 жыл бұрын
bmc it was obviously intended. They often add a pun on the videos in this channel
@Av4nQuisH
@Av4nQuisH 6 жыл бұрын
watching barcroft always reminds me of how blessed i am 😭
@unexpectedvixen5685
@unexpectedvixen5685 5 жыл бұрын
Very true
@elleelle2072
@elleelle2072 5 жыл бұрын
Well said!
@Lott0Jay
@Lott0Jay 5 жыл бұрын
Me 2
@watcherfreak2
@watcherfreak2 6 жыл бұрын
Poor girl. :( I can't believe this condition exist. She is a strong soul. ♥
@dawanestewart2438
@dawanestewart2438 6 жыл бұрын
Want to know one of the worse thing ? Being allergic to air or water
@watcherfreak2
@watcherfreak2 6 жыл бұрын
What would be worst?
@dawanestewart2438
@dawanestewart2438 6 жыл бұрын
watcherfreak2 it's at the end of my sentence...
@watcherfreak2
@watcherfreak2 6 жыл бұрын
Ohh....You have that allergies?
@dawanestewart2438
@dawanestewart2438 6 жыл бұрын
watcherfreak2 nope it's just way harder to avoid getting wet than being in the sun and the people allergic to air usually die
@silviamills5218
@silviamills5218 5 жыл бұрын
She has to live with this horrible condition yet she still manages to be so cheerful! It's amazing!
@lawlzd00domg
@lawlzd00domg 6 жыл бұрын
Watching these videos really puts things in perspective. They make me realise how lucky I am and how often I take things in life for granted. I feel so bad for her. I couldn't even imagine.
@isaiahdebuck4097
@isaiahdebuck4097 4 жыл бұрын
I imagine this is what being a vampire would be like
@bewbsweat
@bewbsweat 6 жыл бұрын
She has such a wonderful spirit !
@beneditadaniel9317
@beneditadaniel9317 6 жыл бұрын
Thank God! She's really strong.
@jsmit9484
@jsmit9484 6 жыл бұрын
People really gotta stop thanking "God" for giving people diseases...
@hellobot67
@hellobot67 6 жыл бұрын
I bet you wouldn't say that about people with mental illnesses
@beneditadaniel9317
@beneditadaniel9317 6 жыл бұрын
Maxine McFarlane I would
@Amatersuful
@Amatersuful 6 жыл бұрын
would u say thank god if u were in her condition?
@hellobot67
@hellobot67 6 жыл бұрын
Daniela Mendes that really sucks cause I hate my depression and anxiety and suicidal thoughts. But thank God I'm strong enough to live.
@saintclement6776
@saintclement6776 5 жыл бұрын
Went to school with her for two years, one of the greatest friends I’ve ever had. She is such a ray of sunshine on my life.
@krystallvinter7438
@krystallvinter7438 3 жыл бұрын
I think she should consider becoming nocturnal. I've heard about other people with skin conditions that makes their skin super sensitive to the sun's rays, and they live their daily lives during the night instead of the day. That way they can go outside and enjoy nature without being covered up, and I believe there's even some communities that plan trips to places that are usually closed at night, for people with those conditions (museums, amusement parks, shopping malls, etc.)
@ResiClaireRedfield
@ResiClaireRedfield 6 жыл бұрын
I feel so bad for her I wanna be her friend
@kueeniesong
@kueeniesong 6 жыл бұрын
U can be my friend....hehe
@Reodor_Felgen
@Reodor_Felgen 6 жыл бұрын
I kinda understand what you mean, but being someone's friend because you feel bad for them and want to help them is wrong. Cus that means you want to be their friend just to feed your own ego.
@ephraimmartey4304
@ephraimmartey4304 6 жыл бұрын
I don't think Claire Redfield want to be Lizzie's friend for her personal benefit. She is only thinking of a way to show love and support for Lizzie. I know Lizzie and she would love you (Claire) because she is very friendly.
@faustopacheco120
@faustopacheco120 6 жыл бұрын
I wish I had friends, even out of pity.
@Wen6543
@Wen6543 6 жыл бұрын
The thing is, does she wanna be yours? Why you think that you are so special and that your friendship is like a gift from god?
@Ashley-sp8xc
@Ashley-sp8xc 5 жыл бұрын
move to Russia. in December of 2018, Moscow got only 6 minutes of sunlight.
@jennapedersen2286
@jennapedersen2286 4 жыл бұрын
It aint that easy
@brii2743
@brii2743 4 жыл бұрын
@@jennapedersen2286 as you say Master
@cre4ture101
@cre4ture101 3 жыл бұрын
Russia ain't the best option, Sweden or Alaska would be better, it's easier to move to both places.
@ididitoutofspite986
@ididitoutofspite986 3 жыл бұрын
@@cre4ture101 ur kidding right
@cre4ture101
@cre4ture101 3 жыл бұрын
@@ididitoutofspite986 Ya, sorry that was probably offensive, I shouldn't have said that...
@willnottel5598
@willnottel5598 6 жыл бұрын
Not to be that guy, but the way this was shot is just gorgeous, I can't let that go unstated.
@possumguts
@possumguts 6 жыл бұрын
you're completely right, be that guy
@danille601
@danille601 5 жыл бұрын
Thank God for my melanin, and may he continue to bless and protect this poor young woman.
@Sacra898
@Sacra898 4 жыл бұрын
how self centered can you get
@youaintblack773
@youaintblack773 4 жыл бұрын
People with melanin can get this skin disorder... 😬 it’s not color blind.
@youaintblack773
@youaintblack773 4 жыл бұрын
Shaz B I don’t think God have her the disorder. It’s just something human nature did. But still someone shouldn’t be happy they have melanin, disorders aren’t color blind.
@Huntertheprincsss
@Huntertheprincsss 4 жыл бұрын
You’re so ignorant. This disorder has nothing to do with melanin or pigmentation😂😂
@journey6498
@journey6498 3 жыл бұрын
^^
@beverlythacker4426
@beverlythacker4426 5 жыл бұрын
I have a Irish grandfather. I inherited his pale skin. I burn super super easy. The sun makes me sick. I will vomit and get a headache bad enough that I will end up on the hospital. But her outlook is beautiful
@Sunscorched
@Sunscorched 5 жыл бұрын
Yes, that's Sun Stroke. Very common in people with very pale skin.
@wombatperson5431
@wombatperson5431 3 жыл бұрын
This is wild, I just cannot fathom being allergic to something as simple as sunlight. I mean, you're allergic to literal light. It's not even a physical thing, like pollen or something.
@devinb347
@devinb347 6 жыл бұрын
Barcroft TV you are amazing
@girlypop90
@girlypop90 6 жыл бұрын
Poor baby, L’Oréal is coming out with a UV tracker small enough to fit on a finger nail. She should look into this!!!
@xxdsmp.editsxx9833
@xxdsmp.editsxx9833 3 жыл бұрын
My friend is allergic to the winter/the cold so whenever it was cold out she had to stay home or wear really warm cloths, I’m pretty sure she carried an epipen, but she’s really kind!
@vulcansailor
@vulcansailor 6 жыл бұрын
Poor girl. I suffer from seasonal depression so being in the sunlight makes me feel so much better. I can't imagine not being able to enjoy that.
@nicole_lovefashion175
@nicole_lovefashion175 5 жыл бұрын
I love how positive she is.
@yukowade4495
@yukowade4495 6 жыл бұрын
Kind of reminds me of that new movie coming out where Bella Thorne is allergic to sunlight but this is the real version not the Hollywood sugar coated one
@epresley8324
@epresley8324 5 жыл бұрын
It’s a definite reminder not to take anything for granted. She seems like a lovely person and I’m so sorry she has to live with this!
@shizzle218
@shizzle218 6 жыл бұрын
What a beautiful soul! I think everyone takes simply going outside for granted, but Lizzie has the most positive outlook. You are amazing girl
@leopoldii3736
@leopoldii3736 6 жыл бұрын
THE SUN IS A DEADLY LAZER
@Strawberrycream100
@Strawberrycream100 6 жыл бұрын
Why live in Utah and not Oregon or Washington or something?
@Amanda-ob9jx
@Amanda-ob9jx 6 жыл бұрын
Very true I live in Washington and all's it does is rain here lol!
@emmae9924
@emmae9924 6 жыл бұрын
UV everywhere
@yani4349
@yani4349 6 жыл бұрын
UV rays will still be present even if it's cloudy. Hello.
@Strawberrycream100
@Strawberrycream100 6 жыл бұрын
Ammonia I know that but it would still make more sense to me to live somewhere less sunny
@Aldrnari
@Aldrnari 6 жыл бұрын
True that. I saw those mountains and realized she lives like 15 minutes away from me. It's hardly ever cloudy in the summer here. Sun all the time.
@emilywiebel3238
@emilywiebel3238 4 жыл бұрын
When your brother said Lizzie is his daughters hero was my fav part of this whole video! I love how she stays so positive and can now help her niece with the condition.
@stephanieann8115
@stephanieann8115 3 жыл бұрын
How refreshing🤗. A Doctor that actually makes an accurate diagnosis within a reasonable amount of time. Lizzie has such a great attitude about it she is a doll🌸
@notyourb3653
@notyourb3653 6 жыл бұрын
It reminds me of the movie "Midnight Sun"
@yoru.urobin
@yoru.urobin 4 жыл бұрын
Thats why quarantine made me watch it dude😂and im looking for this comment too😂
@abii7173
@abii7173 3 жыл бұрын
Yeah mahn I won't get of the movie since I watched it on last week
@chebry
@chebry 4 жыл бұрын
This reminds me of the movie "Midnight Sun". And also she doesn't deserve this. She is such a good person and she'll just have to accept it because God have plans for her. God bless this person ❤
@AnayaCutie703
@AnayaCutie703 3 жыл бұрын
I have the Same disease unfortunately and its very very difficult to live with this kind of disease, 😔😔 please pray for me, I am getting married and i didn't tell to my husband and in laws about this condition. I am so much worried.😭😭
@mochi-yg3tv
@mochi-yg3tv 3 жыл бұрын
You should. Your future children could possibly have the same condition too.
@AnayaCutie703
@AnayaCutie703 3 жыл бұрын
@@mochi-yg3tv yes possibly. But marrying out of family. So the chances are very less.
@moved4028
@moved4028 5 жыл бұрын
she seems so happy for someone who suffers with this... i appreciate her so much because of this. you go girl.
@summersmith9748
@summersmith9748 6 жыл бұрын
Such a sweet girl probably sweeter in person I hope she gets better and hope one day she can be outside♥️
@kayleehainey3971
@kayleehainey3971 6 жыл бұрын
I feel so bad
@jo_verabradleyfan4743
@jo_verabradleyfan4743 6 жыл бұрын
I used to be extremely photosensitive for about 10 years when I had Lupus. But I am no longer symptomatic since the Lupus went into remission. I was lucky my allergy to the sun was not as bad as Lizzie's. Praying for you, Lizzie, and all other XP sufferers.
@OK-dv9gf
@OK-dv9gf 3 жыл бұрын
i feel so ungrateful after i watch these she's a strong,brave,bright lovely girl and we all will keep her in our prayers
@Sunscorched
@Sunscorched 5 жыл бұрын
Dear people in the comment section. If you're experiencing these symptoms: Hives, sunburn, rash, sore skin, nausea, dizziness, headache, thirst, and vomiting... You have Heat Stroke. Heat Stroke is *not* a milder form of XP, for crying out loud! Illnesses aren't trampolines. Stop jumping on every single one you see!
@amistake2401
@amistake2401 4 жыл бұрын
I respect this people for being strong in love and still do what they want beside there condition
@-...................-
@-...................- 3 жыл бұрын
i have photosensitivity and i have to always wear heavy sunscreens, reflective clothes, sombreros, and long sleeves every time i go out. also, im not allowed to have sun exposure for more than 30 mins esp at high noon. this film has helped me appreciate my differences. glad that shes fighting when im not.
@Kerosene.Dreams
@Kerosene.Dreams 6 жыл бұрын
This lady is very brave. I'm almost a complete shut in, hermit. I only leave my house to go to doctors appointments. This year I am trying to change that and so many other things that impede my life but I'm finding it overwhelmingly hard. This lady is inspiring.
@marissabones
@marissabones 4 жыл бұрын
Watching this video made me realise how small-minded I really am. I don't willingly spend time outside on a sunny day, because I absolutely hate being outside in the sun. I only like going outside at night or when it's a cloudy/raining. So I would constantly joke by saying that I'm allergic to the sun, whenever someone says I should spend more time outside in the sun. So I just have to apologise for my ignorance.
@nabilbayez
@nabilbayez 6 жыл бұрын
She needs to move to Alaska
@quasimoto5656
@quasimoto5656 6 жыл бұрын
Nabil Bayez you do know the sun doesn’t just disappear in Alaska
@NaturalxxValerie
@NaturalxxValerie 6 жыл бұрын
The Melon Felon It would be better for her since she wouldn’t be as hot in the cold under her protection.
@evilbunnyofhorror
@evilbunnyofhorror 6 жыл бұрын
In Alaska during certain times of the year there's daylight 24 hours...
@matthansen758
@matthansen758 6 жыл бұрын
She needs to move to the Batcave. Alfred will take care of her.
@Ghostgirl8
@Ghostgirl8 6 жыл бұрын
The Melon Felon i live in alaska and when summer rolls around it’s always 24 hours of daylight so...
@tsommers3284
@tsommers3284 6 жыл бұрын
What a genuinely sweet and beautiful young lady!! I love her positivity! I wish her a long and happy life! God bless!
@selinaogorman8380
@selinaogorman8380 5 жыл бұрын
Incredible human beings I proud of them remaining positive despite dealing with a illness or disability these people like Lizzie are such a inspirational us all.❤️❤️❤️
@dawnlynch7691
@dawnlynch7691 6 жыл бұрын
It must be really hot underneath that protection but it's life or death for her which I can understand and she's a happy-go-lucky person which is good and I'm pleased let's hope they come up for better cure for her
@jesse.m.m.6433
@jesse.m.m.6433 6 жыл бұрын
She’s so CUTE!! AHHHHHH
@grandmawithgun8915
@grandmawithgun8915 5 жыл бұрын
shes the sweetest thing ever. keep her safe at all costs!
@kristend3801
@kristend3801 6 жыл бұрын
Lizzie, we need more people on this planet like you. Your amazing spirit is contagious & beautiful! Thank you for making me smile ❤
@kharubunny1028
@kharubunny1028 6 жыл бұрын
She is so sweet .. i literally feel so sad for her but i know she is so confident 💙💜💛💚
@AstraeaFae
@AstraeaFae 6 жыл бұрын
The title is like a sequel to the video that was in everyone’s recommends a couple years ago “girl allergic to sunlight.” Weird conditions like these suck. I’m basically allergic to the cold so when I get cold I get really itchy and whether I itch or not, i get red bumps all over my body. It’s called cold urticaria and it can be really dangerous sometimes. Apparently some people can go into anaphylactic shock. Mine is really bad but that’s never happened to me before thank the gods. But it does stop me from swimming in a cold spring and being in the cold for too long because it gets embarrassing because people are like “are you alright what are those” and “are you contagious?” I have anxiety so I *really* don’t want people looking at me. I was at the beach the other day and the water was cold and I had to get out with my legs, arms and neck covered in the hive things and walk back up to my spot. Lol sorry for long story!
@JxnnahRxse
@JxnnahRxse 5 жыл бұрын
Jess Fae i also have Cold urticaria Sometimes Im scared when get the Bumps all my body but if lil bit still fine cuz they will gone by 24 hour..but i still can swimming and use air conditioner..so mine isnt that bad the Condition that we have cold urticaria bcuz we low of B11/12 Less Rice and yeah..If your scared u need to buy anti histamine or Take a anti histamine shot so it will block it so bumps free
@mahougesu170
@mahougesu170 5 жыл бұрын
What a sweet, genuine person.
@LauraBidingCitizen
@LauraBidingCitizen 6 жыл бұрын
I was diagnosed with polymorphic light eruption 3 years ago & I no longer go out in the summer because of it. The UVA & UVB rays from the sun when they hit my skin, seem to have a ‘chemical’ reaction with my skin, making it blister & burn (this also happens through car windscreens etc). I’ve been fine up until this point in my life, it could be that due to genetic chronic health conditions that I was diagnosed with it made me more susceptible. I can’t imagine going through what this young lady goes through, hers is far more frightening & debilitating but I love her attitude towards it. And the way she encourages & loves her niece is absolutely heartwarming! Much love to both of you! X
@strawberrysyrup13
@strawberrysyrup13 6 жыл бұрын
She is such a sweetie. So cute.
@sorryidontspeakbroke6712
@sorryidontspeakbroke6712 5 жыл бұрын
Omg Lizzie talks soooo cute 🐳🦋💙💟🐬🦄
@NotAnotherKuromi
@NotAnotherKuromi 5 жыл бұрын
She talks so cutely! It is great she has a positive attitude & I am glad she has an answer & is making the most of he life.
@lakshmimuralidharan8294
@lakshmimuralidharan8294 5 жыл бұрын
Bravo girl! Many blessings to you! I hope a miracle happens and you will be completely cured. Kudos to your family!
@relia2152
@relia2152 5 жыл бұрын
"A doctor shed light on her condition" I see what you did there 👍
@gargoylecat2179
@gargoylecat2179 6 жыл бұрын
"She'd light on her condition." Ughhhhhhhhhhhhhhhhh I see what you did there
@rachaelleann9847
@rachaelleann9847 4 жыл бұрын
Lizzie your an inspiration!! Makes me realize how amazingly I've been blessed w my children and family. Watching u go thru all that u shown and stay so upbeat is just amazing. I would wanna be your friend as well!
@alissalou6109
@alissalou6109 5 жыл бұрын
her hats look FABULOUS. Go girl! I think she's so cool, living her life even though having to deal with her condition.
@TeeMTeeV
@TeeMTeeV 6 жыл бұрын
theres a movie based on this.Its called "Midnight Sun" watch it i cried ;(
@justananimeweeb6696
@justananimeweeb6696 2 жыл бұрын
Same for the book
@leyahhill3446
@leyahhill3446 6 жыл бұрын
Awww hunny 😢 poor thing. Soooo soooo sad
@LycanSubscrybe
@LycanSubscrybe 6 жыл бұрын
poor girl. I'm also allergic but from a form of allodynia, and with medication can go outside without much trouble just no beach trips unless I want to be extremely sunpoisoned for a week. I could never imagine having to go thru what she has to do every day... So bless her for staying strong and positive!
@mataafa5c
@mataafa5c 5 жыл бұрын
girl you’re great! wishing you all the best
@raincoathaveli
@raincoathaveli 6 жыл бұрын
I don't mean this to sound rude, but is there anything else wrong with Lizzie?
@emileehill7797
@emileehill7797 6 жыл бұрын
I was thinking that too, I hear a definite speech impediment, but the way her mom was doing a lot of simple things for her like putting on her sunscreen and using the ray measuring device for her tells me she may have another disability. Regardless she’s super happy and positive which is amazing!
@raincoathaveli
@raincoathaveli 6 жыл бұрын
Emilee Hill I agree and thats whats most important.
@Candicedickinsonllc
@Candicedickinsonllc 6 жыл бұрын
she can’t repair double stranded DNA damage ...that’s a lot of conditions that come from that
@shirazzahran314
@shirazzahran314 6 жыл бұрын
No worries this is u . U always sayi dont want to be rude or i dont want this to look mean but u r the most disgreatful person i see commenting . U digg for the negatives and point to it gladly screw y😤😤😤😤
@slikehope4333
@slikehope4333 6 жыл бұрын
Eugenio I am a psychologist. I can assure you the overall behavior of this girl signals for other problems as well.
@proudvegan4232
@proudvegan4232 6 жыл бұрын
Aww bless her
@msk.johnson5102
@msk.johnson5102 6 жыл бұрын
I'm amazed on how happy she is now after all her problems. Wishing you the best.
@aroger2486
@aroger2486 4 жыл бұрын
She dont need sunshine. Her bright personality is enough sunshine for us all. Many blessings to you and your family.
@SeLu17
@SeLu17 5 жыл бұрын
“Oh that’s cancer” LOL
@crazyzockerz
@crazyzockerz 6 жыл бұрын
Her poor animals need much more space...
@mendmywings7238
@mendmywings7238 6 жыл бұрын
crazyzockerz exactly!
@BR-lo1pi
@BR-lo1pi 6 жыл бұрын
crazyzockerz Not even a single goldfish should even be kept in a bowl...
@crazyzockerz
@crazyzockerz 6 жыл бұрын
B R right. Poor fish...
@beaniebliss
@beaniebliss 6 жыл бұрын
Don't you worry. I know Lizzie and she takes the absolute BEST care of her animals. What is shown in this clip is not the complete depiction of their whole lives. Reality is much different than what you see in a youtube video.
@miuiruma535
@miuiruma535 5 жыл бұрын
Wdym
@badboyb2gmusic252
@badboyb2gmusic252 5 жыл бұрын
Awww this really touched my heart ♥️ I feel so bad so I want to say is that keep fighting and be strong! Have a marvelous day 😊
@bridgeta.
@bridgeta. 6 жыл бұрын
So glad Lizzie and her niece could get a diagnosis! Sorry about how limiting it must be, especially when it's hot out, but it's great that she can still be positive and happy and spread her light to other people.
@GS300Aaron
@GS300Aaron 6 жыл бұрын
I find her really pretty, especially her smile, she is gorgeous and she makes me feel happy. Seeing her happy cheers me up. I would like to be her friend.
@bryannab7566
@bryannab7566 6 жыл бұрын
It's so bizarre to see these people and think "If they were born in any other century, they wouldn't have survived."
@rubyruby147
@rubyruby147 6 жыл бұрын
she's a gifted child and thanks to her very supportive parents that made her stronger
@pennyhoffman4009
@pennyhoffman4009 5 жыл бұрын
She seems like such a joyful person.
@ayubabdi9679
@ayubabdi9679 6 жыл бұрын
Ur so sweet i will use that as an excuse to stay home all day
@puffypandassns7404
@puffypandassns7404 6 жыл бұрын
I feel sorry🧡🧡
@peace.404
@peace.404 2 жыл бұрын
Her attitude is everything!
@meadowsworld2136
@meadowsworld2136 4 жыл бұрын
i actually also saw a video on this but a young kid had it its crazy but their strength and courage makes it all better
@MIZORAM_mafaka_hnamte
@MIZORAM_mafaka_hnamte 6 жыл бұрын
_Highland, Utah_ _It's beautiful_
@ZomBeeNature
@ZomBeeNature 5 жыл бұрын
12 is VERY late to find out you have xeroderma pigmentosum!
@Sunscorched
@Sunscorched 5 жыл бұрын
Her family knew there was something wrong since infancy. The name of it didn't come until she was 12.
@smokylikeaGenie
@smokylikeaGenie 6 жыл бұрын
She seems lovely, so positive and bubbly. Bless her heart
@jetziiophelia9757
@jetziiophelia9757 6 жыл бұрын
You go girl.! You have an uhhmazzing outlook for what you've been through.♡ Stay Strong and stay Lovely. ♡
@bronyde2276
@bronyde2276 6 жыл бұрын
I feel so bad for her. What I am not understanding is why she goes out into the sun at all. With that many surgery's to remove cancer she shouldn't be outside in the day time. I think they are taking to many chances.
@Tennor1
@Tennor1 6 жыл бұрын
She wasn't diagnosed until she was 12. She's kept safe ever since.
@SnowClover
@SnowClover 6 жыл бұрын
I understand what you're saying, but that's why she wears the clothes she does and has the UV meter, the UV exposure is so low that it shouldn't pose any hazard to her if she's wearing her clothing properly. Personally I would rather take the risk (but be extremely careful) than let it make me a prisoner in my own home for the rest of my life. I'm sure they have discussed the risks with the doctor and have undertaken all necessary precautions so that she is not in danger. I doubt her decision to go outside was made lightly. I imagine the skin cancer she has had were a result of her sun exposure as a child before she was diagnosed.
@bronyde2276
@bronyde2276 6 жыл бұрын
As a mother I would never allow there to be a chance of something happening, There are alternatives that could be used like indoor swimming, playing outside at dusk. She is still getting these burns even with the clothes that they think are working. Think of the time it takes to have these surgery's and the risk of not surviving one of the possible burns because she wanted to go to the park in the middle of the day. If she is still getting cancer than the precautions they are using are not working.
@beaniebliss
@beaniebliss 6 жыл бұрын
I know Lizzie. She takes all the necessary precautions while still living the life the best she can, and she does this amazingly well. She is extremely safe. She wouldn't have had all these surgeries if doctors had recognized it in the first 12 years of her life. Thankfully her niece was able to learn about it earlier and will avoid a lot of that.
@Candicedickinsonllc
@Candicedickinsonllc 6 жыл бұрын
Brony DE she can’t deprive her child of sunlight or being outside ...her quality of life will he crap and she already said she gets depressed from being inside . why not live life to be fullest...and you aren’t her parent or parent of XP child really so you don’t know what you would do
@piotr5261
@piotr5261 6 жыл бұрын
I'm allergic to exercise.
@cherrybread1886
@cherrybread1886 6 жыл бұрын
Piotr hahaha, me too...
@ruletheslejj2610
@ruletheslejj2610 6 жыл бұрын
I guess that is good that she is telling people her story and explaining her problems. Stay strong, u are beautiful person❤️
@mandaxhope
@mandaxhope 3 жыл бұрын
I’m not exactly sure why, but I like hearing her talk😊There is something charming about the way she speaks. She just radiates friendliness.
@alisonvansell8399
@alisonvansell8399 3 жыл бұрын
If you want to get to know her she is in a group on Facebook called crazy about parakeets. And she posts daily and will talk to you. She’s a sweet person. She raises and breeds parakeets
@mandaxhope
@mandaxhope 3 жыл бұрын
@@alisonvansell8399 thanks for the info💖
@dantesinferno8978
@dantesinferno8978 6 жыл бұрын
She’s basically a low budget vampire. The light fucks up he skin like a vampire however she doesn’t have any of the cool powers that vampires do. That’s a bummer man :(. Can’t have everything I guess
@alexis.hartman04
@alexis.hartman04 6 жыл бұрын
Midnight sun.
@heathercatcatherine
@heathercatcatherine 5 жыл бұрын
Bless her soul i love that she still goes out and enjoys life!
@aponiaa
@aponiaa 6 жыл бұрын
A beautiful, strong young lady... I wish her all the best
@aestheticpineapple4574
@aestheticpineapple4574 5 жыл бұрын
*DaNcE wItH mY dOgS iN tHe NiGhT tImE* Sike, im kidding. So sorry for ya love. ☹
@rustictexas2576
@rustictexas2576 6 жыл бұрын
Is something else wrong with her?
@miunya
@miunya 6 жыл бұрын
Rustictexas if you heard the doc in the video it causes also neurological damage
@edh1010
@edh1010 6 жыл бұрын
Speech impairment sounds like.
@amberv9075
@amberv9075 6 жыл бұрын
This lady is in my group on facebook for Russian Tortoises! She did a live stream one time of her taking her tortoise outside to get some sun. She talked a little bit about what the plastic covering was for. So nice of her to take her tortoise outside even though she struggles with this condition. Beautiful soul 💕
@nataliestaheli51602
@nataliestaheli51602 6 жыл бұрын
She is so brave and sweet! Stay strong and never let anyone get to you! I think it's cool that we live in the same state!
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