Understanding how having Rb affects how you think and feel

Retinoblastoma is a rare eye cancer affecting 40-50 UK children a year. Although it is highly curable, this experience can leave some people feeling complex emotions, including worry, anger, or sadness. These feelings can occur when they are least expected, sometimes even many years after their diagnosis and treatment. At the moment there isn’t much targeted support to help teenage and young adult Rb survivors with these feelings, and we want to do something about this. This support needs to be both backed up by scientific evidence and reflective of the wants and needs of real people affected by Rb, which is how Nicola O'Donnell's PhD was developed.