Tuberous Sclerosis and the Skin, including emerging treatments for facial angiofibromas

[@rebeccathompson5363]

If this was a realistic option for me I would do this topical cream but I would rather have laser treatment that will actually address them. Yeah it would be more painful and a bit of a drive to get to where the laser is available with whoever is in charge of my transportation since I don't drive. But I'm looking for a treatment that doesn't just touch the surface because I believe that I would at the very least be able to prevent the bleeds and get the growth of these angiofibromas under some control. They do get irritated and yes they make it difficult to clean my face especially around the nose. I see a new dermatologist soon.

[@youbf3]

Hi I am also one of the tuberous sclerosis patients from Denmark and I have that skin disease as well.. But I want to get rid of it and can I buy the medicine for skin plz?

[@lolabekker9782]

Me too! you know votubia?

[@lolabekker9782]

It also helps for the tubers Inside the Brain

[@shabanafatema8196]

Please write name of medicine and can I purchase online.

[@shabanafatema8196]

Pls reply

[@dianaisaias8169]

Is this available in the U.S because im interested as well

[@lbspath]

Yes. You will have to get a prescription from your doctor. There's a pharmacy in Texas that will deliver to certain states. Doyle's pharmacy. Please Google it and check if they will deliver. It's very expressive. About $200