Then We All Got Sick - Chronic Fatigue Syndrome Symptoms Penny Pinching Mama Part 19:

Then We All Got Sick - Chronic Fatigue Syndrome Symptoms
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Penny Pinching Mama Part 19: Then We All Got Sick - Details About Chronic Fatigue Syndrome
In this episode of our Penny Pinching Mama interviews with Jill, Jill talks about what it was like getting overrun with a debilitating chronic illness, Chronic Fatigue Syndrome, and what it was like for Jill, Tawra and David to get so sick that they often couldn’t feed themselves, bathe or remember the simplest things.
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[@LivingOnADime]

Get Jill's Penny Pinching Mama book here. www.livingonadime.com/store/penny-pinching-mama/

[@ashlieleavelle]

Your videos are such a blessing. You and your children went the so much and yet you have so much joy. Jill you and your family are a blessing. I am also a Christian. I pray health for you all. God bless you!

[@christiebetts4970]

My grandaughter told me today that i was like "Dory"forgetting things.I don't really wish chronic illness on anybody,but sometimes i wish people could feel it just for a little while so that they might have some compassion

[@kerrynwright]

Thanks for sharing so vulnerably about how scary & tough CFS/ME is to live with!! I'm emotional again hearing your stories as they describe me perfectly! Thankfully I'm not as sick as I was when first ill & completely bedridden. I had an "aha moment" when you shared about not being able to eat apples & oranges, but you can eat bananas! I guess I've naturally avoided eating apples & oranges as too hard too, as I only eat bananas! 🥰 Blessings from South Australia💕🐨

[@jennyhikes6353]

It really is incredible what you both have gone through and are still living with.

[@diannthomas7849]

I just found your channel a couple weeks ago and Im in the process of catching up on the old videos. I'm sitting here with tears falling down my face because I can so identify with the overwhelming exhaustion and fog that Jill is describing. I have never had CFS, but when I was pregnant, I had severe anemia and the symptoms sound very similar. I remember sitting on the couch for hours trying to get the energy to get up and take a shower or make something to eat. After awhile, the exhaustion was compounded by depression. I didn't get fully back to normal until my son was about a year old. It is hard to describe but it was like the fog suddenly lifted. Your story brought back those aweful memories. I cannot imagine living like that for years. Thank you for sharing your stories and advise. You are truly inspiring.

[@cheapchirping7368]

Such a beautiful woman your mom is, and the way she tells the stories....it’s so touching. You’ve been through a lot! All the best wishes!

[@CookingwithCatLover0330]

LOL! Poor Michael! I bet "poor Michael" is SO thankful for his Mom-in-law. He married into a great family from what I can see. And from the videos I have watched I think he will agree.

[@elizabethb2503]

I felt almost identical when I had severe anemia. It really makes u realize how interconnected the body is. Thx for sharing the truth.

[@janetlevisay1770]

When y'all describe your chronic fatigue/fibromyalgia symptoms it all sounds so familiar -- like many of the things I have experienced for years. I've never been diagnosed, but I have been so frustrated wondering what in the world is wrong with me. On a different note, I enjoy so much hearing your stories and seeing all of the videos on your channel. Thank you all for sharing with us. God bless your family!

[@lifewithlois7262]

Thanks for sharing, your mom is amazing.... God Bless

[@differentperspective4124]

You have really been through it! Your positive attitude and optimism bless me so much. Thank you for sharing your story!

[@lostcontrol1981]

Ok, I've also got to say, people from church shunning you and asking you to leave because of something your husband did? How horrible! What about Christian values like forgiveness and compassion? These people sound horrible. I'm amazed you went to another church after this.

[@jessical1969]

very accurate description of the illness

[@jeanmorell1947]

Really inspiring story for all of us that are struggling with pennies to make it!

[@lynhanna917]

I do not have CFS and I forget my phone number and address......my thought is as a single person I NEVER call home and have never sent myself a letter so that is a good excuse for not remembering those two things. I do have a friend with CFS and you have explained what she is going thru on a daily basis - now I get it. Thanks for the video.

[@tpop5000]

Thank you for sharing your story. I cried for you and am praying for you all.

[@everydayhomelife8697]

It's such a shame how the church reacted! Just stumbled across your video and enjoying your past ones, lots of wonderful tips and advice!

[@50shadesofgreen]

thanks for sharing your story guys !!

[@lmeasterwood]

So much of what you said is terribly close to my experiences with Fibromyalgia and CFS. I was diagnosed in 2008. Not knowing how to get places, forgetting how to spell (I was a spelling bee winner), having no energy to shower, and having trouble with simple tasks were all very scary. I am grateful to have found your newsletter and website many years ago. You are a source of encouragement and understanding.

[@prizzyhoney]

This series PPM has really grown on me. TY 🙏

[@juliasnider5905]

Thank you for sharing your story! God Bless

[@heyokaempath5802]

WEEKEND AT BERNIE'S!!!!!! LMAOOOOOOO oh myy!!! I have CFS, fibro and dermatomyositis and that sounds like me, every day. Thanks for the laugh :)

[@cynthiacombest5]

Bless you all. I am so sorry that you have been through so much.

[@cynthiacombest5]

I have been thinking about your family and am heart sick that the church treated you all so cruelly. Had I lived close I would have organized a group of ladies to bring over cooked dishes at least a couple of times per week, done light cleaning, took everyone to doctors appointment or volunteered to do what you needed. You all give and give to people everyday through your business and lives. God will bless you. Love and hope to you.

[@donnaturnbull1190]

Your an amazing woman Jill, I have deep respect for you and the gracious way you handled your adversities. I absolutely agree feed your self and kiddies over shower. Right choice!

[@cabinlifeatedensprings1710]

I lived like that too. but I could not have done it if not for mama. she is like your mom. we have awsome moms. and both my mom and I and my oldest daughter have rheumatoid arthritis and psoriatic arthritis. it's so hard. the illness that keeps you from working and the lack of funds. and you just feel horrible day in day out. we are surviving somehow. and feel blessed that God gets us through each day. you can make the best of it by just being thankful for what you can do and what you have. God bless you?

[@cocinandorico]

What an amazing story. Wow and more wow.really God was taking care of you on your afflictions. You guys are an inspiration ti many hugs.

[@FIBROMOM]

It's hard to manage your body living with a chronic illness than not able to work and whew we are forced to be creative! I've learned quite a few ways to save money but always love listening to your tips so thank you!💜💜

[@FIBROMOM]

Thank you for that tip! I average 18 migraines a month and makes me so sick to my stomach.. I will remember this one for sure.

[@esthers9140]

FIBRO MOM I'm sorry for you...i have siblings that I have had to take to E R because the migranes were so bad and they were sick in my car all the way there...i hope you find something to help you.

[@cabinlifeatedensprings1710]

I understand that as well. I have the bumps on my head too. it's so hard. hang in there, leslye

[@kathyhanson7337]

I have the bumps but mine go away in a day or two. Does yours go away like that?

[@sherrycunningham1253]

So glad you're both seem to be getting better and there's so much doctors don't know today. Keep in good spirits

[@beverlyvo728]

I so relate, as I have CFS and FM. I would be purchasing something ( on a rare occasion that I would be out and about) in a store. The sales clerk would be asking me something and all I saw was her mouth moving and what I heard was like some kind of foreign language. I then would have such a panicked feeling. It was frightening. As you say, we learn to manage ourselves. We are on our own time and energy table and the people who can't or won't understand simply go by the wayside.

[@freakinfrugal5268]

This illness is so poorly named. I know it has a real scientific medical name, but being known and chronic fatigue just doesn't begin to represent the reality and I think leads to so much misunderstanding and negative judgement.

[@joellenbroetzmann9053]

I think of all the families I have known over the years and the difficult time some of them had, it took me so many years to realize how many people need help so desperately. One family where my husband and I hung out on college weekends comes to mind. We had 3 friends who were sibling college mates and had 3 other siblings for a total of 6. I attended the funeral of one of these kids recently and her younger brother told stories of what happened behind the scenes.

[@joellenbroetzmann9053]

Continuing this story: the father of these 6 copped out on life and committed suicide, leaving his wife to deal with the kids and bills. This mom worked very hard and got all 6 kids through college. When it came to groceries, there was just no money. But the little brother of the deceased told me when his mom went to the small town grocery, the owner would often ask her to take a large "day old" cut of meat home that he said he couldn't sell. And many times when Ma went to pay her bill the grocer would say, it had been paid. God bless that grocer for helping my friends make it through these difficult times!

[@LivingOnADime]

Oh wow! I just love those kinds of stories!

[@sergiom.2433]

Tawra's mom is a beautiful lady!!!!

[@kathycox9161]

am going to pray for you both

[@602redroses]

I am so sorry you had to go through this. I also feel bad about no one helping. I can't imagine a church asking you to leave :(

[@lovinitall6639]

I was so sick when I was younger I stopped eating .My family got me cheese doodles because you just put them in your mouth and they melted and had calories. I feel for you

[@jessieayala2970]

You’re right

[@HoneyHollowHomestead]

LOL! Tawra, I do not wear nail polish because I can't stop picking at it! ;D I am wondering if coconut oil would be of benefit for memory issues with CFS. They say that it is beneficial for people with Alzheimer's and I have been using it for my father who has been diagnosed with early onset Alzheimer's. It's too soon to say if it is working for him or not.

[@mgm2008]

Wow! I had no idea this disease was so bad!!!

[@cabinlifeatedensprings1710]

listening to this is so funny but not really. I spend all my time in the spot on the couch. now I was told fibromyalgia but later also psoriatic arthritis. I live it. eat or shower. usually I just pick sleep. washing hair. my mom and I call each other and try to encourage each other to wash our hair. because it's so hard. just every moment. you and your mom have lived very simular lives. now she was 56 and I was late 30's when we got sick. lost all my friends. except my wonderful husband. many days I am only awake about 4 hour. you sleep deep. I keep ending this but then I hear you say another thing that I so identify with. my mom has dreams like that. Mike needs to talk to my husband. he and Kurt would get along well. I 5hink the worst for me one is not being able to go see my daughter at college, like go to a ball game or go do things with my husband, work in the yard. we used to really have a nice yard. but we have moved to the country now and no one judges your yard thank goodness. I had to go to court about jury duty downtown memphis. I was soo sick. now I had worked downtown but I was in so much pain I left the courthouse drove over the memphis /Arkansas bridge panicked because I could not remember how to get home. I had a cell but it was almost dead. I though my husband was going to have to come find me. some how I did get home but I slept for 2 days after that. love you guy! leslye

[@user-dm6so7uw4j]

thanks for sharing your story,

[@berylsly]

Please people be kind with your comments. People who are unkind is because “. It’s ignorance of GOOD HEALTH”. Love you good people these 2 cfs and fibromyalgia are hideous illnesses. I remember one day I couldn’t get home because I I had no memory of my bus number. I was terrified. Panic is an understatement . Bless you all for helping us so much. 🙏🙏🕊🕊💐💐

[@debisday1110]

Post it notes on the fridge or on the frame around the TV if it's something really important. That's how I am able to remember things. I do put reminders in my smartphone now that I have one.

[@julsjewels3185]

Exposure to black mold and solvents in your business could have been a trigger.

[@LivingOnADime]

We talk about that in tonight's show. kzbin.info/www/bejne/aJ3OhnyJbsh5kNE

[@tawnym9938]

Totally cackling about making a list lol. Me toooo

[@MsPeteygirl]

I have to tell you I cant imagine how horrific this was for you no one to help you . I cant imagine being this ill I do not know how you managed at all, praise God that you lived through this but what a shame no one helped you it makes me ashamed for those who did not even attempt to bring aid to you.I pray I would see a need and be willing and able to help.

[@lolitamorris2943]

Thanks for this vide/ sharing

[@pepperderr1388]

I don't have CFS but I have APS. I have had a lot of the symptoms like brain fog. I remember many times driving places and not knowing where I was going or why. I do believe I drove through red lights a few times also. I would drive home and not remember how I got there. Very often I would know I was going some place but then drive right past the place I was supposed to go. I also have times where I can't remember words, like you were saying you couldn't remember the word what. Many times if I posted something I would have to read it over and over and over to make sure I got it right. I often would forget in the middle of a sentence what I wanted to say. Also if I would say something like "put your shoes on", I would get stuck on the word shoe and would have to say sandal or sneaker or just point because I couldn't say the word shoe. One weird thing I find myself doing at times it repeating the last thing I hear someone else say. Like if I would want to tell my son to tie his shoes at the time he said he needed to study his spelling words, I would say tie your words or something like that. It is very strange. It is not a very well known disease like CFS finally is so it is a real struggle to deal with at times because most people don't know it so they don't understand it. A lot of people don't understand CFS but they have heard of it. Thanks for sharing your story!

[@mount78]

a syndrome that my mother and many of my siblings also share is much like CFS; but, again unless one has experienced such illness most do not understand and want to minimizes the difficulty

[@billybranchhomestead6120]

Jill could you tell more about the bumps on your head? What they felt like, painful, did they come and go, did you experience pain after they would leave. I ask because a neighbor of mine is having bumps and they come and go but doctors have no clue what they are. During he has headache and after they go away his scalp hurts him real bad. He is always talking about his arm hurting, being tired ( but not to your degree ) and feeling bad. The bumps scare him and honestly that's his biggest complaint.

[@jillcooper172]

My bumps were very tender but they didn't really come and go but stayed for quite awhile and eventually they just went away. Never did have anyone figure out about them

[@kathyhanson7337]

@@jillcooper172 I have never made it to the doctor while the bumps are on my head. I have mentioned it several times to my doctor she looked at me like I was crazy which made me guestion myself. Mine are very tender.

[@jillcooper172]

Yes Kathy most doctors do not have a clue about CFS. Some kind of do but not really. My first doctor (long before anyone at all knew about CFS) did happen to believe me and did research it. I had to admire her though because even with that she really didn't understand it and for years when she had a patient who she thought had it she would call me, tell me the symptoms to see if they matched mine and ask my advice so she at least admitted she didn't understand and was trying very hard to help her patient.

[@70sfan64]

You are such an inspiration Jill!!!! I so enjoy all your videos. Full of wise wisdom!

[@jeanmorell1947]

I have fibromyalgia a long time I follow my nongrain diet strictly no corn potatoes no dairy. I must drink a lot of water. I follow a schedule it can be controlled with diet keto. It does have to do with foods.

[@heyokaempath5802]

Jill and Tawra...I have often described my feelings of "brain fog" as feeling drunk. It really does! Ive only been drunk a handful of times in my life, but that's what I equate it to. Do you relate to that

[@peepla7]

Cereal is the best stuff.....with or without milk. That stuff... taste good, fills you up and is cheap.

[@ironduck2000]

Maranatha dear family! Hugs to all.

[@stpierreforjesusthesavior984]

CDC - 😬... Some pastor, some "Christians".... wow.... no words... I can relate to the topic of this video...

[@heyokaempath5802]

Btw...I use a shower chair. It helps so much. I also have to use a mobility scooter bc I can't walk or stand. Whatever this is that makes it this way is horrifying. Xx

[@Brendabrenda1942]

I can’t remember where I left my list! Hahaha, Happens all the time to me

[@jessical1969]

I've have the bumps on the back of my head, like marbles

[@annsilliman6184]

i take.zofran that melts on my tongue and that stops nausea and vomiting. its something they give chemo patients and works great tben u are able to keep the migraine medicine down.

[@peepla7]

When I had migraines that bad.... cluster head aches....they found out that was my first symptoms of my strokes. so don't sit on that....get it checked out.

[@kristiecox7350]

This sounds like a horrific nightmare!

[@SupriseEggsToys]

Have you looked into Non-Celiac Gluten Intolerance? I've read a few studies on the connection of CFS and Fibromyalgia with gluten. I don't have CFS, but going gluten free has helped my fatigue and brain fog greatly.

[@LivingOnADime]

Yes, I've been gluten free for 6 yrs. It helps but isn't a cure.

[@jillcooper172]

The gluten free did nothing to help me

[@ironduck2000]

Having thyroid issues can also cause brain fog, as well as other medical conditions.

[@ironduck2000]

I know what you mean. I do have Celiac Disease, but being gluten free has not healed my gut. The damage is still present, along with many symptoms.

[@kathyhanson7337]

@@ironduck2000 I healed my gut by eating fermented sauerkraut. It took several months & now I have better digestion & no diarrhea.

[@marilynpeppers1356]

💜💜💜💜💜

[@GabbysMomG]

HUGE hugs .. but THANK YOU ... if you get CURED likely you didn't have it to start ( many illness s falls under this and disorders )... I was a nutritional science major, food can help in some cases but it is not the cure or the reason for the issues

[@Edbeatty91]

Excited this is up! Haven't watched yet, like medical stories. Thought maybe you guys had something else & then got or it turned into CFS. What they think it was? Did you go to different doctors? What was it diagnosed as? Hope to hear all the answers now!

[@jillcooper172]

We will explain more I think it is in the next video Mrs. T

[@Stephanie-hv1vn]

I get migraines. I was wondering did you take the alka seltzer and then 2 ibuprofen for migraine? You didnt take prescription migraine medicine, right?

[@LivingOnADime]

No prescription meds.

[@marshamagic8551]

Sounds like ptsd..

[@conniewilliams3644]

Not sure either of you should be driving!! Oh my gosh. That’s a horrible syndrome!

[@LivingOnADime]

That part of it is much better now, thankfully! :-)

[@DanaONeillStuder]

I'm lost. Why did the church shun them? What did the husband/dad do?

[@greenlovingmom]

dana studer they've never really said. I can only imagine what would make a church shun a whole family but then again it was the 80's.

[@LivingOnADime]

We would prefer not to say what he did but yes they did shun us and yes it was wrong and yes we (mom, my brother and I) did nothing wrong. It was just one of the those things that happens.

[@jillcooper172]

The main thing was that he held a very high position in the church and was so very loved by so many that when he sinned it really really hurt and disappointed the people of the church. When people are hurt they become angry and my husband was there to take their hurt and anger out on so it came on the kids and I. Plus our illness made things worse because it was something they didn't understand. If we had had cancer they may have helped.

[@LivingOnADime]

Mom meant to say "my husband "wasn't" there so they took it out on us.

[@greenlovingmom]

Jill Cooper No, sorry I understand that because I've been a long time viewer and have seen all your past ones. Guess I should have clarified you guys had no part in his "sin" but had to take the punishment so to speak for his actions.

[@valeried4504]

I can't wait to hear what the CDC said...

[@beckyshook3526]

i have the fibro and the potty story happens to me i can say a word backwards without skipping a beat faster then fast my husband says what? it gets funny cause a normal person would have to stop think about the word and how to say it backwards fibro is not kind i have had it so long now that i cannot remember how i felt before getting it

[@peepla7]

That's less than SSI....and SSI gives you food stamps to cope with the lack of cash.

[@judibohn1548]

So scary what yaw went thru physically healthwise and sad..if i was that preacher...i would have resigned that church!!!

[@goode2shuz1]

I'm sure you've heard this a billion times, but it seems so strange all three of you have CFS. I have never heard of a whole household getting it at about the same time. I'm sure you've talked to your doctor about that. Bless you all and I'm so enjoying all your videos. Take care of yourselves. Xoxox, Carla

[@noahsark1962]

That isn't much money at all for the 80's.My dad was without a job in 81 and did side jobs to keep the bills paid. I have never heard of a pastor doing that.

[@annsilliman6184]

what happened with your husband that you were shunned? i missed that one

[@LivingOnADime]

We prefer not to say.

[@TheLutzFamily1]

I am sitting here listening to this video. I have fibromyalgia. Recently, I have been wondering if I have CFS as well. I do know I can go through bouts of exhaustion with Fibro, but I can't ever remember being this bad. Talk about bathroom stories, I go to sit and I sit sometimes for 15 or 20 minutes. My husband will say "are you ok?" from the other side of the door. He checks mostly because I have had anaphylactic episodes and if I don't answer all bets are off and he storms the bathroom. Anyways, of late the response has been "I'm fine, I just don't have the energy to get back up off the toilet". It's awful. I know it's been bad of late because he's answering his own questions now. "Are you going to eat dinner?" I'm silent. "you're too tired to eat aren't you?" I usually just shake my head. Talking is exhausting. When you combine being exhausted with bouts of insomnia, well, I haven't felt good in months now. I can totally relate ladies.

[@jillcooper172]

Yes Donna I know exactly what you are talking about

[@julieb7068]

With all three of you getting sick, it makes me wonder if something in the house was making you all sick. I had carbon monoxide poising 3 yrs ago and by the grace of God, was caught by the gas guy. My symptoms were very much as your mom described and I believe there is residual effects. Prayers for your family's struggles.

[@jillcooper172]

No Julie we were on a very intense study with the CDC and that type of thing was one of the first things they checked for

[@julieb7068]

Jill Cooper wow. That is so crazy! Glad you all are able to cope better.

[@campoida]

How absolutely horrible the previous church! How shameful for that pastor.

[@lostcontrol1981]

I just can't imagine trying to live on that little money. But I do wonder, what about welfare? Shouldn't that have provided a few hundred $ extra a month? Isn't there child supplement payments from the government? Are there school breakfasts and lunches provided? Here in Canada we have such a different social welfare system - I can't imagine people being left with nothing being so sick.

[@dinahsoar6982]

To get welfare in the U.S. they look at what you own in addition to your income. They owned their house and a business; I'd assume that the value of those would disqualify them for benefits. Had they liquidated those assets and spent that money down to the threshold, then they'd have been eligible.

[@jillcooper172]

One thing back then even though we had programs to help most people did use them. It was very different then than it is now. The other thing was it is hard to explain but I couldn't think straight enough to know who to call, let alone go to an appointment to sign up for something. I was to sick to even ask for help really.

[@dinahsoar6982]

Yes, that is so true. My mother supported us on a waitress wage, one dollar an hour plus tips in the mid 60's. Mama was too proud to take welfare and she did not have a sense of entitlement, like so many do today. Also, when Johnson became pres his war on poverty dictated that no home with a man in it could get welfare. That hurt families and especially black families, b/c being black made it harder to get work. A lot of two family homes became one family homes so that they could feed their children. Plus, back then when you handed food stamps to the checker everyone in line knew you were on welfare and disdained you. That was so humiliating. Today, people have plastic cards and no one behind them knows, they assume it's a bank debit/credit card. And today most are not embarrassed to be on welfare. I've been told on good authority that in NY state people are third and 4th generation welfare. It's become a way of life for many. In most states a woman with several children can get $50K a year via welfare and aid for dependent children. No way could she earn that working a job so she stays on welfare. There is no incentive to work and support yourself. And if a woman with several children did have a job, daycare would eat up all her wages. My mother worked nights, and had different relatives come and stay with us for a month at a time until I was old enough to leave home alone with my brother and sisters. I was 13 and getting up with a baby every night, givinig her a bottle and had school the next day. And poor mama had to sleep when she could b/c she had to look after the baby. I don't know how she survived the hardship she endured. She was an amazing woman. I never heard her complain one time, she did not feel sorry for herself. But she was a child of the crash of 29, the great depression and WW2 and her mother also lived through WW1 in addition to that. If you wanted to survive you had to be strong.

[@missyg4450]

I think that is horrible a pastor would kick you out of a church. I really believe that God will do the same to him unless that pastor has asked for forgiven.