Things you should know before stoma surgery. Can stoma surgery cause Erectile Dysfunction? YES.

[@rainstormz5743]

I'm so glad I found your channel. I'm recently diagnosed with colorectal cancer and have been told by my medical team there's a very high chance I will end up with a stoma due to how low down my cancer is. You have pretty much covered every single question and worry I have had so far in your videos. Thank you!

[@sydneystoma385]

Hi Rainstorm. I am so pleased I have managed to answer your questions. If there is anything else you would like you know please feel free to ask.

[@gollumcat777]

You got this, Rainstorm! Best of luck on your journey! My husband's cancer was very low as well... and he just came home from the hospital after his stoma surgery, and tho he has to heal... he already feels miles better than he did when he walked into the hospital. You'll be a super star just like him!

[@ellenconwayvietri7954]

Hi Chris. Your authenticity and willingness to wing it to address this issue is healing. I’ve had breast cancer surgery and intense colorectal surgery. My husband and I ended up divorced after being together 40 yrs- even though he had ulcerative colitis since we were in our late 20s. He had dysfunction since then. Anyways, this was merely for background not a pity party. I’m working to get my courage up to become‘eligible’ which is frightening. I don’t believe I’ll have dysfunction issues yet it’s the reaction of my potential partner that terrifies me. The scars and stoma along with its inability to control specifically. My surgeon also didn’t discuss this either. (Nor did I ask so not placing the burden on him. ) it’s a relief to hear the practical nature of our ‘wellness’ that’s refreshing. Thank you for the courage!!

[@michellethompson1415]

Huge respect you. There is no shame in it whatsoever. My Dad had prostrate cancer and I used to talk to him openly about the subject and what a great relationship with a parent for him to tell me of his worries, concerns etc with it. Yes I agree from what Dad said a whole tablet is too much for most people. Great respect to you for being open and honest as its just part of life. On the other hand yes I'm female and just had a Urostomy so totally opposite to you 😄 I've been searching for experiences etc but I've found that there isn't much out there for Urostomy advice although I use the same products. I just wanted to say that your videos r.e the 3 in 1 spray have been really informative, natural and down to earth. Wishing you and Sydney well. Mine is called Gorgie 💙

[@sydneystoma385]

Hi Michelle, thank you for watching and leaving a great comment. That's fantastic you have that relationship with your Dad. I have always been open and honest with my kids and they will discuss anything with me. My knowledge of urostomy is limited which is why I wouldn't do videos about it. I agree there is not a huge amount out there about urostomy. Maybe you should start a KZbin channel 😁. Thanks again for watching and best wishes to you and Gorgie 💙

[@michellethompson1415]

@sydneystoma385 Thank you for replying it means alot. I've been missing recently as I became poorly and the Dr's automatically thought " oh its the Stoma " in a good way it's not ( all is good on that front including the 3 in 1 spray, fantastic and it's changed my bag changes to half the time and half the products ) its my Gallbladder so waiting on surgery again. I hope you are well and thank you for giving me confidence to accept the new me 💙

[@gollumcat777]

I found your channel recently after having found out that my husband would have to have stoma surgery. I have found all of your videos reassuring, and informative. I want to thank you for having the courage to share your story the way you do. My husband just came home from the hospital today, and he is doing fantastic! I wasn't concerned about his possible E.D. for my own sake... but for his, and the feelings you described in this video about his "manliness" etc.. being affected. We don't know yet if he will have this issue or not... but now I know, that if the time comes, that he has options for dealing with it. Again...what you do is a gift to all of us, so thank you!... all my respect, and kind regards ;)

[@sydneystoma385]

Hi. Thank you for watching and leaving such a lovely comment. It means so much to me when people leave such lovely comments. I makes me happy to know my videos are helping people, that's the reason I do the channel. I wish your husband all the best and I am glad to hear he is doing well. If there is anything you would like to know that I haven't covered please ask.

[@andrewbradbury8527]

Excellent video... nothing to be embarrassed about... missed seeing you, you're looking really good Sydney. I have problems, never tried tablets...yet. Thanks for that...All the best

[@sydneystoma385]

Hi Andrew. Thanks for watching and leaving a comment. The tablets certainly work! 😄Hope you are well.

[@ChrisGascoigne1]

Huge respect for you for talking about this subject mate, no shame in it at all - I can completely understand why this would've made you feel like less of a man. Luckily for me I didn't have this issue following stoma surgery, but like you, it wasn't mentioned to me in the slightest that it would be a potential side effect of the op; that's really irresponsible of them in my opinion.

[@sydneystoma385]

Hi Chris. Good to hear from you. I haven't seen you post anything for a long while so I hope you are ok. Yes I believe it is irresponsible of them. I am not looking to take formal action but I will ask the stoma team why this was never discussed before surgery.

[@janwerner2248]

I very much enjoy your videos. You are so candid!! I’m disappointed that I haven’t found the skin spray you talked about, as that has been my deal and leaking as I also developed a hernia. WHOOPIE, right? But again you are really good and keep UP the good work🤓😂

[@sydneystoma385]

Thank you Jan. Do you mean the 3 in 1 spray? Are you in the UK. Respond Healthcare produce the spray and it can be obtained on your prescription regardless of who your supplier is. Sorry to hear you have developed a hernia. Yes I am very candid, I just like to be honest and sometimes being candid adds humour to things aswell. I like to have a bit of humour in my videos. Thanks for watching and leaving a comment Jan.

[@michaelehrenberg8583]

Thank you for sharing your story.

[@sydneystoma385]

Thank you for watching. I hope it was useful.

[@kennyjoe7asa]

My wife will see the urologist on the 7th of July to determine how to remove a kidney stone. The last time they had to move her stoma and it took two surgeries.Needless to say she does not want to go through that again. I hope that you are doing well and life is good. Cheers my friend.

[@sydneystoma385]

Hey Kennyjoe it's great to hear from you. I hope she doesn't have to go through that again, that sounds like a really tough time. If there is anything I can help with mate you can message me on Instagram as Sydney Stoma is on there. I was only thinking about you a few days ago and wondering how you are doing.

[@jgriffin282]

Thank you for this. My 40 year old son just had this surgery due to rectal cancer where the tumour had invaded the sphincter muscle. Married just 3 years. He was warned this was a possible side effect. I’m glad the viagra works. Good to know!

[@sydneystoma385]

Hi. Thanks for watching and leaving a comment. Good to hear he was warned.

[@Gav240378]

👏 Fantastic video, love the honesty. I’m already fascinated with how well you cope with your challenges, and then you find even more courage to help others. Hope to catch up with you soon 🙌

[@sydneystoma385]

Hi Gavin. Thanks for watching and leaving a comment. Helping others helps me. I enjoy helping others.

[@stephenheliodor776]

Break the Viagra into quarters in advance.........you can store the broken up tablet in a air tight contact lens case ready for ''action'' .Contact Lens cases can be bought for a few pounds or scrounged from a wearer. They should be the deep type used for soft lenses and new/unused . As long as the cap(s) is secure the broken up tablets remain useable and fresh . I speak from experience !! Good Luck - you are wonderfully open and frank about a subject that too many are fearful to explain.

[@sydneystoma385]

Thank you for watching and leaving a comment with some great advice. Sorry for the delay in responding.

[@ebrena1876]

I just love your sense of humour and you are just "so real" You give me belly laughs . not the topic your honest perspective of serious topics but your easy sense of humour is fantastic you are great/ Just keep "going for it" It works, love it.

[@sydneystoma385]

Oh thank you!

[@sydneystoma385]

I do like to use humour, Its a serious topic but it doesn't have to be delivered in a serious way all the time. Thank you for watching.

[@ebrena1876]

@@sydneystoma385 Well I know how serious my situation is, right now I have an overly active ileostomy that I pack around daily, it's heavy. I have a huge parastomal hernia I just had a CT scan on and am now pending an endoscope. It just can't come soon enough, it seems like it is dragging along and I worry something could happen between the wait and surgery. This thing is affecting my mobility so bad I am always in pain and feeling weak, but I have to laugh not at my situation it is not in the the least funny but just the whole situation blows me away some days. To see what can happen to your body in an instant and with Canada's terrible health care the waits are daunting and can make you feel so irrelevant. But I do have a sense of humour over still. If I didn't I don't know what I would do. My friends give me credit and can't believe I can still see a bright side after all this but I know it will be taken care of soon, I have an excellent female surgeon who did my emergency ileo I have total faith in. I never had crohns or colitis I had a bowel stroke just out of the blue went to stand up and collapsed and banged my head I was unconscious in the hospital for a week with ischemic inflammatory bowel then sepsis then COVID I was in hospital 6 weeks in the end but that time I did not receive an Ostomy. This happened Nov /21 but between then and Apr./22 my mobility was near nil I was weak, my blood pressure like 62/47 I was admitted to hospital by my GP who came out to my house to see me. That night the nurse did not put my bed rail up and I fell out of bed. I woke up 3 days later in ICU with a bag!! I was so shocked but on enough drugs I just thought "okay then" I was in hospital for 5 weeks in a private room. Between May when I got out and June /22 the colostomy kept prolapsing until 10" came out and I had to cut my flange off and back to ER with another emergency. It was this female surgeon who gave me a nice tidy ileo with little embroidery stitches. I was doing well with it until Nov/22 when I developed this hernia that is now a large uncomfortable scary hernia. I got it from coughing and sneezing. So now once i get my endo she will totally remove the hernia (which I guess means more bowel) I was hoping for a reversal but I have been told just how much bowel I have lost and I most likely will not get a reversal but she will remove the hernia and move my stoma a smaller stoma over to my left side. I will sleep better I know that because I am also going to be having shoulder replacement so I am lying on every sore spot on my body when I sleep and i don't sleep much. Sorry this is long but I wanted you to know I enjoy listening to your video's the way you explain it all in factual not medical terms I love it because I am very open about my situation no sugar coating. I am nervous about what the endo will find but ready for whatever it takes.

[@hellobuddy7849]

Appreciate the vid and the honesty! I wanted to know if the surgery affected your bladder function in any way at all?

[@sydneystoma385]

Hello. Thanks for watching. The only thing bladder wise is do seem to pee more often.

[@salman_653SS]

Hi Sydney, thanks for your valuable and helpful videos. I had my stoma surgery (colostomy) back in Aug 2021 due to colorectal cancer which was very low so entire rectum had to be removed and in that process there is a high chance veins which supply blood to the organ gets damaged or cut. I was not explained in detail about ED but that would not have changed my decision. I have this issue and unfortunately Viagra has not helped at all. Not tried any other options and don't know if there are any trusted and proven options out there. Waiting for an appointment with urologist for last 10 months. Thanks to you again and everyone who has contributed. if I can be of any help, please feel free to reach out.

[@markmapson4938]

Thank you for sharing, I thought I was the only one!

[@sydneystoma385]

Hi Mark. Thanks for watching. Sadly I think there will be many more of us aswell.

[@markmapson4938]

@@sydneystoma385 I have a learnt so much from your channel!

[@SmokinHaddock1]

Thanks for being so candid. I was warned before surgery. My surgery was carried out by robotics. In theory this reduces risk. In my case it has, but full function is taking time. Good to know there are options. Thanks

[@sydneystoma385]

Hi David. Thanks for watching and leaving a comment. Surgery by robotics! That sounds interesting and I would like to know more about that. Glad you are getting some function back.

[@SmokinHaddock1]

@@sydneystoma385 There was an interview on Radio 5 live today at about 11.30 all about our surgery and robots. I haven’t listened yet but my wife said it was good.

[@petercurrell9344]

I had a mild tummy ache and feeling low phoned the emergency doctor told me to see my doctor ten minutes later she phoned for ambulance had surgery that evening my biggest problem is with my right leg still a bit lazy it's been 9 weeks told not to drive for 8 weeks

[@sydneystoma385]

That's a long time to not have full function back. I would consider getting it checked out. I am sure it's something simple but just seems a little while that.

[@danielwells9033]

I was not told ED would most likely be a permanent result of my colorectal surgery. As part of needed resection outside of colon, the S3 nerve was severed causing bladder retention issues as well as ED for life. Unfortunately Viagra and Cialis have no effect whatsoever. I have not tried the Penile shot.

[@sydneystoma385]

Hi Daniel. Thanks for watching. Sorry to hear of another person not being told. With the bladder retention does that mean you have issues with bladder control? I have found since having my stoma I have to pee far more often than before.

[@jgriffin282]

Try MSM capsules for your psoriasis. It got rid of mine, but mine was very mild with small patches.

[@sydneystoma385]

Hi. Thank you for the recommendation

[@gedhicks2855]

Hi Chris, I had stoma surgery about 18 months ago when I was 57 and have also experienced ED. I also don’t recall being warned about this. Yes the viagra helps but have you noticed any natural improvement as time goes on ?

[@sydneystoma385]

Sadly I haven't noticed any natural improvement. Infact it seems worse at the moment!! 😃. Have you had any improvement?

[@gedhicks2855]

@@sydneystoma385 Hi Chris, sorry for taking so long to reply, no not really. 18 months after the operation some things have improved, but the ED seems to be a way of life now.

[@elainepickup2957]

Can you apply for attendance allowance, if you have this condition?

[@sydneystoma385]

I take it you mean having Crohn's and a Colostomy? I have never applied for any benefits. I have been extremely unwell over the years and on one occasion had nine months of work, then weeks off here and there, thankfully I have a very good employer and nothing has ever been an issue. I haven't had time off sick for a longtime now. When I have been home for long periods my wife has looked after me. I guess we could have claimed something, but we never did. So a long answer to your question and it doesn't really answer your question. 😄

[@elainepickup2957]

I was asking because I live on my own, and it would help me if I could pay for someone to care for me after the op.. I have since found out you have to be pensionable age to apply for it. And they don’t give you the benefit after you have the “bowels out”. As they deem you cured.

[@MSchipper]

@@elainepickup2957 That's ridiculous really... In the Netherlands we could get post-op care, just while we need it post-op. Meal service would be out of pocket, if cooking is an issue. But there would be a nurse coming round plus someone to do some cleaning. Could you appeal and ask for assistance to prevent a hernia or something?

[@goldust369]

❤

[@MrMrdukeboyz]

Hi Chris are your viagra tablets 50 mg or a 100mg?

[@sydneystoma385]

I believe they are a 100. They are prescribed and they are huge!

[@MrMrdukeboyz]

@@sydneystoma385 ok thank you mine where prescribed too. Mine are 50mg tho so yours double strength then I think i will try 1 see what happens 🙈 lol Hopefully mine work as good as they are the same 👍🏻😊

[@ryanlaffan7064]

Your surgeon should have warned you about this prior to the stoma surgery. Having your rectum removed comes with a risk of damaging the nerve that gives men elections

[@sydneystoma385]

Hi Ryan. Yes they should have told me. As I said in the video I wasn't told, however I would have still gone ahead. It's another reason why I did this video to raise awareness for men who are thinking of having this surgery. Thanks for watching and leaving a comment.

[@michelebreen1705]

Is it stoma surgery or the anus removed surgery

[@leandamobile]

what about women, ive recently had a bag put in so perhaps too soon but will i still be able to enjoy sex?

[@sydneystoma385]

Hi. Sorry for the delay in replying. I have not heard of woman not being able to enjoy sex as a result of stoma surgery.

[@robertpenfold1160]

Too slow