Turner Syndrome, My Story- Emily Tarbox :)

try to be inspiring and hopeful. stay strong if you're going through this. God is with you. :)

[@YahuahsTroops]

Just a male here and I'm doing a presentation on this tomorrow on TS. For the women that have this, i give you so much credit. The fact that it is just one X Chromosomes that is missing can effect the rest of your life. Just know everything happens for a reason and good things will come your way. God bless you all.

[@snfecho9500]

+Lenzel Koskela Thank you Lenzel for sharing this and spreading our message. The better the education, the better the understanding for people with any kind of special need. I hope you presentation was as moving as Turner Syndrome has obviously moved you. Thank you again!! God Bless You!

[@evacatherine3097]

I was diagnosed with Turner's Syndrome before I was born. My mom was suggested to abort while she had the chance. Now I am just so lucky that my mom believed in God and the miracles he could do. After I was born, they realized I only had 10%. They believed that I would need grown hormones and that my ministerial cycle would, of course, be abnormal and I would be infertile. I'm now 14 and am 5'1 and have not had a single female hormone added into my body. I'm developing just like a regular girl should and I am so thankful. My family has supported me through this whole thing and has made me feel like I am not even the slightest bit different from everyone else. If anyone is ever struggling with this disorder, just remember that people are here for you and God has made you this way for a reason. He wouldn't give you anything in thi world that he didn't know you could handle. So if anyone reading this needs support, I am here 100% for you.

[@sheatink]

i just wanted to say thank you for putting this video online because i am 18 with classic turners syndrome and I am like you were i have known for a while that i cant have kids but it has just reticently hit me as well and i just wanted to let you know that its wonderful that u are their for others and i just also wanted to tell you that i'm hear for you in your struggle as well.

[@littleessie8808]

Hi Emily. I am also diagnosed with turner syndrome,unfortunately we found out too late and now I'm not able to grow any more than I already have and the only way for me to get through my puberty stadium is by taking some kind of pills wich makes me feel sick, annoyed and uncomfortable. Anyway, I just want to thank you for being so brave by letting people know about this. I know that it couldn't have been easy for you. We are all very proud of you. And no matter what happen or what we're going through, God will always make a way where there seems to be NO way. I would love to get in contact with you and find little more details about your story,and maybe tell you some of mine as well. Stay the amazing and beautiful woman that you are. XX

[@MR.NDCOMICS]

Hello Emily I have a wonderful woman named Yolanda we been together years since 2006 until present day she has Turners Syndrome (TS) and her family isn't much of a support system for her condition but I love her deeply she's beautiful inside and out she doesn't have any major health issues but she gets bummed sometimes about not being able to have kids we talked about it before having kids going through the options of adoption or egg donations but I pray for her daily I believe she's the one for me. She's been there for me we knew each other in church growing up as kids me 10 she was 8/9 in past now we are both in early late 20s /30s I feel once we get ourselves together we get married soon in future

[@TheBioGoldfish]

I'm currently a graduate student in Anschutz medical campus and taking human embryology and I'm learning a lot from your video. Thank you for your story! God bless you!

[@Jaeblack508]

my daughter was diagnosed with it shes a year and half ago going to learn as much as i can so she will know everything she can. i wanna thank you for being there for people.

[@emilygonzalez534]

Your story is very similar to my TS story. I'm very touched, and we have the same name, thank you for this.

[@nataliewensil9308]

Hey sweet girl. I love you and miss your sweet face. I wanted to let you know that I was diagnosed condition that would effect fertility issues they told me my chances are zero. we decided to adopted through foster care. Very long process but the WEEK I brought our son home we found out I was pregnant!! God is in control. I love you I'm here for you sweetie.

[@tansyveejones6749]

Amen 💕

[@hollydecker9392]

you're awesome and so postive and beautiful. My sister has Turner's she has it a lot more severe than you. She's only 4'6" and has several health problems and developmental problems but she's a great inspiration to many people. Just like you. thanks for being an example to everyone who has physical problems

[@emilytarbox6154]

LeAnn- thank you so much!! I am so sorry to hear your sister is affected the way she is. However, I am so happy to hear she's an inspiration to many people!! I'm sure she is beautiful on the inside and out! She and you and your family will be in my prayers. God bless :)

[@hollydecker9392]

Thank you Emily you're awesome

[@chet9055]

Emily Tarbox hi my name is chet an my girlfriend lyndsey has turner's syndrome an she is amazing beautiful woman inside an out an thanks for makeing this video so I can lorn about this

[@snfecho9500]

Thank you so much for sharing this Emily. My butterfly Mikayla is now 13, but was diagnosed at age 10 when she stopped growing and her eyes suddenly crossed. After many doctors and tests, she was diagnosed with Mosiac Turner Syndrome. After seeing a team of doctors, and numerous tests, we were told that she is missing an ovary and the other is not working. I must admit as a mom who was told I could not have children, she is my first miracle that was conceived September 11, 2001. I had always dreamed about being a mother, and when I heard this I was devastated. My heart broke for my daughter, but when I asked her if she ever wanted to have kids, she said......You know mom, I think that I would like to adopt, because I don't want to have that kind of pain!! I must admit that I laughed as tears streamed down my face and I had to turn and cry. I had not yet told my angel that she would probably never be able to have kids. God has a plan for us all, and sometimes we don't understand what that plan may be. Not long after that we told her about the infertility, and she was ok with it. I do wonder if she too will feel the same as you do now. I am sure she will at some point, but with our faith in God, and us by her side, we will get through it. We also have to do daily injections which turned out to be her biggest fear! We have had to work hard learning to help her deal with the injections. I am happy to say that she has actually grown to 4'7, and it looks like maybe another year to go. Then starts the hormones...she also has Hashimoto's Thyroiditis an autoimmune disease, partial bilateral hearing loss for which she received hearing aids, and eye issues. She too is very lucky that her heart and kidneys are fine. Mikayla is very smart, and has paid close attention to all the doctors and everything they say. They are amazed at her questions, and how interested she is in knowing all about her health. I am happy to say that because of this, Mikayla wants to be a Pediatrician to help other children. She does have math processing issues, but I feel that with support and determination, she will achieve this goal!! So I know now that God gave her this for a reason...to educate people about Turner Syndrome and genetic disorders. To love who she is, and to spread those wings for everyone to see. You will be in my thoughts and prayers, and please feel free to reach out at anytime. Thank you again, and God Bless you beautiful lady!!Cara

[@ThePhoenixliveson]

thanks for sharing. my daughter is 9 and was just diagnosed and started growth hormones. she absolutely hates it and it breaks my heart every day. im going to show her this so she knows shes not alone and its okay.

[@treniesablunt]

I have turner syndrome and I live a happy active life

[@yaneirisbrooks]

I couldn't thank you enough you're very inspiring my daughter is 11, we found out when she was young. We are blessed she seems to have one short leg chromsom. You are very brave!! I want to go ahead and explain to her about her condition besides all the medical terms and the endocrinologists explaining it one day I hope I'm brave enough to tell her of her limitations. Fortunately you couldn't tell from seeing her, but sometimes that can be a struggle in itself. Thank you again.

[@elisemontes6135]

I am 19 years old and have Turner's as well and it can sometimes be hard. Thank you for helping me see that I am not alone. You are truly an inspiration.

[@Testimonyofabutterfly]

Hey Emily! I am watching years later and I don’t know if you still look at these comments but I am a turners girl and by his grace a woman of God. Thank you for speaking about this and giving a friend to those who need one. I am 22 now and it’s amazing how many people I didn’t know that are affected. Thank you and God bless.

[@NellasxElensar]

Hey Emily ^^ Thanks for sharing your story, you really are inspiring! I'm a 22 years old Finnish girl with the same condition. I took growth hormone shots from the age of 7 until a month before I turned 16 and now I take pills :) I'm 5'3" and I feel pretty tall cause I know many who are shorter than me. I wish you all the best in life! :) Henni

[@stevenblackden4363]

Thank you for sharing your story. I feel bad for you and other girls having to go through this. :(

[@naviroach]

Thanks Emily. We found out our 3 year old has Turner Syndrome, two days ago. I'm in shock. I cried watching your video. Our daughter does have a heart defect, which we learned about a year ago. So much ahead of us.

[@snfecho9500]

+naviroach HI!! It will be ok momma! I know how you feel, and if you would like to chat, I would love to share my knowledge with you!! I am on FB, twitter, instagram or email. [e-mail] or cnascara Hang in there!! Cara

[@laurabreland6985]

Emily, I am a thirty-seven year old woman that also hasTurner's Syndrome and I have thyroid issues because of it. I took growth hormone shots but because I wasn't diagnosed with it until I was fifteen, I'm only 4'11 and weigh 94 pounds; Mom told me if I were any larger, she would have some trouble delivering me normally because she had a tiny uterus. I think that was one reason God gave this tiny body. Hang in there and make more videos! You are a natural!!

[@HashemSmashem]

Thank you for posting this video, Emily. Very insightful and honestly I think you look dazzling. Great music too. Much love from Saudi Arabia!❤

[@kamilirsyad5910]

all the best emily, stay strong :) learned a lot from you, i'm a medical student ^_^

[@helensplaceus]

God bless you. I am a grandmother of a 3year old with Turner's Syndrome who has 3 siblings that don't.

[@DonnaAlyse10]

I was diagnosed with Turner's when I was a baby. The doctors did a kareotype and found out. I'm making a video today about it. Thank you for sharing your story. God bless you.

[@emilytarbox6154]

I am going to watch your video right after I respond to you! So glad you have the courage to do so. :) thank YOU for sharing yours. God bless you as well!

[@snfecho9500]

+Yanni Rose Thank you for posting this Yanni. Mikayla has been given some nicknames as of late from kids at school. I think they are trying to be endearing, but considering they are all about being short, it is bothering her. I will make sure she checks out your videos! Thank you again for being a positive resource!!

[@nikolinapobi3981]

Yanni Rose

[@allypronina905]

Hi, Emily! I was randomly watching KZbin videos about Turner syndrome and found yours. I know this has been a while since you made it but I just wanted to say thank you so much for making this video and spreading awareness about TS! I also am a Christian and beleve God had His reasons for taking away my missing X chromozone. I'm an opinion writer and enjoy writitng about TS for the publication I work for. My next article is about TS in the media! :)

[@qcsouthernbelle]

Thank you SO MUCH for posting. My husband and I are expecting our first baby (due around Christmas 2014) and just found out that the likelyhood of Turner's is about 99% (if I don't end up having a miscarriage). Seeing your story and that you have it, and are leading what appears to be a normal life is encouraging!

[@jaccrazy21]

I think you did a wonderful job explaining your situation. And the effects of Turners. I had heart surgery at 8 yrs. Went well but still 4 10 with malfuntions in heart and other hyper active immune issues. More to be grateful for. So can't complain over all. I didn't know I had this until I turned 30 and wanted to have a child. It is tough watching my siblings families grow. But I am somehow finding peace with aspect of it. With the lords help. I know this isn't a problem that goes away. But

[@joelmbryant]

Hi Emily. You look amazing and have such a wonderful outlook on life. My wife and I just recently lost our baby to Turner's Syndrome. She had 3 times the amount of fluid under her neck than should have been and they think it spread to her heart or brain. God bless you, and you look amazing.

[@e13kid]

I'm glad you made this video. I have a chromosome issue as well (XX male syndrome) which has left me infertile, I haven't been able to find any videos of people with my condition but it's comforting (in some way) to know there are people who are suffering from similar problems. I hope that doesn't sound bad, just wanted to leave some form of acknowledgement of your pain.

[@shortandsweetbabyyy]

This video hit home for me ... Hard. I have turners as well. I was diagnosed when I was born. I've taken the shots to help me grow and I am 5'1''. Now that I'm older I have also been thinking about the infertility part of turners a lot recently and having a very hard time. I would love to talk to you! Find me on Facebook - Ashley Tyler Barrett. And for anyone who sees this & has turners, feel free to contact me as well. 💛

[@kimberlylovesfashion9946]

I seen your story I was amazed. I just wanted you to know I was diagnosed when I was 17 I'm now 32 I'm 4'11 with CHF congested heart failure it's good to know that I'm not alone in this. Nice to meet you :)

[@jaccrazy21]

Do know you r not alone. And we have people to walk through this world with. God Bless.

[@EmilyS-gk3st]

Hey! You are so brave to be saying this in a video! I have Turner Syndrome, to! I was not diagnosed until I was 6 years old, and was nearly unaware if what was going on. As I got older, I began my growing shots, and ended at 4 foot 9 inches. Turns out I grew a little after and an now 4 foot 10 :D! I am currently 15 years old, and, like you, discovered I have a mild version of it.

[@sparkylikestrash3788]

I am not affected by Turner Syndrome, but I researched it for a school project. I wish you the best life has to offer. May God bless you in all you do!

[@river1995ful]

Thank you for your story! I am 19 and I have Turners Syndrome. I was diagnosed when I was just a baby. And I took growth hormone from when I was 3 until I was 12. I am 5'3 so I am pretty tall compared to some girls with Turners Syndrome. I actually have a really mild case of it so I am very blessed and lucky. It's hard to live with it and to keep it a secret. Only my family, fiancé and 2 of my friends know that I have it. I have my family and my fiancé as my support. Also It breaks my heart that I most likely can't have kids. I try to keep strong and life every day but it's really hard.

[@nataliamcguire6632]

god blessed you! maybe you can adopted some child! pretty sure you'll be an awesome mom

[@ISws2319]

Hy Emily. I'm 22 years old, I have TS too. Thank you for making this video. It's nice to know that I am not the only one with this issues, like not being able to get pregnant, taking hormon replacement therapy...

[@ISws2319]

Obrigada Florbela! Que deus abençoe você e sua filha. Vi um de seus vídeos e sua filha é uma graça! Se quiser meu contato é [e-mail]

[@isamarluna3033]

Hi Emily. I also have Turner Syndrome. I am 29 years old. I am only 4’8. Thank God my health wasn’t affected. I wasn’t diagnosed until I was like 9 years old. I took growth hormones for like two years and stopped became i hated injecting myself. I went back when I was a teen and did it for about 1 year. My mother always respected my decisions. I always thought girls TS were 5ft and under until this year. I am upset at myself for stopping taking growth hormones. I could have grew to be 5 ft tall. I hate being 4’8 because I sometimes feel rejected due to my height. Now about not having a baby, it makes me made to see women abort their babies while people like die for having one. I baby is a blessing from God.

[@tonnikeith]

You are a very inspiring woman. I am 20 years old, and my 4 month old was diagnosed at birth. She has undergone heart surgery to fix her coarctation. I have talked to a couple Turner's moms in my area but they are much older than me so it's hard to relate. I have never thought about seeking out a Turner's girl that is about my age to find answers (due to lack of info and recognition). If you ever want to talk, I'm here:) I know its hard on me, knowing the challenges that lie ahead. God bless:)

[@charlottewilliams5538]

I was born with this syndrome but my parents lied to me all my life and when I got with my partner in 2014 he knew something was wrong my parents told me I couldn't have children but due to trying so much I have a gorgeous little girl and she's now 11 moths old and I've only just been told I have TS I'm 21 this year and I'm finding it difficult to cope with the news about it I've been informed that there's nothing the doctors can do for me but give me regular check ups and medication for my pain. I've looked on the internet and read stories about this condition and its helping . But seeing your video today has helped me more I now know I'm not alone with it. I know my comment is a few years later from when you made the video I just researched the syndrome as I only got told a week ago I had the syndrome as my parents told me I had chromes disease which they had lied to me as my GP told me I had TS .

[@jessicalrock]

Hi Emily, thank you for sharing your story! You are such a beautiful and amazing person! My daughter was stillborn last year and had Turner Syndrome. I love seeing stories like yours, you are very inspiring.

[@nualayetman1737]

Hi Hon I have Turners and \I had a daughter through IVF Egg Donation. She is mine and I love her completely. I would love to talk with you.

[@kelrae1982]

I was diagnosed with Turners at birth. Thank you for making this video.

[@neverlandgirl22]

Thanks for talking about TS! I was diagnosed when I was 12. I took growth hormone shots for awhile and it helped me reach 5ft. I'm 25 now but people often mistake me for 14-15.

[@MzMLT09]

Your story fitted me so much, I'm going through the same thing. I feel you. Your not alone. :)

[@sarahrichter5560]

thank you for your story. i am going next month to have my daughter tested and she is 7. bless you for making this video. this eased the ache on my heart since i know its not to late for her to get treatment.

[@emilytarbox6154]

Hey Brittney! Thanks for reaching out :) I am so sorry you've had all those surgeries due to TS, its so humbling to here stories that are worse than mine. Fortunately, i haven't had a bunch of health problems but its so refreshing to know youre still here and in good spirits! I watched some of your videos, and you are a beautiful woman with what seems to be a great attitude in life! :) Stay strong, and God bless! If you ever need someone to talk to, ill be here for you.

[@reba233100]

I also have TS and I'm also a heart transplant. It does bite that I got this but like you said God made us the way we are for some reason and in His time we will find out what that is. I do find it kinda sad that because of TS we arint able to have kids I'm almost 25 and I would like to be able to have kids on my own someday but that may not be possible. I also took the growth shots when I was 15 or 16 I believe I'm as tall as I'm gonna be at five feet lol. You're right TS Is over looked cause it's not very common but It is what it is and we just have to live each day one day at a time and live life to its fullest and try to enjoy every minute of it. :)

[@QueenDarneisha]

Thank you so much... I found out when I was 14 yrs old and I'm 15 now ...my mom always wonder why I was always shorter than kids of my age group so we went to the doctors and they ran test and called a week or two later and asked us to come in and talk about it .. And that's when I was diagnosed with TS .. So thank you for your video and support... Anyone with TS please don't be afraid to contact me and talk I would love to talk to someone who knows what I go through

[@jennifermartone6604]

Hey sweetie, thank you so much for sharing your story. It is inspiring to me to see such a positive attitude. I too have been touched by Turner's. I am a 37 year old woman, with no children of course and it has been a struggle. But I know I am loved and have wonderful friends. You are right that we are special and God has a plan for us. You can adopt and I hope that you do. There are so many wonderful children out there that would need a home and you will make a wonderful Mom someday. God Bless

[@dollyvuitton]

I was diagnosed with TS about age 14 so quite a shock.. getting older and seeing pregnant woman all the time and mothers with kids it hurts a lot :/ god bless

[@elizabethmoshiri]

same. I hate it

[@dollyvuitton]

+Elizabeth M Sorry to hear that you are affected by TS hope you are ok healthwise.. It is tough but I guess we have to keep moving forward and live life to the fullest.

[@tamekamiles6360]

Liz Kang it is hard it kills me all I do is cry my best friend just had a baby and all I can do is cry I feel so broken

[@emilytarbox6154]

Hi Jessica! First off, I am so sorry for your loss and hearing that! It breaks my heart. Unfortunately that is all too common for babies with Turner Syndrome. I'm glad my story was inspiring to you! You will be in my prayers and hopefully God will bless you with another, healthy baby! Thank you for reaching out, it truly means the world :)

[@emilytarbox6154]

I'm sorry to hear you're dealing with the same thing but thank you for letting me know im not alone and neither are you! if i can be of any support don't hesistate to say so. You are in my thoughts and prayers, Lina!

[@olivamariamushi3093]

Hi I'm also diagnosed with tuner syndrome, bt it was too late i found that when I was 32yrs, I felt good when I get to know that I'm not alone in this journey, we have to accept the situation, be blsd!

[@emilytarbox6154]

Awh, wow. Thank you so much! I refuse to believe you are beautiful. Beauty to me is defined by what is inside someones heart, not their outer appearance. Stay strong, beautiful and thank you for reaching out to me. It truly means a lot!

[@beeblondee]

hey Emily, My name is Brittney and I am 21. I am very encouraged by your video. It's good to hear from others with T.S. I was diagnosed pretty much at birth. I had heart surgery neck surgery when I was very young. It didn't really affect me until 7 or 8th grade when all the girls started developing and having their periods that I felt alone & different and very awkward. I am a Christian as well and it is only God who has gotten me the through the hard years of my life.

[@allisonadams5997]

You are a beautiful person who is going to have some great things come in life. Keep that positive attitude and keep loving God and you will be just fine :)

[@nisha2010ism]

Emily you're awesome i don't have Turner's but i do have Cerebral Palsy being different is hard but you're right God gave us our conditions for a reason, I really felt your heart in this video thank you for having the courage to be so venerable. . Remember: You are the best and you deserve the best.:) Yours sincerely, Nisha from South Africa

[@Andreea05990]

Hey girl, I have Turners as well and would love someone to talk to about it, our stories are really similar :)

[@ButterflyTV1]

Great video! I have Turner Syndrome as well, and am also using KZbin to share my story. :) It's so comforting finding another woman with turner syndrome, who can relate. Right now I'm going through infertility stuff.

[@melissabenitez8550]

Hey Emily im melissa and im 15 years old now but when I found out I had ts I was 13 years old when i found out I had turner syndrome and I wanted to thank you for making this video so people know more about turner syndrome 😊

[@quezada243289]

Hello Emily I just want to say ur a very beautiful girl n very brave to show the world what u have my daughter is 3 months old and she has turner also and at first it was hard cuz she had heart surgery wen she was 1 month old n now she a lot better she has gone trough a lot but we love her to death n I hope wen she grows up she can be like u happy n open n proud to be a Turner girl thanks for ur story Emily hope everything in ur life turns good :)

[@jeffcouldan1628]

God bless, hope you get everything you want in life, stay strong

[@beauty2333]

well done to you for making this video. I also have ts and am happy to have it now as I've learnt to see the positives that it can bring. we are highly capable talkers and readers. Plus we are highly compassionate too so who can say those are bad things.

[@rachellamb7829]

I have turners!!!! This gave me so much inspiration!!!! Thank you so much. You have given me hope!!!!! 😊

[@mindycelinelora2866]

keep inspiring others you will go far!

[@bertineaperlo5980]

So amazing you do this! I was diagnosed with ts since my birth.

[@Alaa-ft4is]

I can barely hear you because of the background music. You really help me & wish me luck on my Genetics Exam tomorrow.

[@amymitchell8877]

Hi! I have Turner Syndrome as well. However, I wasn't diagnosed until I was 20! I'm 33 now. I am 4'11" because I was diagnosed to late, I didn't get to take growth hormones. Thanks for sharing your story!!!

[@daniellemoors9021]

thank you so much for sharing your story i all so have turner syndrome and i was diagnosed when i was 14. thankfully i have mosaic turner syndrome (Much milder case i am only missing 1 x chromosome) by the time i was diagnosed it was to late for me to take growth hormone so i am only 4'9. i share your pain its hard to know that when time comes where you are ready to have children there is small possibility to get pregnant and it scares me

[@emilyroberts3832]

Hi Emily, I'm Emily too :) I just wanted to write and say your video resonated with me. I don't have Turner's syndrome, but I do have Asperger's, so I understood what you meant when you said you wished there were someone with the same condition you could talk to about it. I wish I had another aspie friend to discuss things with, because it's hard when it feels like the people around you don't understand. Anyway, thanks for making this video, you seem like a very interesting person.

[@emilytarbox6154]

Hello! Yea, I have been told that I'll have to watch for my Aorta as time goes by but for now the doctors have said all is good, which I am so thankful for. Thank you for sharing all that with me, I really appreciate that :) Infertility is hard but there are so many other options, such as IVF. I will be thinking and praying for you for the next few weeks as you go along in the treatment and do your transfer! Good luck, and I'd love to stay in touch with you to see how things go! -Emily

[@Emz1402]

Hey Emily nice to see other videos about Turners Syndrome thought it was really good =] I am 26 with TS trying to raise awareness like yourself was diagnosed from birth but have not been affected other than medication and height thankfully. Anyway just wanted to say thank you for sharing was interesting to hear another experience of TS =].

[@keke5238]

Thank you this is helpful Now I no longer feel alone.....

[@euniceloh3715]

hi emily i too have this and I find it very hard to accept you are stronger than i am though , i hope i can find someone special in my life it doesnt matter if i dont have children in future . may God bless you

[@dollyvuitton]

+Eunice Loh Hi I have this too me too its very hard to accept :( especially when I see woman getting pregnant it hurts a lot sooo painful for me that I don't want a boyfriend or anything but I hope you can find a guy who will love you no matter even if you can't have children best wishes

[@euniceloh3715]

+Liz Kang hey liz thank you ! i know it hurts. it pains me too . remember we are not alone in this. Happiness is how we look at life. i wish you the best too. i hope we will find the right person who will love us for who we are . best wishes to you too liz

[@emilytarbox6154]

I'm so sorry to hear that. Stay strong, and you are in my prayers :)

[@emilytarbox6154]

Hi, Arielle! Thank you SO much for your kind words, they have truly touched my hear and made me smile! :D Personally, I think 4'11 is such a good height ;) Don't let anyone bring you down about your height, ever! You are beautiful the way you are! As far as infertility, I'm right there with you girl! Its been hitting me really hard lately, with friends and family having children. God bless you, and thank you so much for being so kind! Feel free to email me if you need a friend to talk to!

[@darlenedonoho7522]

We just found out about my 13 year old having it. I was a mess when I found out she would never have children. She has to go to the cardiologist because of her chest pain and possible leaking valve. Her liver enzymes and WBC is high as well and tripled over the summer. I'm scared. We are waiting to hear if her growth plates are still open so we can do the growth hormone shots. She will start HRT at the same time.she just wants to be bigger. She will be 14 in jan only weighs 75 pounds still wears size 10 in jeans. She is 52 inches tall. I just want to learn more about it.she is the size of a 7 year old and she is graduating 8 the grade this year .thank you for sharing your story

[@nataliamcguire6632]

God blessed you and your family, don't Turner syndrome rules your life everyone can be different right? :)

[@amyraab8326]

I have Turners SyndromeThis video meant a lot to me.Thanks Emily

[@pato424]

Hi, I have TS too, praise the lord my heart is good! And yeah like all of us, was told I can't have babies. You know what, I am a very dedicated musician. Spanish speaker, speak English, French also learned german( at high school), study in the states with full scholarships my graduate program in music. THERE ARE NO BARRIERS!, now yeah not everything is color Rose, but the show must go on!❤️

[@DireitoSemNoQueTange]

You are who you are because there are greater responsibilities at your back. May this not be something to hold you down, rather an opportunity to reach out and cause impact in everyone's lives. You are a heroin, God loves you. I don't know you but I would really like to meet you one day, you surelly are God's precious pearl! Keep fighting, be you, be God's princess! +Emily Tarbox

[@Puppylover-oi7tc]

U r so lucky I'm lucky too but not as lucky as you my symptoms include . I have a slightly lower than normal hairline and ears . .regular ear infections .short stature .puffy face,fingers,hands,legs,feet and toes .upwards facing toe and fingernails .delayed sexual development .lots of moles I also didn't get diagnosed until I was 12 so I didn't get Much of a chance for growth hormone before I had to start estrogen pills I did get some though Thanx 4 this vid thou 😉👍

[@tashtube91]

I have it too. I found out when I was 8. I am 23 now and my husband and I are ready to have kids. It is truly heart breaking to me every day that I can't. Another part of it for me is feeling like I'm not a real woman. I look very young and I am 5 feet. All I want and have ever wanted is to give birth to my own child. It's a beautiful thing that I will probably never experience. But like you said the Lord has a plan and knows what he's doing. The best we can do is trust in Him. Stay strong sisters we are all in this together.

[@virginiacosner6562]

Hi Emily! Your video was great to watch. I am 26 years old and I was diagnosed with ts when I was 3. Would love to chat! Btw...... You area beautiful on the inside and out. God has blessed you with such a caring heart. :-) stay strong

[@emilytarbox6154]

Hi Virginia! Thank you so much for your kind words, feel free to email me if you'd like to chat. I would love that! [e-mail]

[@laurengooler1747]

I'm 15 weeks pregnant and was told my baby girl might have turners. This was very helpful

[@emilytarbox6154]

hey heather! my advice would be tell your mom, and go to the doctor. They can tell you whether it is this, or if its something else hormonal going on in your body. Don't ever be embarrassed to tell your parents anything. they love you, and they want whats best and if this is how your feeling, you should tell them so you can get answers from a doctor if you feel somethings wrong. Praying for you :)

[@jennyperez3303]

I have turner syndrome and Ik that the fact that we can't have kids doesn't mean that we can't be a mom ! That's what it matters !

[@johnnycorsi7522]

Hang in there Emily I'm sure there are going to be some amazing things that will happen in your life.

[@nataliamcguire6632]

You're an amazing girl!! God blessed you and everyone who have Turner syndrome. Everyone's different right?

[@emilytarbox6154]

Sheatye, no thank you!! I'm truly sorry you're having a hard time with the information like I am but just know that Gods got a plan for you and for a special child, no matter what way you obtain it. Whether it's via adoption or other ways! Glad i could be of some encouragement to you!! :) and thank you for being there for me, it truly means more than you know!!

[@emilytarbox6154]

Hi, i am very sorry to hear that. Keep positive, and stay strong! God bless.

[@acbriony4]

Hello I'm 13 I have mosaic turners syndrome I was diagnosed when I was 11 and I have had a very hard time growing up I did take growth hormone but I felt so alone I wish I looked at your videos sooner :( you seem so amazing xx

[@emilytarbox6154]

Hey Jennifer, thank you so much for your very kind comment! It made my day :) I am happy to hear that you have good friends that make you feel loved and supported, as do I! I'm sorry to hear that you have no children, and if you plan to adopt I wish the best of luck to you. God bless you and thank you so much again for your wonderful comment. It will be etched in my heart forever. Thank you!

[@tiffani_celeste]

I'm a fellow ts girl, and I love this video!

[@salvolondon]

its actually 1 in 10.000 girls that are born with turner, so it is pretty rare

[@cherylfairy6570]

It's 1 in 2500 live female births

[@hayleyreynolds1477]

I am not so affected but it has made it hard to talk with people in the past.

[@shortierepinbpt]

You are so lucky I have everything that cones with it from kidneys to heart problem but Thank God my heart problem got taking care of when I was a new born I'm still dealing with my kidney issue and it's a lot to deal with and take in almost lost my life due to a U.T.I but I'm still here gotta focus on my health I'm 22 and my youngest sister is on her third child it hurts me to not know if I'll be able to have a child of my own it's been my dream to have a baby of my own females younger than me is having kids and me knowing it's a slim chance hurt but we gotta stay strong we never know What's in store for us

[@gabriellaferguson6964]

this is very touching. i think u should adapt. you would be an awsome mom!

[@kalabworkye3177]

So inspiring

[@nathanrieben2925]

Hi Emily, I really appreciate what you had to say about TS (and about your faith too!). I'm courting a woman who I strongly suspect has TS. She is committed to having children and it's her number one reason for desiring marriage at all. She's 25 and has many/most of symptoms of TS. I want to broach the topic with her, but I don't want her to feel hurt or offended. Do you have any ideas on what would be the best way to approach this topic? Thank you

[@ElliotT313]

I found out I had TS when I was 7. I have mosaic Turners (luckily). I'm still the height of someone 3 or 4 years younger than me, though. At least when I'm 40 and older I won't have to worry about looking old XD I don't know anyone who has it personally either. It can be hard, but like everything else, we get through it. My mom used to say that G-d gives us tests like this because He knows we can handle them