Understanding and Assisting People with Epilepsy

[@angelawilliams5491]

I've been having seizures for going on 3 years now. They only happen when I'm sleep. This has changed my whole life. I can't work, drive or go anywhere by myself. I'm learning more and more about it but its very scary. Thank you

[@EpilepsyAwarenessHub]

Life was grand as a toddler, going on weekend trips with my parents, playing with my friends and listening to grandma as she shared one inspiring story after another about the good old days. What more could a child ask for than the love and comfort of her family? Surprising life quickly took a turn for the worst and that pathway I was destined to journey became rocky as traumatic obstacles crossed my life path and took me on a different journey. A journey, one no child should have to experience. The Beginning At the age of five, I had contracted a sore throat and an ear infection. My mother had brought me to the doctor’s office that evening and the pediatrician had put me on penicillin and told my mother to have me rest in bed. No one thought much of it at the time. I rested in bed and I was on the penicillin for about ten days. On the tenth night when she put me to bed, my lips were more red than usual. The next morning at about 8:00 A.M., my mother woke up because she heard unusual noises coming from my room that sounded like I was choking on my saliva. She walked into my bedroom to find me in my bed turning blue and having a grand mal seizure. This was the first time I ever experienced a seizure. kzbin.info/door/OzqYUgTHdJqF-XuNH2qt5w

[@vbxnzfdhj]

I wish that the Epilepsy Foundation spoke about Catamenial onset seizures, specifically tonic-cloning seizures

[@VWYL900802]

Had it since 16. Evolved now with my pms, because now seizures and auras are closer to my periods.

[@jacquelinemorffew7193]

I have enjoyed doing the course .

[@GermanFootballPlayer]

Very helpful. Thank you. Thank you very much.

[@crystalclear8859]

A bunch of crap! I've been an Epileptic for 23 years now, has had many different kinds of seizures, many meds, brain surgery where I thought it worked so I got my license, at some point went into a seizure and hit someone head on but they blamed it on Marijuana (it was in my system but not even smoked that day!), I still have seizures, cops find me and put me under a Chapter 51 hold and the hospital as to be Mentaly evaluated, I had another where they ASSUMED OTHERWISE AGAIN and had me sign myself out! When I was actually still unconsciously aware of anything and am still battling this hospital on these issues! The reality is, life's a bitch to just Live as much of society doesn't truly get this condition. Not even the dam hospitals! I have a stack of incorrect medical information on file do to the system. I've been an Epileptic long enough and know dam well when I had or may have just had a seizure and it ain't easy to just Live as what THEY put on file is not what really is going on in my mind when I am having one and it makes my life a challenge to just make steady income! Many corporations want to 'stop seizures' but what about helping us with our lives fucked up do to how the system is run? As I have been in this same ER hospital many times do to my seizures but they still get away with treated me like shit. To bluntly put it as I as an Epileptic need more 'help' than just telling me what I already know and no 'run' ain't gonna cure the corruption the medical system is pulling!

[@vbxnzfdhj]

Crystal Clear I have experienced the same treatment and I have had epilepsy for 25 years and I totally empathize with your experiences. Join epilepsy foundation for “patients like me” for support from and to people who have seizure disorders ... take care, Jill in Florida

[@erickalballesteros]

I take keppra and it really has helped. My last seizure was June 17 2017.

[@erickalballesteros]

Lyla White haha not possible but we can be friends

[@SOCORROSILVA-in7px]

@@erickalballesteros How long does a grand mal seizure last?

[@SOCORROSILVA-in7px]

@Lyla White May I be bold to ask you what was the last thing you did before having a seizure?

[@robertlouisburns]

3:13 "It could be a repetitive thought." Does this mean that their thought is in a loop or does it mean that every time they have a seizure they are thinking of the same thing that happened the last time?

[@vbxnzfdhj]

Bobby Burns As a 46 year old woman diagnosed with epilepsy and I have mostly Tonic-Clonic seizures and complex partial seizures and I have never had repetitive thoughts as I have no conscious awareness (it’s subconscious) of any repetitive thoughts and I have been dealing with epilepsy since I was 21. Disclaimer- I am not a medical doctor I am a woman with epilepsy. I hope that you find your answers! Try signing up for the epilepsy foundation for more comprehensive information! Take care, Jill

[@rosetoop5373]

Deja vu probably

[@davinia663]

This is interesting as I have Focal Epilepsy and what to learn more and very useful

[@mariamelmi2244]

I take the antiseizure medication Lamactil to treat my simple and complex partial seizures from temporal lobe epilepsy. It is really effective at controlling my seizures because I haven't had a seizure in 6 weeks at my current dose. Before I had a seizure every week sometimes several times a week then once every two weeks so this is unheard of for me. I'm fortunate to not get the generalized seizures but I can sympathize with those who do. That fear they mentioned of having a seizure is something I lived with in the back of my mind since getting diagnosed and probably will for the rest of my life even if they are controlled. I am thrilled that I haven't had a seizure in 6 weeks though.

[@jlarsenify]

So when a diabetic gets diagnosed with epilepsy do you call everytime

[@ayandazungu2572]

I had a seizure in my sleep bit my tongue so badly it's painful...how can this be avoided😢

[@sophiepalmer-doran344]

When I was a baby I had a febrile seizure I stopped breathing and turned blue my mom gave me mouth to mouth and by the time the EMTS arrived I stopped seizing. in pre k I would get angry and punch any thing that was in front of me that is when it was suggested that my parents should take me to a therapist. he took one look at me and said that I was having seizures he then referred me to a neurologist. At the at the age of 5, I was diagnosed with childhood absence epilepsy but I have been seizure free since the age of thirteen. And so was taken of meds which caused massive weight gain a hand tremor and memory loss. The point is meds are good up until a point and then it becomes a pill, no pun intended. My triggers are flashing lights, the transition from the out doors to inside a classroom getting too hot and recently sleep deprivation. when i have an absent my pupils will go from normal to pin point that is the only physical sign the eye can lasts My seizures last one second and happened every minute to every minute and a half. So there are 60 seconds in a minute and 24 hours in a day then I was having seizures every 1440 minutes or 86400 seconds so in total I would have 86400 seizures per day with meds. my parents were told to treat me as a normal child and to see how fare I would develop and look at me now I have graduated high school with honors . I am in collage as you can infer I was not expected to do much of what I just mentioned The effects of my seizures is that I have Aspie like tendencies due to my epilepsy which I know is difficult to understand to put it in simple terms as a result of my seizures my brain compensated and rewired itself and so I have all of the symptoms of Aspergers but lack any sort of understanding math as a result I have no understanding of money and never really learned my basic math facts.(I am just learning them now in college which for most Aspergers people they are gifted with math abilities ) I also have orthotic issues due to my seizures I also have a processing disorder. I have low gross motor control and other motor issues as well. After my father died, it seems I have had a relapse if that is possible. I still have my absence seizure but it is not enough to put me on meds . I take omega 3 cod liver oil liquid form as I cannot swallow pills this helps decrease the too small to medicate seizures I have very small seizures that show up on the EEG as misfired neurons and the Dr. called them "flurries" so here is what my flurries are typically like I will become very spacey I can not interact with my surroundings I also felt locked in to place. I am completely aware my vision becomes like a tunnel and thing start to move or vibrate on their own an absent seizure lasts 1 second but these flurries can last 5-10 minutes.

[@davidgallegos4187]

High humidity and low atmospheric pressure is the reason why people get seizures! I found out because my previous seizure was during when the hurricane and I googled it and found out. That's why places with high humidity such as The UK and Pakistan have the highest percentage of Epileptics.

[@hotpepper5125]

My last seziures 2010 in a airplane

[@SOCORROSILVA-in7px]

Wow. Were the stewardess able to assist you? Or was the pilot required to make an emergency landing at a nearby airport?

[@jacquelinemorffew7193]

I feel everyone who works in school should do courses .

[@iniobong5571]

Let me take out a moment in my busy life to send a thank you note to a very amazing doctor who is full of love and commitment,Dr ogie is truly a blessing to the world thanks for curing my epilepsy.

[@joyjohnson3561]

#DrObahistoricalherbs

[@eticetzyplie365]

Pls Live : number

[@vinopurshotam2443]

Be ok i had a massive sezure at work my buddys at work looked after me 4 days in hospital hard brused I'm deabetic back to work but it knock me out

[@iniobong5571]

Let me take out a moment in my busy life to send a thank you note to a very amazing doctor who is full of love and commitment,Dr ogie is truly a blessing to the world thanks for curing my epilepsy.