This isn't fair! | Cystic Fibrosis vlog

[@AdzHunts]

Great snacks and awesome prezzies!! Xx

[@CraigC20]

Massive hugs you muggle, I think you are definitely right it’s a catch 22 situation but now you come to mention it surely like you say your palliative care team could be doing something atleast for you, it is there job after all, think your you can break the infection cycle it’ll stabilise, it’s just wether that’s going to require hospital intervention but then on the other hand what can really be done in hospital that already can’t be done at home, you’ve the ivs you’ve got the oxygen, you just need shot of the winter germ, 🦠 but honestly Jet, so proud of you for everything your going through at the minute, the whole GC are here with you when you need us ❤, get more rest xx

[@Inbetweentwolungs]

Sorry I forgot to change the Sunday to Saturday toward the end 😂 I’m tired.

[@CraigC20]

I think after this week it can be forgiven 😅

[@toploaded2078]

🫂

[@nuggetandem]

I wanted to ask if the UK has flu anti virals? I know everyone is different and everything but just wanted to mention that. Also I know it depends on your team but I know a lot of people can run electrolytes through their pump. But it's either make with sterlie water or certain brands. I also realise this is already probably too late. And I'm not sure about your palliative care team. But when my dog had major surgery they gave me a once off dose of subcut painkillers if he needed to make him comfortable. Can they do something similar?