Treatment of Nontuberculous Mycobacterial Infections (NTM)

[@rainfeedermusic]

I was found positive on culture for MAC but there's no susceptibility testing in my country. If i do not make it out alive and you are reading this comment, just pray for better global healthcare without boundaries and live your life to the fullest.

[@RustyShakleford1]

Did you make it? Praying for you love and healing

[@agnieszkaschulz2962]

How you doing now?

[@kathimeci5179]

So grateful to Dr Daley and NJH for making this video available. I've learned so much more from this than I learned from my provider and most importantly, I identified questions I need to ask my provider. Evidence that I need to help manage my healthcare.

[@seadubya649]

Thank you so much Dr. Daley! So glad you guys took on my wifes absessus case. Clint Windom

[@parampreetsingh1455]

Hows your wife bro

[@avi5928]

This is the most sensible video about NTM. This doctor has done such a great job explaining.

[@judithhodge9328]

Excellent explanation by Dr Daly. He is very knowledgeable and seems enthusiastic to help his patients.

[@kostoulamanesiotis5423]

Excellent experience knowledge I have learned alat thank you so much for all these Information and the pictures of exaray wy have to no what happened to ar basis I come back again 😀

[@jennifermars6874]

Thank you Dr Daley, this was very helpful. You are the best Dr. I have ever had. Kindest thanks.

[@RavishingSailor]

Thank you for this wonderful and very educational presentation. I will be incorporating what you just taught in my lecture on bronchiectasis for our PCCM fellows.

[@christinekaras1730]

Thanks for the video. The hospital did a bronch on me and sent my cultures to National Jewish for testing but never called me with the results and now I find them in the portal a year later and their pulmonary is refusing to see me and now I see that I have M. Fortuitum. At least I see that it's in the lower category of infectivity so maybe that's why they are not worried and not even following up but I continue to be symptomatic. I guess I'll have to find another pulmonary who is willing to work with your institution to see if I am still culturing this and if this is a problem for me. Unbelievable how some doctors can be so dismissive and I have traditional medicare so you'd think they would be willing to work with me since there are no referrals but nope, not interested.

[@wolke1955]

Send you best wishes from Germany 🙏🍀 Tomorrow June 4/2024 I will find out what kind of Mycobacteria I have. I'm 69 and afraid, because they ate already a whole in my right lung 😢

[@harrietoneil3911]

Thank you for the presentation. While informative, one crucial question remains. How does one know where to live to avoid the contaminants that you're susceptible to?

[@doradeffenbaugh6363]

I have MAC.. My doctor is doing well with mine. First, it was antibiotics. Now that he took me off the antibiotics, it is growing. Now, it's time for biopsy. Not to bad, so far.

[@wolke1955]

How long did he give you antibiotics? I had a lung biopsie first. Greetings from Germany

[@rogeriocalazaes2832]

Oi vc morra onde? Preciso conversar com alguém q tem esta enfermidade…. Obrigada

[@rogeriocalazaes2832]

Sou brasileira moro na Flórida, vc recomenda um especialista bom aqui. Alguém pode me ajudar? Obrigada

[@drew9496]

good doc and great presentation on MAC

[@giesalatar2670]

Thank you Doctor I also have NTM and I fear about this.

[@1Butros1]

Thank you, Dr. Daley! You have confirmed my thinking that the local lab my hospital uses to test my sputum samples does not go far enough! Once the sample grows MAC it stops! I am hesitant to consider treatment options until I get an appointment at NJH. Hopefully, that will be soon. It has been three months since I submitted all the requested documentation. I’ve read that patience is a virtue. I’ve also read that virtue is a fig! Best!

[@judithhodge9328]

Dr Daley is my Dr and the best Doctor ever.

[@wolke1955]

​@@judithhodge9328I wish I had a Dr like this one in Germany. 😢

[@jellycat2338]

My daughter was diagnosed with NTP Mac back in 2019. She underwent the the extreme antibiotic regiment for 26 months and we are now looking at surgery to remove left upper lobe and there is extensive damage all through rright lung. We are looking for any and all information on this disease to understand and guide us in the right direction for treatment and recovery.

[@shymashyma7213]

Thanku sir

[@martinapercunte7016]

Hello! I have a question regarding lung scars. I was diagnosed with M. Kansasii and I have been undergoing treatment for about 4 months. My chest x rays show improvement, but I'm scared that I will have scars. Do they last for a lifetime? Are they a risk factor for another disease? Thank you!!

[@martinapercunte7016]

Adding that I have cavities already, but on a CT I had a few months ago it said that there was a reduction in extension and size of the cavities. Is that possible?

[@evakoncokova9259]

Thank you doc.Daley, for your explanation. Now I am a le to better understand my disease and what was the true reason that I lost my weight during last cca 5 years. I'm 76years old woman with bronchiexctasis and MAC. I live in Slovakia Europe. Was treated with Claritromycin, Benemicin 300mg (rifampicin) Sural 400mg (Ethambutol). After 10 month I had negative sputum test, so the treatment was finished. But in a few month I was again reinfected. Now I have mycobacteria intercellularis and chelon. My pneumologist doesn't recommend a new treatment because I had significant weight loss and can get digestion side effects. Once again, thanks very much!!!w

[@wolke1955]

I very much hope that you anyway have a life that makes you happy ❤️🙏🌹