Cancer Survivor Story: Colon Cancer (Lynch Syndrome) | Shannon Costello | The Patient Story

[@tammyslaughter9587]

Wow! You were fortunate they found it before it spread. After my colonoscopy I had a large mass in my colon and it turned out to be advanced stage 4 and had spread to my liver. I had to have a colon resection, an ileostomy bag, half my right liver removed plus gall bladder, a years worth of chemo and radiation. and ileostomy reversal. It was 18 months of pure hell but I am now considered cured from end stage colon cancer. Good luck!

[@ThePatientStory]

Tammy, what an incredible story! We are so glad to hear you are considered cured... if you're interested in becoming part of our community of voices, please fill this out: thepatientstory.typeform.com/to/OJfTUC (takes 2 to 4 minutes and helps us get to know you better). Either way, best wishes to you!

[@rosalynjohnson7414]

Tammy,thanks for letting others know that it's not easy,everyday it's fighting to live.And the hell you will endure going thru Chemo n Radiation with Surgery.I was misdiagnosed, but about time that it was notice almost 11mths has passed,I was stage 3 colon cancer.Im in remission I pray it stays that way!Only the Lord Grace and Mercy can keep me!

[@tammyslaughter9587]

Rosalyn Johnson Yes, you’re right, the Lord and His Grace has brought me through so much! It’s hard not to keep wondering and looking over your shoulder and thinking it might come back but I just tried to move forward and live life. It’s doesn’t change things or make it any better by worrying. It’s been six years and I’ve lived a full life, you can do it as well! Hang in there through God’s Grace you can get through anything! God bless you!

[@misty7899]

Tammy so happy that you had such a great outcome. Is there anything else you did or change to help other than the Chemo, Radiation, and surgery?

[@tammyslaughter9587]

@@misty7899 thank you, yes I did other things to integrate traditional with some holistic methods, to help my body withstand chemo and radiation.

[@juliehatchett6613]

I just found out in September that I have lynch syndrome. My mutation is PMS2. The way your stomach hurt scares me. I have them too. My stomach will hurt if I drink coffee. It never has hurt before. But when I eat my stomach will hurt so bad. I'm having a endoscopy and colonoscopy. My mom, my dad and my aunt died from cancer. My sister had colorectal cancer. That got it after 5 surgeries. Now she has stage 4 gastric cancer. She weighs 85 pounds. Thanks for sharing because it really helps. Finding out the cancer doctor and genetic counseling is overwhelming.

[@loriwright381]

My 16 yr old son was diagnosed with stage 4 it metastasized to liver. We found he had lynch syndrome as well. The drs immediately sent my 24 yr old daughter to be tested she too has lynch. I'll pray for you

[@ThePatientStory]

Lori, thinking of you and your children as you all go through this time - thank you for your prayers.

[@Hannahnana-nana89]

I hope you and your children are doing well and living a beautiful life.

[@janetbuder6066]

What a wonderful person you are. Very grounded, pragmatic. Good not to let Lynch get you down. Just live and save the attention to it at monitoring times, as you are. You have a great, long life to live. You are vigilant and that's how you can have control over this. You seem to have a great head on your shoulders! And you are blessed with a supportive husband and 2 kids. Thanks so much for sharing!

[@peterconnors1229]

How do I tell my story?? I’m stage 4 Lynch Syndrome 20 tumors. Lost my kidney... hip lol my spine has rods. But I’m kicking butt!!!

[@ThePatientStory]

Peter, we love your attitude! Please fill out our Intro Survey (thepatientstory.typeform.com/to/OJfTUC) and someone will be in touch soon with a response. Thanks!

[@peterconnors1229]

@@ThePatientStory oh I think I missed this. I’m pretty sick today from treatments. Bless you

[@peterconnors1229]

@@ThePatientStory the link doesn’t work 🤦‍♂️

[@hfm9834]

@@peterconnors1229 How are you doing now?

[@franz2697]

She is amazingly strong! May God continue to bless her ❤

[@Hannahnana-nana89]

All of you guys are amazing! Keep fighting and staying strong. You can all beat this! 😊

[@talkalotakaka]

I’m so glad I found your channel. Super calming !

[@ThePatientStory]

So glad you found us, too! ❤️

[@barbaraminto6709]

Sending ❤ and healing. Just found this channel . I so so hope you are ok. 🙌🏼😍

[@kathyerb3134]

Love your story Shannon. You are a strong, beautiful brave woman. I want to continue to follow your journey. My daughter was dx via genetics testing BRCA1 at age 35/36. She is just 37 now, having her ovaries removed a yr ago. Her youngest daughter age 4 yrs 8 mths is also dx. However oldest oldest child a girl and youngest have another very rare genetic disease which opens up another box of worms.

[@nahidkojury5131]

You are so beautiful and young! I wish you health and happiness for the rest of your life 🙏🏻🙏🏻🙏🏻

[@elisabettapaddon6470]

You such a beautiful strong loving women l soo happy you kicked ass l have kidney cancer ❤

[@ThePatientStory]

Elisabetta, we are thinking of you! ❤️

[@spazzout9456]

Pray this every day say heal me Lord and I will be healed save me Lord and I will be saved for it is you I give praise

[@michelledoliveira9299]

Blessings 💕

[@KatJ3st]

Denial ain't just a river in Egypt folks. Get checked out sooner than later. You quality of life depends on it.

[@danpickar9982]

I HAVE SOMTHING GOING ON IN MY. BEIIY I BEEN LAID UP I STILL DONT HAVE ANSWER YET HELP

[@betting4life948]

I had some bad stomach issues and things, and it turned out to be IBS and chronic gastritis

[@115dancingqueen]

Check out Dr Berg. Fast and starve the cancer of sugar and cards. Green juicing and keep diet

[@kathyerb3134]

Ask for endoscopy and colonoscopy

[@24carrotgold8]

Are chemo drugs "site specific"? Colon, breast, uterine, lung, etc?

[@chadwick283]

🙏🙏🙏

[@Paulina1best]

My grandmother had skin cancer at prior to her diagnosis with late stage colon cancer that they caught way too late it was due to OBG YN giving her a hysterectomy that the specialist believe is how this occurred but my family strongly believes the skin cancer situation with was probably what caused the spread in lead to her 4 stage colon cancer

[@Paulina1best]

She was only 60 I’ve had pre-cancerous polyps but they really haven’t checked me since then I also have nodules in my thyroid that nobody is addressing even though previous endocrinologist that moved said I should have it checked to see if any development of it enlarging and that is many years ago and by so I keep on going in protest but nobody is doing anything my primary one is biopsies done of notes in my neck and nodules in my neck sent me to the same surgeon that denied wanting to do it every time there’s something going on with my pituitary gland the endocrinologist is not doing their job said that’s problem for thee ENT an thee ENT says it’s the Endocrinologist problem lotta specialist of mine want me to dump different doctors vice a versa ones want me to go to a specialized hospital to deal with everything under one roof also concerns about my breast the mass tissue cyst getting bigger not resolving after two years or shrinking which the imaging boss of the whole imaging center was more concerned about it than the actual breast cancer surgeon that’s another issue that hasn’t been tagged tackled or dealt with in quite a long time due to other major life altering and possibly life-threatening issues that have developed on top of it all also mini hospitalization that I have per side of her right now considering I just don’t want to be continuously going to the hospital every time I have an issue!

[@Paulina1best]

I have rare diseases autoimmune diseases along with other health issues my cousin was diagnosed with MS supposedly he went to remission my twin sister was just recently diagnosed with MS I was told that my doctor wanted me to be diagnosed and have a spinal tap then he went back on it because of the story about my cousin having a bad experience so he does assume I would have the same lots of light down to one way that’s for sure still hanging strong no matter what

[@rtru9801]

@@Paulina1bestDid you ever get any answers

[@Paulina1best]

I was told it takes two years for colon polyps to develop from the hospital that is the one that everybody wants me to go under which hasn’t seen me since the G.I. that seen me locally really doesn’t do much knows the history of pre-cancerous polyps developing in record time when it usually takes up to two years for them to develop to begin with roughly is what I was told so still that’s in the back of my mind but he does have me going or referred to the main hospital for my liver said it’s related to my older immune but didn’t really agree with that lol it was something else didn’t really give them a full report that satisfied them that I was needed to see them the list goes on

[@Paulina1best]

I was having initially originally colonoscopies every two years fire outside top hospital then when I came back locally that kind of stuff happening

[@kathyerb3134]

You are getting bad info

[@carolyngarner8874]

I have lynch syndrome too.

[@genevievepawlak7203]

Shannon if your fini. growi ng your family I would have that hester.you will get rid of that risk Good luck

[@mark-t1i9t]

Thats 1 major mistake, justifying differing pains and making your your own assessments, get in and get checked instantly!

[@lindarose8668]

🙌for you’re complete healing ❤️‍🩹🙌in Jesus name amen

[@anothercampervanchannel]

What's with the talking picture? Why not show yourself? Don't like this 😕

[@ThePatientStory]

Totally understand! I was trying to get the format down. The more recent videos have both people (me and my guest) on the screen. Thanks for the feedback! -Stephanie

[@anothercampervanchannel]

@@ThePatientStory Hi Stephanie, thanks for replying. Yes, I saw afterwards that your videos had you on-much better! 😊👍

[@ThePatientStory]

So glad! Again, thanks for sharing your perspective. Only want to make this channel and our main platform (thepatientstory.com) better. Feedback always welcome! Have a wonderful day :). -Stephanie

[@godseeseverything_1]

I'm sorry, she really is hard to follow. . what's with the giggling?

[@lelerussell3623]

Poor young lady is just nervous and very young to go through cancer and to be told she has Lynch, so telling her story must be really hard for her - or to even think straight. I know I shake when I have to talk to a crowd. She did a great job and it is good of her to share her story. 👍