Understanding Guillain-Barré Syndrome (GBS) with Dr Hans Katzberg

[@edclairmont5564]

I came down with GBS one week after recovering from Covid 19. I experienced numbness , pins & needles effect in my feet & hands. I was admitted to the hospital on March 22nd , unable to stand . After a spinal tap I was given IVIG . I was unable to move causing me to be bedridden for 17 days. Gradually I regained some movement. On May 2nd I started physiotherapy, On June 1st I was dischard being able to walk with the use of a walker. I am able to walk without any devices. I owe my recovery to the excellent care of all caregivers at the Health Science Centre in Winnipeg, Manitoba Canada. For a man my age 80yrs , I consider my self lucky to have such excellent care.

[@sheiladraper2682]

My daughter is diagnosed with GBS. She is doing better!

[@kennethwalker7768]

This presentation was very truthful, informative and encouraging. I am undergoing treatment and rehabilitation. I am engaging the supports mentioned and I am hopeful and expect recovery. Thank you.

[@hardyakka1499]

Hospitalised with GBS in August 2022, 24 hours after contracting covid 19. 7 weeks later I am struggling with weakness in my left leg and arm plus chronic fatigue. It was very frightening and for a moment I thought I was going to be paralyzed for ever. My hopes to everyone suffering from this illness.

[@mihaisandu2410]

How are you now?

[@majeedkhan478]

Hello I want to know about your health condition now, because I was also diagnosis from GBS in September 2022. But my condition is not good yet I need your support

[@kambam011]

This is what happened to me last year!!!!! Its been a whole year now and still my left side is still not strong enough. I still can't feel and don't know how to go about my daily life sometimes...

[@kambam011]

​@@majeedkhan478I had alot of support through family and friends. But the pain is always there regardless of taking the gabapentin and ibuprofen or acetaminophen.... I try to do all of the PT exercises but still the pain had always been there. I mean there's really nothing like they said it takes time......how long? Who knows.

[@CaliChaos99]

I had GBS in 2011, a severe case but I recovered slowly and a rare relapse in 2015 and I’m better to a point , some days are good some days are really bad , but I remain hopeful. Working out (whatever that looks likes for you) helps endurance and strength. I can walk, drive (have issues with right foot) so not long drives. Always grateful for the small things and how far I’ve come. I was paralyzed head to toe .

[@ArleneHeer]

I was diagnosed with GBS in October 2022. I spent 5 days in the hospital getting IVIG. Thankfully my Respiratory System was not involved, but just about every other system was involved .After 8 months of PT I was not improving. The neuropathies were incredibly painful. (And still are) my neurologist told me at this point my symptoms are permanent. I continue getting IVIG Every month for over a year. I have accepted my disability and learning to live with it. Best of everything to others with this crazy disease.

[@EdKading-qo7cm]

I was stricken with GBS after a day surgery. Over 5 days I became paralyzed and spent 3 weeks in the hospital (ICU) and physical therapy. Received IVG and now at home. 6 weeks in, no real improvement. Doesn’t feel like I’m ever going to get better, have lost all my hobbies and the depression is immense. God bless everyone with GBS

[@NO_Expectations]

I suffered badly from Guillain Barre Syndrome it started on 14th December 1999 within 4 days I was paralysed from the neck down with very little movement in my arms but none in my legs. I spent 18 months in a hospital bed before I could even start to learn how to walk again. The myelin sheaf on my nearves never grew back properly leaving the nerves exposed especially in my joints mainly knees and ankles exposed, this causes tremendous pain but also I cannot control my body temperature anymore. All they do is give me strong opioid pain killers that work to a point but I am still in constant pain. I am alone with no family or friends now turning 60 the age is just making the pain worse, I cannot sleep and no one really understands what I am going through. Yes I had a bad case of flu the year before my conclusion is that the flu virus gets into the fatty myelin sheaf then spreads until your immune system notices it then starts attacking the virus but also damages your nervous system. I cannot find a doctor who can tell me if this is a plausible reason for the cause of Guillain Barre Syndrome.

[@zaraengland4787]

So sorry to hear this I am a sepsis survivor and GBS survivor too. There are so many of us don’t be alone x

[@pauldobson312]

Had GBS in 1989, confirmed with a spinal tap, in ICU and vented, full recovery and lived a perfectly normal life. As the doctor said its not expected to hit twice but did for me so again in 2020, GBS confirmed by a spinal tap, 10 days after a vaccination which triggered it.

[@gamaltaher9714]

Thanks

[@marytierney6048]

Just had GBS for third time though much milder than previous 2 times.

[@prayerstojesus]

got gbs on 17th April 2019 still recovering can walk but yes cant run and jump but cannot walk on uneven surface need stick assistance was given 7 rounds of plasma.p was in hospital for 9 months now home no medication only evion lc two times is there any medicine doc where i can gain strength on my feet so i can jump and walk tremors still persists in hands exercising daily pl advice. tai.

[@geeob6918]

Sounds like you have a very weak nervous system and it has been attacked. Try building up your nervous with natural substances and you may even have a low Vitamin B efficiency which helps to keep the nervous system healthy. Doctors dont tell you that because they want to keep people on drugs so they can stay in business

[@عليمحمد-ر1ج3ب]

I am injured from the age of 5 years, now I am 34 years old, is there a treatment now?

[@mansurachampa8712]

I'm a GBS patient in two years and i can walk bt I can't run and if I tried it so my lages are injured by myself and I'm so frustrated for that . what can I do now?? I want a normal life and I have a question can I back in my normal life or not ?

[@geeob6918]

Try natural things that build up your nervous systems Sometimes a Lack of B can cause your nervous system to fail.

[@hannapriyanka]

I’m patient of MFS variant of GBS it’s been 4 years I’m stilwith weakness. Can’t walk without support.

[@franhar8292]

I really want to get the RSV vaccine but i heard you could get GSB. Im 72 yrs old and reglan gave me parkinsonism. What do you think?

[@edclairmont5564]

I came down with GBS virus 12 days after getting over the Covid virus. I had received previously 5 vaccines, I spent 41 days in the hospital & 30 days in Rehab Hosp. I have full movement of my legs & arms. My doctor told me not to get anymore Covid or flu vaccines. I am taking vitamin C ,D & Zinc to strengthen my immune system.

[@pablovicentetixfamily6961]

Don't screw with your natural immune system. This is exactly how we get autoimmune diseases. Our bodies attack ourselves now instead of knowing how to attack even the simplest of viruses or bacteria.

[@gamesdog9067]

My dad has developed this two weeks after getting the cov19 booster.

[@doriswalsh3929]

My twin sister has this still recovering

[@geeob6918]

why not build up the nervous system so it can fight off the proteins that attack it.

[@samkitty5894]

Actually GBS is caused by over active auto immune system. Your body attacks itself. So logically to help this they need to give you immune suppressant. Like they do after organ transplant. So your body won't reject the new organ. But, if they do give you immune suppressant that would leave you exposed to common illnesses...like flu, cold, pneumonia, etc.

[@carolinekaibiria9377]

Had gbs 2020 was paralyzed but I'm ok now

[@armanesquejo6391]

Hi cidp canada pls help my son gbs patient now in phillipines pcmc hospital

[@dannymarshburn2807]

I am still paralyzed and suffer daily. I want to give up.

[@LethalMayo]

Dont give up. Thats the saddest comment ive seen.

[@mihaisandu2410]

Don't give up Danny! I went through Covid induced GBS January of last year. I was barely able to walk, not at all run or climb stairs, had to use my arms to support myself in many daily activities. It also didn't help that becasue of the "mildness" of my symptoms (i.e. I was still walking to some extent, had no speech impairment, hands/arms weren't affected) the doctors diagnosed me with fatigue after the virus. I was 20 and every day I wished it would go away! I was given no treatment whatsoever, and lived without knowing what happened to me for 8 months until I was able to see a neurologist and given a diagnosis. I'm still recovering even now, improvement is slow and I regained some strength in my thighs (even though they still look like sticks haha) and my calves are almost dead, can't raise on my tiptoes or "run" more than 2-3 steps. I can't help but think that if I had a better initial diagnosis I would be in a better place now but I'm trying to be positive and always think about those who suffered more from this painful disease. Always push on, never stop, that's the only thing no one can take from you, your will to move forward! All the best and don't lose sight of your goal to recover!

[@epicmeditations7571]

​@@mihaisandu2410 & @Danny Marshburn I can relate to both of your experiences. I am 40 and have been in good health all my life. I got Covid Dec 2020 and it was very mild but on day 13 of my quarantine/recovery, I found myself embarking on a new hell of living as GBS robbed so much from me. I awoke to numb hands that had no strength or dexterity to do anything. Overall feeling in my legs and feet had lessened but my main concern was my hands. It took me 5 weeks of rehabilitation to get some function of my right hand to return and 7 weeks for my left. Nearly 2 years later, I still have struggles with my hands and what they can do on a day by day basis. While I was fighting to get my strength back and learn how to live with numb hands, some mornings it would take me 10 minutes to put on socks. Every day it feels like I am running a marathon. I am tired and doing anything makes me even more tired. I often tell my coworkers I know the moment when I wake up if the day is going to be good or bad. Chronic fatigue and the pain and the numbness has left me wishing everyday that this would end and I would wake up healthy again. To be normal again. I used to be very active and did lots of physical stuff. Now I actively struggle to be present in this evolving world. Those around us never truly understand the hell GBS is and the havoc it causes. But I know you can related and understand. We all can. Life is hard. Living with GBS is hard too, but even in the hard times, there is beauty. Life is still beautiful! Don't give up and I know that if you fight for those small victories, you will succeed. You aren't alone and you have a purpose here on this earth. We all do, otherwise we would have been called home to our Creator long ago.

[@mihaisandu2410]

@@epicmeditations7571 that’s tough to hear, I’m a 3D artist and I can’t help but think how much worse my life would have been if my arms and hands were affected so in a weird way I got to appreciate my condition and that it didn’t affect my life more. I’m glad to hear you are better, don’t stop finding new ways to exercise your arms and hands, even now I’m researching and finding new exercise s for my feet and legs while sitting down at the desk to passively work the nerves and muscles outside of the active exercise routine. Keep on fighting and if you ever need to talk with someone drop me a message. Sharing our grief with those who understand it is a valuable thing

[@charlesdavis7461]

Danny, people do get depressed because of not recovering fast enough. Do not quit my friend. My wife got GBS from a flu shot. Vaccines can be a blessing or a curse. Have you taken Pregabalan (sp?) it may help with the tingling and pain, my wife has it. Everyone says it's rare but I read about so many cases. Get physical therapy, they can do wonders but not miracles.

[@samkitty5894]

How is GBS or it's cousin CIPD diagnosed? I have neuropathy below my waist that feels like GBS. I've seen army of doctors and specialists over the last 9 months. X-rays, CT scans, EKGs, MRIs, nerve conductivity studies, etc, etc. No diagnosis at all... So frustrating. Maybe they are hiding the dignosis due to my advanced age. GBS takes months even years to treat, and that costs money. I went from being 100% mobile to unable to walk. My legs feel like concrete blocks.

[@alandearing8380]

ρɾσɱσʂɱ ✌️