Difficulties Eating in Advanced Dementia | Nancy Weintraub, MD | UCLAMDChat

UCLA geriatric health expert Nancy Weintraub, MD, discusses difficulties that people with advanced dementia face when eating and swallowing. She will address options to deal with these issues.

[@fahafarrukh119]

Mam I have been dealing with my mother for the last 6 years. Now she is at the advance stage. I feel like crying when listening to u as it seems telling our story. Demented people really don't find anyone to be with.

[@stephonsconiers466]

This video is very informative. Currently somebody who is close to me is not eating and refused the feeding tube. Before watching this video I was going to try to encourage my loved one to get it but now after watching your video, I just going to let go and leave it in God's hand!

[@deborahgolob6275]

I learned the hard way when i took care of her. I put a feeding tube It prolonged her life a year. In my heart i knew it wouldn't help but i couldn't let her go

[@2008betwixt]

Thank you so much for this brilliant talk. It will help me with looking after my mum better. God bless this lovely speaker.

[@deborahgolob6275]

Alzheimers is the most horrible and sad journey. I am a special education teacher with 2 master's degree i owe my success to my mother

[@Friskyhorton]

If I can no longer eat, my family knows never to give me a PEG tube. They are so wrong for dementia patients as they rip them out. Once they cannot swallow it’s time for palliative care to ease them off.

[@nickstrapko7549]

Ive just heard 15 Percent effective

[@carolragsdale1105]

Thank you so much, Dr. Weintraub, for your clear, no nonsense, kind and sensitive suggestions in approaching the last stages of this terrible disease.

[@deborahgolob6275]

It is awfully painful when when your mother does not know u are her daughter

[@DriftyAlison0]

You can also get it by aspirating your own saliva. Ty for this video. So important to have the talk before they get to that stage so you could know their wishes.

[@patriciamanriquez9934]

Thank you very much doctor. This video really helped me understand better my dad’s condition. I do what I can to make sure he eats properly and I am blessed to have him near me to be with him at this stage of his life.

[@lauriechmielecki6576]

My mom has been on Puréed foods for a few months now!

[@nickstrapko7549]

My mother 89 Mid stage Dementia, knows people, family but would have dificulty with computational or intelectual tasks was eating. bathroom skils intact. by herself normaly making chicken broth with noodles, carrots. mushrooms. etc. Also eating deli meat. ala salami, ham, TWO Slices of Pizza or more a week . Had pneumonia in hospital for a week. Staff in hursing home says she has metabolic encephalopathy , from infection,maybe hospital covered up diagnosis. THEY Wont say how to resolve it . She is on Honey thick diet , finds it unapealing. Therapist says swalloing not correct. She would cough during eating sometimes but she went long time maybe coughing for some years.. Just came down with Pneumonia sudenly. Very surprised. Now we are told she cant eat solid food. IN hursing home in bed some therapy. I dont trust the Speech therapist. Motther has not had a video swallow where is the evidence????. She can swallow. But she may aspirate.or is something else going on We arent being told just to keep her in that home , They want hospice. three weeks ago she was walking with walkier and doing most tasks with minimal supervision. Now shes dying WTF

[@lorijhoey]

My grandmother vomited daily with the peg tube and she lost weight. She suffered from a stroke and had this tube for 9 months. It was so difficult to care for her and watching her wasting away.

[@ericcummings5579]

This was very helpful. Thanks for your help and support. Our love one is going to be treated much better now that we understand that there is not much we can do to stop or reverse her condition. It is sad to watch them go in this way. It is the not eating reason for us to watch this and we have been fed with more than enough. Thanks for your help and support you.

[@nancyschaefer9748]

My 87 year old husband with dementia was in the hospital after breaking his right hip and after that he could not swallow and does not like the honey thick drinks or the puréed food.

[@antwanm.toniboysmith3384]

My mom has dimentia, and we feed her mashed potatoes and apple sauce because she can't swallow solid food now.

[@jemoeder1991]

Is she still eating that now? Going through the same thing

[@rescueumbrella]

Thank you! Excellent and clear!

[@skamithi]

Thanks for making this video. Very informative.

[@bobcatstillwell4844]

Jeeze whats the point of living when dementia gets this bad? No quality of life. It's time to let your loved one go when they get this demented. My dad's dementia is about this bad. A peg tube is a cruel and stupid alternative for families who cannot let go. Thank god my dad is a DNR.

[@catty127]

It is sad, quality of life is not great. I work with advanced dementia on a daily basis. So u have to find the food in each day that makes the people smile

[@happycook6737]

Or for nursing homes to keep cash cow paying patients alive. In early 80's the nursing home did this to my grandmother against family's wishes! She lived another 9 months laying in bed with eyes closed and unaware. Luckily she got a urinary tract infection and died.

[@suziquestionable2845]

I totally agree.

[@suziquestionable2845]

I totally agree.

[@-whackd]

You can reverse Alzheimer's dementia with a ketogenic diet. There's 2-3 placebo controlled human intervention trials on this and a mound of evidence that high blood glucose and high brain fructose progress the disease. There is so much evidence of this that researchers are calling AD as "Diabetes 3.0".

[@notmyhome]

Thank you, that was very helpful.

[@carolynhiscock9457]

Thank you for clarification,confirms my opinion.

[@janetfishwick8887]

Her appetite has reduced over the past year and she has lived off paltry meals and snacks. Her biscuit intake is incredible, but now this has slowed down. She eats a few crackers and cheese at lunch time and has a small meal at tea time prepared with the help of her carer. Mother will not tolerate help with anything and insists that she can manage. Time will tell and we await her demise on every level.

[@jewelerdelyi3756]

Very helpful. Thank you

[@jboomhauer]

But what if the patient can still walk and recognise people? Surely then a PEG tube will prolong their life?

[@jessiestar4157]

No , sometimes i swallow food or drink 1\2 way down , my throat switches off for about 4 mins , then very very slowly I resume swallowing , then my throat feels bruised & contorted

[@jozetteswensen5526]

I have been doing this for 3 months. I dont have dementia I am pretty clear in good consistency of mind and ability

[@Flora-qc4ex]

Thanks!

[@CamC-hs2gv]

Fantastic, thank you sooo much!

[@sorbead1]

The strow,bad aid......good point thanks.

[@pammi100]

Thank you Dr for this invaluable information. 🙏

[@paddleduck5328]

27:05 peg tube vs. face to face time, mental stimulation/interaction

[@magedabuldahab7481]

28:07 any viewer should appreciate and sympathize with this moment, where the doctor and lecturer is struggling to keep her composure as she speaks about the defining moment of losing your patient with dementia, the moment where you know for sure that the patient will die of aspiration pneumonia

[@nickstrapko7549]

Dying isnt necessaily the outcome.

[@lauriechmielecki6576]

My mom always liked to try my flavored water on visits!

[@Warriorsfan540]

Thank you so much. The information about PEG tubes was so helpful. Would you be able to share the links for the studies you were referring to in regards to life expectancy and quality of life with vs without PEG tube and late stage dementia patients? Or maybe point me in some direction where I can find that information? Again, thank you so much. This lecture was exactly what I needed to hear.

[@RuhulAmin-hi7op]

Nice deliberation

[@gary66992]

good however no good its the end of a persons life / why why why have we not yet found a cure why why after so long

[@ruzgarjason1061]

😢

[@paddleduck5328]

32:20 exercise is so helpful

[@jozetteswensen5526]

Please give me attention and counsel me what is needed next.

[@lauriechmielecki6576]

Heartbreaking

[@janetfishwick8887]

My 93 year old mother has stage 4-5 Alzheimers. She was diagnosed in 2014 with MCI and has progressively worsened. She has no memory of days, months,seasons or the hear we are now in. Mother has carers twice a day and is under Adult Social Care Services who have a care package in place which includes a hairdresser, chiropodist and cleaner. Mother has lived on her own for 31 years since dad died. Her appetite has become m

[@jozetteswensen5526]

I need to know what options I have, just had a barium swallow test. First swallow showed it is going into my lungs, he didn't dare to give me more have you ever heard of this, what is going on?

[@wafaibrahim369]

Thanks 🙏🙏♥️

[@rescueumbrella]

The body is unable to process the nutrients.

[@brucemah609]

How do you deal with it please?

[@laurakinsella1692]

What about the person who is always hungery because they forget that they've eaten 4 meals already and it's only breakfast time and if you say no you've had breakfast they get angry because "I've not had any breakfast"

[@suziquestionable2845]

That is my husband. He seems to have no satiety point. He doesn't know when he's full, so keeps eat

[@suziquestionable2845]

Ing, even though l,'ve asked the staff has been notified about thiš.

[@laurakinsella1692]

At the home I work at we have a resident who can easily eat and this is just at breakfast a bowl of cornflakes, 2 slices of toast, a banana, a yoghurt, two slices of toast, a banana, a yoghurt and a bowl of rice Krispies, and many glasses of milk. The thing is that the only way to get this resident to sit down is to put food in front of them otherwise they will interfere with everyone else who is trying to eat there breakfast. at the rate this resident is going there going to be the size of a house.

[@brucemah609]

Is it called pocketing?

[@CreatingwithWinglessAngel]

How do you keep them from eating every speck of food while you're trying to get some rest?!

[@LoveEarthPeace]

I am concerned that residents do not get to come out in the fresh air daily, not even weekly, on a regular basis. Even with a wheelchair it would be possible. This is for the mental health and appetite, relaxation and sleep. Families should be encouaraged to help their loved ones at a dementia unit. ☯🌞🌺🌿

[@paddleduck5328]

8:55 food and liquid consistency

[@PiperPruiksma1986]

Don't feed them at this stage. This is cruel to the patients and it's only for families who can't let go

[@culturematters4157]

I agree.

[@paddleduck5328]

28:00 eating vs tube

[@paddleduck5328]

15:19 ng and peg tubes

[@andrewlyons8077]

I don’t agree with calling a person with dementia “a demented person” The correct thing to say is “a PERSON with dementia”

[@yvesouza514]

So in other words, a demented person. Got it.

[@andrewlyons8077]

@@yvesouza514 it’s more to do with the fact that they are a person first and before their condition. Easy. Its pretty standard for health professionals

[@yvesouza514]

@@aprilmay1700 I am a demented person with cancer.

[@culturematters4157]

Add "demented" to the list of accurate, but politically-incorrect words we're not supposed to use.

[@jen-lb6lg]

Very informative but the frequent "uhs" are extremely distracting.

[@magedabuldahab7481]

Make playback speed 1.5 " the uhs " won't be noticed,

[@lauriechmielecki6576]

She has had choking issues in the past!

[@Toonice20]

Should we start using a straw for drinking?

[@andrewlyons8077]

We started giving my mother a straw and it did help but she was getting tired easily because of the effort it took to move her muscles was too much. We now use a beaker

[@donnabonn1892]

@@andrewlyons8077 What is a beaker?

[@jboomhauer]

28:30 - she says never use straws.

[@paddleduck5328]

29:15 coughing is good

[@paddleduck5328]

30:15 feeding motivation

[@paddleduck5328]

Large servings overwhelming, feed enjoyed foods frequently

[@paddleduck5328]

20:00 considering a peg tube

[@cathyg1099]

Uhm, uhm, uhm, uhm, I just can’t watch.

[@karencrecco2922]

Hard to follow. Inarticulate