How I Learned I had Lymphoma | My First Symptoms | Nicky's Follicular Lymphoma Story

[@Opx958r]

I've been in remission from follicular non-hodgkins lymphoma for 20 years now.

[@Tabarnac2010]

I'm 2 years in remission, i wish i could make it 20 years without relapsing, I was wondering if you have any specific diet, or any specific advice to avoid a relapse?

[@hotsauce256]

@@Tabarnac2010 I'm a medical student in at a medical school program that heavily emphasizes holistic medical philosophy and therapies. Relating to diet, restricting sugar (processed foods, breads, dairy, soda, candy, etc.) is good to do. Cancer cells love sugar as a source of food and helps them to grow. Of course, ask your oncologist about this.

[@trishayamada807]

I’m sorry you are going through this, but I’m so happy you have people in your life to lean on. It really helps.

[@karmenmatevosyan1851]

Just diagnosed 48yrs old woman No fever no fatigue Just some night sweats which I thought was pre menopausal and lymph nodes on my neck but thought it was from recent tooth infection and extractions 3 Finally being in the medical field myself and scanning my neck for any change in size of my lymph nodes I decided myself to get a ct scan and then Petct which diagnosed my lymphoma

[@DavidBannister-k5l]

Hi Nicky Thank you for sharing your story I've just recently been diagnosed with Follicular lymphoma on the 9/11/23 I discovered a lump on my groin back in August 2023 your story was really interesting. Dave

[@SarahRodriguez-1619]

I’m so sorry that this happened to you and your family. We live in such an unfair world and it seems the best people get the worst of it. My heart breaks for you and your family. I’ve heard a lot of stories of people surviving incurable cancers and I pray your one of them 🙏🏻

[@SimonEarle-e1f]

Awesome video Nicky! Well done!

[@sallymccoy6286]

Thank you, Nicky for sharing your story. You give people with lymphoma hope to survive longer than what they thought. Advances in medical research are giving remission chances higher than in past years. Stay strong!!❤️💪🏾💪🏾🎗🔔🔔☣️🛐

[@xogissellexo]

I’m sorry it took so long for them to take it seriously & for them to diagnose you. 🥺 I was wondering when your friends parents told you to go back to the doctor was it because you had swollen lymph nodes in 2 areas? Or was it due to them feeling all of the lymph nodes in your neck? Having similar symptoms.😔 Wishing you all the healing, health, and peace in the world!🙏🏻🤍

[@gailbarejka77]

It is utterly ridiculous that this poor woman was given the run-around…months were wasted on a diagnosis that should have come in a matter of a couple weeks.. terrible health care.. as soon as lumps were found, a biopsy should have been nearly immediate.. completely ridiculous!

[@alexandragrace8164]

I agree, and I know how she feels. I’m in Sydney and my doctor thinks I have lymphoma (my GP) but he can’t get me in to see a haematologist. They all say, sure we will see you in six months! My doctor is at the point of calling old colleagues asking for favours. 😢

[@dandelions2414]

Thanks for sharing. Just wandering if the blood tests were normal that you had?

[@nickygreenhalgh2099]

Yes the blood tests were all within range. He did say he would only contact me if they weren’t. Thanks for watching 😊

[@prakashojha3023]

​​@@nickygreenhalgh2099which test you done Complete blood count ?

[@Stacey-ho7te]

I was diagnosed last June 2023, nothing to begin with just that overwhelming fatigue.:(

[@penelope9649]

How did they discover it?

[@Stacey-ho7te]

I had stomach issues involving digestion, nothing huge but present, they sent me for CT finally and the lymph nodes in my abdomen were very enlarged, second CT two months later, still enlarged. Sent to oncologist after that.

[@sueu6263]

I would be really upset that the doctor didn’t even call you back! This whole thing made me see how uninformed people can be, especially thinking that doctors are “gods”. ( and I say this with no reservations since my son is a doctor).

[@nickygreenhalgh2099]

All my blood results were within range. Unfortunately there aren’t really any blood markers for this type of cancer. He did say to me that he would only call if there was anything abnormal in the results. Thanks for watching 😊

[@anoodono1841]

Well said. We hve t look out for ourselves at all times

[@bagscomeandbagsgo2343]

​@@nickygreenhalgh2099 - Please answer the question above in this thread. I think the person asking would appreciate it. Thanks.

[@susanbrown2909]

Yeah doctors havnt the same standards or take pride in their jobs anymore,they rely on too many science tests ,instead actually trying to work out what’s wrong with a person .

[@carolapostolos8929]

Thank you for sharing your story

[@shiprasarkar6123]

In my childhood I was operated for two hard swelled lymph nodes in my neck, those got removed then several small lumps kept coming near my ground area, neck behind ear, but I never got them checked and now I am 35...

[@sueu6263]

If my doctor told me to “google” something I would definitely not use him EVER AGAIN!! . Ridiculous !

[@nickygreenhalgh2099]

I found that strange as well. I think in his own way he was trying to reassure me about it not being aggressive. Thanks for watching 😊

[@FrankDomuch-rf7uo]

marijuana cures cancer rick simpson cured himself and dozens of other people by growing his own marijuana and concentrating it into a liquid, it got rid of his skin cancer in less than a week. The government has evidence since the 1970's from medical studies showing marijuana turns tumors BACK INTO NORMAL CELLS. You need to eat it, they sell gummies, liquid under the tongue drops (called tinctures), some places sell it in pure liquid form (distillate), they are affordable and really work make sure you research your brand it is a market full of liars and cheats selling $30 bags of sugar But hey they need the money to survive can't blame them entirely Also every circle has a creator God is real :)

[@KB-ql8cx]

Every doctor I’ve ever seen has said: do not use Dr. Google. That’s nuts

[@bagscomeandbagsgo2343]

Agreed!

[@Behappy62]

My doctor said he was going to Google something himself

[@steveking6832]

cancer doesnt discriminate between healthy and unhealthy people...8 years ago i lost my best mate/ gym buddy, one of the fittest people i know to lymphoma he was only 28 at the time. get checked and self advocate please

[@RustyShakleford1]

How quickly did he go down??

[@RustyShakleford1]

I'm sorry for your loss, I'm just curious how long he lived between diagnosis nd death? I think I might have it I'm 29

[@steveking6832]

@@RustyShakleford1 hey was diagnosed in february and died in november so 9 months

[@johannacox3267]

I work in the medical field and the ER does not make you get auths for MRI'S or any tests for that matter, they just do the tests and bill the insurance. On the other hand the Dr.s offices should of done any auths necessary. I've done precertification and there's codes involved that the average person wouldn't know, and clinicals are usually needed as well so the nurses can review the case to determine if tests would be covered or not. Something sounds off.

[@Gizmo72710]

In Australia you have to get insurance approval before you see any specialists, before tests, before treatments…it’s different when your Country provides your health Insurance!

[@Twotime1111]

I plan on going to the ER I have a lump in my right arm pit and small lumps going down about 6 inches away from my arm pit with pain. I plan on going to get that check. I hope you are doing much better now.

[@gsmpro7333]

I doubt that i have lymphoma so tomorrow is my pet scan pray for me please 😢

[@nataliehumphrey6892]

Are you ok?

[@finiavanamandresy5460]

How did it go? Hope you're fine

[@moriganna67ify]

I would of said okay but you need to learn about tact and being more due diligence! Unacceptable. You could go for him. I wish you the best. You are going to make it happen. 😊❤

[@nickygreenhalgh2099]

Thank you 😊 I think I was just too stunned at the time to say something.

[@moriganna67ify]

@@nickygreenhalgh2099 I was just tested with CT, X-Rays, Ultra Sounds and we found Lymph Nodes in my lung and stomache and side. It is so painful. I need to tell him, not asked, to listen when a patient speaks. It is ok but the pain in my lung when breathing is a concern. I don't know positively that it is Lymphatic Cancer. I am nauseated a lot, choking on my food or beverages, tired all the time. I also have Fibro and Nerve damage . I wanted to ask if you had that gut feeling that something is very wrong. At this point no biopsy but we are doing another CT to see if any grew. How can you tell? ❤

[@corinneallen6214]

Did the MRI, PET scan or CT show the cancer or was staging determined through the bone marrow? I'm having very similar symptoms and so far all my scans have not shown anything. Also, thank you for sharing your story! You are an amazing, strong woman!

[@nicoleh5529]

Same, I've had hard lymph nodes in my neck for a year and a half, fatigue, weight loss, and fevers (and a family history of lymphoma). Blood work was normal, CTs were normal, and because of those results, doctors refuse to give me a biopsy. So I'm curious to know if Nicky's first ultrasound was concerning, or whether it was the 2nd one that raised concerns. Nicky, you look so healthy and happy--glad to see you're doing great! Thanks for sharing your story & adding to the knowledge base

[@katiie7]

Get live blood cell analysis to see if you’re fighting a hidden infection like lyme etc. $90 out of pocket. Search your location & live blood cell analysis. It’s worth it. Everything an look perfect within ranges for blood work numbers but missed typically if long-standing since the body is always doing it’s best to adapt.

[@breezeh1127]

​@@nicoleh5529The ultrasound would show multiple lymph nodes that are unusual size and may lack a fatty helium. If something was wrong the next ultrasound would show an increase in size of those nodes or other lymp nodes appearing or some now lacking that helium. Do you also have anemia?..a very common thing among lymphatic cancers. Also have you have your thyroid checked. Sometimes the lymph nodes in your neck are reacting to a thyroid issue and causing similar symptoms to cancer..or could be thyroid cancer (very curable tho). I wouid advice routine ultrasounds to chart changes. If you are stil really concerned, push for the biopsy.

[@prakashojha3023]

​@@breezeh1127i am also suffering from lymph nodes swellon in lymph nodes but in my ultrasound sound report the size of lymph nodes is less than 1 cm and hilum is normal but report said non specific adenitis. And this adenitis doesn't normal and I feel 2 more lymph nodes. What I do

[@breezeh1127]

@@prakashojha3023 Unfortunately if they are 1cm or less it is a wait and watch. Do you have any other symptoms? If you have no others symptoms you should relax a bit and in a year do another ultrasound to see if they grow. If in the next ultrasound they don't grow, It is most lucky ok. Especially if you don't have any or don't development any other symtoms. Mine are over 2.5cm and growing. I have night sweats (for 2 years now and getting worse), intense itching (legs and back), nausea and bouts of extreme shortness of breath coupled with palpitations(to the point my cardiologist wanted to embedded another loop recorder). I see my PCM on the 28th and I am giving him the notes from my endo who wants a node removed and biopsies. (They are also unusual in appearance) I have waited 2 years for someone to say let's biopsy. Sometimes it is a wait. It can be scary, but enlarged lymph nodes alone is not as concerning, especially of they stay under 2cm.

[@adrianatenuta]

Have you ever heard of fasting and ketogenic diet related to cancer treatment. They might help

[@alexandragrace8164]

Apparently they are pseudoscience

[@rhodalindeman6752]

I'm waiting for results of cat scan to direct the next step. So very frightening waiting.prayers welcome

[@RustyShakleford1]

Have you been diagnosed yet? Praying for you. If you don't believe the results get a PET scan it will show

[@praguhbis]

Many years ago, when I was not an orphan like right now. I had severe pains on my rigth quadrant , would wake up in the middle of the night. I was in my 20s. During the health check sponsored by my then organization. It was found that I had something called adenomyomatosis. I had no idea about the disease and went to a GP who told it was a tumour. I remember the ground literally shifting beneath my ground. I mean literally you fall into an abyss. Only later with family members chipping in I found it was non-cancerous. What about now? How will I navigate when I have no one? I don't know.

[@TinasCrazyLife]

I have had a lump in my neck since 2014. Last ent said it was just water filled pocket. It'll go away. It's never gone away. It's bigger. It affects swallowing. I can't get into the new ent until Jan 2025

[@susiebilk9905]

Yes, it would be nice, if they just tell us!

[@maddyk8505]

This was such an incomplete story. Why do so many of these leave you hanging? what happened to her? how long in remission? what did the initial blood tests show etc?? ugh

[@ThePatientStory]

Nicky’s part 2 will be posted Sunday, April 30. To read her full story, you can find it here: www.thepatientstory.com/patient-stories/non-hodgkin-lymphoma/follicular-lymphoma/nickys-stage-4-follicular-lymphoma-story/ I hope this helps! Thank you for watching!

[@nickygreenhalgh2099]

Part 2 is coming. Thanks for watching 😊

[@mindeerosen644]

@@nickygreenhalgh2099 - look into Dr. Joe Dispenza work as well as reading Supernatural in conjunction with treatment.

[@leannetaylor4094]

@@nickygreenhalgh2099 hi I’m also from Australia (east coast) and also have Follicular Lymphoma that transformed. My story is in 2 recent videos with The Patient Story. I agree with the comment below re meditation. I got recommended to do Vedic meditation last July by my psychologist who had seen other clients get amazing healing outcomes through its practice. I meditate for 20 minutes twice a day. It is such a powerful form not only of relaxation and letting go, but of energy healing. No doubt you have found your strategies - I just wanted to share mine if you were looking. Wishing you all the best x

[@JP11]

The cure is rebounding

[@lindseysaunders1700]

Okay…but is she in remission now?

[@Daqsadailystories]

You not loss hair how its possible?

[@tanyadawnwalker3675]

🙏🏼❤️❤️🙌🏼

[@breezeh1127]

What your husband read that scared him..is that is is NOT curable. Symtoms are treatable to a point, but you will always have it until one day it takes your life. Follicular Lymphoma is a death sentence and Im very sorry. 😢 Depending on how slow grow8ng you can go years without severe symtoms and live a long time..or not. Its an unknown that only your own body decides.

[@pm2886]

It depends on your age when you get it. If you're 30 you're in trouble. If you're over 60, it probably won't make much difference to your lifespan.

[@stephengillman5087]

I find your comments so very negative, unhelpful and inappropriate , life in itself is terminal , I am living with a stage4b mantle cell lymphoma , the measure of a person is how one with adversity, remember cancer treatment is evolving all the time.

[@breezeh1127]

@@stephengillman5087 OK. My comment was not about you or to you. It was directly related to how her husband reacted and the why behind it. It is quite normal to react this way to terminal cancer. You have to remember we all are coming at this from our own perspective and experience. Yours is not the same as mine. I can acknowledge that..can you?

[@breezeh1127]

@@stephengillman5087 Also, You do not have follicular lymphoma (what this video and thread is referring to) so please do not tell me how to handle what you don't personally have or know. As an example 9f how different cancer and diagnosed can ve..My aunt with breast cancer had a much better and brighter outlook than my best friend with pancreatic cancer(who is now dead after only 9 months). There are reasons for those two very different outlooks and feelings. Don't invalidate MY feelings and experiences just because you haven't had the same. I am totally happy for you and your experience. Others like me..who have had different experiences and different diagnoses deserve our voices too. If this isn't your type of cancer and you don't like what I am saying or find it "negative or unhelpful " to you..scroll on. Nothing stopping you.

[@breezeh1127]

@@pm2886 My other comment got deleted. Not sure why. My answer was maybe. It deopends on how active you are at 60 or how far progressed it is by them. It's all in perspective and each situation is different.

[@DQ_Mine]

Such Awful doctors, putting her off.😊