Understanding Ankylosing Spondylitis: Clement Lim's Journey

More than just aches and pain, former national swimmer Clement Lim shares how at one point of time, the condition left him unable to get out of bed by himself.

[@rebecalopes5668]

We “have ankylosing spondylitis, but that will not stop” us 🙏🏼💪🏼

[@WNYMM]

I mean it left me completely disabled and I can no longer do anything on my own but let me ensure you it did stop me

[@mandeep1413]

Take a bow young man! You're an inspiration to many.

[@Brian2Taiwan]

I was just diagnosed with AS. This video was very helpful and reassuring that even though this disease can be life changing, it doesn’t have to be something to worry about constantly. Thank you.

[@joepollitt8218]

Yeah man me too. I was diagnosed today.

[@sl9wdive]

How are you now?

[@tahasidd3012]

Same i was diagnosed with it a week ago.. still trying to learn more about it

[@tenminutetokyo2643]

Until you feel it and it won't go away or you can never bend again.

[@PaulWashington..]

Brother,Jesus loves you.

[@Sheeeeeeeen]

This is wonderful to see. I was diagnosed with AS back in 2017 and I’m glad that I caught it early like Clement did. He’s an inspiration and gives those with the same condition hope

[@arijitbiswas3020]

How're you now man?

[@lavitra.]

How are you now?

[@binali4971]

Hope you are well, I was diagnosed with the same in 2019, apparently I had the disease since 2004 and no doctor found out, there was periods with a lot of pain but I was doing a lot of sports I guess that eased it. I am on biologics now and feel really good

[@fahadsayyad4924]

@@binali4971 how are you now? and which medicine you are taking since then?? could you please let me know ? I'm also suffering from AS

[@binali4971]

@@fahadsayyad4924 medication called Cosyntex that is taken once a month. I never felt symptoms since I started taking it

[@hkginger]

Very inspiring! God bless you!

[@yepbriz]

I as well have this too for a very long time since my High School days and now I am 40. The pain I endured before now I was totally imuned by it, it feels like it was normal having a back pain.

[@suach03]

Im so happy to see dis video...im not alone. It gave me hope

[@ThisIzzTheLife]

Amazing & inspiring story! Great to hear from others with AS making the most of their lives! ✨💕 xx

[@ManishSharma-sg5un]

This Izz The Life could you please tell me the diet for AS What to eat and what not to eat

[@minerva7699]

Hi. I can relate coz my Boyfriend has this . How are you with it now?

[@souravmaity945]

You really motivated me I too have Ankylosing Spondylitis but it will not stop me .

[@YouknowwhereHughgo]

I've got it, it's gotten so bad over the last 5 years, my question is, how the hell do I exercise? It's like asking someone in a wheelchair to go for a run. It's just not possible

[@MaayankMavericks888]

very inspirational, we'll fight it together.

[@trybaldanca]

I have AS. I was finally diagnosed nearly 8 years ago at 40 after 20 years of pain, and I've tried everything, diets, supplements, protocols and medication (only when severe because of the side effects). None of it worked. The carnivore diet made significant difference within days, yes, days. In my life I've preferred not to eat much meat, now I eat only meat and eggs and feel great. Definitely worth a try. I was so desperate I'd try anything, I'm sure if you're watching this, you know how that feels. I don't intend on it forever, but only until I heal. I did it for about 45 days before and as soon as I veered away started to feel bad and had multiple flare ups. Now back on board and feeling good again!

[@dcwhaaat5625]

I’m vegetarian but I won’t eat meat even if it does help me. I suppose I choose an animals life over mine. (This is not an attack on meat eaters). So far nothing is really working for me... my thighs, hips, elbows and a toe have recently flared.... just when I was getting used to the back, ankle and finger pain. Never ending!

[@dcwhaaat5625]

Do any of you get inflamed joints where your finger or toe get distorted? My rheumatologist said I have axial spondyloarthritis, and so far I hear a lot of people with back pain etc, but I have more than just back pain. I’m just confused...😞 he said I don’t ‘fit in any category’... but I just want to check what others have...

[@ThoseBrothers]

@@dcwhaaat5625 i only experience pain in back, hips and sometimes neck. Exercise and stretching helped me but not enough. I think the carbs and sugar im consuming is impacting me. Im going to try keto but im currently vegetarian do don't know if i can stay one for much longer :/ at worst il be pescitarian.

[@dcwhaaat5625]

Steve Nash I’ve seen that they have separated spondyloarthritis. Like there’s axial and peripheral arthritis, I reckon I’m the peripheral one. Being pescetarian is at least something. I’ve gone completely vegan. Yeah carbs and sugar is so hard to avoid, but doable. I think you need to pretend you have diabetes so you don’t eat sugar lol and think of carbs as the devil.

[@dcwhaaat5625]

Ruben I. My mum and dad are both diabetic too. I was borderline for a while but now it’s gone down. Why is it that we have more issues than just the arthritis? I wonder if it’s a thing? I also have high blood pressure (which I’m on pills for) and high cholesterol... surprisingly I should be obese the way I eat but I’m not, I’m just really unhealthy inside even for a vegetarian. Though now I’m vegan.

[@javieriribe8699]

I have it too. Keep going brother 🙏🏻

[@goldenhiraishin]

I have been diagnosed with AS as well (Jan 2017, 25 years old). It's much better now that I have developed a habit of playing football 4-5 times a week. I'm a computer scientist and I work while sitting so complementary movement is a must for me. A good habit also is to switch from sitting to standing and periodically stretch your back muscles whenever you feel uneasy. You guys will find a way, I believe it! Just like me that I love both my job and football!

[@abhijitpal503]

Which treatment are u taking?

[@accountnotfound4209]

abhijit pal exercise is the key in subsiding its affect believe me

[@gabepomasin]

Nguyen Viet Bach hi, do you still play football to this day?

[@soumishpal793]

@Nguyen Viet Bach how is ue condition brother right now?

[@pminch]

Thank you for this video. So inspirational

[@jhaytac]

The pain is unbearable 😞😞😞

[@ItsJustMe-nq1dg]

I agree…..sorry you deal with this too. 😢

[@beautyinsideout6422]

I salute to his spirit with folded hands. #REALLIFEHERO

[@KENNETHCARNIE]

So I'm not alone in having days where I am unable to get out of bed...

[@gameroutcast740]

Me too bro

[@southernlady5085]

Yes, it was good to hear that others have same problem.

[@abhigautam159]

17 year old me too :) not happy but feeling ok 🙂 reading your comments

[@travisricks3436]

I’m 38. Doctors doing tests on me now. MANY days I can’t leave the bed.

[@hello-dz8co]

​@@abhigautam159 how are you now?

[@ATSucks1]

You want to see a chiropractor and not a neck twister or a joint popper but one that uses a spinal hammer and specialized in keeping the spine in aligned, typically these will be older chriopractors. This is the one true thing that has worked for me and I have to go see a chrio about once every 3 years or so to end that pain. Also yeah, my father suffered this affliction too

[@davyg8864]

So glad i found this. I have been for a few blood tests, i had test done for rhumatoid arthiritis it came back false negative, my test for imflammation came back positive, my vitamin D came back low. I had xrays in my back/hip and hand they came back as nothing showing, my neck and back came back saying i have arthitis. Its so confusing as my worst pain comes from my back and hip and right down my left leg, although my full body aches, i wake up 2-3 times a night with my forearms, elbow and shoulders aching, my hands ache, wrist, ankles, hip and lower back, And my groin. Also have plantar fascitits in both feet, if i have over done my upper body is tight and i have difficuilty breathing. After work i feel as though i have been hit by bus, my heels are so so sore. I have been referred to a rhumatalogist but going to be a long wait. Dont know if i can wait months i have been trying to get this sorted for years this is them just doing these tests. I am so down about my day to day life, my pain on a good day is a 7 out of 10 on a bad day 10. So tired and fed up. Take meloxicam and dhyrcodiene, vitamin d, and onzeprole. Does anyone ever expierence pain i there achilles and calfs. Im am so depressed every night i say to myself maybe tomorrow i will feel better, i have been living like this for years now wondering if the next day will be better and it never is. I try to explain to people how sore and fatigued i am but its like they just dont believe me or understand how i am feeling. Often feel like giving up, if it wasnt for my family i would just give up.ARE ALL THESE SYMPTOMS SIMILAR TO HOW OTHER PEOPLE FEEL????

[@binali4971]

How old are you?

[@davyg8864]

44

[@binali4971]

@@davyg8864 best is to see a good rheumatology doctor

[@r.s.7777]

Start fasting for 3 days. After that go on keto and intermittent fasting.

[@5alami5ami]

How are you going mate? How did the tests go and did you manage to talk to a rheumatologist? Hope you're doing better

[@destaardini1114]

Amazing..❤️

[@samikhanyousafzai5278]

Thank you very much to motivate me. I lose all the hope🥺

[@TaufanPrakoso]

You are not alone 😇

[@thesanosfamily]

Just got suspect this AS from my doc.. but this still not diagnosed clearly since the tested must be send to Singapore to check the HLA B27 gen. Hopefully all can be good and will not impact much to entirely of my life if the worst case AS would come to my life.. for all AS diagnosed stay strong!!

[@alexelyna]

I got my AS since at the age of 16, only diagnosed at the age of 40. Now im 46, I dont take medication from doctor as I believe the side effect. Initially started lower back, then the pain slowly move up. Now two parts constantly flare up around my neck and middle back. Average about once a year it will attack my eyes. Yes, exercise will significantly improve the condition because it strengthen the muscle and more tolerance to inflamation. Now I got slight pain, but occasionally like once in a few month I do get cronic pain until i has to take paraceptamol + arcoxia 90mg. I didnt control my diet and exercise at all. If I do that, I feel my life less meaningful as I unable to eat freely. I started to take curcumin daily and decompress my spine before i sleep by putting a roller on my back for 30min.

[@amarghosh8663]

Can u help me for my son?

[@reaseth9214]

I am 21 I have been diagnosed with AS. I M HLAB27 positive. I m taking my medication . Its good to see people fighting with this disease. When I first learned that I have AS , the whole world around me became dark. It was difficult to feel back normal. I think I m recovering from that sinking feeling.hope that Allah will show some mercy on us.

[@ziasmailbox]

Me too..I'm 28 though

[@johnbuckner3701]

Sorry to hear that, I started to feel it at 19 but just got diagnosed at 30. You’re not alone

[@namanbohra7840]

Don't lose hope..I am 23 and I have AS..we just have to fight till the end...I am currently on exercises and ayurvedic medicines..

[@hamzanadim653]

I am 17 and I too have the same problem. I came to know about this problem this month only. From 23rd Ramadan I started feeling extreme pain in my back and went to atleast 6 doctors and then I met with a rheumatologist, did hbl27 and I was positive. I am too depressed,but I want to improve my condition. May Allah heal us and reduce our pain.

[@namanbohra7840]

@@hamzanadim653 Stay strong..May you get all the energy to go through this...just accept that and keep on going with ur life normally..You know what.. Acceptance is the key to be truly free..Good luck !

[@shreyathakur6271]

My uncle had ankolysing spondylosis from the last 4 years. He took medicines from everywhere but no relief was found and pain was increasing day by day. Then he took Ayurvedic medicine from Chandigarh Ayurved Centre and those medicines reduce the levels. Now he is feeling good. Thanks

[@laltukumarpaswan2298]

Bro ab kese hai tumhare uncle

[@abkibaar7674]

Can i contact you I am also diagnosed with as

[@ziasmailbox]

Behen.. is he healed completely? Can ayurveda or homeopathy be successful ?

[@hotenmak5209]

I love that! I created my own Ayurvedic medicine for this disease and I would never switch to modern day meds!

[@namanbohra7840]

Hello shreya..can you plz share some details

[@KENNETHCARNIE]

Mine has attacked my right eye... Vision is darkened and the migraines have taken over my life. My back and joints have hurt for years but I chalked it up to the wear and tear of my career as a paramedic, and firefighter. I have had back injuries at work of which one caused me to be out of work for 3 months with epidurals. I now just live for my daughter's.

[@tenminutetokyo2643]

Try inversion therapy - hang upside down. It worked for me. And cycling.

[@vikasraju7709]

I have something interesting for you.. me to is a AS fighter... If you want to live pain free life contact me

[@supriyaghosh7622]

It's called iritis... Just a white screen and not able to see...

[@saifeekhan2266]

U are self motivated person .

[@MrAlvinSinfulSong]

Have AS for so long that I can't remember the duration, finally got treated when my whole lower half of my body is unable to move (no pain but just paralysed). I always had leg, knee and foot pain during PE too. Now I think about it, it's not as bad as what I'm experiencing right now (as I'm typing this). Ribs/Spine hurt like crazy which ruins your sleep and left lower ribs hurting feels like you would get a heart attack any moment.

[@TheNin0007]

Are you able to move now?

[@MrAlvinSinfulSong]

@@TheNin0007 Ye

[@nickyannajones]

I just got diagnosed 2 weeks ago and I noticed my ribs hurting too. Specifically on the left side

[@MrAlvinSinfulSong]

@@nickyannajones oh you will notice more pain in different areas 😅

[@gauravbhatt5541]

@@nickyannajones my ribs are also paining but right side chest and ribs . I am just 18 and diagnosed with ankylosing spondylitis

[@logophile92]

This absolutely terrifies me.

[@monicakelley2733]

I also have AS. I must move daily to keep from locking up. It is very painful and I too have to take many breaks a day . Thk you for the posts and inspiration. Hope to converse with you in the future. Peace and thk you. M

[@ziasmailbox]

Me too

[@Vishwa2087]

I need that guys medical report

[@andrewwheeler8591]

I've got it related to Crohn's disease but it wasn't picked up until I was in my late 40s. I'm 56 now and managing quite well but if I have to put any serious effort into something that would be normal for most I fall short. Keep going all 👍🏴󠁧󠁢󠁥󠁮󠁧󠁿

[@alijibrin2883]

Hello do you have ankylosing spondylitis? There is a herbal cure for it and it works well and effective. I was recently cured from it and now I’m feeling better than okay

[@monirulislam-py5ru]

could you please help us discussing a bit about the herbal medicine

[@dobrinkastojic4825]

@@alijibrin2883 Please, can you tell me, your way. I have a big pain. Thank you.

[@dobrinkastojic4825]

@@alijibrin2883 can you tell me about your herbal cure

[@swine13]

Exquisite nachos journey: Understandably, no one really cares. This is a lonely journey that I must endure in relative silence... spurred on more by duty and obligation than of any remaining willpower or passion. And when its finished, the evidence and memories of what i went through will disappear as quickly as they were made, and no one will be any better off for my sacrifice. And while that sounds pretty depressing, consider that I am 100% not the only person who feels like their story will end up written out in a similar way. Im definitely not the only person keeping hush for the most part because I feel like no one wants to hear about it, or help. I bet there's loads of us with no real support network at our backs just grinning and bearing it, because we feel that's all we can do. I'm merely a vocal representation of a small subset of AS sufferers that feel less entitled to be vocal about being affected by AS because of very low self esteem, conditioned over time and through abuse or neglect to a point that we believe that we either deserve to live that way, or we at least don't deserve any better than settling for it Dunno what I would suggest people like me do (aside from try to be like someone else, haha 😅) im just writing it out because im all but convinced they're out there somewhere 🤔

[@anubha8813]

It felt correct what u said,we shall overcome it,lone battles won better than wid PPL who don't hv sensitivity to understand this condition.

[@Sherky59]

I've been struggling with AS and my Dr mentioned blood infusions which is called Inflectra. It has changed my life. Anyone struggling with AS mention to your Dr about blood infusions with Inflectra.

[@rajeshkarhadkar7942]

If somebody is recovered from major symptoms of AS and though doing good then please reply 🙏

[@GMaXimus95]

I have the same disease, and I,m doing box, I started it after I got the disease. But sometimes I just cant do it because of my knee, which has other problems..

[@johanamedina491]

Sameee I have AS and knee issues.

[@smriti798]

What is biologics?

[@fabiovincent6038]

best wishes to Clement as i was patient of this disease. Does swimming help relieve the symptoms

[@prodlilbooger]

yeah

[@AkshayKumar-fk6bv]

Just got my HLAB27 positive report today after weeks of sacroiliac joint pain, i was beginning to build my life and probably marry next year. I sincerely hope with medications and exercise, i am able to contain it and live a normal life 😢

[@Funfiesta11]

Are you having any episode of chronic stress before that??

[@annap1191]

Do you have to have lumbar pain to start in order to be diagnosed ?

[@reymartono5292]

I have AS too...

[@pinkykaur9419]

I have ankylosing Spondylitis! Back pain ,knees,Shoulders pain.

[@Ashish-2003]

Oo

[@BucurEST1989]

I'm interested in the biologs.

[@ondrejlukasek2041]

On the same way bro!!!

[@tahsenhossain3749]

Brother have you noticed height loss or low bone density?

[@mytravls]

in my case, the flares make the left side of my neck, head stiff with left eye inflammation in the corner. fingers have bumps. and pain in right shin since november 2020.

[@brooks6486]

My doctor suspects I have A.S, I am only 16. My neck is very stiff on one side as well and I have a lot of trouble looking to the side or behind me. I am on my way to treatment but until then, is there anything you would recommend I do regarding my neck?

[@mytravls]

@@brooks6486 do exercises, keep going. Not doing any exercises make it worse. Stop eating Gluten and dairy and see what other foods trigger pain. For me tomatoes, gluten, dairy are all bad. The inflammation in my eyes stop when there no spices in my foods. But, gluten is the main culprit

[@Tongji-os5my]

Please try the ketogenic diet. It helped me keep my uveitis symptoms in remission and I am more than 3 years now medication-free. Water fasting also works miracles. I tried a lot of eating patterns, but the ketogenic diet is the best anti inflammatory diet I have tried. There is also the carnivore diet, but I think that’s very restrictive for most people. I am sure there is a link between uveitis and insulin resistance & gut health. Maybe it is all caused by the leaky gut syndrome. In any case, inform yourself about nutrition, it may save your health. God bless us all :) P.S.: also avoid completely all „zero“ products. The sweeteners in them cause terrible flare ups in any autoimmune disease, especially in arthritis.

[@brooks6486]

@@Tongji-os5my @NK11ism Thank you very much for these tips and ideas! I wasn't expecting such in-depth responses!

[@marystacey9962]

I just found out I have the gene. I found out bc I gave platelets at a blood center. I currently see an arthritis doc due to Debilitating arthritis. No one has ever mentioned doing this test.

[@Zoltar1811]

I have this. The joint pain I can handle but the uveitis is beyond

[@alijibrin2883]

There is a herbal cure for ankylosing spondylitis, I was recently cured and it works fast and efficient it is also safe for consumption

[@Zoltar1811]

@@alijibrin2883 well what is it my friend

[@SubhaRajvi123]

@@alijibrin2883 what is it bro.. please share

[@zander2076]

I am 15/16male and i think that i may have AS. I am a competitive swimmer too, and have the same symptoms. :(

[@hotenmak5209]

I have it too but declined in taking modern medicine. I use to have the same complications but 3 years ago I created a Ayurvedic medicine and exercising regularly and also changed my diet. Now I feel better than I did when I was 21 and I’m 39!

[@rammohanragu1865]

Hello brother.. how is the pain now.

[@hotenmak5209]

@@rammohanragu1865 no pain, easily walk 10 miles briskly without pain

[@hobokendavid19]

Which combination did you create and how long before you saw results??

[@hotenmak5209]

@@hobokendavid19 mixed one clove of garlic with 1tsp of local organic honey and a third of tsp of curcumin, mix as a paste and take with with Luke warm water, every morning before food. 1 month to feel results

[@harshitamann9398]

Hello hoten Mak I too have this disease and want to talk to you about this .can we connect on a different platform,please?

[@piyasaini8578]

CAC Nerve up tablets help in balancing the vata dosha and reduces kapha dosha, and acts as nervine stimulant. It shows effective results in improving the central nervous system. It contains natural ingredients like shudha kuchala, shudha shilajeet, abhrak bhasma, praval pishti, shankh bhasma etc. This tablet helps in the symptoms related to Allergy, ankylosis spondylitis.

[@FelixArdLykke]

Is Etoricoxib Orion 60mg safe to take? I been having pain i lower back and doctor gave me this medicion and said to me to take 1 pill for 30 days! Are the safe?

[@alijibrin2883]

There is a herbal cure for ankylosing spondylitis and it works well and it is also safe for consumption, I was recently cured from it

[@dobrinkastojic4825]

@@alijibrin2883 Please, tell us, wich cura?

[@biswachat8521]

What is a typical ESR if ones has AS? Is it possible to have completely normal ESR for many months yet to have AS? Please answer.

[@yomama42020]

I have crohns and have had normal ESR and crp when scope confirmed a lot of active inflammation. I’m now having this pain down my spine that has become debilitating and speaking with my doctors about it this week. My esr and crp are currently normal, but I know this doesn’t mean anything for me in terms of inflammation.

[@ItsJustMe-nq1dg]

I have AS and my blood work is pretty normal. My rheumatologist said it is usually normal. Maybe unless you are in a bad flare. I finally found a good doc. Good luck to you.

[@ItsJustMe-nq1dg]

I was just diagnosed about 3 months ago but have struggled with this for 15 or more years. I am HLA-B27 negative also. I have been on Remicade and have noticed improvement with stiffness but a lot of pain persists. This is so tough to deal with.😢

[@M3Besh]

I'm HLA negative and have it. Is yours reactive?

[@ItsJustMe-nq1dg]

@@M3Besh No, I have had it for years. Last summer it got really bad that I had to get back on my journey to get answers. Finally, it happened. The sad thing is that I saw a rheumatologist 15 years ago and specifically asked about AS and was told no that it is a man’s disease. So it was always “fibromyalgia”. So either they were wrong or I am now a man? 😂 How did you get diagnosed?

[@M3Besh]

@It's Just Me! Had life come to a halt in my early 20s with an "IBS" diagnosis. Years of PT and MRIs (for chronic pain) later, my knees start giving out. All of a sudden, I get covid and I have ligaments/tendons tearing from feet, elbows, and shoulders---couldn't walk.

[@ItsJustMe-nq1dg]

@@M3Besh Wow you have been through it. Things were really bad when I had Covid also. All of a sudden I was getting electrical like shocks in my upper thigh/groin area that made me cry. I told my husband I felt like I was being electrocuted. My troubles started in my 20’s but it was always fibromyalgia or herniated disc in back. I was so bad my parents bought me a walker because I couldn’t walk. Now it affects the rest of my body. Had neck surgery in 2020 for myelopathy. In constant pain 24/7. Not a fun life to say the least. Are you on anything for it?

[@TCF369]

What no one says - it is related to the acidity in the gut. Look at how to neutralise this as well

[@pavelborisov515]

Yes, I have AS and some problems with gut

[@ezpainting4697]

i had this decease according to my doc. i cant even step on the ground as my both feet is so painful. i cant take nsaid as i have two stent in my heart. i am heart attack two times survivor and i am vegan 15 years ago. now i skipped alot of junk vegan food and take alot of celery ginger tumeric etc to ease my pain. i hope it will go away soon. it has been a relapsed from 2018 and already 50+ days

[@carcrobatics]

I would look into ketogenic and even carnivore diet. They have been showing some miraculous effects to people with auto immune diseases. I myself have been diagnosed with AS two months ago and I am starting keto now, but I may have to dedicate to carnivore to redeem the full effects. I'm not sure if these diets can also cause you in particular any further issues.

[@ThoseBrothers]

@@carcrobatics hey man thats sounds very interesting. Iv been struggling with AS for a few years. This years been the most challenging. I am very active and stretch alot but it honestly doesn't help me enough. NSAI drugs generally help but arnt thr solution. Im finally turning to my diet. As i do have a bad sweet tooth i feel sugar is just feeding the inflammation. Im gonna do more research into keto but i think im gonna give it a shot but im currently vegetarian :/ so idk how that's gonna work.

[@carcrobatics]

@@ThoseBrothers I'm absolutely addicted to sugar, like most people. The relief is supposed to come after a long term dedication to the diet, you eventually lose your cravings and appetite for sugar filled foods. I really feel for you as you said you are currently a vegetarian. I never was, but my girlfriend of 5 years always has been. The truth of the matter is animal products are just so incredibly beneficial for the human diet and it is what our bodies are most developed to eat. I don't really know whats possible for a vegetarian on keto, but one of the reasons why carnivore is so good for inflammation is because there's a lot of vegetables out there that can cause inflammation as well. My goal is to get to a point where I can quit my NSAIDS and start reintroducing foods little by little. Good luck, AS is just rotten.

[@carcrobatics]

@@MyLifeWithAS I'm not sure how your diet is affecting your calcium levels, and I'm curious as to what a normal Vit D level is? I'm on track to get blood work done and I'll be talking to a dietician hopefully as well before I full commit to keto here. I can say it's been about 5 days since starting and I'm feeling a few improvements but my energy levels aren't great at the moment either. Probably the biggest change so far is being able to be completely well rested after just 5-7 hours of sleep.

[@carcrobatics]

@@MyLifeWithAS Thanks for the reply. I should be getting my first round of blood tests really soon. Thanks for the information and sharing your experience. I've started to get more sun lately to help my vitamin D levels, but I'm curious about your sun exposure? I feel like everyone is a little different, so some things will work better for others, but all at the same time I feel like we just have to be Guinea pigs sometimes. It seems like you're being smart about what you're doing though.

[@troyrodgers9790]

my doctor has just diagnosed me with this. but my symptoms suddenly started last august. ive had lower back pain and stiffness on and off. for years but sometimes i would be fine. now i have pain everywhere and seems to spreading and affecting even my digestion. just started in my neck two weeks ago and i never had neck issues before. it has also caused me to suddenly start losing weight and mostly muscle. i was fit and active being a former athlete and eating a mostly plant based diet. no dairy or red meat or pork. there has to be more to my situation than just AS because this has gone from no symptoms to me barley being able to function do to pain, loss of muscle function and weakness in just 6-7 months! it feels like my body is shutting down 😞

[@tenminutetokyo2643]

Same thing happened me in '16. 190 lbs of solid muscle. I began to get stiff and lost 60lbs of muscle in 4 months. I was exercising a lot and cycling. I wasn't that out of shape. I attribute it to sugar. I was unwittingly eating a high sugar diet without realizing it: fruit, cereal, OJ, sugar in milk with my coffee every morning, then I went on a fruit smoothie kick (very dangerous - fruit is full of fructose), then topped it off summer of '17 with eating too much ice cream (turns out ice cream and pancakes are the most dangerous foods in the world). Even a bowl of steamed white rice is full of sugar. Something tipped me over the edge and my progression got way worse. I found out too late in '19 my entire neck had fused and now I have brain issues too. I attribiute it all to sugar. I notice if I cut all cars and sugar for 3-4 days I start to feel a lot better. I am going to try cutting them for good and see how I feel in a few months. I also have pain body-wide. No one can diganose it. Sweating is also very important, I believe. Also see Dr. Ashwani Maichand's channel. He has some good vids on AS and on bone issues. Unfortunately he is in India.

[@alijibrin2883]

Hi there is a cure for ankylosing spondylitis I was recently cured and it is safe and works fast

[@tjgrafiks]

@@alijibrin2883 what’s your cure?

[@alijibrin2883]

@@tjgrafiks dr nafuar

[@dc.pentrumesteri4893]

@@alijibrin2883 sal zimi te rog ce ai făcut să fi bine cu spondilita că pe mine mă omoară cu plamanii

[@KawaiiandDark]

I'll find out if I have Ankylosing spondylitis this month I've had joint pain since I was 12 and for the last year my lower back and hips have been hurting, my lower back pain is where touching it brings me to tears My doctor also believes I have fibromyalgia This is going to be a long and tough battle Wish me luck

[@andrewwheeler8591]

Best of luck, regards Andrew

[@lavitra.]

Hey, would you mind sharing if you did get diagnosed with it.. or anything else, and how you are now?

[@KawaiiandDark]

@@lavitra. I'm bad to square one, luckily my MRI results showed nothing and so all my doctors know is that I have inflammation

[@lavitra.]

@@KawaiiandDark feels bad man. It was the same case with me for years, until recently my rib decided to swell up and show clear signs of inflammation. Only then the doctors diagnosed me with A.S (although the gene test still came out negative) and prescribed some medicines. Hopefully they will work and i can live a less painful life. Wishing all the best for you too.

[@KawaiiandDark]

@@lavitra. I've just been working on eating better and better and exercising to help Ever since I started cutting out sugar as much as possible and switched to eating more vegetables and switching any grains I have to whole grains I haven't had as many flare ups

[@Hawk12manfan]

I think I have this😥

[@ShubhamR4295]

What are your symptoms ?

[@jeanneamato8278]

One thing doctors should strongly suggest to their AS patients is to go full plant based vegan. No Vegan junk food. I’m 66 and it has helped me greatly. I also have OA and slight s curve in back. I also was very overweight and was type 2 diabetic. That went away the first month I went plant based. I also lost 80 lbs in 6 months. Every once in awhile I’m stupid and eat tuna or cheese or sugary stuff. I pay for it for weeks. What have you got to loose? Please please consider it!

[@adrian6591]

I'm so happy for you , but I can't find the willpower to eat just plants.

[@binali4971]

I have anklosing spondylatis since 20 years and I live normal no one even knows. I compete is swimming with my colleagues and do body building beside a leadership role in the company I work for. I am on biological, you can live normal.

[@jagatheesanchandrasekharan7248]

Understanding Ankylosing Spondylitis: Clement Kim’s journey

[@Razan-bm7yv]

الله يشفيك

[@user-iv4zg8vq1f]

انتي عندك نفس المرض

[@healthbuzz4369]

Nice 👍 #caas_india

[@AkramAnsari-mb2cp]

I am also safaring 😭

[@Graha27]

Well i used to professional swimmer breastsroker. I used to be 1.94m, now i am 5cm shorter. 10 years after my retirement from swimming i can not swim breastsroke anymore, my back does not curve as well as before despite my age 34. It is sad seeing that you are slowly but gradually turning into a disabled person who will be a burden for family and friends at older age.

[@iTouchin]

Hi I'm 26 and I'm still in the process in finding out if I have AS, you mentioned not being able to arch? In your case do you mean arching forward or hunching? I only ask because my spine has been fixed in one position since 13 (not able to remember if it was like this prior). It's always perpetually straight and embarrasingly enough I have a mild case of hyperlordosis so it seems like my butt sticks out constantly. Going back to my spine, I also find myself unable to independently rise up from a sleeping position. Almost as if I lost the sensation of knowing how to do so... It would be comforting to know if these are some similar symptons of AS as I can't find any mentioned online. Many thanks for your time

[@tenminutetokyo2643]

It started in me when I was 32. Unfortunately doctors didn't tell me how serious it was. 17 years went by before I discovered by entire neck had fused and is ruined forever. Doctors need to be much more serious and proactive about this and tell people what it can do to you. I think exercise and diet are critical to staying strong. I gave up all carbs and sugar for good.

[@bluestonepika_pikaaachuuu1309]

Haha, here iam, in this group of suffering people. It's amazing how all of us have an immune system who is confused, a body which is killing itself and all these baffaloes who are running in random directions. What a wonderful wonderful life.

[@SunilKumarplanet]

आपने बहुत अच्छी जानकारी साझा की है। मैं भी इस समस्या से गुज़रा हूँ। मुझे उस समय बहुत बुरा लगा। मैं कई क्लीनिकों में गया, लेकिन परिणाम के कारण मैं हिम्मत हार रहा था। तब किसी ने उन्हें Planet Ayurveda के बारे में बताया, वे वहां गए और उपचार किया। अब वह ठीक हैं। तो, अगर किसी को इस तरह की समस्या या किसी अन्य स्वास्थ्य संबंधी समस्या का सामना करना पड़ रहा है। आपको Planet Ayurveda जाना चाहिए।

[@laltukumarpaswan2298]

Ab kese hai aap? Please help me

[@abhijitpal503]

Biologic are not Risk free...

[@shaikshafi1284]

What did you get

[@alnooribrahim8074]

Biologics are very costly Medicine. Everydobdy cannot afford it

[@sujoykumar5702]

My immune system is my enemy🙂

[@josephpedone9147]

These flares are so bad. No insurance, can’t live w this for too long

[@dstubbs5605]

When I dont have insurance (from time to time) look up the financial assistance program for Embrel or cosentyx or other biologics your Dr. reccomendes you take and they will give you for free or $5.00 a month. But biologics help with the pain and stiffness. Ask a Dr. to help with financial assistance.

[@hressifavitinn9524]

Intermittent Fasting and Yoga help a lot, you can do Yoga at home with KZbin.

[@arvind10in]

@@hressifavitinn9524 kindly eloborate regarding yoga exercises

[@hressifavitinn9524]

@@arvind10in It depends on your condition and how badly affected and where you are affected which excercises you should do and not do. I would recommend som gentle Hatha Yoga to start with and if something hurts then dont do that pose. Things like Cat-Cow(absolute winner), puppy pose, Cobra and downdog are good starters. I do Vinyasa Yoga but that is a bit harder if you are unfit, but i recommend trying everything and really being honest with yourself about where your limits are and not turning yoga into a performance-thing.

[@arvind10in]

@@hressifavitinn9524 I WAS HAVING PAIN IN MY SPINE NEAR THORACIC , I THINK IT HAS DUSE NOW . I AM HAVING PAIN IN MY SHOULDER AND NECK. UNABLE TO TURN HEAD SIDEWAYS.

[@scottrichard1662]

My L4-L5 is fused together from this disease (started from a herniation)my neck is becoming a problem now and cant move arms. No doctor has givin me hope i except to be in extreme pain Till it gets to bad i will have to kill myself. And as for medication my doctor is putting me humara, which basically suppresses your immune system fun times side note symptoms appeared when i was 17..... i wasnt diagnosed till 33 so if you have this disease dont plan on finding out about it till its wayyyyyyyyyyyyyyyyyyyyy to late

[@tenminutetokyo2643]

Aspirin therapy folks. And stop eating all carbs.

[@user-iv4zg8vq1f]

Do you get better

[@tenminutetokyo2643]

@@user-iv4zg8vq1fYes, but it is difficult. You must mainatin a strict diet always. No sugar - ever. There are also documents linking it to diabetes (chronic insulin drives tissue growth). Search NCBI.gov

[@user-iv4zg8vq1f]

@@tenminutetokyo2643 you mean you have no pain really no pain

[@tenminutetokyo2643]

@@user-iv4zg8vq1f Very little. But it takes a long time to recover. 2-3 years. Try eating only green vegetables, no processed food, no carbs or sugar, no coffe or alcohol. Read the book "How I Healed My Arthritis" on Kindle. It works - if you can stick with it.

[@user-iv4zg8vq1f]

@@tenminutetokyo2643 ❤️❤️❤️❤️ thanks little in your back or your all body

[@allotmental.]

Eating a good diet and not taking anti inflammation pills is far better for you. A 25 Yr AS man xxx

[@allotmental.]

@@goodlifetony Its not a particular diet but I try to avoid yeasty things 👍. My 26 yr AS anniversary is this Sept 😬

[@illdiz]

Tony Sinatra same. Pain management doc said degen disease and I waited so long to go to an arthritis doc and she did one mri scan of my pelvis and immediately diagnosed me with AS. Messed up thing is.. I’m negative for that BHLA but the MRI doesn’t lie.

[@illdiz]

Tony Sinatra the next video on my TY search said the real shame was that people didn’t catch it in time until it was too late and we all know the damage is irreversible. I try and wake walks but they really really hurt to where my hips feel like they are about to fall off. I will def look into PT though. That’s something I haven’t dedicated myself to basically for your same reason. Insurance doesn’t cover it or it’s a half chiro and half PT so they do but PT isn’t skilled in AS.

[@illdiz]

Tony Sinatra I feel like his breathing exercises are my crying exercises. I think it’s just being over tired. No amount of sleep ever comes easy. I’ll definitely give it a try. I did a search and didn’t find anything on AS yet but there are a couple vids about inflammation. Doc also recommended Thai chi (instead of yoga) I guess it would be more in line with PT movement with slower stretches and more movement.

[@illdiz]

Tony Sinatra Oh my god! That animation of the immune system cracked me up. What is this stuff? Idk.. get rid of it. But what if we need it? Those sacro joints are a bitch. Pain doc convinced me to try injections again. Taking a needle into an inflamed area does not feel very good at all. Said it would take three days. I’m on my third day and no help whatsoever. Pain doc is private but main hospital is Rush which is a university. I suppose it couldn’t hurt to try another university. I just have such a hard time believing none of these hard core meds helped anything. Except for steroids for one month and then everything came back worse and they don’t work. Confusing as hell.