This is Michelle

[@annetter5676]

Hi Michelle, I wanted to share a little something about my niece. She was also born with EB. She will be turning 47 this year, she has 2 children that she gave birth to. She is a miracle!! She has suffered quite a lot with cancer which caused the amputation of her left shoulder and arm. She has had multiple issues with her throat closing up and not being able to breathe. Her remaining hand is fused as well as her feet. Don’t feel sorry for her she can drive and lives on her own. She is the strongest woman I know and I am so proud of her.

[@hamdieilish]

Wow God is amazing, please share her account

[@Matt92Machine]

My heart goes out to anyone who has to live with EB. I cannot even imagine.

[@emaan1502]

I have it thank u so much I am 11 I had it since I was 4🥺

[@ogashcheeksdubvee1315]

@@emaan1502 i have it to i have ebs i made my channel about it and other things like gaming and hula hoop dancing so anyone can see what its like being an adult with it. It sucked as a child but being accepted by society is even more difficult. Been forced to leave work early because i had a blood blister and a off duty police officer thought i had a contagious disease so made me leave for a day and was back the next day always keep proof and i thought i could fight it cause that discrimination of disabillity but nope

[@ogashcheeksdubvee1315]

Matt92 machine thank you we all appreciate it so much not alot of people seem to care wish more did i just want to be an adult without having to cover my skin so i dont discuss people and gross them out for the monster they only see me as

[@emaan1502]

@@ogashcheeksdubvee1315 oh my your so strong im only 12 with EB

[@emaan1502]

@꧁Alexander the praying mantis꧂ no lol i have eperdomilysis bullosa im not gonna show it because im insecure.

[@lonestarpatriot6675]

I have epidermolysis bullosa simplex localized to my feet and to the palms of my hands... I see someone like Michelle and im just blown away by her strength and attitude.... Michelle.... If you ever see this i want you to know two things.... 1... You are very beautiful! And 2.... You are my hero.... Your attitude and perseverance is an inspiration. Keep up the great work EB Research!

[@michellehall1058]

@LoneStar Patriot Thank you so much for your sweet words! I’m more excited now then ever before with the research being done not only for deb but simplex as well! It’s comments like yours that keep me motivated in all I do 💗 thank you!

[@noone-xc7ce]

I have eb.

[@senanadarevic1462]

I have the same as you on my feet and hands, but sometimes i can get even at the place where my bra ist or my underwear..

[@asavonienu4053]

@@michellehall1058 I pray that one day I'll have a good news that EB can be Cute.

[@victoriasamoilenco7697]

My doughter has eb simplex. How old are you. How was your cildhood? Can you have healthy children? I want to know more about your life. Becouse i want to know how my doughter's life will be.

[@tuebor1837]

Thank you very much for your work. I too have EB simplex localized in the hands and feet, and am fortunate enough to have successfully completed both the police and fire academies in spite of it. Keep defying the odds.

[@lazygatita]

I have EB Simplex too! It is throughout my body, particularly my hands, arms and legs, and some scaring of old wounds on other parts of my body, but I feel like us with EB Simplex can definitely take a little more than those with the other types. Congrats on your fire academy accomplishment! I'm just graduated with my BA and I'm trying to learn how to roller skate lol

[@KimberleyB]

This video was so well made and it taught me more about the diagnosis. I'll share it!

[@lilporsche6687]

GW Gardenwife i dont have eb all thpugh im as skinny as a person with eb yikes i should get that checked

[@ogashcheeksdubvee1315]

@@lilporsche6687 i have eb and you have a high metabolism so you shoukd be fine

[@kayonsmith7763]

I'm from Jamaica my foster daughter gave birth August of this year. The baby was born with no skin on three of her fingers, I was told that she has EB. After nine days her skin started breaking out with a lot of blister, everyday there's a new one. She is one month and 15 days, she currently in the hospital and it's getting worst. It is so sad to see her like that. We who were born healthy MUST give God thanks.

[@Historyprepares]

I have psoriasis, and worry about the implications it has on my health and I know it does damage to my body, and I complain...I will no longer complain but live my life to the fullest in honor of those suffering with EB. God Bless.

[@TmaadHMD]

What are the implications it poses on your health?

[@NewShockerGuy]

Wow.. this is hell. Props for being such a strong person. I can't even begin to imagine having EB.

[@wafflewithhorns1140]

.... Yeah. I have it but I'm used to it already

[@armyveteran1000]

Michelle, It was a pleasure and honor to meet you. Thank you for explaining what EB is and how it effects you. My heart and prayers go out to you and all those suffering with EB. Many more birthdays for you to celebrate. Stay Strong.

[@LADYVIKING05]

MY FRIEND’S DAUGHTER WAS BORN WITH EB. SHE STAYED IN THE HOSPITAL FOR ABOUT 8 MONTHS. SHE PASSED AWAY ON FEB. 3, 2020. SHE WAS ALMOST 13 MONTHS OLD. R.I.P. ANAYA BARTHELEMY!!! 🦋

[@tracccy90]

Since KZbin killed comments on @specialbooksbyspecialkids. I'm going to say it here. The recent video of the little boy with EB made me cry and my heart melt. His eyes! What a beautiful family. I hope they find a cure.

[@ellenl.5581]

There are billionaires all over the place these days. Why are they not funding these tests and trials? They could hire a mutual assistance group to keep them from being harassed.

[@oof-wx2xr]

Hammer Candy because they don't care

[@PsychoGoRound]

Ellen DeGeneres should invite Michelle to be on her show to raise awareness of Epidermolysis bullosa.

[@HDSpuerstar]

Most of the bi/milionaires in the world are philantropists who are engaged into some kind of cause and invest a lot of their money into it. You just don't know 'cause they're either not public personalities or simply don't talk too much about it. Like, for instance, around 90% of hollywood actors do so. It simply there's not only EB that has no cure now-a-days. There's TONS of mortal diseases, even more aggressive than EB (like world-known cancer) that need research and funds.

[@sophie0888]

Hammer Candy Instead of telling people to go fund, why don’t you go and do it yourself. People always leave funding for millionaires, but they don’t do it themselves.

[@HDSpuerstar]

@@samanthacartwright3407 I bet you also believe the earth is flat. Right?

[@shostycellist]

Bless you all for your work. I'll be donating money. If everyone who watched this video gave $20, they'd have almost one million dollars.

[@tgwallie6509]

I have peripheral neuropathy, back pain, gastritis, tmj, neck pain Lactose intolerance and I’m always in pain. Props to her keep on striving

[@liamortiz1966]

I have EB on my feet and it makes life so difficult work school and anything else is different for me, i hope they can make this work for everyone and my heart goes our to those who have it all over their body bc its terrible

[@lashawnablanton4649]

Thank you for sharing. This was very informative. I am praying for EB patients and the research. Happy birthday Michelle 31'st bday in a few days. God bless!

[@PetiteNanou]

This is really hell. So much pain and blood everyday... I feel lucky to have this body, even though I have disliked it for years.

[@emaan1502]

Yes but I can't do nothing about it I have to live with it I have epidermolysis bullosa😖

[@esther-er3jx]

She’s so gorgeous

[@SN-mw7hp]

esther Really beautiful person, with such an amazing smile. I hope she lives and stays happy!

[@jennhoff03]

I bet a cure would also benefit Ehlers-Danlos sufferers like me. It's also a collagen disorder.

[@karismatikkween08]

Will read up on that just because of this comment. May God heal and comfort you

[@jennhoff03]

@@karismatikkween08 Well, thanks! It's super under-diagosed by doctors, so having people know about it is super important! Thanks!

[@claireawtrey7072]

Having EB Simplex is hard enough for me I cannot imagine how strong this woman is. Clinical studies need to be done 👏

[@BenjaminBox]

How does anyone afford this in the US?

[@website55]

Hello Michelle. I love the video. This is Christopher Gatton and we’ve spoken on FB. I have RDEB also and I am 42. I was born in 1979 and my identical twin brother died at the average age most EB patients die, 30. I’ve been extremely lucky. I have had Squamous Cell Carcinoma twice and have had 4 amputation surgeries to rid of the cancer. I hope to talk with you and share life experiences and compare stories. My FB page can be found by searching for Christopher Gatton.

[@emilywiebel3238]

She’s amazing strong and she has a team of amazing medical professionals fighting with her.

[@blesshiscottonsocks]

Amazingly well done video x

[@sam.autism]

This video is so positive I love it! I hope all is well!!

[@CL-we8tn]

Johnny Kennedy, you are not forgotten.

[@christysailor3879]

Where do they get these statistics...I Know someone nearing 80 with it

[@FatimaParveen-w2x]

I have eb simplex and I m living my life normal.

[@glamtv4985]

We should always be thankful that we are notgoing through this pain

[@CL-we8tn]

This is when you have money. No money, nothing gets done but send patient home with band aids.

[@TheMcKenzieHaus]

I have a baby cousin - 4 month old with herlitz Eb. The worst of them all and seeing Michelle with all her hair made me feel envy. I wasn’t expecting that feeling. Our baby cousin is scheduled to be discharged and be sent to hospice

[@Nimbus849]

Wow! She looks amazingly healthy.

[@tk5676]

I am 47 and i am still alive 🌞

[@wafflewithhorns1140]

You made me feel better...

[@pixelstudio3700]

❤️❤️❤️ From Philippines

[@bokoachumi8290]

May God help you.

[@brandonc5965]

Whar chemicals or drugs are doctors giving people thats causing this honestly

[@UserUser-oy8ch]

sounds like " this is arrested development"

[@zeeshankhan-dd6do]

my born baby suffering from EB she is just 20 days old

[@umamsanjeeda9433]

I have eb too

[@umamsanjeeda9433]

Ok i m also in india

[@shresthasajan2935]

How is your baby now zeeshan

[@jimmyt5690]

Awesome

[@MeganOliveri]

Okay hi hello what the heck? To the director, editor, and film crew... this is a genius. This was so informative and laid out in such a consumable format. Also, Michelle you’re a queen. Keep killing it!

[@pixelstudio3700]

This research is better than space exploration

[@AleeshaQureshi-v5t]

My daughter suffering from eb😢

[@JD-ml7cg]

Can someone share this to Jeff Besos

[@lz1155]

Bleach baths? Did I hear that right? I am speechless.

[@commonsenselucy5697]

Yes, very common form of bathing to get rid of bacteria. Of course, the bleach is "DILUTED." You don't just jump in straight bleach. You know, when you get in a swimming pool, there is bleach in that water, and also some public water. But, it's a little "extra bleach." When I worked in a nursing home, the nurse I was friendly with told me about them. She said, "many of the nurses would go home, and jump in a bleach bath as a precaution for being around sick people." It's not so outrageous as you think.

[@littlelife9362]

Finally that girl live or not

[@scumfvkk7310]

She's totally cute :3

[@Tricktocreate789]

Is she alive

[@Λυκάων]

She is a beauty, a fragile Elf I hope they find a cure or treatment for EB

[@elchinitofeliz1699]

Is she still alive?

[@michellehall1058]

I am thanks lol 🙌

[@shresthasajan2935]

Michelle can i talk wid you please

[@elchinitofeliz1699]

@@michellehall1058 are you actually her?

[@thomasplouffe1363]

her's is somehow not as severe as most, idk how

[@volz519]

How is squamous cell carcinoma '100% fatal'? It's almost always curable...

[@MZ_83]

I think what they want to say is that for someone suffering from EB it's 100% fatal.

[@elchinitofeliz1699]

How an idiot

[@westend273]

wonder if someone with Epidermolysis Bullosa can be treated with monistat and eat fresh garlic everyday ,Garlic Chopped up and swallowed with water so it doesn’t burn the mouth as much

[@Rattlehead7211]

Fucking what?

[@marieked]

That won’t solve the GENETIC problem they have.

[@hamdieilish]

They can't even eat