I am sorry the doctors didn’t listen to you until you met the right one. You are a strong family and i wish you all the best.
@eugenieskinner5125 ай бұрын
You are an incredible and beautiful family. ❤ xxx
@sarahelliott79266 ай бұрын
She seems happy, and loved. I hope that someday they are able to come up with a medication or treatment that will slow the progression of this disease until a cure is found!❤❤
@cherjohnson58076 ай бұрын
Thank you for sharing❤
@lindamarie65746 ай бұрын
God bless your family!
@icare4you1236 ай бұрын
Heartbreaking. Since it's such a rare disease I wonder if it doesn't show up in prenatal testing like Downs Syndrome does. Emmy seems like a happy little girl and she's well cared for. May her family find strength and peace.
@BenjaminIsMYKING6 ай бұрын
🙏💜🙏💜🙏💜🙏💜🙏💜🙏💜🙏
@MarijkeRuiten-zm4zg6 ай бұрын
m.kzbin.info/www/bejne/p5KYfI2be9d_l9E&pp=ygUOSGVzc2VsIGVuIE1pbGE%3D I was a mother of two Vici children, here is our movie. I recognize a lot in your movie. Answers to the other replyers: There is no cure for chromosomal rare diseases. The group of Vici is far to small for a regular test. Only when it is known in your family you can ask for it. As parents you are both carrier of the fault chromosome. Than it is a change out one of four you will have a Vici child! Down syndrome is a very common group, that is why it is standerd tested if you want.