UK HSP Support Group 2020: Insights from large HSP cohort

[@joywaltz8762]

This was such a helpful presentation. Thank you. I am an American woman of British/Irish decent and this answers so many of my questions. I am 51 and experienced onset of symptoms at 38 years old.

[@debrabremer1644]

This has been very interesting. Thank you for your research efforts. Are you aware of any similar centers in the United States?

[@ukhsp-spasticparaplegia]

I dont know - but these guys should: sp-foundation.org/

[@debrabremer1644]

@@ukhsp-spasticparaplegia thanks so much!

[@jasonashbrook9363]

I have been diagnosed with hsp 15 and thought I was completely alone. Has there been any advancements in this gene therapy or treatments? I am a 38 year old American but I will do anything or go anywhere if you can help! Thanks for video!