#ThisIsME

Fiona shares her experiences with M.E. and the stigma that still surrounds it.
Follow us on Instagram and Twitter @ukthisisme.
Please watch in HD.
Music by Purple Planet and Bensound.

[@colleensteckel616]

Thank you for sharing your story. ME really does affect the whole family. You are not alone. We deserve proper recognition and proper care.

[@peterbennett4663]

Bless you Fiona and thank you for doing this on behalf of ME sufferers everywhere.

[@yourachingart_m.e1045]

Thank you for sharing, and thank you for this video. This was very emotional to watch but is what so many of us are going through. x

[@colettearagones7721]

Thank you for your bravery in sharing this and for your willingness, in spite if the inevitable crash. I too am a sufferer --16 years and increasingly worsening.

[@SharonMurgatroyd-Gail]

I want to first of all thank you so very much for sharing, Fiona., as you explained it so well. .ME is such a devastating illness. Your story sounds very similar to mine..mine was induced by a virus, I am also a nurse , and was under extreme pressure for quite a few years prior.[ I have had ME for 20 years. ] I do however want to offer you hope.. I think hope is essential.I have improved from completely bedbound to being able to go out a few times a week, for short periods of time[I also use an electric wheelchair] I do, however, know that we are all different. A treatment can not come soon enough! Again, thank you so much.. please take care, and sending you big hugs.

[@naturenymph1]

Thank you for sharing! Missing from my life for 9 years.

[@beverlyreeves9773]

truly a devastating disability.....the grief.....seems endless. all the loss...and more loss....guilt..depression, it becomes, as you say, about energy...where to find it, when it comes, when it doesn't come. i can only send you love and the feeling of connection i have with you

[@justifiedbyfaith6511]

I also have this awful illness. Thank you for sharing .

[@domsa_]

sending you much gratitude, Fiona, for sharing your story. I do hope at some point things can improve for you.

[@hopefoundinm.e.4550]

Bless you Fiona for sharing your story. I can relate to all of it. I hope you didn't suffer too much payback from talking about it. xxx

[@leondevries478]

Never ever give up Fiona, it’s not in your head, please don’t feel guilty doesn’t help. Best to you from a very fatigued man from Holland