TROUBLESHOOTING MY SCIG INFUSION!

[@thefreylife]

New medical stuff can be overwhelming- I’m gonna continue learning and practicing and hopefully we can get the hang of this! What are you having to get used to lately?

[@chloecalloway7893]

I have to get use to dealing with big crowds i am a leader at our church. For our youth group as well as are ladies and some times there are allot of people with PTDS. That is some what hard. But to do what God wants me to i have to face my fears

[@noelariel7233]

Not pricking my finger and using dexcom

[@guardiansanimalrescuestate7289]

My GJ Button got infected, so so m back to an NG tube until the infection is gone and then they will put a new GJ back in. It tends to clog a lot when I vent thru It though. Any suggestions???? I’ve been in and out of the hospital and right now isn’t the time to be inpatient. Our county has tripled our covid count this past two weeks. I’m trying to learn patience and to have faith. Others have it so much worse then me. Take care everyone. Lesley and SD Jake.

[@misspepe7416]

I am learning to get used to a new (even worse) normal in my health. Keep going Mary, you are doing so good! I am glad this infusion was better than the last!

[@noelariel7233]

@@FREAKOUT123ism They have a video explaining that question , I hope this helped . By the way there are 2 videos

[@mllee2008]

I think the joy is in the fact that since trikafra, you're NOT used to that fatigued feeling anymore! Yay for that and yay for humming birds! 😀🙏

[@Ascensiion1]

You're too hard on yourself Mary. We're going through very difficult times right now. And even though we're going through our every day routines and finding time to laugh and smile, subconsciously we are stressed. That can manifest in so many ways. One most common way is exhaustion. Give yourself some credit. You're a fighter! And you have Peter right there beside you. I have no doubt that you'll settle into your new normal and do it smiling. Enjoy your birdies and don't push yourself so hard, life is glorious! Bless you both ❤

[@thefreylife]

Thank you for the encouragement Lynn! :)

[@joannelong9566]

Yes sometimes getting new meds is learning new meds. I just had a pulmonology appointment today. Tomorrow I will be receiving a new delivery at my door for my Broccoli Asthma. I don't know what to expect of the new meds or if they will even work. I have to say Mary you are the best multi tasker I have ever see. Great job with the baking. Thanks this is carolyn saying I will see you in the next 🎥 .

[@amaza888]

Went through the same thing with my MS. I changed meds last year and I felt sooo much better. Still do. But there are those days when I feel like I have no will, no energy. For no specific reason... other than MS being what it is. It's hard to make plans with such variations in energy levels. But we learn to adapt... and appreciate the good days even more! 💕💪

[@thefreylife]

amaza888 thank you for that reminder :) So glad to hear you were able to switch to a med that has helped you feel so much better most of the time! Keep on pressing on friend!

[@pattyfluegel7816]

You are very graceful about accepting things the way they have to be, even if there is really no good reason for them. Like being graceful about accepting the additional pain of the SGIV even when we all know you are perfectly able to do it the IVSG way safely and there is no common sense reason to force you to do it this new way. But sometimes life is stupid like that and we all just learn to have to accept certian things knowing there might be a good side to it too. Even though its not our first choice.

[@janeschiffler5347]

Have you heard the hummingbird squawk? I was so shocked the first time. I had planted a butterfly garden..lavender, roses, rosemary and butterfly bushes. The hummingbirds loved it. They would hover a few inches from my face when I watered with the hose...they loved to be sprayed lightly with the water..I stopped and that little bird screeched at me...spray more! I love them!

[@alyseandrews1066]

I've never heard them make a sound, that's so funny!

[@suehull7210]

I have had a rediculously bad phobia of birds and I hate to admit it but you are winning me over with my love/ hate relationship with birds. You are doing awesome with the subq and it’s great you don’t have unneeded exposure at an infusion center.

[@youser6088]

Hey guys!! Glad you’re doing better today, and starting to figure out your scig! It’s so funny how everything has it’s pros and cons with medicine and our bodies, see ya tomorrow!

[@thefreylife]

Thanks Cali! Hope you're having a great day, see you tomorrow! :)

[@misspepe7416]

You did so good Mary! You will continue learning! Be blessed 💕

[@thefreylife]

Thank you Miss Pepe! :)

[@saraleemacdonald]

You aren't alone! We are all exhausted! Pandemic Fatigue! We are with you all the way!

[@thefreylife]

Thanks Sara! & hope you're able to rest a bit this week :)

[@Hallz18]

That berry and whipped cream desert looks so good!!!!

[@hollyosgerby1901]

Glad that your infusion went much better today. Just need to determine what works best for you and your body. One day I really hope to see a hummingbird perched on your finger, Mary. That would be so awesome! Praying that the unusual fatigue that you have been experiencing will resolve. Much love to you all! 🤗❤️❤️🙏🏼😘🐕🐱

[@thefreylife]

Thank you for your encouragement and prayers Holly! 💜

[@hollyosgerby1901]

The Frey Life : You are very welcome. It is a privilege to lift you, Peter, and family up in prayer. 🙏🏼❤️

[@sguishy89]

Thank you sooooo much for updating about your SCIG. Heading into trying at home treatment for my son whos 12 and you really help ease my anxiety

[@thefreylife]

DreamChaser so glad that we are able to help ease your anxiety, we hope your sons treatment goes smoothly! 💜

[@Jamie_Winsh]

This probably won't mean anything to anyone but I have just got home today from having a new feeding tube placed. Its been a heck of a day. I'm tired and sore and a bit uncomfortable but watching and even thinking about you Mary and Peter and your positivity to these experiences honestly helps me and teaches me to push through so I'm glad I have that

[@nicolabannister3582]

Well done on surviving on such a difficult day! Proud of you for coping with it ❤ Mary and Peter do the same for me. I always put them on when I need a little lift in my day

[@Jamie_Winsh]

@@nicolabannister3582 thank you so much. That made me smile ha ha. Had a nurse come and clean the area and site today which was difficult cos I'm still sore but hopefully it will get better soon. Yes I agree, whenever I've had a bad day, specially medical condition related Mary and Peter remind me to stay positive

[@DesMowadeng]

It's so hard when you feel good and bad. When you feel good you want do everything and can run the risk of overdoing it! You feel the same way as when your health is bad on the days after when you do a lot! It's sucks and trying to find a balance is so hard!

[@lan1586]

Is it possible that your new meds are causing your exhaustion,it seems you started feeling this way when you started this new infusion. Hope your having a fantastic day!!

[@Deb-5212]

I wondered the same thing. Mary, what do you think? It's worth checking into.

[@emilyneal92]

I love watching Chris Hatfield! Space is so relaxing!

[@kareninva7097]

I hate needles so I can only imagine having to do this every week you are a great person to do this

[@nicolelemasurier2331]

I haven’t watched you guys in a couple months and I’m happy that I rediscovered your channel! Mary I believe you’re on a new medication since when I watched you guys last. Your voice sounds so different! I can definitely hear that your lungs are clearer. That’s awesome! Thank you guys for doing what you do. ❤️

[@sguishy89]

I have health problems and one day I feel great another I feel like I'm under a city bus and nothing seems to cause it. It just flips. I feel your frustration in that respect.

[@thefreylife]

Keep on pressing on DreamChaser! 💜

[@sophieleanna9391]

Mary, did the fatigue start after the SCIG? I’ve only heard you mention it since starting it.

[@embro2.0]

I just started taking Emgality and that needle/medication hurts/burns/stings going in. Thank you for your perspective on life; it helps me appreciate the good and hard days more!

[@CoreyAnneTeacher]

I found journaling what I did during the day really helped me pin down the cause of many of my symptoms. I would break my journal down into the times I woke up, early morning, late morning, early afternoon, evening,night, and the time I went to bed. Each section I would then break down into meds, food, thoughts/feelings, energy level, activities (including housework/errands/fun stuff), and other where I would write things such as headaches, nausea, menstrual flow, etc. After about a week I looked back on everything and saw some interesting correlations mostly on the days I slept in or on days I went to bed late the night before. It was also a great thing to bring with me to doctors appointments. I am sure there is a way you can also journal on your phone during the day so that it can be sent over to your team for them to use as a reference. It worked great for me and we changed some timing with medications and i became more aware of my sleeping habits and it made a huge difference in my fatigue.

[@racheltree129]

Mary, Peter, Oliver & Harry! I have been a bit distracted by jigsaw puzzles, study, work & life in general so fell majorly behind in your videos, but I have finally caught up! 🙏 It's been so wonderful to see what you have been up to over the past few weeks! I love watching you guys cook and haven't been able to stop thinking about the lemon dessert you made! 🍋😋 Where can I find the recipe? I've absolutely LOVED watching your grass grow! It just looks so green & luscious! 😍 Stay safe and look forward to seeing what you all get up to next! ❤️

[@janicemichaloski3319]

Love the hummingbirds so pretty hope they'll land on your hand soon 💕

[@thefreylife]

Thanks Janice, me too! :)

[@beverlysettle1084]

I have gotten blood test results showing lots of inflammation and my body hurts everywhere, but there is no diagnosis yet and no solution. It has been going on for a while, so I am just doing the things I don’t think I can, and every now and then... like today....I just don’t do anything. It’s frustrating but the body does what the body wants to do! Love you Mary, Peter, Bonesy, and the Hairman!

[@thefreylife]

Beverly so sorry to hear you haven't gotten any answers yet, but proud of you for listening to your body and doing the best you can for your body!

[@nicolabannister3582]

I have axial spondyloarthritis, a type of inflammatory arthritis that predominantly affects the spine but also other joints and some organs. So I know how you feel with high inflammation and widespread pain. Did you know inflammation directly causes fatigue? Cytokines are released as part of the inflammatory cycle and they directly cause fatigue. I'm proud of you for advocating for yourself and focusing on what you can do and resting when you need to. One of the best pieces of advice I ever got was to do less than I think I can on good days and more than I think I can on bad days. I will admit I'm not very good at it sometimes and overdo it then crash the next day. But I am human after all! Best of luck in seeking a diagnosis ❤

[@beverlysettle1084]

Nicola Bannister thank you for your kind words! I sometimes feel I could sleep for days! I just keep pushing forward. I’m sorry to hear you have that difficult diagnosis. Stay strong! I will pray for you.

[@beverlysettle1084]

The Frey Life Thank you for the encouragement! It really means a lot!! Bless you!

[@amandagray9871]

Mary! You do SO much! Your daily activity level would exhaust me (with my Lupus). Maybe you’re also getting tired because you’ve been in the house so much due to the quarantine. That’s been doing it to me.

[@JordanHeil-jp9wu]

Yet another song that my camp uses. This time it made me remember Sunday morning church services where it was families of campers and mostly camp staff and we were at the odc aka the outdoor chapel. Missing that rn

[@79adr]

I feel for you! I can’t imagine having scig in my legs that would hurt so bad! I get it in my tummy and it hurts every time for at least 2-4 days afterwards. And it burns pretty bad during the infusion. 💜💜💜

[@deathbym0nkeys]

mary the hummingbird whisperer. mary... you are my spirit animal ❤️🙌🏻 omg i didn't realize the launch had been rained out!! i thought i got the times mixed up like a dork and missed it!!

[@Joyce-dd3fm]

Hi Mary and Peter. I'm glad you're feeling better, Mary.

[@firesong100100]

We were bummed about the scrubbed launch too. My hubby is excited to see it on Saturday.

[@sandracollins7938]

You know Mary, while you were talking about the positions of the needles that very idea crossed my mind. Glad it worked out.

[@janeygomez4552]

I understand about unexpected fatigue taking you by surprise. I have MS and fatigue is part of it but I have not had it consistently for a few years. Its hard to not feel disappointed, even when you know it's part of it. 🙂

[@BNHAalltheway]

Glad You guys had a good day also glad Mary glad You are figuring out SCIG.

[@thefreylife]

Thanks Paula, we hope you had a great day too! :)

[@juliadillaman3632]

Wow the grass looks great! How did the bird pictures turn out?

[@moewilson4605]

I am so waiting for a hummingbird to find my feeder. I think I am doing everything right. I have it on my window away from the seed feeder. I have a water feature nearby. I clean it and change out the sugar water every four days to avoid bacteria. I have all kinds of other birds but really hoping for some sweet hummingbirds to find my feeder. Have a great day, hang in there and may the hummingbirds be plentiful. Cheers.

[@serenityherold3002]

You got to meet Chris Hadfield? That's awesome! I would freak out! What a great idea you have with the hummingbird! I'm so excited for the day that one sits on your hand! Hope you have a wonderful day! God bless you!

[@beverlyburris8026]

I make what is called Blueberry Coulis but sounds like your compote. 2 C berries ( I mix blueberries with raspberries, blackberries or strawberries) add 1TBL honey and a squirt of lemon juice. Com to boiling point then let it cook down a bit as you pop some of the berries open. Cool and store if fridge in mason jar. Good on waffles, pancakes, toast, oatmeal, yogurt, graham crackers etc!! Great way to use up the end of the berries!

[@embro2.0]

Mary-have you ever looked up what hummingbird eggs and their babies look like? They are so teeny tiny!!!

[@jennifermoore9236]

Oh my I just got a new phone and haven't seen ur vlog in days! I was shocked to see the back yard so green! Yahoo nice job Peter! Jen from Boston now in fl

[@lauras9726]

Have you heard of hummingbird swings? My sister made one and put it next to her feeder. Previous poster mentioned hummingbird feeder that is a ring.

[@thefreylife]

Laura that sounds lovely, thanks for sharing the idea!

[@morganforrest7551]

Finally ordered a shirt from your shop! Have been wanting to get one since I began watching your vlog a year or two ago.

[@isabelthewriter]

Life has been difficult for my family lately and I’ve been trying to adjust to our temporary situation of me being the only one employed in our household. So thankful that as a laid off line cook, my husband has access to unemployment benefits, but it’s been a source of a lot of anxiety. I’m trying a new exercise routine, which is helping to give me some structure during my downtime, but that’s an adjustment too, lol.

[@thefreylife]

Kirstin so sorry to hear your family is in a challenging season right now, we're glad to hear you have still been able to work and that your husband can get unemployment but that definitely still produces anxiety - so glad you've been able to find a way to express and release anxiety through exercise! Keep pressing on, one day at a time friend! 💜

[@isabelthewriter]

Thanks for your encouragement! I’ve always been a worrier and an anxious person in general, so this has been really hard. I’m just so glad that we never had to worry about my job going away. I work for a medical equipment company, so my job is secure through most upheaval.

[@gabigayko1863]

Mary you are the best, facing everything you do with a smile. That makes me smile, so thank you. I watch often but did I miss if you addressed where you received your cooking abilities. Did your mom teach you or did it come naturally? I can follow a recipe but would have no creativity when it comes to cooking it baking.

[@thefreylife]

Thanks Gabi, so glad the vlogs are bringing a smile to your face :) And I've loved cooking and baking all throughout my life :)

[@alyseandrews1066]

The exhaustion and weakness sounds a lot like low iron to me 🤷 Not sure if that's something they check for you regularly, but those are the symptoms that let me and my doctor know when I need testing and supplementation

[@dothatch5147]

Mary. When my feeders ran dry if i was late filling the them. The hummers would come to my door back and forth to let me know that i better get busy. When i would take them back out they would feed from them in my hand. They were used to me.on tv nature shows i have seen peole sit in yard in lawn chair holding feeders and they would eat from them

[@SuperMickeyr]

There is a ring that looks just like a hummingbird feeder flower - that lets them come to you to feed. It worked for my sister. Tried to copy photo, but it didn’t work. It’s fun.

[@thefreylife]

SuperMickeyr that's a great idea!

[@bella1p414]

You should get the Freedom 60 pump for your infusions. It has a case that goes with it so that you can take it anywhere. I have even put it in a purse or backpack and taken it with me like to the grocery store or on errands while doing it. Also, with slowing the rate it should be better. Also, you may want to try it in your stomach to see if that works for you. Also, I have found like a heating pad or hot bath helps when my Subq medicine doesn't want to go in my tissues very well. I normally do 3 needles that are 9 mm because 2 needles with 9mm give me too much fluid at one time to disperse.

[@rmjames83]

Re exhaustion & being shaky-could ur iron levels be low? (They could be if ur red cells are a bit low-but u need a separate test to the CBC to test for iron levels, iron stores & something else related to iron-here in Australia, the test is called “iron studies”)-The other thing is vitamin D-I was “critically” low recently (it was so low, the lab couldn’t detect it in my blood, so they had to repeat the test!!), & that made me exhausted & shaky. There were days I just couldn’t keep my eyes open! I thought I was getting enough vit D by spending at least 15 mins outside each day, but obviously that wasn’t enough-they now think I may have an absorption issue. I know CF tummy issues & other things can affect ur absorption of various vitamins-it was just a thought! I most certainly felt exhausted when I was low in Vit D & iron, but feel tons better now since I started taking a daily supplement!

[@lizzieturbeville4089]

Oh yes! I have already stood there very still and they came up to the feeder! I think I'll have to get me another feeder. Also you can get hand held small feeder.

[@chloecalloway7893]

There is one thing yall have talt me is to be creative with PTSD i have to creative. When I have anziondy attacks. Mary you have talt me don't be scared all the time because you have people beside you. Even when it is hard

[@thefreylife]

Keep pressing on Chloe! :)

[@sxcredjones4034]

Oh okay have a great day really didn’t know what to comment lol but have a great day

[@englishmuffinpizzas]

The same thing happened to me - I was used to being really sick all the time for years. Then we found treatment that helped and I made dramatic improvements, but now I’m baffled and confused when I have a bad day. It’s funny how quickly you get used to your “new normal”

[@ChronicallyIllSoldier]

Hi Mary. I don't have CF but I have a gj tube, a gastric stimulator and a port. I'm currently on tpn, fluids, iv pepcid and zofran. My immunologist is trying to get me on Hyzentra scig. I'll be self administering also. I'd be brand new on it. Love your vlogs. I feel semi-connected to some of what you go through as far as stomach and immune issues. I too have extreme fatigue. Was tested for Covid-19 2x, Flu and Strep 2x and Whooping Cough. They were neg so pulmonary said sounds like active Ebstein Barr Virus again. It can cause extreme fatigue also.

[@nicolabannister3582]

Does the fatigue correlate with when you've had subQ IG? One of my medications is a subQ injection and the day after I often feel wiped out. Proud of you for working through the subQ issues ❤

[@nicolecook9183]

How long did it take to get the hummingbirds to come? I have had a feeder for a week, no luck.

[@elizabethann5308]

Right now the hummingbirds are teeny babies in the nest. That is why you dont have at the feeders.

[@AvgasLL]

I like hummingborbs

[@nicolecook9183]

Oh yippi! I’ll keep on watching for them. Thanks

[@eviefieseler1093]

Liver? Is your exhaustion/weakness/fatigue like an intermittent sinking feeling throughout? I felt intermittent sinking when I had liver damage from mono years and years ago.

[@eej1983able]

Lord I Need You is a duet project I am working on for when it's safe to return to church with a choir member friend. I love that song

[@thefreylife]

Love it!

[@davegoodridge8352]

Watch KZbinr Leslie the bird nerd. She feeds lots of birds out of her hands. I’ve never gotten my birds to do that. Be Blessed

[@thefreylife]

Thanks for sharing! Her channel sounds lovely!

[@laurenallison9391]

I’m a NASA freak too lol. Corbin and I met IN Astronomy in college lol. We are obsessed- even went to The Air and Space Museum in Washington, DC.

[@wolfsrule100]

I’m having to get used to going out again. I am absolutely terrified of other people now.

[@Uniquelyyours1]

I am, too.

[@chloecalloway7893]

I totally agree I am a little scared 😨

[@thefreylife]

wolfsrule100 thank you for sharing, remember to take it one day at a time 💜 we're all in this together :)

[@victoriagrayson7079]

We all are...even the the faux....live free or die peeps...stay safe

[@tinmanlover1994]

Hi Mary when I did sub-q the pump came with a bag did your cause you can put it in their and do stuff and not worry. For me I always cover up with a blanket and had pump under blanket to help make sure it won't get snagged on anything

[@penelopepolinsneemeyer4757]

Good Yomtov and happy Shavuot, guys! xxxxxxxxxxxxx

[@jsomebody2289]

I used to love standing under the hummingbird feeder really still with my finger where the perch is and have them stand on my finger. It would only work if I was really still but I never did actively try to get them used to me.

[@bonnull]

Take Tylenol before the SCiG. It might help the pain.

[@PinkHawk191]

Learning to deal with lung function issues due to the scarring of my lungs caused by my congenital heart defects. Now that it’s getting warmer out my heart condition causes me to not have much energy in the summer.

[@benjaminfreyman4273]

Peter how come Ollie's not going out back? 🤷 Since you've already mowed? I've been putting seed on my bedroom window sill and my male and female cardinal come every day . Win win. 👍

[@thefreylife]

Hi Benjamin, that's so fun that the cardinals are coming to your window sill! & we have been waiting for the grass to establish deeper roots before Ollie goes out there, but we will make sure to show all of you when Ollie does finally go on the grass :)

[@janelkuszewski3058]

Just what I needed for after going to PT Chiropractic and having lumbar injections. Laying on ice packs eating a chicken sandwich (southwest grilled chicken from Carl’s JR) because I love the Ortega chili on it 😁.

[@o.o4566]

that reminds me of wojapi. Its a native american thing. we crush and simmer berries or muscadines or scuppernongs with some cornstarch, water, and honey. its super super good on turkey or chicken, frybread, icecream, etc. you should try it. A cherokee dish my dad makes is turkey breast with scuppernong wojapi and crushed pecans baked in the oven in a cast iron skillet. super super good.

[@CaitlinEileenRose]

It's lovely to hear you singing Mary! Any plans for an EP? :-)

[@SuperMissblueeyes]

Mary, low salt can feel very much like low blood sugar. I get low blood sugar anyway, but there are times when I get low salt & it feels the same, but sugar doesn't help. A lot of people who get low salt find that it gets worse at this time of year when the weather warms up & your body sweats & loses more fluids because salt comes out in the fluids. With your CF salt issues, I'm thinking this may be what's happening with you. I have POTS & salt is a big issue with me too, I find that this time of year, I have to increase my salt intake. I really hope you see this message & that it helps you.

[@angelinacanterbury1247]

Have you ever tried the flyp nebulizer? If so have you used it with acetylcistien (generic mucomyst nebulizer)? I'm trying to figure out if it works with that meds and do you like the device?

[@connimace258]

I love when you sing Mary. Awesomeness. Ollie so cute on the sofa. I think we all have days when we dont feel good or have low energy.

[@susanharris1285]

Mary I admire you for all you have to go through het Ollie love and prayers always

[@thefreylife]

Thank you Susan! 💜

[@gholzem]

You should make some clotted cream. There are lots of KZbin videos. It is really easy, just takes 24 hours. All you need is heavy cream and an oven.

[@thefreylife]

Thanks Carol, I'll have to check it out!

[@nicolabannister3582]

Clotted cream 🤤 I'm in the UK and I bought some this week. I made British scones (apparently they're different to American ones) and topped with clotted cream and strawberry jam. It's a Devonshire cream tea, or if you put jam then clotted cream a Cornish cream tea.

[@hollya6768]

They make hummingbird feeder rings. You wear and they land on finger.

[@babygrils1000]

I hope you get better love you guys 💞💞😘😘

[@fralinsandfriends]

I hate it when they make a major change to treatment because it's just a different way of the same thing. Why not just let you do what you know. 😀👍

[@embro2.0]

I’ve never heard of “compote” before. So, when Peter said it, I thought he said “berry compost.” I was like well that works I guess!

[@kellyreed2768]

The berry whipped cream desert looks So good. 💙

[@caprialnichols7659]

Loving the vlogs keep it up Mary and Peter

[@sonjacoleman5703]

You might try icing around the injection sites while you are doing SCIG.

[@lindadickson5779]

Mary, maybe the exhaustion is do to doing the new sub a stuff your body is adjusting.

[@SnowySpiritRuby]

I just wanted to say thank you for telling us the names of the songs you jam out to in the videos.

[@ashleylyon84]

Could the SCIG be the reason for the unexplained exhaustion? New meds that you do more frequently than you did the IVIG. Whatever the reason, I hope it passes!

[@irishpixierose]

Mary there is a ring hummingbird feeder and they will come to you to feed.

[@Dana_Leigh7]

I love your cooking videos

[@speakstooswift87]

I grew up in the same town that Chris Hadfield grew up! Sadly I've never met him though .

[@Bam816]

Adrenal issues can cause the symptoms you describe that seem similar to low blood sugar symptoms. I have this problem. It can seem pretty weird. I get it even after having eaten which made it really confusing until I learned my known adrenal issues could cause it.

[@virginiagrenier8572]

Do you have chipmunks? We've been able to get certain friendlier ones to eat black oil sunflower seeds out of our hands. The not as friendly ones, well, they lose out. Virginia Clearbrook MN

[@heatherr1141]

What is tricasta? I’m fatigued bad . When it was in imuran I felt better but I had to stop because it caused low wbc rbc platlets and neutrophils. So I’m real fatigued.

[@jonki1980]

Great vlog, I see start period as the body adjusting, hope it will get easier over time. Love to learn that you met Chris Hadfield. Have you seen the recent (ish) Apollo 11 film.. it's incredible. I got my tweet about it liked from Michael Collins - so unexpected but totally brilliant

[@pattihall9853]

I'm about 20miles from the rocket launch....you should hear the rumble when they launch a rocket!

[@Jamie_Winsh]

Your so lucky you live in an area where you get hummingbirds in your garden

[@Eileen-kx8wy]

For Your information: Robbie and Gary Easy Gardening on KZbin, DIY on hummingbird food and how to build feeders for hummingbird feeders.

[@joannecottam2387]

As in Metallica?? My favorite band!!

[@tarshdixon7470]

Mary! your'e an amazing singer.

[@jademccardle9074]

Am on new meds for my anxiety and depression there both so hard to life with and being disabled I try not get down but there some days I do but my doctor changed my tables around to see if that helps I hope so. U have a really good singer xx

[@thefreylife]

Thank you Jade and keep on pressing on friend! We hope your meds are able to help and that you have a joy filled week! We're so glad you're here :)