Current Treatments for GPA and MPA including Avacopan

[@sharonputnik4774]

I just found this group. And have to say this video with information about vasculiitis is far more news that I have gotten in 5 years living with GCV. I have been on predsone all this time. The information I got today will use for myself in hoping to find treatment that is right for myself. Thank you so much for all your help. Will search now and join your website asap. Thank you so much. Smiles from Toronto Canada.

[@bobowens9640]

My son was diagnosed with MPA. He is very sick, has had 5 blood transfusions. Has diabetes. Has lost alot of work days . They had him on chemo pills for 2 weeks, made him worse. I'm praying you can help.

[@vasculitisfoundation]

We are so sorry to hear about your son. Please reach out to our patient support coordinator with what questions you have and we will do our best to provide the help you are looking for. Here is the form to use to contact her. She responds very quickly. www.vasculitisfoundation.org/about/contact-2/ You can also find additional information on our website. www.vasculitisfoundation.org/education/forms/microscopic-polyangiitis/

[@bobowens9640]

Is it common to have your hemoglobin keep dropping with MPA. My son has had 5 blood transfusions. Just started on his infusions a week ago.

[@vasculitisfoundation]

Sometimes low hemoglobin in vasculitis is associated with kidney injury. Your kidneys produce a hormone called erythropoietin. Erythropoietin signals your bone marrow (the spongy tissue inside most of your bones) to make red blood cells. If less erythropoietin is being produced because of damage to the kidneys less red blood cells are being produced by your bone marrow. There could be reasons, other than kidney involvement, that could cause low hemoglobin with vasculitis, but that is the most common cause in MPA and other types of ANCA-associated vasculitides.