The Worst Stroke Recovery Myth Doctors & Therapists Keep Spreading!

[@lilaschneider770]

I had heart bypass end of August’23, joined by over 17 mini strokes, came through it all with Drop Foot ( I call it Drag Foot ). All of my doctors told me I would Never walk again! (How inspiring) 😢 Left rehab full of drugs for pain, etc. and in a wheelchair . A few weeks later, I weaned myself off all the drugs, got angry, got motivated and decided I’m going to prove them wrong! Insurance stopped paying for Physical Therapy because they think I haven’t made enough progress 😡 I now use a walker and have started practicing with a cane. On good days I can walk about 50 steps unassisted, on bad days I fall back to using a wheelchair but push myself to do a little more each day. I’m now 70 yrs old. Don’t Give Up! You Can Do It if you keep trying. ❤

[@catherinecarlson6164]

@lilaschneider770 good for you. I'm using a walker due to my degrading hip joint. Learn as much on uvtube as you can. T h ere already loys of good motivating videos on j tube.

[@katheejasuhail8280]

You are an absolute inspiration! A true fighter! I wish you the best in your recovery journey ❤

[@sielorstout1213]

I am proud of you!!!

[@49lucky]

Oh, I'm a living walking stroke recovery person. Stroke in 22, and now I'm working 2 jobs and tons of arts and crafts. I'm not as FAST as I was, but I'm alive and healthy and I'm happy.

[@PostStrokeOrg]

I’m so glad to hear this!! Thank you so much for sharing❤️❤️

[@johanolin9583]

❤

[@nikkiepperson7855]

Congratulations and good for you! So am I 8 years in and still progressing!

[@catherinecarlson6164]

S im gladxthat youre thriving. My stroke c was Las year and I've prpbably got a long time to get back normal hand usage on my affected side.

[@beatricemwihaki7733]

What exactly did you do to recover your hand?

[@sielorstout1213]

I am coming on my 20 year stroke anniversary. I have made improvements in my in my range of motion, muscle control, and heart rate in the past TWO YEARS! Never let anyone dictate what your body and will power can do. I believe in us.

[@PostStrokeOrg]

@sielorstout1213 YES! Amazing! Thank you so much for sharing ❤️

[@ericb4898]

After my second brain cancer surgery , I lost the function of my right side. Thanks to my therapist and your channel, I can walk. Arm is taking its time, though. Nearly 2 years ago, you helped me with everything I don't get in therapy. Thank you.

[@petkopetkov8888]

I am 1 y 6 months post my stroke. The best and the most improvements I had came past the 1 year mark. Actually my hand was almost completely dead for the first 9 months (not counting the severe spasticity in the fingers). By that time it was mostly skin and bones. Currently though I cant use it good (I believe because my muscles are still very weak) it is getting better and better. I still go to physiotherapy 3 times a week and wake up before 6:00 every day to make my exercises. My advice to all stroke survivors is never to give up and never stop exercising. The time will come when day by day you will be able to do new things with your hand that you couldn't do previous day. I got to know my body perfectly, to analyse why I cant perform certain movements. I learnt some basic anatomy (for this you may ask your therapist). I ve been watching people walking on the street and analysing their gate. Currently I try to define specific problems (both in hand and leg) and work on them - to perform specific hand movement, or how to make a step correctly... I am not giving up and i am convinced that sooner or later I will recover to at least 95% from what it was before

[@katheejasuhail8280]

You're a true fighter and you'll definitely get through this! 💪🎉

[@petkopetkov8888]

@@katheejasuhail8280 ❤❤❤ Thank you so much. Such words boost my morale a lot. As a matter of fact just today I was able to use my involved hand to unlock and open my front door for the very first time in more than one and a half years. Hoorayyy! Never stop fighting

[@sielorstout1213]

I am proud of you!

[@ginaljackson1]

You are amazing! I am glad I saw your post. You give me hope ❤❤❤

[@petkopetkov8888]

@@ginaljackson1 Never give up, dear. If you keep being consistent one day you are going to make it. I cant promise you that it will happen quickly, but I am sure it is going to happen. Be hopeful, be thankful that you survived and keep the bad thoughts away. You can do it❤❤❤

[@pamelarobinson67]

I so appreciate your channel! I take care of my brother who is recovering from a stroke. These videos are so valuable for those with limited resources but need the info! He has learned and improved so much and encouraged by your words! God bless you!

[@PostStrokeOrg]

Thank you SO much for contributing to Post Stroke ❤️❤️I hope that both you and your brother are doing well. Please remember to take care of yourself. Caregiving is a hard job ❤️

[@harvydent7154]

2021 Stroke survivor. Thank you for your contributions. 🙏🏿🙏🏿🙏🏿☝🏿💜⚔️🌹⚔️

[@YvonneNevala]

Only thing I do know is I went from a bedpan to a toilet in a wheelchair to a walker and I'm able to walk around now when I got most of my balance back it's just so slow going

[@petkopetkov8888]

True. Very slow with me as well. Dont give up

[@RobertBruce-be6vg]

Thank you. Don't let doctors or anyone put limitations on you.

[@OYcdwnmcd]

Amen

[@engrnorman321]

i got stroke last nov 2022 and im on my continue therapy, Thank you so much i learned a lot from you and give me hope to recover.

[@David-g6y1x]

You are a wonderful therapist. Although you didn’t provide any specific type of training in this video, it was very important that you gave everyone much more hope. It’s a great motivational video.

[@randyswan674]

Today is my 1 year anniversary of a stroke. This women has been so inspirational and the cornerstone of my journey so far. My hand is very slow in recovery, but Botox helped a lot. It took the unbearable shoulder pain away and tightness away. I’m starting to beable to do small things and my hand is staring to open better with E 🎉 and wearing my splint everyday/ night is really the key to be able to stretch those extender muscles I’m hopeful my hand will work soon. Which I didn’t think would be possible just a few months ago. I’ll keep listening to my therapists included this channel. Thank you so much for your channel and the work you do. I’m turning 48 next week and will be able to celebrate the right way this year at least. Good luck to all of you in your recovery and stay positive thru the good days and bad days. Keeping going and keep watching this channel!

[@juliemcmorran3662]

Thank you! I always felt recovery would continue. I had a stroke in 2018 and whilst I made the biggest leaps in the first 3 months, my recovery continues. I like to think of it as ongoing rehabilitation and I take every opportunity I can to try new things or better them. Your videos are so, so useful. Thank you so much ❤

[@poolmotorrepairguyFL]

WOW .. thanks Post Stroke It's 5yrs + I'm getting better! I tell Myself everyday. I'm having a hard time with business. this is no fun.

[@PostStrokeOrg]

@poolmotorrepairguyFL I'm sorry you're struggling with business. Stroke recovery is so, so hard but I'm glad to hear you're still seeing progress 5+ years out! That is very encouraging ❤️

[@poolmotorrepairguyFL]

@@PostStrokeOrg I have noticed that I've had DREAMS now... I'm getting better, I'm getting better! spelling is next on me list..thanks you help.

[@GaerAmon]

My wife is 3 years post stroke. Massive hemorrhagic stroke survivor. While it is true, I have seen a slowing of progress, every single part of measurable recovery continues to improve. I believe that just like you can learn a new language at any age, you can relearn what was initially broken by the stroke. Though it is, very hard, in the caregiver position to see the milestones because we are so close to the action. Rely on bringing other trusted family members and friends in continually to show both to the survivor and yourself that there is actual change happening.

[@sielorstout1213]

I am proud of her!

[@agohio8366]

Thank you so much I am so relieved to hear this I see healing and continue progress every day after 6 years Still improving and staying strong 🙏 🙏 🙏

[@garywalling4341]

Example, until about a month or so ago I couldn't feel my back (left side affected) touch, yeah but I was constantly pulling/leaning towards the right then one day I just straightened up! Haven't done much in the way of exercise in that region. Had no therapy since hospital (through no fault of my own) as there's none available, but that's another story. So my fellow survivours 'DO NOT GIVE UP' I implore/emplore you. Mentally I've gone from behaving like a 'confused spaniel puppy' to building electric guitars again. I'm a 'long, long way from back to what I was, but Im getting there. Peace, love & understanding to y'all.

[@bethbeckette]

I’m 15 months post stroke. I walk with a cane. I was able to talk to a recent survivor to give her my pov opposed to the medical professionals. This is what I was saying to her, don’t listen to the “timeline” they put out there. I rolls her the more she works on herself, the better she’ll get.

[@YvonneNevala]

I also tried doing outpatient therapy and I found that wasn't working for me so I'm so glad I found your videos I've been watching all your videos I can't afford a therapist to come to the house because I'm pretty much broke

[@nicoleberger73]

Thank I needed this reminder. I just returned from a 2 week vacation and I feel as if all of the progress I made is gone.

[@rosiecarrillo3407]

I had multiple hemorrhagic strokes,in a coma,I am now 7+ yrs,and am getting better, I used to have therapy,it helped and now it's getting better 👋

[@user-evelyncali]

I don’t know why there’s very little help to stroke victims. My husband is 1 yr now fr having hemorrhagic stroke. I took him home after 1 yr in snf. Home health pt, ot, &speech therapies 7 sessions and that was it. Wow! I make him use stationary bike 45 mins everyday while in wheelchair. Planning to go to the Philippines to hire home service therapist which is a lot cheaper than here.

[@markteslin5654]

my recovery started at the18 month's mark. Now after 40 months, my hand comes back very well and I ditched my cane. During the last 6 months I definitely made more progress than during the first whole year.

[@suecorke3421]

I had a stroke ten years ago when I was 35, I had surgery in March this year and I'm trying to learn to Walk again, I'd like to learn to Walk with a stick rather than a quad. I don't know if This is possible after so long don't want to give up hope but it's hard for me to hold on to the hopr

[@OYcdwnmcd]

Never give up.Keep trying

[@Joy80JJ]

Very informative video!

[@fionabotha7216]

Hi I'm from south africa and i watch you and your videos help me alot. Thank you God bless you

[@dominiclavu193]

"They should know better"!!! Facts and numbers don't lie, only people do. Don't make assumptions, instead encourage!

[@PostStrokeOrg]

@dominiclavu193 They SHOULD know better by now ❤️

[@girliegrandm]

Thank You!

[@PostStrokeOrg]

❤️❤️

[@xmax1212]

3 years and 10 months to the min. I'm still numb on my right side from my toes to my head. BUT, I work part time. and I work out 6 days a week. in all, this suck. I plan to live a long time. I'm 71.

[@paisleydreamzz]

they told me 6 it would "stop" at 6 months. AND failed to mention that spasticity, which i had very little of at the time, would be a common occurence after a year. imagine my surprise when i was walking unaided, and after a year or so needed an afo and a cane.

[@jamesm2577]

Very true. Over a decade later I saw what felt like tangible improvements by adding seated leg curl hip abduction/addiction &back extension machines to the 2 off days in my mwf 1hr aquastrength pool walking weight loss exercise routine. The back extension is probably more just one extra thing to space out legleglegleg rather than something stroke related but the leg/hip machines. I'm doing like ~5-20 pounds for 20 min each leg. Started just with affected leg and added good leg in a couple weeks later only to realize that was a mistake for uneven endurance so now do 20 min affected leg then 10-20 good side and the rest of another 20 min for both legs together.

[@PostStrokeOrg]

@jamesm2577 That's great to hear! I'm glad you've figured out a routine that works for you and that you're still seeing progress ❤️

[@jamesm2577]

@@PostStrokeOrg I started with pokemongo & after an hour+ of that didn't leave me hurting eventually moved to the pool walking after covid & added resistance gear pretty quick. The weight machines got added because I can't do 4-5 days a week pool walking with resistance gear without stopping to recover, those machines got picked because they let me do something with the muscles not used in pool walking while those recover & vice versa on pool walking days :D

[@PostStrokeOrg]

@jamesm2577 I love it!

[@EricVandermallie-h1l]

Thank you,God bless.

[@PostStrokeOrg]

Thank you ❤️

[@engrnorman321]

Thanks!

[@PostStrokeOrg]

Thank you SO much for your contribution to Post Stroke!! ❤️

[@scottaussem1771]

Im16yrs out and continue to try. Left side paralysis. I believe water nutrition snd good oxygen will help my body rework itself

[@scottwhite2583]

I feel they some rehab hospitals have to many rehab patients at one time in the hospital as an example the hospital I was in there were at least 16 other stroke survivors in the hospital and I never got pushed as hard as I c ch outdoor have been whole I was in recovery

[@PostStrokeOrg]

@scottwhite2583 That can absolutely be a problem not just in rehab hospitals but in outpatient therapy, too. If therapists have to split their time between patients, it's hard to get the quality care you really need ❤️

[@scottwhite2583]

@@PostStrokeOrg when I was in my rehab hospital I had what they called the rule of plus 1 if they asked for 5 reps of an active they knew they were getting 6 reps

[@Mooregirl]

Elyse, I had a repeated MRI and have encephalomalacia with gliosis. Can you do a video on that one day🙏🏽❤️tfs

[@shelleymullin]

...an excellent book,"The Power of belief" by Bruce Lipton should be required reading for anyone in thehealthcare profession.

[@humairaaltaf8769]

Left side is paralyzed. He can walk now with tha help of stick n in someone presence.but arm still no movement

[@YvonneNevala]

I have a few questions. I got out of a stroke recovery hospital in Thunder Bay Ontario Canada I went home I live with my daughter and her four kids I had to move my bed to the main floor cuz I can't do the stairs too much anymore but it's hard to do my exercises because they got so much stuff in their living room and there's only two chairs and you use the occupied because they've been on the main floor where the kids are I'm trying to do a lot of exercises from my bed does your bed make a difference? Do you have any advice for stairs because I'm having a hard time managing up and down stairs?

[@nirulabasumatary710]

Thank you Mam.

[@user-wu8il9mk8b]

Hie, Any video on facial paralysis? Thanks

[@PostStrokeOrg]

@user-wu8il9mk8b Yes! I have a video on facial symmetry exercises. You can check it out here: kzbin.info/www/bejne/bqTLapeorpZor7csi=t9Lcl4djyuBPFe-3

[@YvonneNevala]

In my province in Ontario I'm having a hard time finding appropriate help we are so short staffed here what doctors and nurses and therapists that sets are going sometimes I'm so depressed I don't know what to do

[@thombatty1950]

My stroke was last October, and at this point I feel like my remaining issues are some weakness in my right side, and difficulty remembering names.

[@PostStrokeOrg]

@thombatty1950 Thank you for sharing your experience ❤️ Do you feel like you're still seeing progress in those areas?

[@thombatty1950]

@@PostStrokeOrg some, but it has slowed down. I have learned to compensate, which may be worse than working my right side.

[@humairaaltaf8769]

Can u plz guide me how to help him recover. Before he was a very active n hard working who cant sit idle but now he is very upset with his condition

[@garywalling4341]

You're so right Elyse, neuroplasticity and the body/brains ability to recover is incredible. 4yrs next Tues since my re-birth. Right frontal perietal hemmorhage 20/08/2020. OMG it's slow, frustrating, painful, scary but it doesn't stop (recovery I mean). The only way to understand us is to join us (strokies) not that I would encourage/wish this upon anyone. All these doctors, neurologists, therapists whomever are basically clueless, sorry. But comparing the human brain to that of a rat.....WTF? 🤣🤣🤣🤨🤔🥰

[@humairaaltaf8769]

My father had a stroke 6 months ago

[@EMSCaptain]

Are you the Elyse that bullied Meekah?