Tristan's Rare Disease Day, Every Day - Full version

Tristan is 10 years old. For Rare Disease Day 2021, he shares a glimpse into his day to day of living with a rare condition. For Tristan, it's rare disease day, every day.​
He loves to be active. He loves to be outdoors - he plays cricket, dances, and learns Kung Fu. Indoors he loves to play computer games whilst chatting to his friends online.
Tristan’s love of being active means he has high enthusiasm and likes to lead. He is always complimented on his politeness; he is very thoughtful and inclusive of others.
Tristan’s Rare Disease is Russell Silver Syndrome and he receives excellent care at the UK's first Rare Diseases Centre for children at Birmingham Children's Hospital and Charity. The work of the centre is supported by Roald Dahl's Marvellous Children's Charity and for those with undiagnosed conditions by SWAN UK (Syndromes Without A Name)
Tristan and his family are very special members of Cambridge Rare Disease Network’s fabulous #UniqueFeet​ group of children and their families affected by rare conditions and they love to get involved in all of our activities.
If you have a child with a rare or undiagnosed condition and live in or around Cambridgeshire, please do get in touch at [e-mail]