Uncombable Hair Syndrome and Other Rare Genetic Conditions

These are rare medical conditions. In 2017, Jackson, Hunter and Caden Howard were born with a rare genetic disorder called craniosynostosis, which isn't unusual for newborns, but it’s very uncommon in triplets. In 2021, 14-month-old Locklan Sample was born with a rare genetic condition called uncombable hair syndrome. In 2018, Mui Thomas shared her story about living with harlequin ichthyosis. Inside Edition Digital’s Andrea Swindall has more.

[@Nyokicat99]

The last segment made me cry, that mom saying if her baby wants to hike she would carry her just so she could have that experience. That is so wonderful and sweet.

[@victorsamsung2921]

Right! That's when you know the child got sent to the right address. No matter how hard it might be, accepting this rare condition. But love and goodness knows no boundaries. One way or the other.

[@feliciajenkins5041]

Yes 🥲

[@brandonbarton9016]

It is so wonderful it shows u what we will go through for others it's just so sad but life's so beautiful

[@kayla7562]

@@brandonbarton9016 exactly what I was thinking too

[@dannyx498]

How about "mom I want to kill myself because you gave me this embarrassing unlivable condition"

[@ellaknox4544]

I was born with something called mirror movements disorder. Which means my hands involuntarily do the same thing. It's less than one in a million and I'd love to meet someone else who has it one day

[@SobrietyandSolace]

Meanwhile I find it impossible to mirror someone. I don’t have the proprioception! Very interesting

[@bennekin]

Is it just your hands or is it your whole arms? And does it always happen or just sometimes

[@hase4681]

bro the way you could work an assembly line would be unmatched

[@sarcasticallyrearranged]

Ella, record and upload a video clip of it. Educate us about it.

[@adfadgaqgv]

I thought it was just being Italian

[@BK-mo5xh]

Omg, those triplets really cute. I can’t stop smiling.

[@justlift213]

I was stuck on them too, some of the cutest babies ive ever seen

[@LiliWhyte]

Oh yes, I think they're just so adorable! Such sweet innocent cherubs!

[@guesswhat-chickenbutt]

Mui seems wise beyond her years! 😌

[@Bettinasisrg]

And all my "big" issues suddenly became a lot smaller! I love brave people they're the true celebrities.

[@kayla7562]

Omg I was going to say something about someone else but that mom at the end just made me feel emotional. So glad both of those little girls have such loving parents that will give them the best life possible.

[@LiarNobody]

If the first dude ever becomes a superhero, I'm 100% volunteering as his bizzaro version.

[@bullgravy6906]

I’m already the bizzaro world. Two steps from the couch to the fridge and it’s time for a breather. Or is that opposite world?

[@bing4783]

“she can ill help her”. best five words i’ve ever heard.

[@gamebreadanimal]

That mother saying if her daughter wants to ski, she will help her. Or if she wants to hike. I’ll pack her. Where did the worlds mothers like this go. I’m a grown man and this brought a tear to my eye. Prayers for these people and there conditions 🙏🏼

[@melissadwiggins]

I was born with a form of icthyosis too; lamellar icthyosis to be specific. You can't even really tell I have it anymore as I have the mildest case they'd ever seen when I was born.

[@rescue9810]

1:40 y’all seen that one triplet hanging there 😂 post operation…. They’re so adorable ❤ each of them looked so different from the other

[@sarahschilanakratzer2561]

The mom at the end was so sweet If she wants top Go hiking and she cant she can i Just carry her... I almost was moved tob tears... I have a Chronicle desease too and my Mum helps me a Lot witch Things i cant do im 30 and she is still with me at every important doctors appointment and Sometimes at normal doctors appointment too

[@yiandrea84]

Thanks for sharing these stories!

[@sharonanderson6161]

My heart goes out to these people and for their loving families who give them support and encouragement and teaching their to be independent.The young lady with the skin disorder she has such a beautiful heart and spirit

[@aleffush]

I pray the best for these people and applaud their strength! Inspiring!

[@ballistic2527]

I hope they all lead long, happy and fulfilling lives.

[@Epicface888chu]

So sad. All beautiful kids and people. Love the parents that truly love their children as is. Trying to help them as much as they can!

[@she_sings_delightful_things]

The last mother 💔 That teared me up.

[@vadim9342]

The runner is an absolute badass :)

[@ineedauhmmmuhu]

Damn, running from Los Angeles to San Francisco feels like running from cambodia to Thailand, But thats crazy, I can’t even make it to a mile, Further than one mile, Nice one!!

[@anthonyguarino4242]

Only sonic the hedgehog can do that in the few minutes on earth!

[@bullgravy6906]

Imagine being able to run 350 miles in a single session and instead of running endlessly away from California you just go north to SF.

[@Pronouns1737]

That man that has superman strength definitely needs a documentary. He looks cool!!

[@Animalfarm6cats]

The lady with Epidermolysis bullosa is lucky, to be able to shower. I worked with plenty of little children who have it. They had to be wrapped in sterile gauze. My heart hurts for them.

[@kyodizzy]

There's so many unexplainable conditions out there... I'm suffering from a neurological condition where I feel like I'm constantly rocking on a boat 24/7 every second... It's depressing and early on thought about ending life... Wish there was a cure

[@kellyoyen3421]

My friend Eva has the skin condition where the skin grows really fast

[@its1121skull]

No one noticed when it showed distance from Los Angeles to San Francisco, the point was not all the way on San Francisco

[@saiyedf]

May God Bless All These People And Us Too.

[@manningmusic5160]

Bro the first guy is Forrest Gump irl 😂

[@BoazLifting]

Fax

[@elijahevangarcia]

I can’t even run one mile Without stopping 😂😂😂😂😂😅

[@havik9581]

The first running guy - just strap me to his back during a zombie apocalypse 🧟‍♀️🫠

[@KITSUNEDEITY.]

Lmao yes

[@Rayman1971]

I saw a pic of my maternal grandpa, and noticed his hair looked like mine! Mom and my Aunt tell me that he always looked liked that, no matter what he did. I can't keep my hair looking brushed/combed, they also told me that I have his hair too!!!

[@aicelgr7872]

God bless them 🙏 love ❤️ for them. I had my daughter with a genetic disorder called I-cell disease. Very very rare, too. She is my angel now 🙏😇

[@ninojohnson6911]

My Condolences 🙏

[@Jenahh-aye]

💔 sending you a world of love.

[@TheSouthIsHot]

I would love to have that first rare genetic condition.

[@redlight3932]

We could possibly make a pill that breaks down lactic acid to have the same affects as his condition some day we might be able to take a superhuman pill

[@TheSouthIsHot]

@@redlight3932 Great! Let me know when we get there. 👍🏼

[@rosamunddrag8971]

So basically the first guy is like a Husky, that can use an alternative source of energy and run for hours lmao

[@southerngal7582]

Great Job 👍😄. I'm happy l can just walk to my mailbox.

[@prototypefilmproductions]

The triplets holding hands 😍

[@paramsinghkaila882]

God bless this all people ❤️🙏 God with you ❤️🙏

[@BabbyEl14]

Impressive😮

[@Eevanova]

My heart alwalways been hurting about people with ihtiosis

[@Jay-td5wp]

Uncombable baby hair is cute .the 1st guy just wow

[@marcelshousewife]

My brothers had the same condition the triplets had, what does that mean for twins?

[@Crazy_Schizo]

The one with more layers of skin is actually a trait to survive better in colder conditions

[@JenniferWash]

I would love to know more about Dean

[@AsjadSS]

If she wants to hike, I'll carry her😭😭

[@johnsmif7229]

I Carrey my lil bro with cp ,he's 90 lbs ,I'm 6'4 170, with terrible back.i got him on my back and walked up a creek to a waterfall and it blew his mind .I was juss glad to make it back lol but I love doing things like that and just being around him is like he glows lol

[@garyhibbert4875]

Boris Johnston have that type of hair too

[@janelle9707]

that's me, I can do these things, I love it. however pregnancy was tough on me, and harder on my body, not to be able to run.

[@heidihajny2663]

My niece also had the hair disorder, but she was so cute 💜😊💜

[@zaza2141]

My baby has it. It's funny.

[@dankification]

The guy that can run 4 marathons in a single session will genetically cheat on being first place each time

[@Royalty_girlie]

I'm just going to put this out there as a black woman before any other ignorant person comes along as says that uncomable hair syndrome is just a white person with black hair type, it is NOT just like black hair. Comparing the two is not only disrespectful to black hair but to the people with uncomable hair syndrome. Their experience is not the same as black people's, black people's experience is not the same as theirs. That's why it's called uncomable hair syndrome and not "a white person with black type hair that doesn't know how to take care of it". Not everything is about us, we do have to insert ourselves with the slightest things that resemble us. Thank you.

[@callamastia]

needing surgery on my baby is my biggest fear 😩

[@funfromabove9728]

Wow, that one made me tear up.

[@thashroko]

that mom on the end. superwoman

[@Jonniibuzz]

He’s in his terry fox era 😭❤️

[@azankan6734]

The first guy looked tired and sweaty after one marathon!

[@tammy3138]

That's awesome..

[@FatLittleOldLady]

Beautiful.

[@kokokat584]

Running 52 miles is crazy

[@AngelJuliet]

Sometimes I feel like my hair is uncombable 😅 or maybe just untamable 😅

[@goblin6037]

I have a rare genetic disease,not as rare as these but still rare,Hypermobile Ehlers Danlos syndrome

[@sukokium]

rn i can't even run 5 feet without panting

[@martianmurray]

Sounds like the first guy has an entire body made of cardiac muscle since he never tires

[@badguacamole3709]

Someone with psoriatic arthritis and skin arthritis I feel for the Harlequin gal.

[@Nullgative]

I can see that baby at the beginning rockin a mohawk.

[@imarvlog]

They were already Hockey players since when they were born😃

[@jafinch78]

Let's get cures out for all diseases and genetic conditions, regardless of the socioeconomic situation. That's the U.S. Jurisdictions spirit and intent to the letter of the law that I'll advocate!

[@smallfry1463]

Crazy that all 3 babies were born with the exact same helmets! 😆

[@mr.williams7911]

Dean hasn't met goggins.

[@locuscuztheyfocuse4581]

damn glad she still doing what she loves and not letting it stop her. now she is a strong women then those women posing just for likes so called strong womens now a days.

[@RawBombshell]

Dude has the lungs of 50 people lol wow

[@thelocal0170]

Surprised the first guy and David goggins haven’t crossed paths in the desert somewhere 😂

[@abdishakuraden9612]

Wow

[@exoticallovergirl]

Uncombable hair would stand a chance against a few sprays of pump it up

[@midnightcereal6973]

Shame on me, i don't have any of this disorder but sitting in my room all days all week. Feeling insecure about thr outside world.

[@Anonymous-hf3ko]

You’re all beautiful

[@-justmecubing-]

mui came to my school and i got a autograph

[@PitsTasteGood]

Who else remembers Stew Pickles' Bonkomatic Baby Bumper?

[@killerwolfthekingofwolves7704]

The flash is real ⚡️⚡️

[@StarryNightt.]

First guy is Chris Traeger in real life.

[@baksinghay9856]

300+ miles 😯😯😯😯

[@fajarkurniawan9434]

Why people laugh at that hair? That is so cool The baby straight up look like anime protagonist

[@kimitohanahala8674]

That blonde kid got Son Goku hair.

[@RickCp3]

Hope he's okay

[@nicholasc.5944]

first guy would have made a great footballer(not soccer 😡) if he was discovered at a young age, level 9000 endurance he would be like kante on steroids

[@liamtgreat]

The ball is made of rubber/plastic, not feet

[@Smokie1523]

Uncombable hair syndrome sounds like a fancy way of saying bald.

[@ktro007]

Forest Gumps brother!! 🏃 Run Forest, run!!

[@lilhysterectomy7794]

W parents compilation

[@milk_chemistry]

Couldn't you fix the uncombable hair syndrome with hairspray and gel

[@chillies4156]

Hi

[@Volvosky789]

Your first

[@nilesdragons65]

does Boris Johnson have the same hair condition?

[@2007Club]

He hasn’t met David Goggins . They two should meet

[@rowlandortiz1621]

I declare complete healing for all of them in Jesus name. Amen.

[@debbiecooper1677]

I was good till that started crying

[@josephcornejo2288]

Hey

[@jayone8888bb]

They look like baby spaceman Apollo 11

[@Magic_Doge]

why does the voice almost sound like AI?

[@ramtinmoharrami]

Terry fox has joined the chat.

[@Qwertyen12345]

Zoolander Baby

[@AdolfRizzler41]

My brother has that skin shedding disease below chest area of body

[@Choppswrld21]

Omg

[@BugsNStuf]

Real world flash

[@schlydops6352]

He's not fast, he just last longer running and walking, the real flash is Usain Bolt