Cancer Patient Story: Clinical Trial for My Non-Hodgkin Lymphoma (DLBCL) | Barbara (3 of 3)

[@debrabutler9447]

Thank you Barbara for sharing your journey with us. I'm a 67 year old female diagnosed with stage 4 large B Non Hodgkin Lymphoma back in 2021. I did 6 chemo treatments R Chop. finished March 29 2022 but in Nov. 2022 the tumors returned. My Oncologist said the Chemo was not working and recommended Car-T therapy.. I will be going in just a few days ( 2-27-23 and 2-28-23 )for the dreaded testing for the therapy, (to see if I qualify for Car-t. ) because I have other underline health issues. You answered some of my fears, I will be going to City Of Hope Medical Center in Duarte Calif. for the treatment. they stress the 24 hour a day care that is needed. I will be staying at the campus during treatment. in which it sounds like it will be for weeks since I live about 1 1/2 to 2 hours away from the Center. You didn't mention if you received more Chemo treatments a long with the Car-t therapy. I was told I would have to have it as well, plus bone marrow.. Did you have this done as well ? I was told of the side effects and needed to be close by the hospital. Even after I 'am well enough to come home I will need 24 hour care giver. There seems to be alot involved with the Car-t therapy. But I pray the pay off will be worth it in the end. When I heard you talk you sounded so much like me ! I had the same fears and dealing with it in the same matter. Life is good, but we know at some point there is an ending. I pray for you and I and many others it's not from Cancer, but old age . LOL God Bless You And All Who Are Going Through This Journey Called Life..

[@clareoldham328]

Thank you so much, Barbara and Stephanie! Your journey is so helpful. My father-in-law just got diagnosed with that same cancer, and hearing you speak about it really soothes me. I am sending you wishes for increased energy, and happy times, and a cancer-free future! You are a phenomenal woman. ❤

[@joelbernstein7563]

Thank you may God bless you with energy and health. I'm a DLBCL fighter past 3 years. My pet scan was normal over the past 6 months. I'm hopeful.

[@kathiegavin2311]

Thank you Barbara for sharing your journey with Cancer. I to am dealing with this right now. I also have the same Cancer Large b cell Lymphoma. I have to decide if I want to do this treatment with Dana Farber real soon. I Thank you for sharing your story it has helped me. I pray for you to live and beat this. Take Care

[@marina_m11]

Thank you Barbara and Stephanie for these interviews! Always so well done, Stephanie. Barbara you are a strong, stoic person and very generous to share your story. It has helped me and I'm sure will help many others for years to come. It's great to laugh, and sometimes it is healing and cathartic to release some tears. BTW the next part always shows up on the list of recommended videos if you scroll down after watching. I had no trouble finding the segments. Thanks again, wishing everyone health, happiness and long life.

[@theresa94010]

Barbara, you are my hero, my inspiration, my role model. I hope you are still doing well and enjoying your life. Please give my warmest regards to your husband as well.

[@jrs4930]

Patient Story: A wonderful story - It's been a year since you did her story, any update on how Barbara is doing?

[@DefendUrRights]

I’m no doctor, but I visit my local legal states and take Rick Simpson Oil and Fenbendazole 222 mg/day is the dosage. I take many supplements. My white blood cell counts fell by 30%! And I must attribute the change to both, as I took the protocol throughout the past year. Just throwing this out there. The quality of life is so improved. My GP monitors my blood and is caring. So I’m blessed. This road is so hard. Hang in there. Cannabis oil helps my tissue and muscles respond and then deal with the pain that comes with moving. God bless you, Barbara. Take care. Drive to Colorado! It’s beautiful!

[@nonaoflove]

Thank you so much for sharing Barbara’s story. ❤️

[@ThePatientStory]

❤️

[@polyrhythmia]

I am going to be doing R-Pola-CHP soon. Wondering if this will work. Never done chemo before. I have diffuse large B-cell lymphoma.

[@anne-mariemcinnis9143]

Did Barbara get a cat? I have a precious one that I'm looking to rehome to someone special, because I have MS and RA and work full time and I would love for him to be with someone who could give him more. He is actually exactly like the orange cat in the video. Exactly alike. And he is a loving and talkative Main Coon called Walter-Finn. I would love to offer him to Barbara if she would like and if so, we'd need to find a way to get him from here (Central Texas) to her. If there is a way to get this message to Barbara, that would be lovely!

[@felikesmeerssen3263]

I am sorry but I can't find the second part of Barbara's story and this is a recurring problem with other stories too! That's (also) why I prefer the old model, making one story with longer duration.

[@ThePatientStory]

Thank you for leaving this feedback, really appreciate it! Our editors have corrected this - videos automatically play. We also list the links in the description. Appreciate you taking the time to let us know! -Stephanie

[@germanshepherdmom1143]

How does one define extreme fatigue ?