Topical Steroid Withdrawal | 56 Months Update | Eczema Awareness

It's been an immensely tough year and I think I'm finally seeing a rainbow after the storm.
#IAmBeeZee #TopicalSteroidWithdrawal #EczemaAwareness

[@jojowan6605]

Zainab, I’ve never commented before, but I came across your very first TSW video back in 2019. Watching your videos convinced me to go through with my TSW as you were the only channel to consistently document your progress month by month. I remember how candid you always were and never afraid to be all kinds of vulnerable; I felt like you were always speaking to me personally, as if you were right there in my bedroom and kept thinking how bloody brave you were to take the time to make a video, edit and upload onto KZbin when I was too scared to even leave the house!! You have gone through a really really challenging 2021, but you are SO amazing and diamond strong. I’m so glad you popped back up again and wanted to let you know how much inspiration and comfort you have brought me (and so so many others I’m sure!). I hope you catch a break in your skin soon XXX

[@iambeezee]

Thank you so much❤️ I honestly love comments like this so much because I just know that even when I'm having a bad day, I'm helping to make someone else's day easier

[@letskeepitmoving]

I’m so sorry. You had to go through TSW again. My heart is hurting- you are so strong and you are doing the best you can. I wish I can give you a big hug. You are so honest and I love you for being so vulnerable and sharing your life. I appreciate you and I totally get you ❤❤❤❤

[@sanimefreak2]

I’m going through a really terrible flare up right now that keeps me in bed. I’ve been showering like once a week because of how anxious and painful showering is for me right now. I’ve also been crying and feeling bad for myself a lot so thank you for posting this. I was wondering about you a couple of days ago too cause your videos make me feel like I’m not alone. I hope one day all of us who suffer from this can feel comfortable in our skin but until then im glad we’re not alone and im grateful for people like you who post your experience online to show that we can get through it and to show awareness.

[@polychromicportal]

wished I could give you a hug. I know how difficult this is. I am 13 months in. Keep strong and. know that this time shall come to pass.

[@claregordon9318]

I'm so sorry you were thrown back into the thick of it Zainab. I've been watching your journey since I started my TSW 2.5 years ago and I really admire all your strength and I'm glad that you're finally starting to feel a bit better again. Being forced to take steroids at some point is literally my worst nightmare so I really feel for you.

[@iambeezee]

Literally the worst thing! And also my fear of not being able to care for my baby because of my eczema.... the irony that it was caused by being forced to take steroids is just a kick in the teeth aswell. But like all things it's temporary. I'm getting better and that's all that matters! Thanks for your kind words and support ❤️

[@Susanvo2006]

I just want to let you know you are strong and beautiful. Thank you for sharing your journey. I’ve been following you for years and I can honestly say if it wasn’t for you, I would feel so alone in how TSW has affected me. Thank you for sharing your journey. I can only imagine the strength both physically and mentally it takes, so lease understand you are appreciated and loved. Together we will fight through this and have 100% healed skin. ❤️❤️

[@iambeezee]

Thank you ❤️

[@FiersFemme]

I totally understand the bird baths, that’s all I did for 5 months. As I got better I implemented dry brushing, I lost all my hair. I shaved it all off. I’m still doing bird baths but I’m hoping I can get in the shower maybe next month. Crossing fingers. This illness definitely makes you have ptsd.💕

[@iambeezee]

It's only very recently ivd started enjoying baths again! It will come for you. Bird baths definitely get the job done but keep anxiety low 👌🏾

[@yasminafenyo5498]

I’ve been following your journey since 2020 and I’m so happy that you posted a video today, because I was feeling disgusted about my appearance due to my TSW journey. I love that you’re able to articulate how going through TSW affects your mental and emotional state of mind when I can’t put it into words, you literally speak for me so thank you. 💕

[@lewismccann25]

youre honestly so strong man and an inspiration to loads.

[@FiersFemme]

I was wondering about you the other day. I’m glad to see you again. You got this and you inspired me to share my story as well. I’m praying for you. Sending love and light💕💕💕

[@iambeezee]

I've added your video to my watch list! Can't wait to watch ❤️

[@FiersFemme]

Thanks for the support. Have a beautiful day💗💕

[@asuranrocks]

you're so strong to be able to go through all that!! put that behind you now! no more steroid shots!

[@EnergySerenity]

Hi babes! So glad to see you 😊♥️🫶🏾 it seems as if we flare around the same time.. hang in there doll we are so strong! Congratulations on your beautiful family💕 I resonate with everything you said beloved! 💯

[@hanafelise8242]

Hi Zainab! I am so blessed by your videos! It was your videos that helped me thru when I went thru it the first go around. Meaning, when I was 3 months in on my first time, I broke down and begged for the steroid pills and shot. Got, it, and thought I could handle it, but nope, after the steroid pills and shot wore off, it was hell!!! I went thru it, and you were the first video that I came across and helped me thru! You gave me hope and then thru your videos, I came across other warriors and I will be 8 months in on 10/11/22. You talked about being depressed? I'm seeing a psychiatrist and programs right now because I wanted to end my life and just so damn tired of going thru this. I still can't sleep at night, I flare up and I itch ALL day and I'm in the house 24 hrs a day, 7 days a week. Very depressing. I'm jumping everywhere, but I am going thru depression and suicidal thoughts, and I am working on that. You are right tho, going thru TSW makes you very humble and start appreciating any little thing. I hope and pray to see the gym, to wear normal clothes and to go outside without bugs and flies attracking onto my skin because I ooze. I hope to be able to love something instead of thinking of itching all day and night. I hope to be lazy and sit on my couch without crying, itching and shedding all over the damn place. Thank you for sharing, you are an inspiration to me and others, I send Blessings, Love, Light and Healing to you and everyone who is going thru TSW!!! Blessings!

[@iambeezee]

Thank you for messaging. It really warms my heart when I hear my videos help people but it also hurts to hear you have to go this. Like you, I ran ti the doctors for pills when I started (luckily he didn't give them to me!) I 100% understand that feeling if desperation of just wanting to get through life with something to lessen the pain, itch and suffering.... but it just makes it worse! The rebound must have been awful for you. I will be 5 years on next month and although Italy seem like a long time to go through and not be 100% healed, I have had amazing periods of good skin, clear skin and times where I don't even need to think about my skin! It hasn't always been bad. This exact time last year was hell for me. I will never regret having my daughter but i hated what the pregnancy/doctors/birth did to my body. But right now, as I am typing this to you, I am on holiday with my boyfriend and daughter in Turkey. I am wearing what I want. I am swimming in the pool with my daughter. I am wearing make to go down for dinner in the evenings. I am not worried about my skin the sheets in the morning or not being able to get comfortableat night. I am showering without pain. You WILL get to that place you dream of! My arms are still scarred and textured but there's no pain, no flaking, no redness. I honestly still can't believe I'm here myself but time heals. You've seen the damage the steroids have done but every day away from them is a day closer to bring able to wear what you want and sleep peacefully at night. I'm glad you are able to see a therapist. I wish I had done last year but I'm just getting through it on my own way, by writing down my thoughts. Honestly wish you the best in everything xx

[@hanafelise8242]

@@iambeezee Coming from you telling me that I WILL GET thru this, gives me so much HOPE! Enjoy your holiday, knowing that you are wearing clothes, and enjoying your family brings joy in my heart! Blessings to you and your family!!

[@jaquelinechavez3216]

Thank you for posting your journey. You have truly impacted my life.I actually started my tsw journey because of you. A few years ago when I landed on your video out of desperation. I was 16 at the time and saw your one month tsw video. I went cold turkey off the steroids right after viewing your video. I have been watching them ever since. And a lot of the withdrawal symptoms were the same, aswell as the timing of them. Your videos gave me strength and helped me through my dark times with tsw. It's now been 5 years since then. I don't regret all the suffering I went through with tsw. My skin is almost completely clear. I mostly have my eczema on my hands and will sometimes move up to my arms when im under a lot of stress. Again this only ever happened because you were brave enough to record your journey, and give people like me strength. Thank you for all you've done, and I hope you continue to share your journey.

[@iambeezee]

❤❤❤❤❤❤

[@kirstieallerheiligen]

Zainab! This idea popped up in my feed. I am so proud of who you are and the mother that you are becoming. I know one day your daughter will tell you how proud she is of you and how much she appreciated you during this difficult season. You got this girl! Keep going and keep pushing, you got this! I am currently experiencing my share of tsw - I have had eczema my whole life, but got tsw about a little over a month ago. Praying and thinking of you!

[@kerrygrabowski4343]

I thank you for posting updates. I am a 52 year-old male who spent years taking a steroid cream for my face and now moving on from this. Its been 2 weeks since i last took my steroid cream and boy is my face a burning dry mess. I was told by my Dermatologist that this was expected and could get worse before it gets better. Today i called her because it was so out of control and she prescribed me Protopic 0.1 ointment 2 times a day. Im a little scared because i was told this could burn severely but should subside after a few uses. I also had a little addiction to the steroid cream but im not going back no matter what. Thank you again for your videos because it helped me realize how others are going through the same thing I've been.

[@NayasNook]

thank you soo much for this. i am currently 14 months postpartum and the tsw broke out right after he was born and we had a couple deaths in it family. this has been the hardest thing i've ever dealt with in life. you really took all of the words out of my mouth. it feels a little better knowing i'm not the only one that's dealt with this. sending love your way❤️

[@liyaah85]

You look beautiful 😍 and I don’t think it was depression, it’s just normal as a human to feel very sad after such a traumatic year. You’ve been through so much! You’re a very strong woman. I think it will completely go away with time, I heard multiple stories of people with steroid withdrawals who said they healed with time, it doesn’t last forever. But how much time it depends, some people it’s 5 years other it’s 8years. Just know you won’t have to suffer forever, it will go away at some point. I wish you the best 💕

[@jamietaylor1250]

I understand the not wanting to get out of bed. I had to question myself as to why my skin is making me feel this way but it was truly hard. I would sometimes have to pull my eye lids apart to separate them when waking up to open my eyes. Feeling the hard dry skin. It was a process that I had to go through in the mornings I think I was dreading. Feeling like I was being attacked by my own skin. I now know that I wasn’t alone feeling the way that I was. Praying for you.

[@iambeezee]

Thanks for your kind words. Glad that you understand you are not alone in this. It's comforting to know others can relate... even though I wish you didn't know the pain that is TSW!

[@sthembisomabaso8283]

So sorry you still going through TSW😔😔😔😔😔 I've been following your journey ever since I started experiencing it, I really hope you get better you have been through so much, I'm one month in I still have a long way to go and you are nearly at the finish line

[@Asish-oh5nd]

Love your all videos

[@meljones8664]

From someone who has been going through TSW for 4 years, I get it. I get the fear, the anxiety, the depression…the dark, dark days. I get the feeling of feeling inadequate as a partner, mother, daughter, woman, human. I haven’t even mentioned the pain. There are no words to describe the physical terror and torture of TSW, so I’m just going to leave it right there. Acknowledge your journey, acknowledge the strength it took you and continues to demand from you. Seek help (because that is not a sign of weakness but a sign of strength). You continue to go through something extremely traumatic. And to be honest this s#%t stays with you. The trauma just get buried waiting to resurface.

[@iambeezee]

Thank you so much for your comment. You have no idea how much it means to just have someone say "I understand" and "you are strong".... it's validating and sometimes that is all you need to keep going.

[@eristotle2380]

zee... what a trial you have gone through! i know how it feels to bring a new life into the world, and at the same time have very serious health and personal issues of your own. i also know how terrifying it can be to even imagine a relapse of a skin condition that doctors can't understand. but i'm so very happy to see you making your way to the other side of this ordeal. and you have the joy from your precious daughter to light your way. i admire your strength and honesty, and i hope that your health continues to improve. thanks for sharing! 😉

[@renewyourself4207]

Honestly happy to see you again, so timely! so sorry for your loss! Gosh u said a mouthful that I relate to so well ! Happy to hear someone understands the struggle. I mean down to the postpartum, the lack of cooking/eating, self neglect, feeling useless, stress & weight/hair loss etc. You inspire me to speak out about my own journey, its been about 8 years for my TSW & I wish I had documented it, right now I have a nasty flare ups on my toes & “normal”ones on my hands, waist, inner thighs, neck & upper lip im waiting to heal more..I often feel discouraged that not much has changed in what seems like a long timeframe. I strongly feel stress is a major factor as well as lack of energy to nurture myself & finances .. I blinked & had 3 kids & the same concerns U shared are why I stopped at 3 &I had them back to back & moved in between pregnancies state to state from Hawaii to the mainland YEARLY, I had to keep going back home where my mom, the only person who understands my battle with this, was to help me and my kids so it was intense. I would def recommend u get the hang of 1 first before making more, there are times I wished for death in my darkest days sorry to say, but I’m always thankful to make it through the storms. I have hope that I can get disciplined enough to heal this. My 2 yr old has my same skin & If I can heal us i can help others &be a light of hope, same way u are just by sharing your journey & bring more awareness so people can stop adding to our insecurity about how our skin looks. I’m so tired of hiding i cry . Lemme stop rambling lol but I think I’ll start a separate page dedicated to my tsw journey. All I have is this phone, if u have any recommendations on editing I’d love to hear it. Thanks for sharing you are inspiring

[@learninglifeways]

hello zainab have been following you since more than a year. i was care giver for my 8 yr old thru tsw and ur videos have helped me a lot very thankful to my Lord and you for tht. my sincere advice to you to look into the coimbra protocol , it helps. my wishes and prayers take care

[@user-yj7wn1lt8z]

I’ve just discovered your channel now and have been following you insta for not long and I’m SOOOO grateful for you!! I’m going to binge watch your videos when I can !! I’ve also got TSW and I’m 4 months postpartum and ALSO had an emergency C section !!! TSW KICKED MY BUTT AND DRAGGED ME IN THE DUST!!! The c section recovery took me 2 & 1/2 months to even walk straight or even turn to my side to sleep and my baby was also so good she’s just a baby but TSW was HORRIBLE I feel so heard 😭😭 I oozed so bad I was stiff and couldn’t even bend down to BF I cried everyday to my mum and it was sooooo horrible I was done And as gross as it sounds I didn’t shower for two months and literally just did bird baths because I was soooo scared and everything burnt, it got so bad that I had TSW flare on my incision !! I has a tough pregnancy and I’m put off EVEN more about ever getting pregnant; I’m so grateful for my baby but it was tough and as mums we should accept that we can love motherhood but still find it tough !!! I’m getting better and taking zinc and vitamin D and drinking alkaline nettle and turmeric tea... and my flares are far less .... if you could just make a hair routine whilst having tsw because I’m currently living in locs !! I miss the simple life and the simple things like wearing make up And not having burnt elephant skin and being able to regulate my temperature and being able to look people in the eye ... thank you so much for putting your self out there I feel less alone, and I’m not saying thing for the sake of it but you’re stunning and still beautiful ♥️♥️ We GOT THIS ♥️♥️

[@zoedailey4191]

I honestly want to email you and compare routines because I’ve been following your journey and we went through very similar amounts of stress. But you’re so strong sis and we will get through this.

[@huytranOsaurus]

Tsw warrior you’ve come so far. Keep it up

[@bronrupapera8626]

Sending healing vibes xx heal your body healing your spirit heal your heart xox ❤️♥️❤️✨✨✨✨

[@irene4879]

Please post a new video. I have been checking for your new video please. Hope you are well.

[@msama3123]

Zainab I've been following your journey dear, you are strong, you are beautiful. Surrender your life to Jesus Christ. He can stop this horrific cycle! He did it for me when I was going through TSW, I know exactly how you feel. You need to surrender sister this is way over your head. God bless you!

[@JanetIupeli]

May God bless and heal you

[@ola3rd]

Been following your journey for soo long and this is soo heartbreaking. You are seriously soo strong 🧡🧡🧡 and to stay strong throughout having a baby and everything, I literally can't even imagine. Your videos were a life saver for me when I was going through my TSW and its weird, I feel some guilt that my skin is now clear and I don't even know you in real life. To the point, I wonder if I even really had eczema at all, I wonder if I was misdiagnosed as a child. Anyways soo sorry to see how tough its been for you. Do you have any theories on why the extreme flare up started after you gave birth?? Would you consider going back on steroids temporarily and then stopping again?? Just to see if it would result in the same improvements as last time?

[@lauram2456]

I get you and so proud of you going through all this too and being strong. We will be ok. I have been using Hannah Silitoe Biotic, it seems like helping a lot. Not really trying many things anymore but this seems good. NMT is other thing that helps me heal my skin incredibly quick:) god bless you sister

[@theyyfamily7992]

Finally someone that I can relate too, it’s the worse experience ever

[@jeanhenly710]

Omg i really feel for u It's sounds like u have guilty feelings about being unable to look after your baby Pls forgive yourself u are ill Plenty of parents feel that way it's understandable but it's not rational I'm an ex nurse and ex Foster carer of newborns I had my first Foster child from 4 days to eleven months - when he was adopted I expected to feel absolutely gutted and I was My heart was broken what I did not expect to feel was guilt and it was terrible I believe u must give yourself a break you are a good person Sending u love to u and your family

[@iambeezee]

Thank you so much for your kind words ♥️

[@MsKitcloudkicker]

9:54 my thoughts exactly, a day not thinking or talking about eczema

[@iambeezee]

People just love to comment! It's just not needed lol

[@c.ggraygray4389]

@@iambeezee I know how you feel. I just started back doing dupixent injections. I had stopped taking it, and the eczema got worse , and with a vengeance. The dupixent injections and compound cream with eucerin cream and prescription strength hydrocortisone are the best things to help me with the dry itchy skin, and fingers cracking open and oozing, and bleeding and burning and hurting. It's awful. I have had severe allergies , and controlled asthma since I was a little girl; but I only developed eczema years ago in my forties. I hope and pray you feel better soon, and myself. Amen. Have a blessed night. Praying for all of God's people for comfort and cleansing and healing and protection in the name of Jesus Christ. Amen. 🙏🏼🙏🏼🙏🏼🙏🏽🙏🏿🙏🏿🙏🏾🙏🏼🙏🙏🙏🏻🙏🏼🙏🏻🙏🏼🙏🏿🤗🤗🤗🤗

[@MsKitcloudkicker]

@@c.ggraygray4389 , would you recommend dupixent? It was recommended to me

[@AntaGaye-l6n]

You don't need let yourself is happened sometime you know I get asthma myself I don't know I wake up one day and start itching itching stuff but I went to the hospital they give me some cream asthma cream ask my cream it seem to be helping a bit don't cry everything gonna be okay' one you don't cry I feel my skin is dry like yours and all night I'm very very hot I can't sleep ❤

[@fmbye2015]

Hay Zainab i been following you for a while now not sure if this would help you but it definitely helped me when i was going through the worst times of my TSW i used vasline and wound bandage i would put a large amount on the dry parts of my dry patch and wrap it using the bandage overnight it stopped the itching and helped ny mound heal very quick. Hope you can give it a try

[@xxmiranda01xx]

I understand you so good. I’m also having eczema and with the small flare ups I still use a little bit of steroids creme. As a teenager it was very bad. But little did I know back then. I had steroids creme and used it like 10 times a day to get rid of the burn and pain. But as a result, my index finger and parts on my hand and leg are looking “weird”. Damage from the creme. Now I’m 45 and still having flare ups on parts of my body. And I do reach to my steroids if the burn and pain stay for a couple of hours. But I only use it once then. I feel you when you said: I didn’t want to shower. It hurts so bad🙈 (Sorry if my english is bad, I’m from The Netherlands)

[@blessingknowseverything9609]

I’ll be praying for you Z

[@jayp123]

I had atopic/inflammation eczema on my face, so I tried an emollient called doublebase flare relief and it worked. Finally a cream which contains no steroids. Hopefully this works for other people and they can come off steroid creams.

[@manthatspeakstruth5402]

Need a class action law suit

[@iambeezee]

Couldn't agree more. But so many have tried and it just doesn't work! BUT on the plus side, steroid rebound/withdrawal is getting recognised so that's a start. www.gov.uk/guidance/topical-corticosteroids-and-withdrawal-reactions#topical-steroid-withdrawal-reactions

[@ImtheDoula]

I'm studying herbalism especially for a book I plan to write tailored to maternity. I also am trying to get over a skin flare up. I just started Lysine daily, steroid cream did nothing for me.

[@hellie_el]

❤️❤️❤️❤️❤️

[@marielemosca2559]

❤

[@mr.potatoplayz2607]

Im curious about tsw cause it started when i turned 1 year old and i just found out about tsw now that im 19 years old. Its really hard for me to get to school without getting noticed and asked whats wrong etc. It just kills my mood, makes me think about myself and insecure about it. I just wanna learn more about it since i stopped taking the things doctor recommend me cause its getting back and the medicines wont work so i need to get new ones.

[@odetteadde2548]

Hi girl. Congratulations. What supplements do you take? Do you exercise?

[@MissBogdeto]

Hello, how are you doing now? I am about 3 months pp and I am having such a hard time. My whole body is in tsw, total nightmare and pain. How long was the worst for you? I want to believe that soon I will feel better.

[@iambeezee]

Thanks for commenting... I'm almost 2 years post partum now and the first 6 months were hell. Honestly I don't know how I got past it. I'm doing well now enough that I can go out, wear make up when I want and not really let skin dominate my thoughts. I'm still not healed which is disheartening but compared to how i was 3 months post partum its honestly a miracle. Its a slow and draining process but ull get there

[@maireadrooney7642]

Hope you’re ok Zainab… how are things now? Have the symptoms eased any in the last few months?

[@iambeezee]

Hi! Thanks for checking in. Symptoms have eased but I'm still not 100%.... maybe 80% there? I feel so much better in myself though which I'm so grateful for. I want to make videos again but with a toddler I just dont have the time! I'm OK though, and here if you ever need to talk, just message x

[@ashleyignacio1659]

How are you doing now? I’m 2 months postpartum and have been experiencing flares which is likely due to stress and these hormones 😢

[@miguelteran-raful2718]

Also how do you treat your current Eczema? Please help. My baby is 6 months old and I don't want her dealing with TSW!

[@Asish-oh5nd]

Please tell me sister, it has been 7 months since I left the tsw and my hair has fallen a lot, how to get it back? Please tell me 😢😢😢 i am depressed

[@fatehahahmad8365]

Hi, Zainab. Pleaseee notice me. I wanna ask you. I literally undergo TSW in 1 month (November 2022). I had meet the dermatologist .. she give me the oral medication, Tablet Prednisolone and Tablet Methotrexate. So, I wanna ask you, is it okay I follow the medication prescription? or is it not okay? I am so confused. Pleasee help mee.

[@iambeezee]

I'm really sorry but i am not a doctor so i can't tell you what is right or wrong. Prednisone is a steroid and methotrexate is an immunosuppressive drug. I haven't taken either of them personally. Just do research on both and come to a decision if it's the right choice for you.

[@miguelteran-raful2718]

I have a question: my baby has eczema. How do you treat a baby 6 months old? Do you moisturize your skin with Vaseline?

[@iambeezee]

Hi! A baby can't tell you if a cream hurts or not but as someone with eczema, most creams on open eczema does sting! Ointments are less painful, things like vaseline or aquaphor which I personally like. Stay away from lotions as the high water content tends to sting. Lean towards thicker creams/ointments. N if the skin looks irritated leave it to dry out and heal over x

[@iambeezee]

Hi! A baby can't tell you if a cream hurts or not but as someone with eczema, most creams on open eczema does sting! Ointments are less painful, things like vaseline or aquaphor which I personally like. Stay away from lotions as the high water content tends to sting. Lean towards thicker creams/ointments. N if the skin looks irritated leave it to dry out and heal over x

[@mr.potatoplayz2607]

Does Cetaphil cleanser and aveeno lotion helps eczema?

[@iambeezee]

It can do! Everyone is different so what works for you might not work for me, but both products are geared towards dry/eczema prone skin

[@mr.potatoplayz2607]

@@iambeezee thank youu so muchh

[@deborahkopple6441]

We love you & your strength! Have you researched Dupixent? It literally saved my life-it actually helps heal your immune system- because as we know the majority of these flareups are the result of a severe auto immune condition.

[@zarazara26]

Sending you lots and lots of love and hugs Zainab. I have just come across your channel, you are incredibly strong and you should be so proud of yourself you have been a great mum to put your daughter first even though tsw was at its peak. I’m going through tsw 5 months in, worst time of my life but I’m healing. I have been taking ginger tea x3 a day and my skin is looking a lot better, keeping warm (I’m past the red syndrome stage) and do lots of exercise. You got this 🫶